Civic Intelligence

Aplastic Anemia & Mds International Foundation Inc.

990 • Fiscal year 2013 • EIN 52-1336903

Jan 01, 2013 to Dec 31, 2013 • Filed on May 15, 2014

Organization ProfileWWW.AAMDS.ORG

View Organization Page

100 Park Avenue No 10820850

(800) 747-2820

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

53rd percentile

0.23x

Higher debt load relative to assets than 53% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Liabilities / Revenue

54th percentile

0.23x

Higher debt load relative to revenue than 54% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Net Margin

83rd percentile

30%

Higher net margin than 83% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Top Officer Pay

78th percentile

$205,054

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 2.7% of source-year revenue.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Asset Growth

97th percentile

91%

Faster asset growth than 97% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2012 to 2013

Revenue Growth

91st percentile

72%

Faster revenue growth than 91% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2012 to 2013

Balance Sheet
Liabilities / Assets53rd percentile

Assets

Up

$7,685,316

Up $3,657,695 (+91%) from 2012

Net Assets

Up

$5,935,037

Up $2,433,616 (+70%) from 2012

Liabilities

Up

$1,750,279

Up $1,224,079 (+233%) from 2012

Revenue And Expenses
Liabilities / Revenue54th percentileNet Margin83rd percentile

Revenue

Up

$7,564,470

Up $3,173,273 (+72%) from 2012

Expenses

Up

$5,318,871

Up $1,805,971 (+51%) from 2012

Net Income

Up

$2,245,599

Up $1,367,302 (+156%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth97th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $2,920,927Liabilities 2011: $355,169Net Assets 2011: $2,565,7582011Assets 2012: $4,027,621Liabilities 2012: $526,200Net Assets 2012: $3,501,4212012Assets 2013: $7,685,316Liabilities 2013: $1,750,279Net Assets 2013: $5,935,0372013Assets 2014: $7,418,995Liabilities 2014: $1,313,084Net Assets 2014: $6,105,9112014Assets 2015: $6,287,901Liabilities 2015: $1,560,115Net Assets 2015: $4,727,7862015Assets 2016: $5,638,642Liabilities 2016: $1,155,792Net Assets 2016: $4,482,8502016Assets 2017: $5,908,201Liabilities 2017: $2,329,240Net Assets 2017: $3,578,9612017Assets 2018: $3,312,135Liabilities 2018: $1,404,415Net Assets 2018: $1,907,7202018Assets 2019: $2,867,502Liabilities 2019: $1,003,989Net Assets 2019: $1,863,5132019Assets 2020: $4,582,610Liabilities 2020: $1,019,543Net Assets 2020: $3,563,0672020Assets 2021: $5,199,376Liabilities 2021: $224,734Net Assets 2021: $4,974,6422021Assets 2022: $5,783,336Liabilities 2022: $352,156Net Assets 2022: $5,431,1802022Assets 2023: $7,229,650Liabilities 2023: $735,525Net Assets 2023: $6,494,1252023Assets 2024: $7,464,678Liabilities 2024: $747,119Net Assets 2024: $6,717,5592024

Highlighted filing

2013

Assets$7,685,316
Liabilities$1,750,279
Net Assets$5,935,037
Open 2013 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $2,672,457Expenses 2011: $2,668,740Net Income 2011: $3,7172011Revenue 2012: $4,391,197Expenses 2012: $3,512,900Net Income 2012: $878,2972012Revenue 2013: $7,564,470Expenses 2013: $5,318,871Net Income 2013: $2,245,5992013Revenue 2014: $7,792,026Expenses 2014: $7,542,152Net Income 2014: $249,8742014Revenue 2015: $5,553,031Expenses 2015: $6,620,313Net Income 2015: -$1,067,2822015Revenue 2016: $6,398,141Expenses 2016: $6,779,237Net Income 2016: -$381,0962016Revenue 2017: $5,420,085Expenses 2017: $6,448,619Net Income 2017: -$1,028,5342017Revenue 2018: $3,056,482Expenses 2018: $4,608,281Net Income 2018: -$1,551,7992018Revenue 2019: $2,879,436Expenses 2019: $3,058,701Net Income 2019: -$179,2652019Revenue 2020: $4,687,320Expenses 2020: $2,955,289Net Income 2020: $1,732,0312020Revenue 2021: $3,484,930Expenses 2021: $2,124,677Net Income 2021: $1,360,2532021Revenue 2022: $3,208,985Expenses 2022: $2,559,196Net Income 2022: $649,7892022Revenue 2023: $3,416,958Expenses 2023: $2,486,226Net Income 2023: $930,7322023Revenue 2024: $3,039,873Expenses 2024: $2,957,671Net Income 2024: $82,2022024

