Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
EIN 52-1336903 • 501(c)3 • Rockville, MD
Profile
To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Liabilities / Revenue
60th percentile
Higher debt load relative to revenue than 60% of similar nonprofits.
Net Margin
46th percentile
Higher net margin than 46% of similar nonprofits.
Top Officer Pay
87th percentile
Higher top officer pay than 87% of similar nonprofits.
Top officer pay equals 9.8% of source-year revenue.
Asset Growth
47th percentile
Faster asset growth than 47% of similar nonprofits.
Revenue Growth
20th percentile
Faster revenue growth than 20% of similar nonprofits.
Assets
Up$7,464,678
Up $235,028 (+3.3%) from 2023
Liabilities
Up$747,119
Up $11,594 (+1.6%) from 2023
Net Assets
Up$6,717,559
Up $223,434 (+3.4%) from 2023
Revenue
Down$3,039,873
Down $377,085 (-11%) from 2023
Expenses
Up$2,957,671
Up $471,445 (+19%) from 2023
Net Income
Down$82,202
Down $848,530 (-91%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.
(see schedule o)to support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $2,538,107 | $4,157,306 | ▲ $1,619,199 |
| Savings and Temporary Cash Investments | $2,893,129 | $1,180,024 | ▼ $1,713,105 |
| Pledges and Grants Receivable | $364,256 | $722,213 | ▲ $357,957 |
| Cash and Non-Interest-Bearing Accounts | $259,773 | $380,494 | ▲ $120,721 |
| Land, Buildings, and Equipment, Net | $83,667 | $235,035 | ▲ $151,368 |
| Prepaid Expenses and Deferred Charges | $54,470 | $19,842 | ▼ $34,628 |
| Total Assets | $7,229,650 | $7,464,678 | ▲ $235,028 |
| Other Assets Total | $1,036,248 | $769,764 | ▼ $266,484 |
| Liabilities | |||
| Other Liabilities | $646,000 | $580,417 | ▼ $65,583 |
| Accounts Payable and Accrued Expenses | $89,525 | $166,702 | ▲ $77,177 |
| Total Liabilities | $735,525 | $747,119 | ▲ $11,594 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $5,301,759 | $5,302,941 | ▲ $1,182 |
| Net Assets With Donor Restrictions | $1,192,366 | $1,414,618 | ▲ $222,252 |
| Total Net Assets Fund Balance | $6,494,125 | $6,717,559 | ▲ $223,434 |
| Total Liabilities and Net Assets / Fund Balance | $7,229,650 | $7,464,678 | ▲ $235,028 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $172,736 | $175,957 | $348,693 |
| Other Land Buildings | $62,299 | - | $62,299 |
| Other Assets Org | $502,131 | - | - |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Brad a Wong | CEO | FT | $233,831 | $64,244 | $298,075 |
| Azalea Candelaria | Senior Director of Development | FT | $167,441 | $8,448 | $175,889 |
| Alice Houk | Senior Director of Patient and Health Professional | FT | $131,435 | $17,200 | $148,635 |
| Name | Title |
|---|---|
| Deborah Cook | Chair |
| Judy Paulette | Vice-chair |
| Abe Kader | Director |
| Bart S Fisher | Director |
| Erie Sampson | Director |
| Hetal Soni | Director |
| James Gajewski Md | Director |
| Marlena Connor | Director |
| Mary Horowitz Md | Director |
| Melanie Marquez | Director |
| Peter Miller | Director |
| Stephanie Hamm | Director |
| Travis Georgieff | Director |
| Chris Mills | Secretary |
| Rebecca Doane | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Calibre CPA Group Pllc | Professional Services | 7501 WISCONSIN AVENUE SUITE 1200 WE, Bethesda, MD 20814 | $188,965 |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,454,020 |
| Salaries, Compensation, and Employee Benefits | $1,329,172 |
| Total Fundraising Expense | $263,677 |
| Grants and Similar Amounts Paid | $174,479 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $628,296 | $48,256 | $182,876 | $859,428 |
| Fees for Services Other | $475,547 | $53,770 | - | $529,317 |
| Travel | $294,733 | $5,492 | - | $300,225 |
| Current Officers, Directors, Trustees, and Key Employees | $223,556 | $44,712 | $29,807 | $298,075 |
