Civic Intelligence

Aplastic Anemia & Mds International Foundation Inc.

990 • Fiscal year 2016 • EIN 52-1336903

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 14, 2017

Organization ProfileWWW.AAMDS.ORG

View Organization Page

100 Park Avenue No 108Rockville, MD 20850

(800) 747-2820

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

53rd percentile

0.20x

Higher debt load relative to assets than 53% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Liabilities / Revenue

49th percentile

0.18x

Higher debt load relative to revenue than 49% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Net Margin

25th percentile

-6.0%

Higher net margin than 25% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Top Officer Pay

80th percentile

$224,542

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Asset Growth

9th percentile

-10%

Faster asset growth than 9% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Revenue Growth

74th percentile

15%

Faster revenue growth than 74% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets53rd percentile

Assets

Down

$5,638,642

Down $649,259 (-10%) from 2015

Net Assets

Down

$4,482,850

Down $244,936 (-5.2%) from 2015

Liabilities

Down

$1,155,792

Down $404,323 (-26%) from 2015

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin25th percentile

Revenue

Up

$6,398,141

Up $845,110 (+15%) from 2015

Expenses

Up

$6,779,237

Up $158,924 (+2.4%) from 2015

Net Income

Up

-$381,096

Up $686,186 (+64%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth9th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $2,920,927Liabilities 2011: $355,169Net Assets 2011: $2,565,7582011Assets 2012: $4,027,621Liabilities 2012: $526,200Net Assets 2012: $3,501,4212012Assets 2013: $7,685,316Liabilities 2013: $1,750,279Net Assets 2013: $5,935,0372013Assets 2014: $7,418,995Liabilities 2014: $1,313,084Net Assets 2014: $6,105,9112014Assets 2015: $6,287,901Liabilities 2015: $1,560,115Net Assets 2015: $4,727,7862015Assets 2016: $5,638,642Liabilities 2016: $1,155,792Net Assets 2016: $4,482,8502016Assets 2017: $5,908,201Liabilities 2017: $2,329,240Net Assets 2017: $3,578,9612017Assets 2018: $3,312,135Liabilities 2018: $1,404,415Net Assets 2018: $1,907,7202018Assets 2019: $2,867,502Liabilities 2019: $1,003,989Net Assets 2019: $1,863,5132019Assets 2020: $4,582,610Liabilities 2020: $1,019,543Net Assets 2020: $3,563,0672020Assets 2021: $5,199,376Liabilities 2021: $224,734Net Assets 2021: $4,974,6422021Assets 2022: $5,783,336Liabilities 2022: $352,156Net Assets 2022: $5,431,1802022Assets 2023: $7,229,650Liabilities 2023: $735,525Net Assets 2023: $6,494,1252023Assets 2024: $7,464,678Liabilities 2024: $747,119Net Assets 2024: $6,717,5592024

Highlighted filing

2016

Assets$5,638,642
Liabilities$1,155,792
Net Assets$4,482,850
Open 2016 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $2,672,457Expenses 2011: $2,668,740Net Income 2011: $3,7172011Revenue 2012: $4,391,197Expenses 2012: $3,512,900Net Income 2012: $878,2972012Revenue 2013: $7,564,470Expenses 2013: $5,318,871Net Income 2013: $2,245,5992013Revenue 2014: $7,792,026Expenses 2014: $7,542,152Net Income 2014: $249,8742014Revenue 2015: $5,553,031Expenses 2015: $6,620,313Net Income 2015: -$1,067,2822015Revenue 2016: $6,398,141Expenses 2016: $6,779,237Net Income 2016: -$381,0962016Revenue 2017: $5,420,085Expenses 2017: $6,448,619Net Income 2017: -$1,028,5342017Revenue 2018: $3,056,482Expenses 2018: $4,608,281Net Income 2018: -$1,551,7992018Revenue 2019: $2,879,436Expenses 2019: $3,058,701Net Income 2019: -$179,2652019Revenue 2020: $4,687,320Expenses 2020: $2,955,289Net Income 2020: $1,732,0312020Revenue 2021: $3,484,930Expenses 2021: $2,124,677Net Income 2021: $1,360,2532021Revenue 2022: $3,208,985Expenses 2022: $2,559,196Net Income 2022: $649,7892022Revenue 2023: $3,416,958Expenses 2023: $2,486,226Net Income 2023: $930,7322023Revenue 2024: $3,039,873Expenses 2024: $2,957,671Net Income 2024: $82,2022024

Highlighted filing

2016

Revenue$6,398,141
Expenses$6,779,237
Net Income-$381,096
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 14, 2017
Return Version
2016v3.0
Gross Receipts
$8,454,004
Mission and Program Overview

