Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
Autoimmune Encephalitis Alliance Inc
EIN 46-1584730 • 501(c)3 • Durham, NC
Profile
To support all members of the ae community so no one faces ae alone.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.01x
Liabilities / Revenue
66th percentile
Higher debt load relative to revenue than 66% of similar nonprofits.
Net Margin
18th percentile
Higher net margin than 18% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
28th percentile
Faster asset growth than 28% of similar nonprofits.
Revenue Growth
23rd percentile
Faster revenue growth than 23% of similar nonprofits.
Balance Sheet
Assets
Down$105,828
Down $41,565 (-28%) from 2023
Liabilities
Down$229
Down $508 (-69%) from 2023
Net Assets
Down$105,599
Down $41,057 (-28%) from 2023
Revenue
Up$145,321
Up $1,405 (+1.0%) from 2023
Expenses
Down$186,503
Down $4,276 (-2.2%) from 2023
Net Income
Up-$41,182
Up $5,681 (+12%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $105,828
- Liabilities
- $229
- Net assets
- $105,599
- Revenue
- $145,321
- Expenses
- $186,503
- Net income
- -$41,182
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- May 13, 2025
- Return Version
- 2024v5.1
- Gross Receipts
- $145,321
Mission and Program Overview
Mission
The autoimmune encephalitis alliance strives to improve the lives of patients with ae by connecting the community of patients, families, and medical providers to advance knowledge and advocate for each other so no one faces ae alone.
To support all members of the ae community so no one faces ae alone.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| PROGRAM 3: PATIENT SUPPORT, DISEASE AWARENESS AND ADVOCACYIN 2024, A RECORD NUMBER OF SUPPORT GROUPS WERE OFFERED TO SUPPORT THE AE COMMUNITY - 70 SUPPORT GROUPS WITH A TOTAL OF 617 ATTENDEES AND 128 UNIQUE INDIVIDUALS. THE AEA SUPPORT GROUP STRUCTURE SHIFTED FROM A REGIONAL MODEL TO A COMMUNITY MODEL. REGARDLESS OF WHERE SOMEONE LIVES, THEY ARE INVITED TO ATTEND THE AEA COMMUNITY SUPPORT GROUPS. ADDITIONALLY, FOUR AUDIENCE SPECIFIC GROUPS WERE OFFERED - PARTNERS, INDIVIDUALS WITH AE, CAREGIVERS ONLY AND PARENTS WITH AE. THE AUDIENCE SPECIFIC GROUPS ALLOW PARTICIPANTS TO SHARE MORE COMPLETELY AND OPENLY THE PERSONAL EXPERIENCES AND CHALLENGES UNIQUE TO THEIR SPECIFIC GROUP TYPE. ALL FIVE SUPPORT GROUPS ARE PEER-LED BY TEN VOLUNTEERS. EACH VOLUNTEER IS EITHER DIAGNOSED WITH AE OR A CAREGIVER.IN 2024, THE AEA LIVING WITH AE PROGRAMMING CONTINUED TO OFFER THE INDIVIDUALS WITH AE GROUP MEETINGS. THE GROUP MEETS TWICE A MONTH DURING DAYTIME HOURS AND SHARES REAL LIFE EXPERIENCES. THIS GROUP SERVES AS A DISCUSSION LABORATORY FOR THE DEVELOPMENT OF FUTURE LIVING WITH AE