Civic Intelligence

Lymedisease Org

990 • Fiscal year 2020 • EIN 68-0214101

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 05, 2021

Organization Profilewww.lymedisease.org
PO Box 716San Ramon, CA 94583

(510) 807-0133

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

23rd percentile

0.01x

Higher debt load relative to assets than 23% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

21st percentile

0.01x

Higher debt load relative to revenue than 21% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

91st percentile

55%

Higher net margin than 91% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

68th percentile

$98,040

Higher top officer pay than 68% of similar nonprofits.

Top officer pay equals 7.9% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

91st percentile

80%

Faster asset growth than 91% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

93rd percentile

99%

Faster revenue growth than 93% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets23rd percentile

Assets

Up

$1,668,448

Up $740,236 (+80%) from 2019

Net Assets

Up

$1,658,687

Up $738,028 (+80%) from 2019

Liabilities

Up

$9,761

Up $2,208 (+29%) from 2019

Revenue And Expenses
Liabilities / Revenue21st percentileNet Margin91st percentile

Revenue

Up

$1,243,802

Up $619,791 (+99%) from 2019

Expenses

Down

$559,039

Down $62,139 (-10%) from 2019

Net Income

Up

$684,763

Up $681,930 (+24071%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2015: $638,150Liabilities 2015: $4,809Net Assets 2015: $633,3412015Assets 2016: $669,107Liabilities 2016: $20,272Net Assets 2016: $648,8352016Assets 2017: $877,410Liabilities 2017: $26,664Net Assets 2017: $850,7462017Assets 2018: $886,446Liabilities 2018: $31,846Net Assets 2018: $854,6002018Assets 2019: $928,212Liabilities 2019: $7,553Net Assets 2019: $920,6592019Assets 2020: $1,668,448Liabilities 2020: $9,761Net Assets 2020: $1,658,6872020Assets 2021: $1,816,385Liabilities 2021: $3,888Net Assets 2021: $1,812,4972021Assets 2022: $1,650,988Liabilities 2022: $13,790Net Assets 2022: $1,637,1982022Assets 2024: $1,582,758Liabilities 2024: $11,523Net Assets 2024: $1,571,2352024

Highlighted filing

2020

Assets$1,668,448
Liabilities$9,761
Net Assets$1,658,687
Open 2020 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2015: $458,130Expenses 2015: $413,330Net Income 2015: $44,8002015Revenue 2016: $565,079Expenses 2016: $549,585Net Income 2016: $15,4942016Revenue 2017: $699,727Expenses 2017: $539,933Net Income 2017: $159,7942017Revenue 2018: $626,533Expenses 2018: $637,582Net Income 2018: -$11,0492018Revenue 2019: $624,011Expenses 2019: $621,178Net Income 2019: $2,8332019Revenue 2020: $1,243,802Expenses 2020: $559,039Net Income 2020: $684,7632020Revenue 2021: $619,817Expenses 2021: $534,560Net Income 2021: $85,2572021Revenue 2022: $697,297Expenses 2022: $619,251Net Income 2022: $78,0462022Revenue 2024: $569,401Expenses 2024: $682,298Net Income 2024: -$112,8972024

Highlighted filing

2020

Revenue$1,243,802
Expenses$559,039
Net Income$684,763
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 5, 2021
Return Version
2020v4.0
Gross Receipts
$1,243,802
Mission and Program Overview

Mission

LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.

