Civic Intelligence

Autoimmune Encephalitis Alliance Inc.

990EZ • Fiscal year 2016 • EIN 46-1584730

Jan 01, 2016 to Dec 31, 2016 • Filed on Aug 15, 2017

920 Urban AveDurham, NC 27701

(919) 964-0454

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

76th percentile

0.04x

Higher debt load relative to assets than 76% of similar nonprofits.

2016 filings • NTEE G • <$500k nonprofits • Source year 2016

Liabilities / Revenue

77th percentile

0.04x

Higher debt load relative to revenue than 77% of similar nonprofits.

2016 filings • NTEE G • <$500k nonprofits • Source year 2016

Net Margin

22nd percentile

-13%

Higher net margin than 22% of similar nonprofits.

2016 filings • NTEE G • <$500k nonprofits • Source year 2016

Top Officer Pay

97th percentile

$74,730

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 58.7% of source-year revenue.

2016 filings • NTEE G • <$500k nonprofits • Source year 2016

Asset Growth

26th percentile

-17%

Faster asset growth than 26% of similar nonprofits.

2016 filings • NTEE G • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

85th percentile

78%

Faster revenue growth than 85% of similar nonprofits.

2016 filings • NTEE G • <$500k nonprofits • Annualized from 2015 to 2016

Assets

Down

$123,937

Down $24,626 (-17%) from 2015

Net Assets

Down

$119,328

Down $16,800 (-12%) from 2015

Liabilities

Down

$4,609

Down $7,826 (-63%) from 2015

Revenue

Up

$127,233

Up $55,742 (+78%) from 2015

Expenses

Up

$144,033

Up $108,656 (+307%) from 2015

Net Income

Down

-$16,800

Down $52,914 (-147%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200K$150K$100K$50K$0Assets 2013: $68,918Liabilities 2013: $14,214Net Assets 2013: $54,7042013Assets 2014: $103,326Liabilities 2014: $4,875Net Assets 2014: $98,4512014Assets 2015: $148,563Liabilities 2015: $12,435Net Assets 2015: $136,1282015Assets 2016: $123,937Liabilities 2016: $4,609Net Assets 2016: $119,3282016Assets 2017: $116,038Liabilities 2017: $16,059Net Assets 2017: $99,9792017Assets 2018: $124,500Liabilities 2018: $10,505Net Assets 2018: $113,9952018Assets 2019: $171,648Liabilities 2019: $4,956Net Assets 2019: $166,6922019Assets 2020: $189,018Liabilities 2020: $17,804Net Assets 2020: $171,2142020Assets 2021: $161,493Liabilities 2021: $1,265Net Assets 2021: $160,2282021Assets 2022: $193,519Liabilities 2022: $0Net Assets 2022: $193,5192022Assets 2023: $147,393Liabilities 2023: $737Net Assets 2023: $146,6562023Assets 2024: $105,828Liabilities 2024: $229Net Assets 2024: $105,5992024

Highlighted filing

2016

Assets$123,937
Liabilities$4,609
Net Assets$119,328

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2013: $86,957Expenses 2013: $42,283Net Income 2013: $44,6742013Revenue 2014: $88,528Expenses 2014: $50,817Net Income 2014: $37,7112014Revenue 2015: $71,491Expenses 2015: $35,377Net Income 2015: $36,1142015Revenue 2016: $127,233Expenses 2016: $144,033Net Income 2016: -$16,8002016Revenue 2017: $136,083Expenses 2017: $155,432Net Income 2017: -$19,3492017Revenue 2018: $190,786Expenses 2018: $182,674Net Income 2018: $8,1122018Revenue 2019: $172,009Expenses 2019: $119,312Net Income 2019: $52,6972019Revenue 2020: $205,263Expenses 2020: $201,754Net Income 2020: $3,5092020Revenue 2021: $235,544Expenses 2021: $241,487Net Income 2021: -$5,9432021Revenue 2022: $217,693Expenses 2022: $184,340Net Income 2022: $33,3532022Revenue 2023: $143,916Expenses 2023: $190,779Net Income 2023: -$46,8632023Revenue 2024: $145,321Expenses 2024: $186,503Net Income 2024: -$41,1822024

Highlighted filing

2016

Revenue$127,233
Expenses$144,033
Net Income-$16,800
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Aug 15, 2017
Return Version
2016v3.0
Gross Receipts
$168,273
Mission and Program Overview

Mission

The autoimmune encephalitis alliance strives to improve the lives of patients with ae by connecting the community of patients, families, and medical providers to advance knowledge and advocate for each other so no one faces ae alone.

