Civic Intelligence

Aplastic Anemia & Mds International Foundation Inc.

990 • Fiscal year 2017 • EIN 52-1336903

Jan 01, 2017 to Dec 31, 2017 • Filed on Sep 28, 2018

Organization ProfileWWW.AAMDS.ORG

View Organization Page

4330 East West Highway No 230Bethesda, MD 20814

(301) 279-7202

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.39x

Higher debt load relative to assets than 69% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Liabilities / Revenue

69th percentile

0.43x

Higher debt load relative to revenue than 69% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Net Margin

12th percentile

-19%

Higher net margin than 12% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Top Officer Pay

83rd percentile

$243,929

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 4.5% of source-year revenue.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Asset Growth

53rd percentile

4.8%

Faster asset growth than 53% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Revenue Growth

14th percentile

-15%

Faster revenue growth than 14% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets69th percentile

Assets

Up

$5,908,201

Up $269,559 (+4.8%) from 2016

Net Assets

Down

$3,578,961

Down $903,889 (-20%) from 2016

Liabilities

Up

$2,329,240

Up $1,173,448 (+102%) from 2016

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin12th percentile

Revenue

Down

$5,420,085

Down $978,056 (-15%) from 2016

Expenses

Down

$6,448,619

Down $330,618 (-4.9%) from 2016

Net Income

Down

-$1,028,534

Down $647,438 (-170%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth53rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $2,920,927Liabilities 2011: $355,169Net Assets 2011: $2,565,7582011Assets 2012: $4,027,621Liabilities 2012: $526,200Net Assets 2012: $3,501,4212012Assets 2013: $7,685,316Liabilities 2013: $1,750,279Net Assets 2013: $5,935,0372013Assets 2014: $7,418,995Liabilities 2014: $1,313,084Net Assets 2014: $6,105,9112014Assets 2015: $6,287,901Liabilities 2015: $1,560,115Net Assets 2015: $4,727,7862015Assets 2016: $5,638,642Liabilities 2016: $1,155,792Net Assets 2016: $4,482,8502016Assets 2017: $5,908,201Liabilities 2017: $2,329,240Net Assets 2017: $3,578,9612017Assets 2018: $3,312,135Liabilities 2018: $1,404,415Net Assets 2018: $1,907,7202018Assets 2019: $2,867,502Liabilities 2019: $1,003,989Net Assets 2019: $1,863,5132019Assets 2020: $4,582,610Liabilities 2020: $1,019,543Net Assets 2020: $3,563,0672020Assets 2021: $5,199,376Liabilities 2021: $224,734Net Assets 2021: $4,974,6422021Assets 2022: $5,783,336Liabilities 2022: $352,156Net Assets 2022: $5,431,1802022Assets 2023: $7,229,650Liabilities 2023: $735,525Net Assets 2023: $6,494,1252023Assets 2024: $7,464,678Liabilities 2024: $747,119Net Assets 2024: $6,717,5592024

Highlighted filing

2017

Assets$5,908,201
Liabilities$2,329,240
Net Assets$3,578,961
Open 2017 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $2,672,457Expenses 2011: $2,668,740Net Income 2011: $3,7172011Revenue 2012: $4,391,197Expenses 2012: $3,512,900Net Income 2012: $878,2972012Revenue 2013: $7,564,470Expenses 2013: $5,318,871Net Income 2013: $2,245,5992013Revenue 2014: $7,792,026Expenses 2014: $7,542,152Net Income 2014: $249,8742014Revenue 2015: $5,553,031Expenses 2015: $6,620,313Net Income 2015: -$1,067,2822015Revenue 2016: $6,398,141Expenses 2016: $6,779,237Net Income 2016: -$381,0962016Revenue 2017: $5,420,085Expenses 2017: $6,448,619Net Income 2017: -$1,028,5342017Revenue 2018: $3,056,482Expenses 2018: $4,608,281Net Income 2018: -$1,551,7992018Revenue 2019: $2,879,436Expenses 2019: $3,058,701Net Income 2019: -$179,2652019Revenue 2020: $4,687,320Expenses 2020: $2,955,289Net Income 2020: $1,732,0312020Revenue 2021: $3,484,930Expenses 2021: $2,124,677Net Income 2021: $1,360,2532021Revenue 2022: $3,208,985Expenses 2022: $2,559,196Net Income 2022: $649,7892022Revenue 2023: $3,416,958Expenses 2023: $2,486,226Net Income 2023: $930,7322023Revenue 2024: $3,039,873Expenses 2024: $2,957,671Net Income 2024: $82,2022024