Lymedisease.org (formerly CALDA) advocates nationwide to make the patient voice stronger, to support patient-centered research, to create legislative change, and to create a future where Lyme patients can receive the treatments they need to get well.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$920,659$1,658,687▲ $738,028
Savings and Temporary Cash Investments$678,190$1,583,368▲ $905,178
Cash and Non-Interest-Bearing Accounts$205,371$85,080▼ $120,291
Accounts Receivable$37,058$0▼ $37,058
Land, Buildings, and Equipment, Net$7,593$0▼ $7,593
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$928,212$1,668,448▲ $740,236
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$7,553$9,761▲ $2,208
Total Liabilities$7,553$9,761▲ $2,208
Net Assets / Fund Balance
Total Net Assets Fund Balance$920,659$1,658,687▲ $738,028
Total Liabilities and Net Assets / Fund Balance$928,212$1,668,448▲ $740,236

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$99,382$99,382
Compensation and Service Providers
Top Officer Pay68th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lorraine JohnsonCEOFT$98,040$98,040

Board Members and Trustees

NameTitle
Ron LindorfChair
Phyllis Mervine EdmPresident
Dorothy Kupcha LelandVice President
Caleb ManscillDirector
Christine GreenDirector
Erica LehmanDirector
Raphael Stricker MdDirector
Mitchell HoggardTreasurer
Barbara BarsocchiniVP & Secretary
Revenue and Support

Revenue Composition

Contributions and Grants
$1,132,194
Program Service Revenue
$0
Investment Income
$111,608
Other Revenue
$0
All Other Contributions
$979,789
Change in Net Assets
$684,763

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$52,428Fair Market Value (FMV)
Total Noncash Contributions1$52,428-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$283,775
Salaries, Compensation, and Employee Benefits$275,264
Total Fundraising Expense$9,266
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$164,096--$164,096
Current Officers, Directors, Trustees, and Key Employees$83,334$14,706-$98,040
Fees for Services Other$58,370$20,914-$79,284
Information Technology$74,843--$74,843
Conferences and Meetings$61,834--$61,834
Fees for Services Accounting$27,210$6,803-$34,013
Payroll Taxes$11,815$1,313-$13,128
Office Expenses$1,337$406$9,166$10,909
Depreciation Depletion$7,593--$7,593
All Other Expenses$437$94$100$631
Other Expenses$581$4,812-$581
Insurance-$10-$10
Total Functional Expenses$494,796$54,977$9,266$559,039
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The ceo and treasurer review the form 990 and submit it to the directors for comment.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The board discusses compensation when it is to be changed. At the time of implementation the board considered comparable compensations at other non-profits.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Lymediseaseorg
EIN
68-0214101
Phone
5108070133
Address
PO BOX 716, SAN RAMON, CA 94583

Signing Officer

Name
Mitchell Hoggard
Title
Treasurer
Signed
2021-11-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mitchell Hoggard
Formed
1990
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
15

Preparer

Firm
Propp Christensen Caniglia Llp
Address
9261 Sierra College Boulevard, Roseville, CA 95661
Preparer
Thomas E Propp CPA
Phone
9167512900
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IRS990/ProgSrvcAccomActy2Grp/Desc0Research- We conduct and publish research through one of the largest study of Lyme disease through our patient registry and research platform, MyLymeData, with over 13,000 patients enrolled to date. We collaborate with researchers from the University of Washington and from UCLA, as well as Bay Area Lyme Foundation biobank on a tissue specimen biorepository.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0197918
IRS990/ProgSrvcAccomActy3Grp/Desc0Advocacy- we strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patients and provide them with the tools essential to empowerment. For over 10 years, we have been involved in patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are published in peer reviewed journals.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE CEO AND TREASURER REVIEW THE FORM 990 AND SUBMIT IT TO THE DIRECTORS FOR COMMENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON-PROFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
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Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,668,448
Liabilities
$9,761
Net assets
$1,658,687
Revenue
$1,243,802
Expenses
$559,039
Net income
$684,763
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.58$0.01$1.57$0.57$0.68$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.01$1.64$0.70$0.62$0.08
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.82$0.00$1.81$0.62$0.53$0.09
2020Detailed filing. Detailed filing data is available for this year.$1.67$0.01$1.66$1.24$0.56$0.68
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.93$0.01$0.92$0.62$0.62$0.00
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.03$0.85$0.63$0.64$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.88$0.03$0.85$0.70$0.54$0.16
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.67$0.02$0.65$0.57$0.55$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.64$0.00$0.63$0.46$0.41$0.04