Civic Intelligence

Aplastic Anemia & Mds International Foundation Inc.

990 • Fiscal year 2015 • EIN 52-1336903

Jan 01, 2015 to Dec 31, 2015 • Filed on Nov 11, 2016

Organization ProfileWWW.AAMDS.ORG

View Organization Page

100 Park Avenue No 108Rockville, MD 20850

(800) 747-2820

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.25x

Higher debt load relative to assets than 57% of similar nonprofits.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2015

Liabilities / Revenue

59th percentile

0.28x

Higher debt load relative to revenue than 59% of similar nonprofits.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2015

Net Margin

12th percentile

-19%

Higher net margin than 12% of similar nonprofits.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2015

Top Officer Pay

87th percentile

$274,068

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 4.9% of source-year revenue.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2015

Asset Growth

6th percentile

-15%

Faster asset growth than 6% of similar nonprofits.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2014 to 2015

Revenue Growth

10th percentile

-29%

Faster revenue growth than 10% of similar nonprofits.

2015 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$6,287,901

Down $1,131,094 (-15%) from 2014

Net Assets

Down

$4,727,786

Down $1,378,125 (-23%) from 2014

Liabilities

Up

$1,560,115

Up $247,031 (+19%) from 2014

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin12th percentile

Revenue

Down

$5,553,031

Down $2,238,995 (-29%) from 2014

Expenses

Down

$6,620,313

Down $921,839 (-12%) from 2014

Net Income

Down

-$1,067,282

Down $1,317,156 (-527%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth6th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $2,920,927Liabilities 2011: $355,169Net Assets 2011: $2,565,7582011Assets 2012: $4,027,621Liabilities 2012: $526,200Net Assets 2012: $3,501,4212012Assets 2013: $7,685,316Liabilities 2013: $1,750,279Net Assets 2013: $5,935,0372013Assets 2014: $7,418,995Liabilities 2014: $1,313,084Net Assets 2014: $6,105,9112014Assets 2015: $6,287,901Liabilities 2015: $1,560,115Net Assets 2015: $4,727,7862015Assets 2016: $5,638,642Liabilities 2016: $1,155,792Net Assets 2016: $4,482,8502016Assets 2017: $5,908,201Liabilities 2017: $2,329,240Net Assets 2017: $3,578,9612017Assets 2018: $3,312,135Liabilities 2018: $1,404,415Net Assets 2018: $1,907,7202018Assets 2019: $2,867,502Liabilities 2019: $1,003,989Net Assets 2019: $1,863,5132019Assets 2020: $4,582,610Liabilities 2020: $1,019,543Net Assets 2020: $3,563,0672020Assets 2021: $5,199,376Liabilities 2021: $224,734Net Assets 2021: $4,974,6422021Assets 2022: $5,783,336Liabilities 2022: $352,156Net Assets 2022: $5,431,1802022Assets 2023: $7,229,650Liabilities 2023: $735,525Net Assets 2023: $6,494,1252023Assets 2024: $7,464,678Liabilities 2024: $747,119Net Assets 2024: $6,717,5592024

Highlighted filing

2015

Assets$6,287,901
Liabilities$1,560,115
Net Assets$4,727,786
Open 2015 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $2,672,457Expenses 2011: $2,668,740Net Income 2011: $3,7172011Revenue 2012: $4,391,197Expenses 2012: $3,512,900Net Income 2012: $878,2972012Revenue 2013: $7,564,470Expenses 2013: $5,318,871Net Income 2013: $2,245,5992013Revenue 2014: $7,792,026Expenses 2014: $7,542,152Net Income 2014: $249,8742014Revenue 2015: $5,553,031Expenses 2015: $6,620,313Net Income 2015: -$1,067,2822015Revenue 2016: $6,398,141Expenses 2016: $6,779,237Net Income 2016: -$381,0962016Revenue 2017: $5,420,085Expenses 2017: $6,448,619Net Income 2017: -$1,028,5342017Revenue 2018: $3,056,482Expenses 2018: $4,608,281Net Income 2018: -$1,551,7992018Revenue 2019: $2,879,436Expenses 2019: $3,058,701Net Income 2019: -$179,2652019Revenue 2020: $4,687,320Expenses 2020: $2,955,289Net Income 2020: $1,732,0312020Revenue 2021: $3,484,930Expenses 2021: $2,124,677Net Income 2021: $1,360,2532021Revenue 2022: $3,208,985Expenses 2022: $2,559,196Net Income 2022: $649,7892022Revenue 2023: $3,416,958Expenses 2023: $2,486,226Net Income 2023: $930,7322023Revenue 2024: $3,039,873Expenses 2024: $2,957,671Net Income 2024: $82,2022024