Highlighted filing

2017

Revenue$5,420,085
Expenses$6,448,619
Net Income-$1,028,534
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Sep 28, 2018
Return Version
2017v2.3
Gross Receipts
$8,215,270
Mission and Program Overview

Mission

To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,680,166$3,438,609▲ $758,443
Accounts Receivable$409,795$809,106▲ $399,311
Savings and Temporary Cash Investments$1,128,710$430,996▼ $697,714
Cash and Non-Interest-Bearing Accounts$452,703$398,232▼ $54,471
Pledges and Grants Receivable$243,095$337,517▲ $94,422
Land, Buildings, and Equipment, Net$122,441$110,271▼ $12,170
Prepaid Expenses and Deferred Charges$310,711$87,086▼ $223,625
Total Assets$5,638,642$5,908,201▲ $269,559
Other Assets Total$291,021$296,384▲ $5,363
Liabilities
Grants Payable$748,620$1,745,994▲ $997,374
Accounts Payable and Accrued Expenses$364,233$471,048▲ $106,815
Other Liabilities$42,939$112,198▲ $69,259
Total Liabilities$1,155,792$2,329,240▲ $1,173,448
Net Assets / Fund Balance
Temporarily Rstr Net Assets$4,028,801$3,628,291▼ $400,510
Unrestricted Net Assets$454,049$-49,330▼ $503,379
Total Net Assets Fund Balance$4,482,850$3,578,961▼ $903,889
Total Liabilities and Net Assets / Fund Balance$5,638,642$5,908,201▲ $269,559

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$110,271$276,680$386,951
Other Assets Org$281,152--
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kathleen WeisCEOFT$186,613$57,316$243,929
Serap AkisogluChief Development OfficerFT$127,912$19,754$147,666
Paul ScribnerSenior Dir., Patient AdvocacyFT$108,937$15,180$124,117
Barbara HolzerSr. Dir., Communications/outreachFT$103,474$18,416$121,890
Ellen SalkeldSr. Director Research/health Prof. ProgrmFT$105,976$7,885$113,861

Board Members and Trustees

NameTitle
Kevin Lyons-tarrChair
Harsha MurthyVice Chair
Bart FisherDirector
Deborah CookDirector
James GajewskiDirector
Judy PauletteDirector
Melanie MarquezDirector
Neil HorikoshiDirector
Stephanie Dillon HammDirector
Stephen KingSecretary
Tony San FilippoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Calibre CPA GroupProfessional Services7501 WISCONSIN AVENUE, Bethesda, MD 20814$174,020
Revenue and Support

Revenue Composition

Contributions and Grants
$5,316,382
Program Service Revenue
$31,135
Investment Income
$108,072
Other Revenue
$-35,504
All Other Contributions
$4,993,195
Change in Net Assets
$-1,028,534

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded3$261,319Fair Market Value (FMV)
Total Noncash Contributions3$261,319-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,420,085
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$209,991
Total Revenue per Audited Statements
$5,630,076
Total Revenue per Form 990
$5,420,085
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,468,975
Other Expenses$2,075,260
Salaries, Compensation, and Employee Benefits$1,904,384
Total Fundraising Expense$550,860
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,343,975--$2,343,975
Other Salaries and Wages$964,343$81,440$314,653$1,360,436
Fees for Services Other$416,374$15,730$16,425$448,529
Conferences and Meetings$380,106$906$9,922$390,934
Current Officers, Directors, Trustees, and Key Employees$182,947$41,467$19,514$243,928
Office Expenses$177,272$5,212$57,357$239,841
Fees for Services Accounting$190,364$6,002$11,319$207,685
Occupancy$145,265$21,804$15,745$182,814
Travel$159,790$381$11,105$171,276
Information Technology$114,760$16,459$12,560$143,779
Other Employee Benefits$87,082$8,434$26,747$122,263
Foreign Grants$120,000--$120,000
Payroll Taxes$81,272$8,582$23,864$113,718
Fees for Services Lobbying$82,500--$82,500
Pension Plan Contributions$45,381$3,801$14,857$64,039
Depreciation Depletion$30,673$4,604$3,325$38,602
Insurance$13,940$2,092$1,511$17,543
Fees for Service Investment Mgmnt Fees$10,341$1,454$1,513$13,308
Other Expenses$5,685$459$2,739$8,883
Grants to Domestic Individuals$5,000--$5,000
Fees for Services Legal$3,006$95$179$3,280
Total Functional Expenses$5,678,232$219,527$550,860$6,448,619

