Liabilities / Assets
87th percentile
Higher debt load relative to assets than 87% of similar nonprofits.
Autoimmune Encephalitis Alliance Inc.
990EZ • Fiscal year 2013 • EIN 46-1584730
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.21x
Liabilities / Revenue
89th percentile
Higher debt load relative to revenue than 89% of similar nonprofits.
Net Margin
86th percentile
Higher net margin than 86% of similar nonprofits.
Top Officer Pay
80th percentile
Higher top officer pay than 80% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
$68,918
No earlier filing loaded for comparison.
Net Assets
$54,704
No earlier filing loaded for comparison.
Liabilities
$14,214
No earlier filing loaded for comparison.
Revenue And Expenses
Revenue
$86,957
No earlier filing loaded for comparison.
Expenses
$42,283
No earlier filing loaded for comparison.
Net Income
$44,674
No earlier filing loaded for comparison.
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2013 to Dec 31, 2013
- Signed
- May 14, 2014
- Return Version
- 2013v3.1
- Gross Receipts
- $103,947
Mission and Program Overview
Mission
The autoimmune encephalitis alliance strives to improve the lives of patients with ae by connecting the community of patients, families, and medical providers to advance knowledge and advocate for each other so no one faces ae alone.
The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families and caregivers so that no one faces autoimmune encephalitis alone.The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Patient Advocacy & Family SupportFlorence Forth Road Race: On March 2, 2013, the AE Alliance held the first annual Florence Forth road race in Durham NC attracting 700 runners, 120 volunteers and 21 local business supporters. The road race focused on educating the community about autoimmune encephalitis.Short Film: In 2013, the AEA produced a short film titled Across the Starting Line. The film follows the journey of two families seeking diagnosis and treatment for AE and provides a call to action to begin the AE Alliance. It has proven a great resource for donor events and general education of the disease and the struggle faced by families and doctors who often feel alone in their journey. Educational Events & Book Readings: Susannah Cahalans Brain on Fire has been an incredible educational milestone for families and patients with AE. We joined with Susannah and her doctor in NY for one educational event with over 200 people in attendance where we first showed the short film, Across the Starting Line. In addition to NY, we held two events, one in Durham, NC with 100 attendees and the other event in Rock Hill, SC with 50 attendees where the documentary film was shown.AE Alliance Website resource: In August 2013, the AE Alliance launched the full website resource on autoimmune encephalitis. The website provides detailed information for families struggling with the disease. | $14,991 | - |
| Clinical Care & Doctor EducationGrand Rounds: In 2013, the AE Alliance board members organized two Grand Rounds at Duke Medical Center to educate clinicians about AE. The first Grand Rounds was held in January and was hosted by Dukes Department of Child Psychiatry with 100 doctors and four AE families in attendance. The second Grand Rounds was in October 2013 and was hosted by Dukes Department of Child Psychiatry. Dr. Souhel Najjar, a practicing Neurologist from NYU delivered the presentation to 100 doctors. AE Alliance website resource: The AE Alliance taped and edited the first Grand Rounds at Duke University. Further, the Grand Rounds was put into chapters and placed on the AE Alliance website as an education tool for doctors who are searching for information on AE. | $13,808 | $11,000 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Will McDow | Chairman | PT | $0 | - | - |
| Leslie McDow | Secretary | PT | $0 | - | - |
| Daniel Egger | Treasurer | - | $0 | - | - |
| Susannah Cahalan | Director | - | $0 | - | - |
Fundraising, Events, and Gaming
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $27,565 | $23,565 | $15,363 | $8,202 |
| Total Events | $27,565 | $23,565 | $16,990 | $6,575 |
Filing and Contact Details
Filer
- EIN
- 46-1584730
- Phone
- 9199640454
Signing Officer
- Name
- Will McDow
- Title
- Chairman
- Signed
- 2014-05-14
- Discuss with paid preparer
- Yes
Preparer
- Preparer
- Cris Rivera
- Phone
- 9192254228
Supplemental Narrative
Additional Explanations
Grants and Similar Amounts Paid In Excess of $5,000.1
“| Donee's Name: Duke Autoimmune Brain Disorder Clinic | Cash Amount Given: $11000”
Other Expenses.1005
“Travel $2759”
Other Expenses.1007
“Conferences, Conventions, and Meetings $1255”
Other Expenses.1012
“Insurance $124”
Other Expenses.2
“Supplies $1918”
Other Expenses.3
“Licenses & Fees $958”
Other Expenses.4
“eCommerce Charges $158”
Other Assets.1005
“Accounts Receivable - Beginning $0 Accounts Receivable - Ending $2460”
Other Assets.1
“Sales Taxes Paid - Beginning $0 Sales Taxes Paid - Ending $154”
Total Liabilities.1001
“Accounts Payable and Accrued Expenses - Beginning $0 Accounts Payable and Accrued Expenses - Ending $1289”
Total Liabilities.1003
“Deferred Revenue - Beginning $0 Deferred Revenue - Ending $12925”
Raw XML Appendix181 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | | Donee's Name: Duke Autoimmune Brain Disorder Clinic | Cash Amount Given: $11000 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Travel $2759 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Conferences, Conventions, and Meetings $1255 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Insurance $124 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Supplies $1918 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Licenses & Fees $958 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | eCommerce Charges $158 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | Deferred Revenue - Beginning $0 Deferred Revenue - Ending $12925 |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Other Expenses.1007 |
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| ReturnHeader/BuildTS | 0 | 2015-11-30 17:44:51Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Will McDow |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Chairman |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2014-05-14 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1 | 0 | Autoimmune Encephalitis Alliance |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | AUTO |
| ReturnHeader/Filer/EIN | 0 | 461584730 |
| ReturnHeader/Filer/PhoneNum | 0 | 9199640454 |
| ReturnHeader/Filer/USAddress/AddressLine1 | 0 | 920 Urban Avenue |
| ReturnHeader/Filer/USAddress/City | 0 | Durham |
| ReturnHeader/Filer/USAddress/State | 0 | NC |
| ReturnHeader/Filer/USAddress/ZIPCode | 0 | 27701 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1 | 0 | Cris M Rivera CPA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1 | 0 | 4001 Inwood Drive |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City | 0 | Durham |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State | 0 | NC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode | 0 | 27705 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 9192254228 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Cris Rivera |
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| ReturnHeader/ReturnTs | 0 | 2014-05-14T16:25:28-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2013-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2013-12-31 |
| ReturnHeader/TaxYr | 0 | 2013 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $68,918
- Liabilities
- $14,214
- Net assets
- $54,704
- Revenue
- $86,957
- Expenses
- $42,283
- Net income
- $44,674