PROGRAMS.OUR LONG-TERM GOAL FOR THE 'AE ON THE HILL' PROGRAM IS TO EMPOWER THE AE COMMUNITY TO ADVOCATE FOR THEMSELVES AND THEIR FAMILIES AT THE LOCAL, STATE, AND FEDERAL LEVELS TO IMPROVE THE LIVES OF ALL THOSE AFFECTED BY AUTOIMMUNE ENCEPHALITIS. IN 2024, THE AEA CONTINUED WORKING TOWARD THAT GOAL.DURING THE 2024, THE AE STORYTELLING LIBRARY PROJECT CONTINUED TO MOVE FORWARD WITH THE DEVELOPMENT OF PROCESSES, PROCEDURES AND MATERIALS FOR EDUCATING THE COMMUNITY ABOUT THE LIBRARY, GATHERING INTEREST FROM POTENTIAL STORYTELLERS, SUPPORTING THE DEVELOPMENT OF STORIES, AND RECORDING, EDITING AND PRODUCING THE STORIES FOR PRODUCTION. THE FOUR PILOT STORY VIDEOS WERE RECORDED, EDITED AND FINALIZED IN 2024. UPON COMPLETION OF WEBSITE DEVELOPMENT, THE AE STORYTELLING LIBRARY WILL "GO LIVE AND BEGIN GATHERING MORE STORIES TO SUPPORT AND EDUCATE THE WHOLE AE COMMUNITY. | $0 | $66,625 |
| PROGRAM 1: PHYSICIAN SUPPORT AND EDUCATIONTHE AUTOIMMUNE ENCEPHALITIS ALLIANCE (AEA) MEDICAL ADVISORY BOARD PROVIDES GUIDANCE TO THE AEA'S PROGRAMS SUPPORTING PHYSICIAN EDUCATION, RESEARCH, AND CLINICAL CARE. THE MEDICAL ADVISORY BOARD (MAB) INCLUDES RENOWNED EXPERTS ON AUTOIMMUNE ENCEPHALITIS (AE) FROM A VARIETY OF KEY DISCIPLINES - NEUROLOGY, RHEUMATOLOGY, AND PSYCHIATRY AND FOCUSES SPECIFICALLY ON CLINICAL CARE AND RESEARCH EFFORTS TO THE AE COMMUNITY. IN ADDITION TO THE MAB, THE AEA'S CLINICIANS NETWORK CONTINUES TO BE A PREMIER SOURCE WORLDWIDE FOR PATIENTS AND CAREGIVERS SEEKING PHYSICIANS WHO HAVE EXPERIENCE TREATING AE. THE PHYSICIANS IN OUR CLINICIANS NETWORK INCLUDE EXPERTS IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS, AND FREQUENTLY PARTICIPATE IN RESEARCH, CONDUCT CLINICAL TRIAL STUDIES, AND SPEAK IN NATIONAL FORUMS ABOUT THIS RARE DISEASE. THE NETWORK IS THE LARGEST NATIONAL REGISTRY OF PHYSICIANS TREATING AE - A TOTAL OF 380 CLINICIANS PARTICIPATING BY 2024 YEAR END.LED BY THE CLINICAL CARE AND EDUCATION SUBCOMMITTEE OF THE AEA MAB, THE AEA CREATED A NEW AND UNIQUE LEARNING OPPORTUNITY FOR MEMBERS OF OUR CLINICIANS NETWORK, MEDICAL ADVISORY BOARD AND NEUROIMMUNOLOGY FELLOWSHIP PROGRAMS DURING THE 2024 FISCAL YEAR. THE AEA PROVIDER EDUCATION SERIES IS A DYNAMIC SESSION INCLUDING AN ENGAGING DIDACTIC PRESENTATION AND INTERACTIVE DISCUSSION. VOLUNTEER PRESENTERS ARE EXPERTS IN THE FIELD OF AE. THE HOUR IS DEEP DIVE INTO EXPERT KNOWLEDGE AND EXPERIENCE IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS AND PROVIDES THE OPPORTUNITY TO CONNECT WITH FELLOW PROFESSIONALS, SHARE INSIGHTS, AND LEARN FROM REAL-LIFE CASES. IT IS AN EXCELLENT OPPORTUNITY TO ENHANCE KNOWLEDGE, NETWORK WITH LIKE-MINDED INDIVIDUALS AND BUILD A STRONGER AE COMMUNITY OF MEDICAL