Highlighted filing

2013

Revenue$7,564,470
Expenses$5,318,871
Net Income$2,245,599
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 15, 2014
Return Version
2013v3.0
Gross Receipts
$8,092,647
Mission and Program Overview

Mission

To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,554,108$4,690,612▲ $3,136,504
Pledges and Grants Receivable$885,721$902,441▲ $16,720
Cash and Non-Interest-Bearing Accounts$775,421$886,172▲ $110,751
Savings and Temporary Cash Investments$466,636$799,697▲ $333,061
Land, Buildings, and Equipment, Net$52,527$138,658▲ $86,131
Prepaid Expenses and Deferred Charges$26,703$30,062▲ $3,359
Inventories for Sale or Use$2,539$3,708▲ $1,169
Accounts Receivable$46,312$726▼ $45,586
Total Assets$4,027,621$7,685,316▲ $3,657,695
Other Assets Total$217,654$233,240▲ $15,586
Liabilities
Grants Payable-$1,356,692-
Accounts Payable and Accrued Expenses$526,200$393,587▼ $132,613
Total Liabilities$526,200$1,750,279▲ $1,224,079
Net Assets / Fund Balance
Temporarily Rstr Net Assets$2,457,885$4,847,638▲ $2,389,753
Unrestricted Net Assets$1,043,536$1,087,399▲ $43,863
Total Net Assets Fund Balance$3,501,421$5,935,037▲ $2,433,616
Total Liabilities and Net Assets / Fund Balance$4,027,621$7,685,316▲ $3,657,695

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$138,658$113,633$252,291
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
John HuberExecutive DirectorFT$152,500$52,554$205,054
Sandra WalterDirector of DevelopmentPT$107,023$12,866$119,889
Benita MarcusDirector of Information ManagementFT$102,567$12,299$114,866
Stephanie ChisolmDirector of Professional ProgramsFT$102,284$12,299$114,583

Board Members and Trustees

NameTitle
Kevin Lyons-tarrChair
Harsha MurthyVice Chair
Bart FisherBoard Member
Bill ShulevikBoard Member
Deborah CookBoard Member
Judy PauletteBoard Member
Melanie MarquezBoard Member
Michael SuhBoard Member
Neil HorikoshiBoard Member
Stephanie Dillon HammBoard Member
Stephen KingSecretary
Tony SanfilippoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Crowell MoringLegal-$149,541
Calibre CPA GroupAccounting-$143,550
Robert J Berendt AssociatesConsulting/project Management-$133,143
Mac SystemsCommunications-$119,940
Revenue and Support

Revenue Composition

Contributions and Grants
$7,360,504
Program Service Revenue
$1,750
Investment Income
$209,607
Other Revenue
$-7,391
All Other Contributions
$7,298,396
Change in Net Assets
$2,245,599

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$49,937Fair Market Value (FMV)
Securities Publicly Traded1$1,165Fair Market Value (FMV)
Total Noncash Contributions2$51,102-