The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families and caregivers so that no one faces autoimmune encephalitis alone. The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.

Program Services

DescriptionGrantsExpenses
Clinical Care & Doctor Education - The Alliances Clinicians Network remains the premier online resource to identify expert clinicians with experience treating autoimmune encephalitis. This network grew by 1/3 in 2016. Executive Director, John Spencer, attended the American Autoimmune Related Disease Assoc. annual meeting in DC, and spoke at Grand Rounds at NYU. Board member, Alicia Garceau, represented AEA at the Childhood Arthritis & Rheumatology Research Alliance annual conference in Toronto. AEA funded the American College of Rheumatology AE meeting in Washington DC, with a goal of pediatric treatment consensus.$43,163$25,000
Patient Advocacy & Family Support - A primary means to support patients and families is through the information provided on the AEA website. The number of visitors to www.aealliance.org in 2016 increased by 128,000 over the prior year. AE Alliance board members provided direct assistance to families and patients who reached out via email, social media, and via phone with questions about diagnosis, treatment, and recovery. In March 2016, the Alliance hosted the 4th annual AE Family Lunch in Durham, NC with over 90 family members joining together to connect with other families and to share stories.$19,070-
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
John SpencerExecutive DirectorFT$74,730-$74,730
William C McDow IIIChairPT$0--
Leslie G McDowSecretaryPT$0--
Daniel EggerTreasurer-$0--
Susannah CahalanDirector-$0--
Alicia GarceauDirectorPT$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Florence Forth Race$86,768$48,678$25,351$23,327
Total Events$86,768$48,678$41,040$7,638
Filing and Contact Details

Filer

Filer Name
Autoimmune Encephalitis Alliance Inc
EIN
46-1584730
Phone
9199640454
Address
920 Urban Ave, Durham, NC 27701

Signing Officer

Name
William C McDow III
Title
Chair
Signed
2017-08-15
Discuss with paid preparer
Yes

Preparer

Firm
Mig Murphy Sistrom CPA Pc
Address
2216 Whitley Dr, DURHAM, NC 27707-1469
Preparer
Darren Hunicutt
Phone
9194191119
Supplemental Narrative

Additional Explanations

Grants and Similar Amounts Paid In Excess of $5,000.1

Class of Activity: Research funding | Donee's Name: Mayo Clinic | Donee's Address: 200 First Street S.W. Rochester MN 55905 | Cash Amount Given: $25000

Other Expenses.1002

Office Expenses $554

Other Expenses.1005

Travel $14610

Other Expenses.1

Program Supplies $4051

Other Expenses.3

Dues, Subscriptions, & Fees $638

Other Expenses.4

E-Commerce Fees $356

Other Expenses.5

Staff & Volunteer Recognition $50

Other Assets.1003

Machinery and Equipment - Beginning $0 Machinery and Equipment - Ending $1138

Other Assets.1005

Accounts Receivable - Beginning $0 Accounts Receivable - Ending $1382

Other Assets.1011

Prepaid Expenses and Deferred Charges - Beginning $2000 Prepaid Expenses and Deferred Charges - Ending $0

Other Assets.1012

Intangible Assets - Beginning $0 Intangible Assets - Ending $26204

Other Assets.1

Sales Taxes Paid - Beginning $531 Sales Taxes Paid - Ending $946

Total Liabilities.1001

Accounts Payable and Accrued Expenses - Beginning $3250 Accounts Payable and Accrued Expenses - Ending $0

Total Liabilities.1003

Deferred Revenue - Beginning $9185 Deferred Revenue - Ending $4609

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Class of Activity: Research funding | Donee's Name: Mayo Clinic | Donee's Address: 200 First Street S.W. Rochester MN 55905 | Cash Amount Given: $25000
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ReturnHeader/BuildTS02017-02-10 21:41:12Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0William C McDow III
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Chair
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-08-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Autoimmune Encephalitis Alliance Inc
ReturnHeader/Filer/BusinessNameControlTxt0AUTO
ReturnHeader/Filer/EIN0461584730
ReturnHeader/Filer/PhoneNum09199640454
ReturnHeader/Filer/USAddress/AddressLine1Txt0920 Urban Ave
ReturnHeader/Filer/USAddress/CityNm0Durham
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NC
ReturnHeader/Filer/USAddress/ZIPCd027701
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0MIG MURPHY SISTROM CPA PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02216 Whitley Dr
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0277071469
ReturnHeader/PreparerPersonGrp/PhoneNum09194191119
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Darren Hunicutt
ReturnHeader/ReturnTs02017-08-15T12:53:17-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

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Filings