Highlighted filing

2015

Revenue$5,553,031
Expenses$6,620,313
Net Income-$1,067,282
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Nov 11, 2016
Return Version
2015v2.1
Gross Receipts
$7,187,588
Mission and Program Overview

Mission

To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,784,609$3,861,406▲ $76,797
Cash and Non-Interest-Bearing Accounts$788,041$1,193,611▲ $405,570
Pledges and Grants Receivable$1,974,027$437,190▼ $1,536,837
Savings and Temporary Cash Investments$419,521$266,746▼ $152,775
Prepaid Expenses and Deferred Charges$112,129$225,649▲ $113,520
Land, Buildings, and Equipment, Net$91,006$37,102▼ $53,904
Accounts Receivable$413$5,432▲ $5,019
Inventories for Sale or Use$2,648$0▼ $2,648
Total Assets$7,418,995$6,287,901▼ $1,131,094
Other Assets Total$246,601$260,765▲ $14,164
Liabilities
Grants Payable$521,471$1,144,187▲ $622,716
Accounts Payable and Accrued Expenses$791,613$415,928▼ $375,685
Total Liabilities$1,313,084$1,560,115▲ $247,031
Net Assets / Fund Balance
Temporarily Rstr Net Assets$5,158,862$4,325,054▼ $833,808
Unrestricted Net Assets$947,049$402,732▼ $544,317
Total Net Assets Fund Balance$6,105,911$4,727,786▼ $1,378,125
Total Liabilities and Net Assets / Fund Balance$7,418,995$6,287,901▼ $1,131,094

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$37,102$235,566$272,668
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
John HuberExecutive Director (until 8/15)FT$195,313$78,755$274,068
Benita MarcusSenior Director of OperationsFT$106,719$16,483$123,202
Ellen SalkeldSenior Director of Research/health Prfs.FT$103,000$6,180$109,180
Kathleen WeisCEO (from 7/15)FT$84,977$5,845$90,822

Board Members and Trustees

NameTitle
Kevin Lyons-tarrChair
Harsha MurthyVice Chair
Bart FisherBoard Member
Bill ShulevitzBoard Member
Deborah CookBoard Member
Judy PauletteBoard Member
Melanie MarquezBoard Member
Neil HorikoshiBoard Member
Stephanie Dillon HammBoard Member
Stephen KingSecretary
Tony San FilippoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Calibre CPA GroupProfessional Services7501 WISCONSIN AVENUE, Bethesda, MD 20814$186,020
Revenue and Support

Revenue Composition

Contributions and Grants
$5,277,766
Program Service Revenue
$33,365
Investment Income
$257,730
Other Revenue
$-15,830
All Other Contributions
$5,073,961
Change in Net Assets
$-1,067,282

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,553,031
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-245,558
Total Revenue per Audited Statements
$5,307,473
Total Revenue per Form 990
$5,553,031
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,040,289
Other Expenses$2,005,987
Salaries, Compensation, and Employee Benefits$1,574,037
Total Fundraising Expense$397,947
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,931,789--$2,931,789
Other Salaries and Wages$727,517$97,322$155,775$980,614
Fees for Services Other$382,075$21,971$30,215$434,261
Conferences and Meetings$362,694$11,025$682$374,401
Current Officers, Directors, Trustees, and Key Employees$245,352$102,201$17,337$364,890
Office Expenses$165,160$8,444$77,278$250,882
Fees for Services Accounting$183,237$10,537$14,491$208,265
Travel$148,891$8,105$4,970$161,966
Occupancy$110,667$14,469$19,552$144,688
Information Technology$102,441$12,952$26,173$141,566
Payroll Taxes$79,523$10,255$14,050$103,828
Foreign Grants$87,500--$87,500
Other Employee Benefits$68,445$1,923$14,348$84,716
Depreciation Depletion$45,466$5,862$8,033$59,361
Pension Plan Contributions$32,291$881$6,817$39,989
Fees for Service Investment Mgmnt Fees$27,543--$27,543
Grants to Domestic Individuals$21,000--$21,000
Insurance$14,599$1,881$2,579$19,059
Other Expenses$4,307$5,630$1,538$11,475
All Other Expenses$7,707$751$2,351$10,809
Total Functional Expenses$5,906,943$315,423$397,947$6,620,313

