Civic Intelligence

Lymedisease Org

990 • Fiscal year 2019 • EIN 68-0214101

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 06, 2020

Organization Profilewww.lymedisease.org
PO Box 716San Ramon, CA 94583

(530) 570-1811

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.01x

Higher debt load relative to assets than 39% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

41st percentile

0.01x

Higher debt load relative to revenue than 41% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

41st percentile

0.5%

Higher net margin than 41% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

86th percentile

$95,000

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 15.2% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

54th percentile

4.7%

Faster asset growth than 54% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

39th percentile

-0.4%

Faster revenue growth than 39% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$928,212

Up $41,766 (+4.7%) from 2018

Net Assets

Up

$920,659

Up $66,059 (+7.7%) from 2018

Liabilities

Down

$7,553

Down $24,293 (-76%) from 2018

Revenue And Expenses
Liabilities / Revenue41st percentileNet Margin41st percentile

Revenue

Down

$624,011

Down $2,522 (-0.4%) from 2018

Expenses

Down

$621,178

Down $16,404 (-2.6%) from 2018

Net Income

Up

$2,833

Up $13,882 (+126%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth54th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2015: $638,150Liabilities 2015: $4,809Net Assets 2015: $633,3412015Assets 2016: $669,107Liabilities 2016: $20,272Net Assets 2016: $648,8352016Assets 2017: $877,410Liabilities 2017: $26,664Net Assets 2017: $850,7462017Assets 2018: $886,446Liabilities 2018: $31,846Net Assets 2018: $854,6002018Assets 2019: $928,212Liabilities 2019: $7,553Net Assets 2019: $920,6592019Assets 2020: $1,668,448Liabilities 2020: $9,761Net Assets 2020: $1,658,6872020Assets 2021: $1,816,385Liabilities 2021: $3,888Net Assets 2021: $1,812,4972021Assets 2022: $1,650,988Liabilities 2022: $13,790Net Assets 2022: $1,637,1982022Assets 2024: $1,582,758Liabilities 2024: $11,523Net Assets 2024: $1,571,2352024

Highlighted filing

2019

Assets$928,212
Liabilities$7,553
Net Assets$920,659
Open 2019 Filing

Operations Trend

Revenue Growth39th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2015: $458,130Expenses 2015: $413,330Net Income 2015: $44,8002015Revenue 2016: $565,079Expenses 2016: $549,585Net Income 2016: $15,4942016Revenue 2017: $699,727Expenses 2017: $539,933Net Income 2017: $159,7942017Revenue 2018: $626,533Expenses 2018: $637,582Net Income 2018: -$11,0492018Revenue 2019: $624,011Expenses 2019: $621,178Net Income 2019: $2,8332019Revenue 2020: $1,243,802Expenses 2020: $559,039Net Income 2020: $684,7632020Revenue 2021: $619,817Expenses 2021: $534,560Net Income 2021: $85,2572021Revenue 2022: $697,297Expenses 2022: $619,251Net Income 2022: $78,0462022Revenue 2024: $569,401Expenses 2024: $682,298Net Income 2024: -$112,8972024

Highlighted filing

2019

Revenue$624,011
Expenses$621,178
Net Income$2,833
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 6, 2020
Return Version
2019v5.0
Gross Receipts
$624,011
Mission and Program Overview

Mission

LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.

Lymedisease.org (formerly CALDA) advocates nationwide to make the patient voice stronger, to support patient-centered research, to create legislative change, and to create a future where Lyme patients can receive the treatments they need to get well.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$854,600$920,659▲ $66,059
Savings and Temporary Cash Investments$670,929$678,190▲ $7,261
Cash and Non-Interest-Bearing Accounts$166,783$205,371▲ $38,588
Accounts Receivable$32,465$37,058▲ $4,593
Land, Buildings, and Equipment, Net$16,269$7,593▼ $8,676
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$886,446$928,212▲ $41,766
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$31,846$7,553▼ $24,293
Total Liabilities$31,846$7,553▼ $24,293
Net Assets / Fund Balance
Total Net Assets Fund Balance$854,600$920,659▲ $66,059
Total Liabilities and Net Assets / Fund Balance$886,446$928,212▲ $41,766

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,593$91,789$99,382
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lorraine JohnsonCEOFT$95,000$95,000

Board Members and Trustees

NameTitle
Ron LindorfChair
Phyllis Mervine EdmPresident
Dorothy Kupcha LelandVice President
Caleb ManscillDirector
Christine GreenDirector
Erica LehmanDirector
Raphael Stricker MdDirector
Mitchell HoggardTreasurer
Barbara BarsocchiniVP & Secretary
Revenue and Support

Revenue Composition

Contributions and Grants
$622,320
Program Service Revenue
$0
Investment Income
$1,691
Other Revenue
$0
All Other Contributions
$436,580
Change in Net Assets
$2,833