| Fees for Services Accounting | $186,062 | $21,038 | - | $207,100 |
| Occupancy | $105,619 | $42,718 | - | $148,337 |
| Grants to Domestic Orgs | $107,718 | - | - | $107,718 |
| Information Technology | $67,063 | $24,041 | $9,504 | $100,608 |
| Payroll Taxes | $60,963 | $6,532 | $15,375 | $82,870 |
| Office Expenses | $64,510 | $11,670 | - | $76,180 |
| Other Employee Benefits | $55,406 | $5,084 | $15,067 | $75,557 |
| Foreign Grants | $60,000 | - | - | $60,000 |
| Depreciation Depletion | $31,841 | $12,878 | $4,843 | $49,562 |
| Insurance | $9,763 | $3,949 | $1,485 | $15,197 |
| Fees for Service Investment Mgmnt Fees | - | $14,814 | - | $14,814 |
| Pension Plan Contributions | $9,570 | $190 | $3,482 | $13,242 |
| Grants to Domestic Individuals | $6,761 | - | - | $6,761 |
| Other Expenses | $206 | $84 | $31 | $321 |
| Total Functional Expenses | $2,395,556 | $298,438 | $263,677 | $2,957,671 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $3,052,172 |
| Total Expenses per Form 990 | $2,957,671 |
| Expenses per Audited Statements | $2,942,857 |
| Expenses Not Reported on Form 990 | $109,315 |
| Expenses Not Reported on Financial Statements | $14,814 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Cleveland Clinic Foundation | Independence, OH | 501(c)(3) | Research | $30,000 |
| Nyu School of Medicine | New York, NY | 501(c)(3) | Research | $30,000 |
| Trustees of University of Pennsylvania | Philadelphia, PA | 501(c)(3) | Research | $30,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| East Asia and the Pacific | A Grant to a Recipient in That Region | - | 0 | 0 | $30,000 |
| Europe (including Iceland & Greenland) | A Grant to a Recipient in That Region | - | 0 | 0 | $30,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $101,815 |
| Fundraising Gross Income | $13,592 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| March for Marrow | $216,166 | - | $23,832 | - |
| Scientific Symposium | $273,592 | $13,592 | $40,721 | $-27,129 |
| Total Events | $510,275 | $13,592 | $101,815 | $-88,223 |
| Liability | Amount |
|---|---|
| Lease Liability - Operating | $558,041 |
| Lease Liability - Finance | $22,376 |
“The form 990 was prepared by the outside accountants and reviewed by the finance and audit committees. A final copy of the form 990 was distributed to the entire board of directors prior to filing.”
“Before any contracts for the purchase of goods or services are awarded, management and staff review them for any potential, perceived and/or real conflicts of interest with respect to board members, key volunteers or staff. In the event of conflict of interest, the matter is referred to the executive committee of the board for discussion and resolution.”
“The ceo's performance & compensation is reviewed by the executive committee using compensation studies published by asae, board source & others for comparative data. The ceo's salary is approved by the executive committee which then informs the board. This entire process is documented. Salaries of all staff are reviewed annually by the ceo using compensation survey data for comparable size and type organizations.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the public in print and/or electronic form upon request, at no cost.”
“Professional and contract services: program service expenses 475,547. Management and general expenses 53,770. Fundraising expenses 0. Total expenses 529,317.”
“The organization has not changed either its oversight process or selection process during the tax year regarding the audit of its financial statements and selection of an independent accountant.”
“For the year ended december 31, 2024, the foundation has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”
“Direct expense from fundraising events reported on part viii line 8b 101,815.”