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,685,598
Expenses per Audited Statements$6,620,313
Total Expenses per Form 990$6,620,313
Expenses Not Reported on Form 990$65,285
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cleveland ClinicCleveland, OH501(c)(3)Research$656,411
Weill Cornell Medical CollegeNew York, NY501(c)(3)Research$483,000
H Lee Moffitt Cancer Center & Research InstituteAtlanta, GA501(c)(3)Research$469,047
Johns Hopkins UniversityChicago, IL501(c)(3)Research$448,458
The U of Texas Md Anderson Cancer CenterHouston, TX501(c)(3)Research$430,512
Dana Farber Cancer InstituteBoston, MA501(c)(3)Research$143,671
University of PennsylvaniaPhiladelphia, PA501(c)(3)Research$44,859
Albert Einstein College of Medicine Yeshiva UniversityNew York, NY501(c)(3)Research$44,667
Massachusetts General HospitalBoston, MA501(c)(3)Research$30,000
University of MichiganPittsburgh, PA501(c)(3)Research$30,000
Washington University in St LouisSt Louis, MO501(c)(3)Research$30,000
Johns Hopkins UniversityBaltimore, MD501(c)(3)Research$25,000
Baylor College of MedicineHouston, TX501(c)(3)Research$15,000
CINCINNATI CHILDREN'S HOSPITALCincinnati, OH501(c)(3)Research$15,000
Cleveland Clininc FoundationCleveland, OH501(c)(3)Research$15,000
Icahn School of Medicine at Mount SinaiNew York, NY501(c)(3)Research$15,000
Rhode Island HospitalProvidence, RI501(c)(3)Research$15,000
Fred Hutchinson Cancer Research CtrSeattle, WA501(c)(3)Research$13,164
National Heart Lung and Blood InstituteBethesda, MDGovernmentResearch$8,000

International Summary

Offices
0
Employees
0
Spending
$87,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrant to Recipient Located in Region-00$81,250
South AmericaGrant to Recipient Located in Region-00$6,250
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$46,935
Fundraising Gross Income$31,105
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk$136,300$31,105$39,315$-8,210
Total Events$136,300$31,105$46,935$-15,830
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The form 990 was prepared by the outside accountants and reviewed by the audit committee. A final copy was distributed to the entire board of directors prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Before any contracts are awarded for the purchase of goods or services, management and staff review them for any potential, perceived and/or real conflicts of interest with respect to board members, key volunteers or staff. In the event of conflict of interest, the matter is referred to the executive committee of the board for discussion and resolution. No such conflicts occurred in 2015.”

Form 990, Part VI, Section B, Line 15A

“The ceo's performance & compensation is reviewed by the executive committee using compensation studies published by asae, board source & others for comparitive data. The executive director's salary is approved by the executive committee which then informs the board. This entire process is documented. Salaries of all staff are reviewed annually by the executive director using compensation survey data for comparable size and type organizations. The last salary review date for the executive director was july 2015.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public in print and/or electronic form upon request, at no cost.”

Filing and Contact Details

Filer

Filer Name
Aplastic Anemia & Mds International
EIN
52-1336903
Phone
8007472820
Address
100 PARK AVENUE NO 108, ROCKVILLE, MD 20850

Signing Officer

Name
Kathleen Weis
Title
CEO
Phone
8007472820
Signed
2016-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kathleen Weis
Formed
1983
Legal Domicile
Md
Voting Board Members
11
Independent Board Members
11
Employees
24
Volunteers
670

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 650N, BETHESDA, MD 20814-2930
Phone
3019519090
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 10:

“During the three preceding years, aplastic anemia and mds international foundation received significant funding for multi-year program support and research grants. The foundation's policy, which is in accordance with generally accepted accounting policies, is to recognize temporarily restricted revenue in the years in which the funds were committed and to record expenses and release restrictions in the years in which the funds are spent. The timing resulted in net income, in the three preceding years, and a net loss in 2015.”