EXPERTS.WHILE THIS IS A PROVIDER ONLY SESSION, ALLOWING THE COMPLETE COMPLICATED NATURE OF THESE CONDITIONS TO BE FULLY DISCUSSED, THE DIDACTIC PORTION IS RECORDED AND SHARED ON THE AEA WEBSITE FOR THE ENTIRE AEA COMMUNITY TO MEET DOCTORS AND LEARN THE MOST CURRENT AE INFORMATION. (NOTE: THE DISCUSSION PORTION IS NOT RECORDED.) DURING 2024, THE AEA OFFERED FIVE SESSIONS, WITH 230 REGISTRANTS FROM 17 COUNTRIES. (NOTE: THIS DOES NOT INCLUDE VIEWS OF THE RECORDED DIDACTIC SESSIONS ON THE AEA WEBSITE.)IN 2024, THE AEA PARTNERED WITH PHYSICIAN EXPERTS AT THE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS TO SPONSOR A DINNER AND DISCUSSION AT THE 2024 ANNUAL AMERICAN ACADEMY OF NEUROLOGY MEETING IN DENVER, CO. THE EVENT ENTITLED "FOOD FOR THOUGHT: A DISCUSSION ON THE ADVANCES IN TREATMENT STRATEGIES AND THE IMMUNOBIOLOGY OF AE" INCLUDED PRESENTATIONS FROM 7 RESEARCHERS FROM 4 COUNTRIES. THE EVENING ALLOWED 126 ATTENDEES FROM 13 COUNTRIES TO LEARN FROM EACH OTHER AND CREATE NEW RELATIONSHIPS. | $0 | $51,253 |
| PROGRAM 2: RESEARCH - AEA EDWARD ARDITTE COMMUNITY SEED GRANT PROGRAMIN 2024, THE AEA MAB RESEARCH COMMITTEE RECEIVED 13 APPLICATIONS FROM SIX COUNTRIES AND AWARDED THREE AEA COMMUNITY SEED GRANTS TOTALING $20,000. ALL THREE RESEARCH PROJECTS HAVE DIRECT IMPLICATIONS FOR PATIENTS AND FAMILIES LIVING WITH AE. THE AEA CONTINUED ITS SIGNATURE FUNDRAISING EFFORT FOR AE RESEARCH, THE RESEARCH NETWORK, RAISING ANOTHER $16K OF SEED FUNDING FOR THE 2025 ROUND OF RESEARCH GRANTS TO BE AWARDED IN THE SPRING OF THAT YEAR. AS A RARE DISEASE PATIENT ORGANIZATION, THE AEA PARTNERS WITH PHARMACEUTICAL ORGANIZATIONS AND DIAGNOSTIC LABORATORIES COMMITTED TO IMPROVING SOLUTIONS FOR DIAGNOSIS AND TREATMENT OF AUTOIMMUNE ENCEPHALITIS. THESE RELATIONSHIPS ARE CRITICAL FOR COMMUNICATION, EDUCATION AND RELATIONSHIP BUILDING BETWEEN THE SCIENTISTS, RESEARCHERS, BUSINESS PROFESSIONALS, ETC. AND THE PATIENTS AND FAMILY MEMBERS LIVING WITH AE. SINCE 2020, THE AEA HAS PARTNERED WITH ONE OF THESE KEY ORGANIZATIONS AS PART OF A GLOBAL COLLECTIVE OF FIVE LIKE-MINDED RARE NEUROIMMUNE PATIENT ADVOCACY GROUPS TO SHARE EXPERIENCES AND CHALLENGES, IDENTIFY OPPORTUNITIES FOR IMPROVING PATIENT CARE AND DISCOVER OPPORTUNITIES FOR COLLABORATION TO BENEFIT ALL RARE NEUROIMMUNE CONDITIONS. IN 2024, THE INSPIRE COLLECTIVE CONTRIBUTED TO AN ARTICLE PUBLISHED IN PHARMATIMES MAGAZINE, JAN/FEB 2024. IN MEETING OF THE MINDS, WE DISCUSS THE KEY ISSUES IN RARE NEUROIMMUNE CONDITIONS AND CALL FOR A COLLECTIVE ACTION. | $20,000 | $29,514 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| MARGARET POE | Program Director | FT | $86,796 | $13,946 | $100,742 |
| STANLEY NAIDES | Chair | - | $0 | - | - |