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,533,965
Expenses per Audited Statements$6,448,619
Total Expenses per Form 990$6,448,619
Expenses Not Reported on Form 990$85,346
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The U of Texas Md Anderson Cancer CenterHouston, TX501(c)(3)Research$536,452
Cleveland ClinicCleveland, OH501(c)(3)Research$369,349
Johns Hopkins UniversityChicago, IL501(c)(3)Research$341,500
H Lee Moffitt Cancer Center & Research InstituteAtlanta, GA501(c)(3)Research$306,340
Dana Farber Cancer InstituteBoston, MA501(c)(3)Research$283,150
Weill Cornell Medical CollegeNew York, NY501(c)(3)Research$271,449
Albert Einstein College of Medicine IncBronx, NY501(c)(3)Research$44,721
Albany Medical CollegeAlbany, NY501(c)(3)Research$30,000
Memorial Sloan-kettering Cancer CenterNew York, NY501(c)(3)Research$30,000
NihBethesda, MD501(c)(3)Research$30,000
Baylor College of MedicineHouston, TX501(c)(3)Research$15,000
Childrens Hospital of PhilidelphiaPhilidelphi, PA501(c)(3)Research$15,000
Cleveland Clinic FoundationCleveland, OH501(c)(3)Research$15,000
Dana Farber Cancer InstituteBoston, MA501(c)(3)Research$15,000
Rhode Island HospitalProvidence, RI501(c)(3)Research$15,000
University of South CarolinaColumbia, SC501(c)(3)Research$7,500

International Summary

Offices
0
Employees
0
Spending
$120,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants to Recipients Located in Region-00$78,750
East Asia and the PacificGrants to Recipients Located in Region-00$22,500
South AmericaGrants to Recipients Located in Region-00$18,750
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$66,638
Fundraising Gross Income$31,134
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Other Walks$288,476$27,174$36,960$-9,786
Pnh Breakf. & Walk$36,493$3,960$4,501$-541
Total Events$324,969$31,134$66,638$-35,504
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Substantial ContributorAamds Paid a Substantial Contributor Fees for Professional Services Provided.No$174,020
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$112,198
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was prepared by the outside accountants and reviewed by the audit committee. A final copy was distributed to the entire board of directors prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Before any contracts for the purchase of goods or services are awarded, management and staff review them for any potential, perceived and/or real conflicts of interest with respect to board members, key volunteers or staff. In the event of conflict of interest, the matter is referred to the executive committee of the board for discussion and resolution. No such conflicts occurred in 2017.”

Form 990, Part VI, Section B, Line 15A

“The ceo's performance & compensation is reviewed by the executive committee using compensation studies published by asae, board source & others for comparitive data. The executive director's salary is approved by the executive committee which then informs the board. This entire process is documented. Salaries of all staff are reviewed annually by the executive director using compensation survey data for comparable size and type organizations. The last salary review date for the executive director was august 2017.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public in print and/or electronic form upon request, at no cost.”

Filing and Contact Details

Filer

Filer Name
Aplastic Anemia & Mds International
EIN
52-1336903
Phone
3012797202
Address
4330 EAST WEST HIGHWAY NO 230, BETHESDA, MD 20814

Signing Officer

Name
Kathleen Weis
Title
CEO
Phone
3012797202
Signed
2018-09-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kathleen Weis
Formed
1983
Legal Domicile
Md
Voting Board Members
11
Independent Board Members
11
Employees
23
Volunteers
260

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 650N, BETHESDA, MD 20814-2930
Phone
3019519090
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 10:

“During the years 2012-2014, aplastic anemia and mds international foundation received significant funding for multi-year program support and research grants. The foundation's policy, which is in accordance with generally accepted accounting policies, is to recognize temporarily restricted revenue in the year in which the funds were committed and to record expenses and release restrictions in the year in which the funds are spent. The timing resulted in net income for the years 2012-2014 and a net loss for 2015, 2016 and 2017.”

Financial Statement Notes

PART X, LINE 2:

“For the year ended december 31, 2017, the foundation has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 66,638. Statements and netted against revenue on form 990, part viii, line 8c.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 66,638. Statements and netted against revenue on form 990, part viii, line 8c.”