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$142,020Fair Market Value (FMV)
Total Noncash Contributions1$142,020-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$343,129
Salaries, Compensation, and Employee Benefits$278,049
Total Fundraising Expense$8,684
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$168,312--$168,312
Fees for Services Other$72,162$24,054-$96,216
Current Officers, Directors, Trustees, and Key Employees$90,250$4,750-$95,000
Information Technology$91,592--$91,592
Fees for Services Accounting$27,078$6,770-$33,848
Payroll Taxes$13,263$1,474-$14,737
Office Expenses$2,677$707$8,684$12,068
Depreciation Depletion$8,676--$8,676
Other Expenses$15,452$6,431-$6,431
Insurance-$3,619-$3,619
All Other Expenses$3,420$150-$3,570
Conferences and Meetings$2,020--$2,020
Total Functional Expenses$555,267$57,227$8,684$621,178
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The ceo and treasurer review the form 990 and submit it to the directors for comment.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The board discusses compensation when it is to be changed. At the time of implementation the board considered comparable compensations at other non-profits.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Lymediseaseorg
EIN
68-0214101
Phone
5305701811
Address
PO BOX 716, SAN RAMON, CA 94583

Signing Officer

Name
Mitchell L Hoggard
Title
Treasurer
Signed
2020-11-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mitchell Hoggard
Formed
1990
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
20