Financial Statement Notes

PART X, LINE 2:

“For the year ended december 31, 2015, the foundation has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 46,935. Statements and netted against revenue on form 990, part viii, line 8c.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses reported as expense on the financial 46,935. Statements and netted against revenue on form 990, part viii, line 8c.”

Raw XML AppendixShowing 400 of 890 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SEE PART III, LINE 1.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1143755
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt125845
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1316483
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt146180
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN LYONS-TARR
IRS990/Form990PartVIISectionAGrp/PersonNm1HARSHA MURTHY
IRS990/Form990PartVIISectionAGrp/PersonNm2STEPHEN KING
IRS990/Form990PartVIISectionAGrp/PersonNm3TONY SAN FILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm4STEPHANIE DILLON HAMM
IRS990/Form990PartVIISectionAGrp/PersonNm5DEBORAH COOK
IRS990/Form990PartVIISectionAGrp/PersonNm6BILL SHULEVITZ
IRS990/Form990PartVIISectionAGrp/PersonNm7BART FISHER
IRS990/Form990PartVIISectionAGrp/PersonNm8NEIL HORIKOSHI
IRS990/Form990PartVIISectionAGrp/PersonNm9MELANIE MARQUEZ
IRS990/Form990PartVIISectionAGrp/PersonNm10JUDY PAULETTE
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN HUBER
IRS990/Form990PartVIISectionAGrp/PersonNm12KATHLEEN WEIS
IRS990/Form990PartVIISectionAGrp/PersonNm13BENITA MARCUS
IRS990/Form990PartVIISectionAGrp/PersonNm14ELLEN SALKELD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11230313
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1284977
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13106719
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14103000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11EXECUTIVE DIRECTOR (UNTIL 8/15)
IRS990/Form990PartVIISectionAGrp/TitleTxt12CEO (FROM 7/15)
IRS990/Form990PartVIISectionAGrp/TitleTxt13SENIOR DIR. OF OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt14SENIOR DIR. OF RESEARCH/HEALTH PRFS.
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IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0105195
IRS990/FundraisingDirectExpensesAmt046935
IRS990/FundraisingGrossIncomeAmt031105
IRS990/GainOrLossGrp/SecuritiesAmt092414
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt03040289
IRS990/GrantsPayableGrp/BOYAmt0521471
IRS990/GrantsPayableGrp/EOYAmt01144187
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt021000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt021000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02931789
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02931789
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01680036
IRS990/GrossReceiptsAmt07187588
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt026173
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt012952
IRS990/InformationTechnologyGrp/ProgramServicesAmt0102441
IRS990/InformationTechnologyGrp/TotalAmt0141566
IRS990/InsuranceGrp/FundraisingAmt02579
IRS990/InsuranceGrp/ManagementAndGeneralAmt01881
IRS990/InsuranceGrp/ProgramServicesAmt014599
IRS990/InsuranceGrp/TotalAmt019059
IRS990/InventoriesForSaleOrUseGrp/BOYAmt02648
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt0165316
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0165316
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt03784609
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03861406
IRS990/IRPDocumentCnt064
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0235566
IRS990/LandBldgEquipBasisNetGrp/BOYAmt091006
IRS990/LandBldgEquipBasisNetGrp/EOYAmt037102
IRS990/LandBldgEquipCostOrOtherBssAmt0272668
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01587622
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt06105911
IRS990/NetAssetsOrFundBalancesEOYAmt04727786
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt092414
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt092414
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-15830
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-15830
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-310843
IRS990/NoncashContributionsAmt09782
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt019552
IRS990/OccupancyGrp/ManagementAndGeneralAmt014469
IRS990/OccupancyGrp/ProgramServicesAmt0110667
IRS990/OccupancyGrp/TotalAmt0144688
IRS990/OfficeExpensesGrp/FundraisingAmt077278
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt08444
IRS990/OfficeExpensesGrp/ProgramServicesAmt0165160
IRS990/OfficeExpensesGrp/TotalAmt0250882
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0246601
IRS990/OtherAssetsTotalGrp/EOYAmt0260765
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt014348
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01923
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt068445
IRS990/OtherEmployeeBenefitsGrp/TotalAmt084716
IRS990/OtherExpensesGrp/Desc0HONORARIA
IRS990/OtherExpensesGrp/Desc1EQUIPMENT
IRS990/OtherExpensesGrp/Desc2EXHIBITOR EXPENSE
IRS990/OtherExpensesGrp/Desc3PROF. DEVELOPMENT
IRS990/OtherExpensesGrp/FundraisingAmt0797
IRS990/OtherExpensesGrp/FundraisingAmt1961
IRS990/OtherExpensesGrp/FundraisingAmt21538
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0510
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1704
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt25630
IRS990/OtherExpensesGrp/ProgramServicesAmt089710
IRS990/OtherExpensesGrp/ProgramServicesAmt143362
IRS990/OtherExpensesGrp/ProgramServicesAmt225667
IRS990/OtherExpensesGrp/ProgramServicesAmt34307
IRS990/OtherExpensesGrp/TotalAmt091017
IRS990/OtherExpensesGrp/TotalAmt145027
IRS990/OtherExpensesGrp/TotalAmt225667
IRS990/OtherExpensesGrp/TotalAmt311475
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0155775
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt097322
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0727517
IRS990/OtherSalariesAndWagesGrp/TotalAmt0980614
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt014050
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt010255
IRS990/PayrollTaxesGrp/ProgramServicesAmt079523
IRS990/PayrollTaxesGrp/TotalAmt0103828
IRS990/PensionPlanContributionsGrp/FundraisingAmt06817
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0881
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt032291
IRS990/PensionPlanContributionsGrp/TotalAmt039989
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01974027
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0437190
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0112129
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0225649
IRS990/PrincipalOfficerNm0KATHLEEN WEIS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt033365
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt033365
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt07394694
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt03305512
IRS990/PYInvestmentIncomeAmt0357591
IRS990/PYOtherExpensesAmt02529520
IRS990/PYOtherRevenueAmt0-6288
IRS990/PYProgramServiceRevenueAmt046029
IRS990/PYRevenuesLessExpensesAmt0249874
IRS990/PYSalariesCompEmpBnftPaidAmt01707120
IRS990/PYTotalExpensesAmt07542152
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt07792026
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-1067282
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd01
IRS990/RelatedOrganizationsAmt060000
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt033365
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0419521
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0266746
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt05277766
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt07394694
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt07360504
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04295799
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt02595973
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt026924736
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0165316
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0176581
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0146346
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt040025
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt044735
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0573003
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0143042
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0398
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0398
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.32820
IRS990ScheduleA/PublicSupportPY170Pct00.36070
IRS990ScheduleA/PublicSupportTotal170Amt09026200
IRS990ScheduleA/SubstantialContributorsTotAmt017898536