Mission

To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,861,406$2,680,166▼ $1,181,240
Savings and Temporary Cash Investments$266,746$1,128,710▲ $861,964
Cash and Non-Interest-Bearing Accounts$1,193,611$452,703▼ $740,908
Accounts Receivable$5,432$409,795▲ $404,363
Prepaid Expenses and Deferred Charges$225,649$310,711▲ $85,062
Pledges and Grants Receivable$437,190$243,095▼ $194,095
Land, Buildings, and Equipment, Net$37,102$122,441▲ $85,339
Total Assets$6,287,901$5,638,642▼ $649,259
Other Assets Total$260,765$291,021▲ $30,256
Liabilities
Grants Payable$1,144,187$748,620▼ $395,567
Accounts Payable and Accrued Expenses$415,928$364,233▼ $51,695
Other Liabilities$0$42,939▲ $42,939
Total Liabilities$1,560,115$1,155,792▼ $404,323
Net Assets / Fund Balance
Temporarily Rstr Net Assets$4,325,054$4,028,801▼ $296,253
Unrestricted Net Assets$402,732$454,049▲ $51,317
Total Net Assets Fund Balance$4,727,786$4,482,850▼ $244,936
Total Liabilities and Net Assets / Fund Balance$6,287,901$5,638,642▼ $649,259

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$122,441$238,078$360,519
Other Assets Org$265,238--
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kathleen WeisCEOFT$185,011$39,531$224,542
Serap AkisogluChief Development OfficerFT$124,477$19,039$143,516
Benita MarcusSenior Dir., OperationsFT$108,341$17,132$125,473
Paul ScribnerSenior Dir., Patient AdvocacyFT$105,834$13,159$118,993
Barbara HolzerSenior Dir., Communications/outreachFT$102,615$15,843$118,458
Ellen SalkeldSr. Director Research/health Prof. PrgrmFT$104,176$6,265$110,441

Board Members and Trustees

NameTitle
Kevin Lyons-tarrChair
Harsha MurthyVice Chair
Bart FisherBoard Member
Deborah CookBoard Member
James GajewskiBoard Member
Judy PauletteBoard Member
Melanie MarquezBoard Member
Neil HorikoshiBoard Member
Stephanie Dillon HammBoard Member
Stephen KingSecretary
Tony San FilippoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Calibre CPA GroupProfessional Services7501 WISCONSIN AVENUE, Bethesda, MD 20814$205,660
The Gardiner GroupProfessional Services610 HICKORY CIRCLE, La Plata, MD 20646$117,330
Calvert Computer SolutionsIt Services10388 SOUTHERN MARYLAND BLVD, Dunkirk, MD 20754$103,754
Revenue and Support

Revenue Composition

Contributions and Grants
$6,294,712
Program Service Revenue
$62,389
Investment Income
$71,536
Other Revenue
$-30,496
All Other Contributions
$5,868,453
Change in Net Assets
$-381,096

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$12,331Fair Market Value (FMV)
Other Non Cash Contri Table1$6,640Fair Market Value (FMV)
Securities Publicly Traded4$6,133Fair Market Value (FMV)
Total Noncash Contributions6$25,104-

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,398,141
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$255,792
Total Revenue per Audited Statements
$6,653,933
Total Revenue per Form 990
$6,398,141
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,803,709
Other Expenses$2,222,739
Salaries, Compensation, and Employee Benefits$1,752,789
Total Fundraising Expense$375,728
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,612,959--$2,612,959
Other Salaries and Wages$1,074,322$60,637$124,911$1,259,870
Fees for Services Other$435,179$23,770$55,667$514,616
Conferences and Meetings$400,414$1,145$9,959$411,518
Office Expenses$214,538$12,908$58,226$285,672
Travel$232,735$665$5,788$239,188
Current Officers, Directors, Trustees, and Key Employees$134,725$49,398$40,419$224,542
Occupancy$173,100$29,117$12,400$214,617
Fees for Services Accounting$177,469$9,610$22,508$209,587
Foreign Grants$171,500--$171,500
Information Technology$107,229$21,329$12,009$140,567
Other Employee Benefits$91,669$6,978$11,728$110,375
Payroll Taxes$86,920$7,697$11,760$106,377
Pension Plan Contributions$44,553$2,124$4,948$51,625
Depreciation Depletion$36,582$6,153$2,621$45,356
Fees for Service Investment Mgmnt Fees$26,972--$26,972
Grants to Domestic Individuals$19,250--$19,250
Insurance$15,034$2,529$1,077$18,640
Other Expenses$11,037$1,198$822$13,057
Total Functional Expenses$6,166,903$236,606$375,728$6,779,237