| JACQUELINE MCCLAIN | Secretary | - | $0 | - | - |
| CATERRI WOODRUM | Treasurer | - | $0 | - | - |
| WILLIAM BILL GAVIGAN | Director | - | $0 | - | - |
| AMANDA PIQUET | Director | - | $0 | - | - |
| MARLENE RIFKIN | Director | - | $0 | - | - |
| HEATHER VAN MATER | Director & Mab Leader | - | $0 | - | - |
| ANUSHA YESHOKUMAR | Director & Mab Leader | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Autoimmune Encephalitis Alliance Inc
- EIN
- 46-1584730
- Phone
- 9196021484
- Address
- 811 9TH STREET SUITE 120-101, DURHAM, NC 27705
Signing Officer
- Name
- Caterri M Woodrum
- Title
- Treasurer
- Phone
- 9196021484
- Signed
- 2025-05-13
- Discuss with paid preparer
- Yes
Preparer
- Firm
- Blackman & Sloop Advisors Inc
- Address
- 1414 RALEIGH ROAD SUITE 300, CHAPEL HILL, NC 27517
- Preparer
- Elizabeth Mauch
- Phone
- 9199428700
Supplemental Narrative
Additional Explanations
Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity classification: research. Grantee name: university of virginia. Grantee address: 1001 n emmet st charlottesville, va 22903. Grantee relationship: none. Date of gift: 07/01/24. Amount given: 5,000.”
Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity classification: research. Grantee name: erasmus university medical center. Grantee address: dr molewaterplein 40 rotterdam, netherlands 3015 gd. Grantee relationship: none. Date of gift: 07/01/24. Amount given: 5,000.”
Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity classification: research. Grantee name: university of toronto. Grantee address: r fraser elliot bldg, 190 elizabeth st toronto, canada m5g 2c4. Grantee relationship: none. Date of gift: 07/01/24. Amount given: 10,000. Total included on form 990-ez, line 10: 20,000.”
Form 990-ez, Part I, Line 16 - Other Expenses
“Description: advertising. Amount: 38. Description: it exepense. Amount: 7,163. Description: travel. Amount: 4,924. Description: conferences & meetings. Amount: 27,903. Description: insurance. Amount: 708. Description: dues & subscriptions. Amount: 1,447. Description: miscellaneous. Amount: 1,649. Description: depreciation & amortization. Amount: 4,423. Description: payroll taxes. Amount: 6,640. Total to form 990-ez, line 16: 54,895.”
Form 990-ez, Part I, Line 20 - Other Changes in Net Assets
“Description: prior period adjustment. Amount: 125.”
Form 990-ez, Part II, Line 24 - Other Assets
“Description: sales tax paid. Beg. Of year amount: 2,037. End of year amount: 2,037. Description: other depreciable assets. Beg. Of year amount: 5,756. End of year amount: 1,333.”
Form 990-ez, Part II, Line 26 - Other Liabilities
“Description: accounts payable. Beg. Of year amount: 737. End of year amount: 229.”