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,287,901
Liabilities
$1,560,115
Net assets
$4,727,786
Revenue
$5,553,031
Expenses
$6,620,313
Net income
-$1,067,282
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.46$0.75$6.72$3.04$2.96$0.08
2023Detailed filing. Detailed filing data is available for this year.$7.23$0.74$6.49$3.42$2.49$0.93
2022Detailed filing. Detailed filing data is available for this year.$5.78$0.35$5.43$3.21$2.56$0.65
2021Detailed filing. Detailed filing data is available for this year.$5.20$0.22$4.97$3.48$2.12$1.36
2020Detailed filing. Detailed filing data is available for this year.$4.58$1.02$3.56$4.69$2.96$1.73
2019Detailed filing. Detailed filing data is available for this year.$2.87$1.00$1.86$2.88$3.06$0.18
2018Detailed filing. Detailed filing data is available for this year.$3.31$1.40$1.91$3.06$4.61$1.55
2017Detailed filing. Detailed filing data is available for this year.$5.91$2.33$3.58$5.42$6.45$1.03
2016Detailed filing. Detailed filing data is available for this year.$5.64$1.16$4.48$6.40$6.78$0.38
2015Detailed filing. Detailed filing data is available for this year.$6.29$1.56$4.73$5.55$6.62$1.07
2014Detailed filing. Detailed filing data is available for this year.$7.42$1.31$6.11$7.79$7.54$0.25
2013Detailed filing. Detailed filing data is available for this year.$7.69$1.75$5.94$7.56$5.32$2.25
2012Summary only. Only limited summary data is available for this year.$4.03$0.53$3.50$4.39$3.51$0.88
2011Summary only. Only limited summary data is available for this year.$2.92$0.36$2.57$2.67$2.67$0.00