Preparer

Firm
Propp Christensen Caniglia Llp
Address
9261 Sierra College Boulevard, Roseville, CA 95661
Preparer
Thomas E Propp CPA
Phone
9167512900
Raw XML AppendixShowing 400 of 447 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt031846
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt07553
IRS990/AccountsReceivableGrp/BOYAmt032465
IRS990/AccountsReceivableGrp/EOYAmt037058
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Lymedisease.org (formerly CALDA) advocates nationwide to make the patient voice stronger, to support patient-centered research, to create legislative change, and to create a future where Lyme patients can receive the treatments they need to get well.
IRS990/AdvertisingGrp/TotalAmt00
IRS990/AllOtherContributionsAmt0436580
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0150
IRS990/AllOtherExpensesGrp/ProgramServicesAmt03420
IRS990/AllOtherExpensesGrp/TotalAmt03570
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0BRAD JONES
IRS990/BooksInCareOfDetail/PhoneNum08015921740
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0624 S 100 W
IRS990/BooksInCareOfDetail/USAddress/CityNm0OREM
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0UT
IRS990/BooksInCareOfDetail/USAddress/ZIPCd084058
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0166783
IRS990/CashNonInterestBearingGrp/EOYAmt0205371
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt04750
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt090250
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt095000
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt02020
IRS990/ConferencesMeetingsGrp/TotalAmt02020
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0622320
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt01691
IRS990/CYOtherExpensesAmt0343129
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt02833
IRS990/CYSalariesCompEmpBnftPaidAmt0278049
IRS990/CYTotalExpensesAmt0621178
IRS990/CYTotalFundraisingExpenseAmt08684
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0624011
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0true
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ProgramServicesAmt08676
IRS990/DepreciationDepletionGrp/TotalAmt08676
IRS990/Desc0Education- we are the largest and most trusted communications network for Lyme disease in the nation. The organization raises the level of public awareness of Lyme disease through our published blogs and the digital Lyme times as well as the internet, and social media.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0231305
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06770
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt027078
IRS990/FeesForServicesAccountingGrp/TotalAmt033848
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt024054
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt072162
IRS990/FeesForServicesOtherGrp/TotalAmt096216
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt060.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt220.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt810.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0LORRAINE JOHNSON
IRS990/Form990PartVIISectionAGrp/PersonNm1PHYLLIS MERVINE EDM
IRS990/Form990PartVIISectionAGrp/PersonNm2BARBARA BARSOCCHINI
IRS990/Form990PartVIISectionAGrp/PersonNm3RON LINDORF
IRS990/Form990PartVIISectionAGrp/PersonNm4DOROTHY KUPCHA LELAND
IRS990/Form990PartVIISectionAGrp/PersonNm5MITCHELL HOGGARD
IRS990/Form990PartVIISectionAGrp/PersonNm6CHRISTINE GREEN
IRS990/Form990PartVIISectionAGrp/PersonNm7RAPHAEL STRICKER MD
IRS990/Form990PartVIISectionAGrp/PersonNm8CALEB MANSCILL
IRS990/Form990PartVIISectionAGrp/PersonNm9ERICA LEHMAN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt095000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1President
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP & SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt5Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0624011
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt091592
IRS990/InformationTechnologyGrp/TotalAmt091592
IRS990/InsuranceGrp/ManagementAndGeneralAmt03619
IRS990/InsuranceGrp/TotalAmt03619
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt01691
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01691
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt091789
IRS990/LandBldgEquipBasisNetGrp/BOYAmt016269
IRS990/LandBldgEquipBasisNetGrp/EOYAmt07593
IRS990/LandBldgEquipCostOrOtherBssAmt099382
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembershipDuesAmt0185740
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0false
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0LymeDisease.org (formerly CALDA) seeks to empower patients through science-based advocacy by educating them, amplifying their collective voice, and providing big data research tools like our MyLymeData patient registry. We believe that there is strength in numbers.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0854600
IRS990/NetAssetsOrFundBalancesEOYAmt0920659
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt063226
IRS990/NoncashContributionsAmt0142020
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt08684
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0707
IRS990/OfficeExpensesGrp/ProgramServicesAmt02677
IRS990/OfficeExpensesGrp/TotalAmt012068
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0RESEARCH EXPENSE
IRS990/OtherExpensesGrp/Desc1MEALS & ENTERTAINMENT
IRS990/OtherExpensesGrp/Desc2BANK CHARGES
IRS990/OtherExpensesGrp/Desc3MERCHANT FEES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt09272
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt16431
IRS990/OtherExpensesGrp/ProgramServicesAmt060365
IRS990/OtherExpensesGrp/ProgramServicesAmt115452
IRS990/OtherExpensesGrp/TotalAmt060365
IRS990/OtherExpensesGrp/TotalAmt115452
IRS990/OtherExpensesGrp/TotalAmt29272
IRS990/OtherExpensesGrp/TotalAmt36431
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0168312
IRS990/OtherSalariesAndWagesGrp/TotalAmt0168312
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01474
IRS990/PayrollTaxesGrp/ProgramServicesAmt013263
IRS990/PayrollTaxesGrp/TotalAmt014737
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0MITCHELL HOGGARD
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0Research- We conduct and publish research through one of the largest study of Lyme disease through our patient registry and research platform, MyLymeData, with over 13,000 patients enrolled to date. We collaborate with researchers from the University of Washington and from UCLA, as well as Bay Area Lyme Foundation biobank on a tissue specimen biorepository.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0214885
IRS990/ProgSrvcAccomActy3Grp/Desc0Advocacy- we strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patients and provide them with the tools essential to empowerment. For over 10 years, we have been involved in patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are published in peer reviewed journals.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0109077
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0611425
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt08841
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0356582
IRS990/PYProgramServiceRevenueAmt06267
IRS990/PYRevenuesLessExpensesAmt0-11049
IRS990/PYSalariesCompEmpBnftPaidAmt0281000
IRS990/PYTotalExpensesAmt0637582
IRS990/PYTotalRevenueAmt0626533
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt02833
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt0854600
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt0920659
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0670929
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0678190
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0622320
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0611425
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0667541
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0564901
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0452475
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02918662
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01691
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt08841
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt022291
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0108
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt032931
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.78760
IRS990ScheduleA/PublicSupportPY170Pct00.98880
IRS990ScheduleA/PublicSupportTotal170Amt02324817
IRS990ScheduleA/SubstantialContributorsTotAmt0593845
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0622320
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0611425
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0667541
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0564901
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0452475
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02918662
IRS990ScheduleA/TotalSupportAmt02951593
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt07593
IRS990ScheduleD/EquipmentGrp/DepreciationAmt091789
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt099382
IRS990ScheduleD/TotalBookValueLandBuildingsAmt07593
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd0false
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0false
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt01
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/MethodOfDeterminingRevenuesTxt0FMV
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NonCashCheckboxInd0X
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NoncashContributionsRptF990Amt0142020
IRS990ScheduleM/ThirdPartiesUsedInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE CEO AND TREASURER REVIEW THE FORM 990 AND SUBMIT IT TO THE DIRECTORS FOR COMMENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON-PROFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0886446
IRS990/TotalAssetsEOYAmt0928212
IRS990/TotalAssetsGrp/BOYAmt0886446
IRS990/TotalAssetsGrp/EOYAmt0928212
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0622320
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt08684
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt057227
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0555267
IRS990/TotalFunctionalExpensesGrp/TotalAmt0621178
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt031846
IRS990/TotalLiabilitiesEOYAmt07553
IRS990/TotalLiabilitiesGrp/BOYAmt031846
IRS990/TotalLiabilitiesGrp/EOYAmt07553
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0854600
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0920659

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$928,212
Liabilities
$7,553
Net assets
$920,659
Revenue
$624,011
Expenses
$621,178
Net income
$2,833
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.58$0.01$1.57$0.57$0.68$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.01$1.64$0.70$0.62$0.08
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.82$0.00$1.81$0.62$0.53$0.09
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$1.24$0.56$0.68
2019Detailed filing. Detailed filing data is available for this year.$0.93$0.01$0.92$0.62$0.62$0.00
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.03$0.85$0.63$0.64$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.88$0.03$0.85$0.70$0.54$0.16
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.67$0.02$0.65$0.57$0.55$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.64$0.00$0.63$0.46$0.41$0.04
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2019 filings • 501(c)3 • $500k-$1M nonprofits