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,554,631
Revenue Not Reported on Financial Statements
$9,839
Revenue Not Reported on Form 990
$221,738
Total Revenue per Audited Statements
$7,776,369
Total Revenue per Form 990
$7,564,470
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,052,892
Grants and Similar Amounts Paid$1,809,717
Salaries, Compensation, and Employee Benefits$1,456,262
Total Fundraising Expense$343,287
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,776,717--$1,776,717
Other Salaries and Wages$744,206$128,868$167,132$1,040,206
Fees for Services Other$469,558$41,594$22,679$533,831
Conferences and Meetings$354,812$4,496$1,996$361,304
Office Expenses$263,642$10,375$50,472$324,489
Current Officers, Directors, Trustees, and Key Employees$135,336$61,516$8,202$205,054
Fees for Services Accounting$152,216$13,327$7,267$172,810
Travel$149,441$2,801$4,343$156,585
Fees for Services Legal$132,920$11,638$6,345$150,903
Occupancy$99,532$15,315$17,789$132,636
Information Technology$75,186$11,496$14,664$101,346
Other Employee Benefits$77,459$7,514$15,575$100,548
Payroll Taxes$66,719$10,268$11,925$88,912
Depreciation Depletion$32,801$5,047$5,862$43,710
Fees for Service Investment Mgmnt Fees$15,391$9,839-$25,230
Pension Plan Contributions$17,101$578$3,863$21,542
Grants to Domestic Individuals$18,000--$18,000
Insurance$12,968$1,994$2,318$17,280
Foreign Grants$15,000--$15,000
Fees for Services Lobbying$5,500--$5,500
Other Expenses$1,739$211$469$2,419
All Other Expenses-$771$894$1,665
Total Functional Expenses$4,637,168$338,416$343,287$5,318,871

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$5,342,753
Total Expenses per Form 990$5,318,871
Expenses per Audited Statements$5,309,032
Expenses Not Reported on Form 990$33,721
Expenses Not Reported on Financial Statements$9,839
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
34-0714585-501(c)(3)Research$414,628
76-0449960-501(c)(3)Research$362,250
04-2263040-501(c)(3)Research$223,149
59-2451713-501(c)(3)Research$187,881
13-3376695-501(c)(3)Research$145,000
52-0595110-501(c)(3)Research$143,245
38-3555142-501(c)(3)Research$30,000
13-5562308-501(c)(3)Research$30,000
24-6000376-501(c)(3)Research$30,000
43-0653611-501(c)(3)Research$30,000
54-2084125-501(c)(3)Research$30,000
23-1352685-501(c)(3)Research$15,000
91-0450697-501(c)(3)Research$15,000
23-7156071-501(c)(3)Research$15,000
93-1176109-501(c)(3)Research$15,000
31-0833936-501(c)(3)Research$15,000
43-6003859-501(c)(3)Research$15,000

International Summary

Offices
0
Employees
0
Spending
$15,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrant to Recipient Located in Region-00$15,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$24,421
Fundraising Gross Income$17,030
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$79,138$17,030$22,070$-5,040
Total Events$79,138$17,030$24,421$-7,391
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The form 990 was prepared by the outside accountants and reviewed by the audit committee. A final copy was distributed to the entire board of directors prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Before any contracts are awarded for the purchase of goods or services, management and staff review them for any potential, perceived and/or real conflicts of interest with respect to board members, key volunteers or staff. In the event of conflict of interest, the matter is referred to the executive committee of the board for discussion and resolution. No such conflicts occurred in 2013.”

Form 990, Part VI, Section B, Line 15A

“The ceo's performance & compensation is reviewed by the executive committee using compensation studies published by asae, board source & others for comparitive data. The executive director's salary is approved by the executive committee which then informs the board. This entire process is documented. Salaries of all staff are reviewed annually by the executive director using compensation survey data for comparable size and type organizations. The last salary review date for the executive director was june 2013.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public in print and/or electronic form upon request, at no cost.”

Filing and Contact Details

Filer

EIN
52-1336903
Phone
8007472820

Signing Officer

Name
John M Huber
Title
Executive Director
Phone
8007472820
Signed
2014-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
John M Huber
Formed
1983
Legal Domicile
Md
Voting Board Members
12
Independent Board Members
12
Employees
20
Volunteers
100

Preparer

Phone
3019519090
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“For the year ended december 31, 2013, the foundation has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements. The federal form 990, return of organization exempt from income tax, is subject to examination by the internal revenue service, generally for three years after it is filed.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Part xi, line 2d - other adjustments: special event expenses reported as expense on the financial $24,421 statements and netted against revenue on form 990, part viii, line 8c. Part xii, line 2d - other adjustments: special event expenses reported as expense on the financial $24,421 statements and netted against revenue on form 990, part viii, line 8c.”