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | PROGRAM 1: PHYSICIAN SUPPORT AND EDUCATIONTHE AUTOIMMUNE ENCEPHALITIS ALLIANCE (AEA) MEDICAL ADVISORY BOARD PROVIDES GUIDANCE TO THE AEA'S PROGRAMS SUPPORTING PHYSICIAN EDUCATION, RESEARCH, AND CLINICAL CARE. THE MEDICAL ADVISORY BOARD (MAB) INCLUDES RENOWNED EXPERTS ON AUTOIMMUNE ENCEPHALITIS (AE) FROM A VARIETY OF KEY DISCIPLINES - NEUROLOGY, RHEUMATOLOGY, AND PSYCHIATRY AND FOCUSES SPECIFICALLY ON CLINICAL CARE AND RESEARCH EFFORTS TO THE AE COMMUNITY. IN ADDITION TO THE MAB, THE AEA'S CLINICIANS NETWORK CONTINUES TO BE A PREMIER SOURCE WORLDWIDE FOR PATIENTS AND CAREGIVERS SEEKING PHYSICIANS WHO HAVE EXPERIENCE TREATING AE. THE PHYSICIANS IN OUR CLINICIANS NETWORK INCLUDE EXPERTS IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS, AND FREQUENTLY PARTICIPATE IN RESEARCH, CONDUCT CLINICAL TRIAL STUDIES, AND SPEAK IN NATIONAL FORUMS ABOUT THIS RARE DISEASE. THE NETWORK IS THE LARGEST NATIONAL REGISTRY OF PHYSICIANS TREATING AE - A TOTAL OF 380 CLINICIANS PARTICIPATING BY 2024 YEAR END.LED BY THE CLINICAL CARE AND EDUCATION SUBCOMMITTEE OF THE AEA MAB, THE AEA CREATED A NEW AND UNIQUE LEARNING OPPORTUNITY FOR MEMBERS OF OUR CLINICIANS NETWORK, MEDICAL ADVISORY BOARD AND NEUROIMMUNOLOGY FELLOWSHIP PROGRAMS DURING THE 2024 FISCAL YEAR. THE AEA PROVIDER EDUCATION SERIES IS A DYNAMIC SESSION INCLUDING AN ENGAGING DIDACTIC PRESENTATION AND INTERACTIVE DISCUSSION. VOLUNTEER PRESENTERS ARE EXPERTS IN THE FIELD OF AE. THE HOUR IS DEEP DIVE INTO EXPERT KNOWLEDGE AND EXPERIENCE IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS AND PROVIDES THE OPPORTUNITY TO CONNECT WITH FELLOW PROFESSIONALS, SHARE INSIGHTS, AND LEARN FROM REAL-LIFE CASES. IT IS AN EXCELLENT OPPORTUNITY TO ENHANCE KNOWLEDGE, NETWORK WITH LIKE-MINDED INDIVIDUALS AND BUILD A STRONGER AE COMMUNITY OF MEDICAL EXPERTS.WHILE THIS IS A PROVIDER ONLY SESSION, ALLOWING THE COMPLETE COMPLICATED NATURE OF THESE CONDITIONS TO BE FULLY DISCUSSED, THE DIDACTIC PORTION IS RECORDED AND SHARED ON THE AEA WEBSITE FOR THE ENTIRE AEA COMMUNITY TO MEET DOCTORS AND LEARN THE MOST CURRENT AE INFORMATION. (NOTE: THE DISCUSSION PORTION IS NOT RECORDED.) DURING 2024, THE AEA OFFERED FIVE SESSIONS, WITH 230 REGISTRANTS FROM 17 COUNTRIES. (NOTE: THIS DOES NOT INCLUDE VIEWS OF THE RECORDED DIDACTIC SESSIONS ON THE AEA WEBSITE.)IN 2024, THE AEA PARTNERED WITH PHYSICIAN EXPERTS AT THE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS TO SPONSOR A DINNER AND DISCUSSION AT THE 2024 ANNUAL AMERICAN ACADEMY OF NEUROLOGY MEETING IN DENVER, CO. THE EVENT ENTITLED "FOOD FOR THOUGHT: A DISCUSSION ON THE ADVANCES IN TREATMENT STRATEGIES AND THE IMMUNOBIOLOGY OF AE" INCLUDED PRESENTATIONS FROM 7 RESEARCHERS FROM 4 COUNTRIES. THE EVENING ALLOWED 126 ATTENDEES FROM 13 COUNTRIES TO LEARN FROM EACH OTHER AND CREATE NEW RELATIONSHIPS. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | PROGRAM 2: RESEARCH - AEA EDWARD ARDITTE COMMUNITY SEED GRANT PROGRAMIN 2024, THE AEA MAB RESEARCH COMMITTEE RECEIVED 13 APPLICATIONS FROM SIX COUNTRIES AND AWARDED THREE AEA COMMUNITY SEED GRANTS TOTALING $20,000. ALL THREE RESEARCH PROJECTS HAVE DIRECT IMPLICATIONS FOR PATIENTS AND FAMILIES LIVING WITH AE. THE AEA CONTINUED ITS SIGNATURE FUNDRAISING EFFORT FOR AE RESEARCH, THE RESEARCH NETWORK, RAISING ANOTHER $16K OF SEED FUNDING FOR THE 2025 ROUND OF RESEARCH GRANTS TO BE AWARDED IN THE SPRING OF THAT YEAR. AS A RARE DISEASE PATIENT ORGANIZATION, THE AEA PARTNERS WITH PHARMACEUTICAL ORGANIZATIONS AND DIAGNOSTIC LABORATORIES COMMITTED TO IMPROVING SOLUTIONS FOR DIAGNOSIS AND TREATMENT OF AUTOIMMUNE ENCEPHALITIS. THESE RELATIONSHIPS ARE CRITICAL FOR COMMUNICATION, EDUCATION AND RELATIONSHIP BUILDING BETWEEN THE SCIENTISTS, RESEARCHERS, BUSINESS PROFESSIONALS, ETC. AND THE PATIENTS AND FAMILY MEMBERS LIVING WITH AE. SINCE 2020, THE AEA HAS PARTNERED WITH ONE OF THESE KEY ORGANIZATIONS AS PART OF A GLOBAL COLLECTIVE OF FIVE LIKE-MINDED RARE NEUROIMMUNE PATIENT ADVOCACY GROUPS TO SHARE EXPERIENCES AND CHALLENGES, IDENTIFY OPPORTUNITIES FOR IMPROVING PATIENT CARE AND DISCOVER OPPORTUNITIES FOR COLLABORATION TO BENEFIT ALL RARE NEUROIMMUNE CONDITIONS. IN 2024, THE INSPIRE COLLECTIVE CONTRIBUTED TO AN ARTICLE PUBLISHED IN PHARMATIMES MAGAZINE, JAN/FEB 2024. IN MEETING OF THE MINDS, WE DISCUSS THE KEY ISSUES IN RARE NEUROIMMUNE CONDITIONS AND CALL FOR A COLLECTIVE ACTION. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | PROGRAM 3: PATIENT SUPPORT, DISEASE AWARENESS AND ADVOCACYIN 2024, A RECORD NUMBER OF SUPPORT GROUPS WERE OFFERED TO SUPPORT THE AE COMMUNITY - 70 SUPPORT GROUPS WITH A TOTAL OF 617 ATTENDEES AND 128 UNIQUE INDIVIDUALS. THE AEA SUPPORT GROUP STRUCTURE SHIFTED FROM A REGIONAL MODEL TO A COMMUNITY MODEL. REGARDLESS OF WHERE SOMEONE LIVES, THEY ARE INVITED TO ATTEND THE AEA COMMUNITY SUPPORT GROUPS. ADDITIONALLY, FOUR AUDIENCE SPECIFIC GROUPS WERE OFFERED - PARTNERS, INDIVIDUALS WITH AE, CAREGIVERS ONLY AND PARENTS WITH AE. THE AUDIENCE SPECIFIC GROUPS ALLOW PARTICIPANTS TO SHARE MORE COMPLETELY AND OPENLY THE PERSONAL EXPERIENCES AND CHALLENGES UNIQUE TO THEIR SPECIFIC GROUP TYPE. ALL FIVE SUPPORT GROUPS ARE PEER-LED BY TEN VOLUNTEERS. EACH VOLUNTEER IS EITHER DIAGNOSED WITH AE OR A CAREGIVER.IN 2024, THE AEA LIVING WITH AE PROGRAMMING CONTINUED TO OFFER THE INDIVIDUALS WITH AE GROUP MEETINGS. THE GROUP MEETS TWICE A MONTH DURING DAYTIME HOURS AND SHARES REAL LIFE EXPERIENCES. THIS GROUP SERVES AS A DISCUSSION LABORATORY FOR THE DEVELOPMENT OF FUTURE LIVING WITH AE