Raw XML AppendixShowing 400 of 860 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SEE PART III, LINE 1.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1119316
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1219754
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt137885
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1418416
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1515180
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN LYONS-TARR
IRS990/Form990PartVIISectionAGrp/PersonNm1HARSHA MURTHY
IRS990/Form990PartVIISectionAGrp/PersonNm2STEPHEN KING
IRS990/Form990PartVIISectionAGrp/PersonNm3TONY SAN FILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm4JUDY PAULETTE
IRS990/Form990PartVIISectionAGrp/PersonNm5STEPHANIE DILLON HAMM
IRS990/Form990PartVIISectionAGrp/PersonNm6DEBORAH COOK
IRS990/Form990PartVIISectionAGrp/PersonNm7JAMES GAJEWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm8BART FISHER
IRS990/Form990PartVIISectionAGrp/PersonNm9NEIL HORIKOSHI
IRS990/Form990PartVIISectionAGrp/PersonNm10MELANIE MARQUEZ
IRS990/Form990PartVIISectionAGrp/PersonNm11KATHLEEN WEIS
IRS990/Form990PartVIISectionAGrp/PersonNm12SERAP AKISOGLU
IRS990/Form990PartVIISectionAGrp/PersonNm13ELLEN SALKELD
IRS990/Form990PartVIISectionAGrp/PersonNm14BARBARA HOLZER
IRS990/Form990PartVIISectionAGrp/PersonNm15PAUL SCRIBNER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11224613
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12127912
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13105976
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14103474
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15108937
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt12CHIEF DEVELOPMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt13SR. DIR. RESEARCH/HEALTH PROF. PROGRM
IRS990/Form990PartVIISectionAGrp/TitleTxt14SR. DIR., COMMUNICATIONS/OUTREACH
IRS990/Form990PartVIISectionAGrp/TitleTxt15SENIOR DIR., PATIENT ADVOCACY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0293835
IRS990/FundraisingDirectExpensesAmt066638
IRS990/FundraisingGrossIncomeAmt031134
IRS990/GainOrLossGrp/SecuritiesAmt050076
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt02468975
IRS990/GrantsPayableGrp/BOYAmt0748620
IRS990/GrantsPayableGrp/EOYAmt01745994
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt05000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt05000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02343975
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02343975
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt02778623
IRS990/GrossReceiptsAmt08215270
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt012560
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt016459
IRS990/InformationTechnologyGrp/ProgramServicesAmt0114760
IRS990/InformationTechnologyGrp/TotalAmt0143779
IRS990/InsuranceGrp/FundraisingAmt01511
IRS990/InsuranceGrp/ManagementAndGeneralAmt02092
IRS990/InsuranceGrp/ProgramServicesAmt013940
IRS990/InsuranceGrp/TotalAmt017543
IRS990/InvestmentIncomeGrp/ExclusionAmt057996
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt057996
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02680166
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03438609
IRS990/IRPDocumentCnt081
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0276680
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0122441
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0110271
IRS990/LandBldgEquipCostOrOtherBssAmt0386951
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt02728547
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04482850
IRS990/NetAssetsOrFundBalancesEOYAmt03578961
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt050076
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt050076
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-35504
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-35504
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0124645
IRS990/NoncashContributionsAmt0261319
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt015745
IRS990/OccupancyGrp/ManagementAndGeneralAmt021804
IRS990/OccupancyGrp/ProgramServicesAmt0145265
IRS990/OccupancyGrp/TotalAmt0182814
IRS990/OfficeExpensesGrp/FundraisingAmt057357
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05212
IRS990/OfficeExpensesGrp/ProgramServicesAmt0177272
IRS990/OfficeExpensesGrp/TotalAmt0239841
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0291021
IRS990/OtherAssetsTotalGrp/EOYAmt0296384
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt026747
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt08434
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt087082
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0122263
IRS990/OtherExpensesGrp/Desc0HONORARIA
IRS990/OtherExpensesGrp/Desc1DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc2PROF. DEVELOPMENT
IRS990/OtherExpensesGrp/FundraisingAmt0863
IRS990/OtherExpensesGrp/FundraisingAmt16662
IRS990/OtherExpensesGrp/FundraisingAmt22739
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0605
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1459
IRS990/OtherExpensesGrp/ProgramServicesAmt097437
IRS990/OtherExpensesGrp/ProgramServicesAmt120719
IRS990/OtherExpensesGrp/ProgramServicesAmt25685
IRS990/OtherExpensesGrp/TotalAmt098300
IRS990/OtherExpensesGrp/TotalAmt127986
IRS990/OtherExpensesGrp/TotalAmt28883
IRS990/OtherLiabilitiesGrp/BOYAmt042939
IRS990/OtherLiabilitiesGrp/EOYAmt0112198
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0314653
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt081440
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0964343
IRS990/OtherSalariesAndWagesGrp/TotalAmt01360436
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt023864
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08582
IRS990/PayrollTaxesGrp/ProgramServicesAmt081272
IRS990/PayrollTaxesGrp/TotalAmt0113718
IRS990/PensionPlanContributionsGrp/FundraisingAmt014857
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03801
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt045381
IRS990/PensionPlanContributionsGrp/TotalAmt064039
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0243095
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0337517
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0310711
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt087086
IRS990/PrincipalOfficerNm0KATHLEEN WEIS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt031135
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt06294712
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02803709
IRS990/PYInvestmentIncomeAmt071536
IRS990/PYOtherExpensesAmt02222739
IRS990/PYOtherRevenueAmt0-30496
IRS990/PYProgramServiceRevenueAmt062389
IRS990/PYRevenuesLessExpensesAmt0-381096
IRS990/PYSalariesCompEmpBnftPaidAmt01752789
IRS990/PYTotalExpensesAmt06779237
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt06398141
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-1028534
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt031135
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01128710
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0430996
IRS990ScheduleA/FactsAndCircumstancesTestTxt0AAMDS QUALIFIES AS A PUBLIC CHARITY UNDER THE "FACTS AND CIRCUMSTANCES" TEST OF 1.170A-9(F)(3) OF THE TREASURY REGULATIONS, BASED UPON THE FOLLOWING:ITS SUPPORT, AS REPORTED FOR 2017, IS 31.33%, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I).AAMDS IS ORGANIZED AND OPERATED SO AS TO ATTRACT NEW AND ADDITIONAL FUNDING ON A CONTINUOUS BASIS, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(II). AAMDS HAS RECENTLY UNDERTAKEN NEW DEVELOPMENT EFFORTS TO BROADEN AAMDS' BASE OF SUPPORT.AAMDS' PUBLIC SUPPORT, AT 31.33%, IS WELL ABOVE THE 10% MINIMUM REQUIRED FOR THE "FACTS AND CIRCUMSTANCES" TEST, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(III). IN MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I), AAMDS HAS RECEIVED SUPPORT FROM A REPRESENTATIVE NUMBER OF ORGANIZATIONS, RATHER THAN RECEIVING ALL OR MOST OF ITS SUPPORT FROM A SINGLE ORGANIZATION, OR FROM A SINGLE DONOR. IN FACT, AAMDS HAS RECEIVED FINANCIAL SUPPORT FROM A NUMBER OF INDIVIDUAL DONORS, IN ADDITION TO GRANTS RECEIVED FROM A NUMBER OF DIFFERENT ORGANIZATIONS. AAMDS' CURRENT FUNDRAISING PLANS ARE TARGETED AT A BROAD BASE OF DONORS. IN THIS RESPECT, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(B).AAMDS REMAINS AN ORGANIZATION COMMITTED TO SERVING THE PUBLIC THROUGH ITS WORK. AAMDS WAS FORMED TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. IN THIS MANNER, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(D).
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt05316382
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt06294712
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt05277766
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt07394694
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt07360504
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt031644058
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt057996
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt082617
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0165316
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0176581
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0146346
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0628856