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,898,869
Expenses per Audited Statements$6,779,237
Total Expenses per Form 990$6,779,237
Expenses Not Reported on Form 990$119,632
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cleveland ClinicCleveland, OH501(c)(3)Research$545,098
Johns Hopkins UniversityChicago, IL501(c)(3)Research$519,931
Weill Cornell Medical CollegeNew York, NY501(c)(3)Research$406,593
Dana Farber Cancer InstituteBoston, MA501(c)(3)Research$406,421
H Lee Moffitt Cancer Center & Research InstituteAtlanta, GA501(c)(3)Research$294,547
The U of Texas Md Anderson Cancer CenterHouston, TX501(c)(3)Research$170,750
Albert Einstein College of Medicine Yeshiva UniversityNew York, NY501(c)(3)Research$60,000
Baylor College of MedicineHouston, TX501(c)(3)Research$30,000
Massachusetts General HospitalBoston, MA501(c)(3)Research$30,000
Rhode Island HospitalProvidence, RI501(c)(3)Research$30,000
University of South CarolinaColumbia, SC501(c)(3)Research$22,500
Albany Medical CollegeAlbany, NY501(c)(3)Research$15,000
Memorial Sloan-kettering Cancer CenterNew York, NY501(c)(3)Research$15,000
National Institutes of HealthBethesda, MDGovernmentResearch$15,000
University of MichiganPittsburgh, PA501(c)(3)Research$15,000
University of PennsylvaniaPhiladelphia, PA501(c)(3)Research$15,000
Washington University in St LouisSt Louis, MO501(c)(3)Research$14,870
CINCINNATI CHILDREN'S HOSPITALCincinnati, OH501(c)(3)Research$7,249

International Summary

Offices
0
Employees
0
Spending
$171,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants to Recipients Located in Region-00$115,000
East Asia and the PacificGrants to Recipients Located in Region-00$31,500
South AmericaGrants to Recipients Located in Region-00$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$69,632
Fundraising Gross Income$39,136
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk$391,036$39,136$64,582$-25,446
Total Events$391,036$39,136$69,632$-30,496
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$42,939
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was prepared by the outside accountants and reviewed by the audit committee. A final copy was distributed to the entire board of directors prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Before any contracts are awarded for the purchase of goods or services, management and staff review them for any potential, perceived and/or real conflicts of interest with respect to board members, key volunteers or staff. In the event of conflict of interest, the matter is referred to the executive committee of the board for discussion and resolution. No such conflicts occurred in 2016.”

Form 990, Part VI, Section B, Line 15A

“The ceo's performance & compensation is reviewed by the executive committee using compensation studies published by asae, board source & others for comparitive data. The executive director's salary is approved by the executive committee which then informs the board. This entire process is documented. Salaries of all staff are reviewed annually by the executive director using compensation survey data for comparable size and type organizations. The last salary review date for the executive director was july 2016.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public in print and/or electronic form upon request, at no cost.”

Filing and Contact Details

Filer

Filer Name
Aplastic Anemia & Mds International
EIN
52-1336903
Phone
8007472820
Address
100 PARK AVENUE NO 108, ROCKVILLE, MD 20850

Signing Officer

Name
Kathleen Weis
Title
CEO
Phone
8007472820
Signed
2017-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kathleen Weis
Formed
1983
Legal Domicile
Md
Voting Board Members
11
Independent Board Members
11
Employees
20
Volunteers
670

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 650N, BETHESDA, MD 20814-2930
Phone
3019519090
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 10:

“During the years 2012-2014, aplastic anemia and mds international foundation received significant funding for multi-year program support and research grants. The foundation's policy, which is in accordance with generally accepted accounting policies, is to recognize temporarily restricted revenue in the year in which the funds were committed and to record expenses and release restrictions in the year in which the funds are spent. The timing resulted in net income for the years 2012-2014 and a net loss for 2015 and 2016.”

Financial Statement Notes

PART X, LINE 2:

“For the year ended december 31, 2016, the foundation has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 69,632. Statements and netted against revenue on form 990, part viii, line 8c.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 69,632. Statements and netted against revenue on form 990, part viii, line 8c.”