PROGRAMS.OUR LONG-TERM GOAL FOR THE 'AE ON THE HILL' PROGRAM IS TO EMPOWER THE AE COMMUNITY TO ADVOCATE FOR THEMSELVES AND THEIR FAMILIES AT THE LOCAL, STATE, AND FEDERAL LEVELS TO IMPROVE THE LIVES OF ALL THOSE AFFECTED BY AUTOIMMUNE ENCEPHALITIS. IN 2024, THE AEA CONTINUED WORKING TOWARD THAT GOAL.DURING THE 2024, THE AE STORYTELLING LIBRARY PROJECT CONTINUED TO MOVE FORWARD WITH THE DEVELOPMENT OF PROCESSES, PROCEDURES AND MATERIALS FOR EDUCATING THE COMMUNITY ABOUT THE LIBRARY, GATHERING INTEREST FROM POTENTIAL STORYTELLERS, SUPPORTING THE DEVELOPMENT OF STORIES, AND RECORDING, EDITING AND PRODUCING THE STORIES FOR PRODUCTION. THE FOUR PILOT STORY VIDEOS WERE RECORDED, EDITED AND FINALIZED IN 2024. UPON COMPLETION OF WEBSITE DEVELOPMENT, THE AE STORYTELLING LIBRARY WILL "GO LIVE AND BEGIN GATHERING MORE STORIES TO SUPPORT AND EDUCATE THE WHOLE AE COMMUNITY. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: UNIVERSITY OF VIRGINIA. GRANTEE ADDRESS: 1001 N EMMET ST CHARLOTTESVILLE, VA 22903. GRANTEE RELATIONSHIP: NONE. DATE OF GIFT: 07/01/24. AMOUNT GIVEN: 5,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: ERASMUS UNIVERSITY MEDICAL CENTER. GRANTEE ADDRESS: DR MOLEWATERPLEIN 40 ROTTERDAM, NETHERLANDS 3015 GD. GRANTEE RELATIONSHIP: NONE. DATE OF GIFT: 07/01/24. AMOUNT GIVEN: 5,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: UNIVERSITY OF TORONTO. GRANTEE ADDRESS: R FRASER ELLIOT BLDG, 190 ELIZABETH ST TORONTO, CANADA M5G 2C4. GRANTEE RELATIONSHIP: NONE. DATE OF GIFT: 07/01/24. AMOUNT GIVEN: 10,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 20,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | DESCRIPTION: ADVERTISING. AMOUNT: 38. DESCRIPTION: IT EXEPENSE. AMOUNT: 7,163. DESCRIPTION: TRAVEL. AMOUNT: 4,924. DESCRIPTION: CONFERENCES & MEETINGS. AMOUNT: 27,903. DESCRIPTION: INSURANCE. AMOUNT: 708. DESCRIPTION: DUES & SUBSCRIPTIONS. AMOUNT: 1,447. DESCRIPTION: MISCELLANEOUS. AMOUNT: 1,649. DESCRIPTION: DEPRECIATION & AMORTIZATION. AMOUNT: 4,423. DESCRIPTION: PAYROLL TAXES. AMOUNT: 6,640. TOTAL TO FORM 990-EZ, LINE 16: 54,895. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | DESCRIPTION: PRIOR PERIOD ADJUSTMENT. AMOUNT: 125. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | DESCRIPTION: SALES TAX PAID. BEG. OF YEAR AMOUNT: 2,037. END OF YEAR AMOUNT: 2,037. DESCRIPTION: OTHER DEPRECIABLE ASSETS. BEG. OF YEAR AMOUNT: 5,756. END OF YEAR AMOUNT: 1,333. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | DESCRIPTION: ACCOUNTS PAYABLE. BEG. OF YEAR AMOUNT: 737. END OF YEAR AMOUNT: 229. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990-EZ, PART I, LINE 20 - OTHER CHANGES IN NET ASSETS |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. |
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