“Direct fundrising expenses reported on part viii line 8b 101,815.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 89525 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 166702 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | (SEE SCHEDULE O)TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. |
| IRS990/AllOtherContributionsAmt | 0 | 2407971 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | MICHELLE HALL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3012797202 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 401 N WASHINGTON ST SUITE 430 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCKVILLE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 20850 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 259773 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 380494 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 29807 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 44712 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 223556 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 298075 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 188965 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 7501 WISCONSIN AVENUE SUITE 1200 WE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | BETHESDA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 20814 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | CALIBRE CPA GROUP PLLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | PROFESSIONAL SERVICES |
| IRS990/ContriRptFundraisingEventAmt | 0 | 496683 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2904654 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 174479 |
| IRS990/CYInvestmentIncomeAmt | 0 | 223442 |
| IRS990/CYOtherExpensesAmt | 0 | 1454020 |
| IRS990/CYOtherRevenueAmt | 0 | -88223 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 82202 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1329172 |
| IRS990/CYTotalExpensesAmt | 0 | 2957671 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 263677 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3039873 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 4843 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 12878 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 31841 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 49562 |
| IRS990/Desc | 0 | PROVIDE PATIENT EDUCATION, ASSISTANCE, ADVOCACY, AND SUPPORT, TO CREATE AND DISTRIBUTE EDUCATIONAL MATERIALS AND MEDICAL INFORMATION, AND TO SUPPORT RESEARCH TO FIND TREATMENT FOR VARIOUS BONE MARROW DISEASES, INCLUDING APLASTIC ANEMIA (AA), MYELODYSPLASTIC SYNDROMES (MDS), PAROXYSMAL NOCTURNAL HEMOGLOBINURIA (PNH), AND RELATED BONE MARROW FAILURE DISEASES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1192366 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1414618 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 10 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2395556 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 21038 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 186062 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 207100 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 53770 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 475547 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 529317 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 14814 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 14814 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 60000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 60000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 40.00 |
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| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 24244 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 17200 |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CHRIS MILLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | REBECCA DOANE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARLENA CONNOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BART S FISHER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JAMES GAJEWSKI MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TRAVIS GEORGIEFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | STEPHANIE HAMM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MARY HOROWITZ MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ABE KADER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | MELANIE MARQUEZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | PETER MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ERIE SAMPSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | HETAL SONI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | BRAD A WONG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | ALICE HOUK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | AZALEA CANDELARIA |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 273831 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 131435 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 167441 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | SENIOR DIRECTOR OF PATIENT AND HEALTH PROFESSIONAL |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | SENIOR DIRECTOR OF DEVELOPMENT |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1983 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 496683 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 101815 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 13592 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 29395 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 174479 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 6761 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 6761 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 107718 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 107718 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 662490 |
| IRS990/GrossReceiptsAmt | 0 | 3774783 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 9504 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 24041 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 67063 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 100608 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1485 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3949 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 9763 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 15197 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 194047 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 194047 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2538107 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 4157306 |
| IRS990/IRPDocumentCnt | 0 | 15 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 175957 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 83667 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 235035 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 410992 |
| IRS990/LegalDomicileStateCd | 0 | MD |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 633095 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 6494125 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 6717559 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 29395 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 29395 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -88223 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -88223 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 141232 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 5301759 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 5302941 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 42718 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 105619 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 148337 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 11670 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 64510 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 76180 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 1036248 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 769764 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 15067 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5084 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 55406 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 75557 |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK SERVICE FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | PROFESSIONAL DEVELOPMEN |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 1207 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 31 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3210 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 84 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 7942 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 206 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 12359 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 321 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 646000 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 580417 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 182876 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 48256 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 628296 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 859428 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 15375 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6532 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 60963 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 82870 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 3482 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 190 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 9570 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 13242 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 364256 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 722213 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 54470 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 19842 |
| IRS990/PrincipalOfficerNm | 0 | BRAD A WONG |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 3336920 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 169026 |
| IRS990/PYInvestmentIncomeAmt | 0 | 122445 |
| IRS990/PYOtherExpensesAmt | 0 | 1237233 |
| IRS990/PYOtherRevenueAmt | 0 | -42407 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 930732 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1079967 |
| IRS990/PYTotalExpensesAmt | 0 | 2486226 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 3416958 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 82202 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 1 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 2893129 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1180024 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 2904654 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3336920 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3184514 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3388728 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4597596 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 17412412 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 194047 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 126602 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 48543 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 51744 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 14363 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 435299 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.57290 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.61330 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 10224124 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 7188288 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 2904654 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3336920 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3184514 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3388728 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4597596 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 17412412 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 17847711 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
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