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,908,201
Liabilities
$2,329,240
Net assets
$3,578,961
Revenue
$5,420,085
Expenses
$6,448,619
Net income
-$1,028,534
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.46$0.75$6.72$3.04$2.96$0.08
2023Detailed filing. Detailed filing data is available for this year.$7.23$0.74$6.49$3.42$2.49$0.93
2022Detailed filing. Detailed filing data is available for this year.$5.78$0.35$5.43$3.21$2.56$0.65
2021Detailed filing. Detailed filing data is available for this year.$5.20$0.22$4.97$3.48$2.12$1.36
2020Detailed filing. Detailed filing data is available for this year.$4.58$1.02$3.56$4.69$2.96$1.73
2019Detailed filing. Detailed filing data is available for this year.$2.87$1.00$1.86$2.88$3.06$0.18
2018Detailed filing. Detailed filing data is available for this year.$3.31$1.40$1.91$3.06$4.61$1.55
2017Detailed filing. Detailed filing data is available for this year.$5.91$2.33$3.58$5.42$6.45$1.03
2016Detailed filing. Detailed filing data is available for this year.$5.64$1.16$4.48$6.40$6.78$0.38
2015Detailed filing. Detailed filing data is available for this year.$6.29$1.56$4.73$5.55$6.62$1.07
2014Detailed filing. Detailed filing data is available for this year.$7.42$1.31$6.11$7.79$7.54$0.25
2013Detailed filing. Detailed filing data is available for this year.$7.69$1.75$5.94$7.56$5.32$2.25
2012Summary only. Only limited summary data is available for this year.$4.03$0.53$3.50$4.39$3.51$0.88
2011Summary only. Only limited summary data is available for this year.$2.92$0.36$2.57$2.67$2.67$0.00