Raw XML AppendixShowing 400 of 943 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SEE PART III, LINE 1.
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IRS990/Desc0PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.
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IRS990/Form990PartVIISectionAGrp/OfficerInd2X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1117760
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1219039
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1317132
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt146265
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1515843
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1613159
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN LYONS-TARR
IRS990/Form990PartVIISectionAGrp/PersonNm1HARSHA MURTHY
IRS990/Form990PartVIISectionAGrp/PersonNm2STEPHEN KING
IRS990/Form990PartVIISectionAGrp/PersonNm3TONY SAN FILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm4STEPHANIE DILLON HAMM
IRS990/Form990PartVIISectionAGrp/PersonNm5DEBORAH COOK
IRS990/Form990PartVIISectionAGrp/PersonNm6JAMES GAJEWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm7BART FISHER
IRS990/Form990PartVIISectionAGrp/PersonNm8NEIL HORIKOSHI
IRS990/Form990PartVIISectionAGrp/PersonNm9MELANIE MARQUEZ
IRS990/Form990PartVIISectionAGrp/PersonNm10JUDY PAULETTE
IRS990/Form990PartVIISectionAGrp/PersonNm11KATHLEEN WEIS
IRS990/Form990PartVIISectionAGrp/PersonNm12SERAP AKISOGLU
IRS990/Form990PartVIISectionAGrp/PersonNm13BENITA MARCUS
IRS990/Form990PartVIISectionAGrp/PersonNm14ELLEN SALKELD
IRS990/Form990PartVIISectionAGrp/PersonNm15BARBARA HOLZER
IRS990/Form990PartVIISectionAGrp/PersonNm16PAUL SCRIBNER
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11206782
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12124477
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13108341
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14104176
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15102615
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16105834
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt12CHIEF DEVELOPMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt13SENIOR DIR., OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt14SR. DIR. RESEARCH/HEALTH PROF. PRGRM
IRS990/Form990PartVIISectionAGrp/TitleTxt15SENIOR DIR., COMMUNICATIONS/OUTREACH
IRS990/Form990PartVIISectionAGrp/TitleTxt16SENIOR DIR., PATIENT ADVOCACY
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0351900
IRS990/FundraisingDirectExpensesAmt069632
IRS990/FundraisingGrossIncomeAmt039136
IRS990/GainOrLossGrp/SecuritiesAmt0-11081
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GovernmentGrantsAmt010000
IRS990/GrantAmt02803709
IRS990/GrantsPayableGrp/BOYAmt01144187
IRS990/GrantsPayableGrp/EOYAmt0748620
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt019250
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt019250
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02612959
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02612959
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01975150
IRS990/GrossReceiptsAmt08454004
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt06
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt012009
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt021329
IRS990/InformationTechnologyGrp/ProgramServicesAmt0107229
IRS990/InformationTechnologyGrp/TotalAmt0140567
IRS990/InsuranceGrp/FundraisingAmt01077
IRS990/InsuranceGrp/ManagementAndGeneralAmt02529
IRS990/InsuranceGrp/ProgramServicesAmt015034
IRS990/InsuranceGrp/TotalAmt018640
IRS990/InvestmentIncomeGrp/ExclusionAmt082617
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt082617
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt03861406
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02680166
IRS990/IRPDocumentCnt067
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0238078
IRS990/LandBldgEquipBasisNetGrp/BOYAmt037102
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0122441
IRS990/LandBldgEquipCostOrOtherBssAmt0360519
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01986231
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04727786
IRS990/NetAssetsOrFundBalancesEOYAmt04482850
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-11081
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-11081
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-30496
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-30496
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0136160
IRS990/NoncashContributionsAmt025104
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt012400
IRS990/OccupancyGrp/ManagementAndGeneralAmt029117
IRS990/OccupancyGrp/ProgramServicesAmt0173100
IRS990/OccupancyGrp/TotalAmt0214617
IRS990/OfficeExpensesGrp/FundraisingAmt058226
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt012908
IRS990/OfficeExpensesGrp/ProgramServicesAmt0214538
IRS990/OfficeExpensesGrp/TotalAmt0285672
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0260765
IRS990/OtherAssetsTotalGrp/EOYAmt0291021
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt011728
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt06978
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt091669
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0110375
IRS990/OtherExpensesGrp/Desc0HONORARIA
IRS990/OtherExpensesGrp/Desc1PROF. DEVELOPMENT
IRS990/OtherExpensesGrp/FundraisingAmt0885
IRS990/OtherExpensesGrp/FundraisingAmt1822
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01348
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11198
IRS990/OtherExpensesGrp/ProgramServicesAmt0100716
IRS990/OtherExpensesGrp/ProgramServicesAmt111037
IRS990/OtherExpensesGrp/TotalAmt0102949
IRS990/OtherExpensesGrp/TotalAmt113057
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt042939
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0124911
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt060637
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01074322
IRS990/OtherSalariesAndWagesGrp/TotalAmt01259870
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt011760
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07697
IRS990/PayrollTaxesGrp/ProgramServicesAmt086920
IRS990/PayrollTaxesGrp/TotalAmt0106377
IRS990/PensionPlanContributionsGrp/FundraisingAmt04948
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02124
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt044553
IRS990/PensionPlanContributionsGrp/TotalAmt051625
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0437190
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0310711
IRS990/PrincipalOfficerNm0KATHLEEN WEIS
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IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt062389
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt05277766
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt03040289
IRS990/PYInvestmentIncomeAmt0257730
IRS990/PYOtherExpensesAmt02005987
IRS990/PYOtherRevenueAmt0-15830
IRS990/PYProgramServiceRevenueAmt033365
IRS990/PYRevenuesLessExpensesAmt0-1067282
IRS990/PYSalariesCompEmpBnftPaidAmt01574037
IRS990/PYTotalExpensesAmt06620313
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt05553031
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-381096
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd01
IRS990/RelatedOrganizationsAmt035358
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt062389
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0266746
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01128710
IRS990ScheduleA/FactsAndCircumstancesTestTxt0AAMDS QUALIFIES AS A PUBLIC CHARITY UNDER THE "FACTS AND CIRCUMSTANCES" TEST OF 1.170A-9(F)(3) OF THE TREASURY REGULATIONS, BASED UPON THE FOLLOWING:ITS SUPPORT, AS REPORTED FOR 2016, IS 30.32%, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I).AAMDS IS ORGANIZED AND OPERATED SO AS TO ATTRACT NEW AND ADDITIONAL FUNDING ON A CONTINUOUS BASIS, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(II). AAMDS HAS RECENTLY UNDERTAKEN NEW DEVELOPMENT EFFORTS TO BROADEN AAMDS' BASE OF SUPPORT.AAMDS' PUBLIC SUPPORT, AT 30.32%, IS WELL ABOVE THE 10% MINIMUM REQUIRED FOR THE "FACTS AND CIRCUMSTANCES" TEST, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(III). IN MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I), AAMDS HAS RECEIVED SUPPORT FROM A REPRESENTATIVE NUMBER OF ORGANIZATIONS, RATHER THAN RECEIVING ALL OR MOST OF ITS SUPPORT FROM A SINGLE ORGANIZATION, OR FROM A SINGLE DONOR. IN FACT, AAMDS HAS RECEIVED FINANCIAL SUPPORT FROM A NUMBER OF INDIVIDUAL DONORS, IN ADDITION TO GRANTS RECEIVED FROM A NUMBER OF DIFFERENT ORGANIZATIONS. AAMDS' CURRENT FUNDRAISING PLANS ARE TARGETED AT A BROAD BASE OF DONORS. IN THIS RESPECT, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(B).AAMDS REMAINS AN ORGANIZATION COMMITTED TO SERVING THE PUBLIC THROUGH ITS WORK. AAMDS WAS FORMED TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. IN THIS MANNER, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(D).
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt06294712
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt05277766