Raw XML AppendixShowing 400 of 878 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
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IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1232554
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1312866
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1412299
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1512299
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN LYONS-TARR
IRS990/Form990PartVIISectionAGrp/PersonNm1HARSHA MURTHY
IRS990/Form990PartVIISectionAGrp/PersonNm2STEPHEN KING
IRS990/Form990PartVIISectionAGrp/PersonNm3TONY SANFILIPPO
IRS990/Form990PartVIISectionAGrp/PersonNm4STEPHANIE DILLON HAMM
IRS990/Form990PartVIISectionAGrp/PersonNm5NEIL HORIKOSHI
IRS990/Form990PartVIISectionAGrp/PersonNm6BART FISHER
IRS990/Form990PartVIISectionAGrp/PersonNm7MICHAEL SUH
IRS990/Form990PartVIISectionAGrp/PersonNm8DEBORAH COOK
IRS990/Form990PartVIISectionAGrp/PersonNm9BILL SHULEVIK
IRS990/Form990PartVIISectionAGrp/PersonNm10JUDY PAULETTE
IRS990/Form990PartVIISectionAGrp/PersonNm11MELANIE MARQUEZ
IRS990/Form990PartVIISectionAGrp/PersonNm12JOHN HUBER
IRS990/Form990PartVIISectionAGrp/PersonNm13SANDRA WALTER
IRS990/Form990PartVIISectionAGrp/PersonNm14STEPHANIE CHISOLM
IRS990/Form990PartVIISectionAGrp/PersonNm15BENITA MARCUS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12172500
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13107023
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14102284
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15102567
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR OF PROFESSIONAL PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR OF INFORMATION MANAGEMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt062108
IRS990/FundraisingDirectExpensesAmt024421
IRS990/FundraisingGrossIncomeAmt017030
IRS990/GainOrLossGrp/SecuritiesAmt063261
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantAmt01809717
IRS990/GrantsPayableGrp/EOYAmt01356692
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt018000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt018000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01776717
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01776717
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0567017
IRS990/GrossReceiptsAmt08092647
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt014664
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt011496
IRS990/InformationTechnologyGrp/ProgramServicesAmt075186
IRS990/InformationTechnologyGrp/TotalAmt0101346
IRS990/InsuranceGrp/FundraisingAmt02318
IRS990/InsuranceGrp/ManagementAndGeneralAmt01994
IRS990/InsuranceGrp/ProgramServicesAmt012968
IRS990/InsuranceGrp/TotalAmt017280
IRS990/InventoriesForSaleOrUseGrp/BOYAmt02539
IRS990/InventoriesForSaleOrUseGrp/EOYAmt03708
IRS990/InvestmentIncomeGrp/ExclusionAmt0146346
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0146346
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01554108
IRS990/InvestmentsPubTradedSecGrp/EOYAmt04690612
IRS990/IRPDocumentCnt039
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0113633
IRS990/LandBldgEquipBasisNetGrp/BOYAmt052527
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0138658
IRS990/LandBldgEquipCostOrOtherBssAmt0252291
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0503756
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03501421
IRS990/NetAssetsOrFundBalancesEOYAmt05935037
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt063261
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt063261
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-7391
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-7391
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0188017
IRS990/NoncashContributionsAmt051102
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt017789
IRS990/OccupancyGrp/ManagementAndGeneralAmt015315
IRS990/OccupancyGrp/ProgramServicesAmt099532
IRS990/OccupancyGrp/TotalAmt0132636
IRS990/OfficeExpensesGrp/FundraisingAmt050472
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt010375
IRS990/OfficeExpensesGrp/ProgramServicesAmt0263642
IRS990/OfficeExpensesGrp/TotalAmt0324489
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0217654
IRS990/OtherAssetsTotalGrp/EOYAmt0233240
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt015575
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt07514
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt077459
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0100548
IRS990/OtherExpensesGrp/Desc0EXHIBITOR EXPENSE
IRS990/OtherExpensesGrp/Desc1DUES, FEES, AND SUBS
IRS990/OtherExpensesGrp/Desc2PAYROLL PROCESSING FEES
IRS990/OtherExpensesGrp/Desc3PROF. DEVELOPMENT
IRS990/OtherExpensesGrp/FundraisingAmt01143
IRS990/OtherExpensesGrp/FundraisingAmt1349
IRS990/OtherExpensesGrp/FundraisingAmt2469
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0468
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1300
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2211
IRS990/OtherExpensesGrp/ProgramServicesAmt011113
IRS990/OtherExpensesGrp/ProgramServicesAmt17859
IRS990/OtherExpensesGrp/ProgramServicesAmt21952
IRS990/OtherExpensesGrp/ProgramServicesAmt31739
IRS990/OtherExpensesGrp/TotalAmt011113
IRS990/OtherExpensesGrp/TotalAmt19470
IRS990/OtherExpensesGrp/TotalAmt22601
IRS990/OtherExpensesGrp/TotalAmt32419
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0167132
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0128868
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0744206
IRS990/OtherSalariesAndWagesGrp/TotalAmt01040206
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt011925
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt010268
IRS990/PayrollTaxesGrp/ProgramServicesAmt066719
IRS990/PayrollTaxesGrp/TotalAmt088912
IRS990/PensionPlanContributionsGrp/FundraisingAmt03863
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0578
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt017101
IRS990/PensionPlanContributionsGrp/TotalAmt021542
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0885721
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0902441
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt026703
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt030062
IRS990/PrincipalOfficerNm0JOHN M HUBER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01750
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01750
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04295799
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0262506
IRS990/PYInvestmentIncomeAmt087855
IRS990/PYOtherExpensesAmt02017600
IRS990/PYOtherRevenueAmt0-28966
IRS990/PYProgramServiceRevenueAmt036509
IRS990/PYRevenuesLessExpensesAmt0878297
IRS990/PYSalariesCompEmpBnftPaidAmt01232794
IRS990/PYTotalExpensesAmt03512900
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04391197
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt02245599
IRS990/RegularMonitoringEnfrcInd01

Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,685,316
Liabilities
$1,750,279
Net assets
$5,935,037
Revenue
$7,564,470
Expenses
$5,318,871
Net income
$2,245,599
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.46$0.75$6.72$3.04$2.96$0.08
2023Detailed filing. Detailed filing data is available for this year.$7.23$0.74$6.49$3.42$2.49$0.93
2022Detailed filing. Detailed filing data is available for this year.$5.78$0.35$5.43$3.21$2.56$0.65
2021Detailed filing. Detailed filing data is available for this year.$5.20$0.22$4.97$3.48$2.12$1.36
2020Detailed filing. Detailed filing data is available for this year.$4.58$1.02$3.56$4.69$2.96$1.73
2019Detailed filing. Detailed filing data is available for this year.$2.87$1.00$1.86$2.88$3.06$0.18
2018Detailed filing. Detailed filing data is available for this year.$3.31$1.40$1.91$3.06$4.61$1.55
2017Detailed filing. Detailed filing data is available for this year.$5.91$2.33$3.58$5.42$6.45$1.03
2016Detailed filing. Detailed filing data is available for this year.$5.64$1.16$4.48$6.40$6.78$0.38
2015Detailed filing. Detailed filing data is available for this year.$6.29$1.56$4.73$5.55$6.62$1.07
2014Detailed filing. Detailed filing data is available for this year.$7.42$1.31$6.11$7.79$7.54$0.25
2013Detailed filing. Detailed filing data is available for this year.$7.69$1.75$5.94$7.56$5.32$2.25
2012Summary only. Only limited summary data is available for this year.$4.03$0.53$3.50$4.39$3.51$0.88
2011Summary only. Only limited summary data is available for this year.$2.92$0.36$2.57$2.67$2.67$0.00