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,638,642
Liabilities
$1,155,792
Net assets
$4,482,850
Revenue
$6,398,141
Expenses
$6,779,237
Net income
-$381,096
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.46$0.75$6.72$3.04$2.96$0.08
2023Detailed filing. Detailed filing data is available for this year.$7.23$0.74$6.49$3.42$2.49$0.93
2022Detailed filing. Detailed filing data is available for this year.$5.78$0.35$5.43$3.21$2.56$0.65
2021Detailed filing. Detailed filing data is available for this year.$5.20$0.22$4.97$3.48$2.12$1.36
2020Detailed filing. Detailed filing data is available for this year.$4.58$1.02$3.56$4.69$2.96$1.73
2019Detailed filing. Detailed filing data is available for this year.$2.87$1.00$1.86$2.88$3.06$0.18
2018Detailed filing. Detailed filing data is available for this year.$3.31$1.40$1.91$3.06$4.61$1.55
2017Detailed filing. Detailed filing data is available for this year.$5.91$2.33$3.58$5.42$6.45$1.03
2016Detailed filing. Detailed filing data is available for this year.$5.64$1.16$4.48$6.40$6.78$0.38
2015Detailed filing. Detailed filing data is available for this year.$6.29$1.56$4.73$5.55$6.62$1.07
2014Detailed filing. Detailed filing data is available for this year.$7.42$1.31$6.11$7.79$7.54$0.25
2013Detailed filing. Detailed filing data is available for this year.$7.69$1.75$5.94$7.56$5.32$2.25
2012Summary only. Only limited summary data is available for this year.$4.03$0.53$3.50$4.39$3.51$0.88
2011Summary only. Only limited summary data is available for this year.$2.92$0.36$2.57$2.67$2.67$0.00