Liabilities / Assets
80th percentile
Higher debt load relative to assets than 80% of similar nonprofits.
990 • Fiscal year 2018 • EIN 46-1584730
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
80th percentile
Higher debt load relative to assets than 80% of similar nonprofits.
Liabilities / Revenue
80th percentile
Higher debt load relative to revenue than 80% of similar nonprofits.
Net Margin
49th percentile
Higher net margin than 49% of similar nonprofits.
Top Officer Pay
86th percentile
Higher top officer pay than 86% of similar nonprofits.
Top officer pay equals 5.1% of source-year revenue.
Asset Growth
55th percentile
Faster asset growth than 55% of similar nonprofits.
Revenue Growth
76th percentile
Faster revenue growth than 76% of similar nonprofits.
Assets
Up$124,500
Up $8,462 (+7.3%) from 2017
Net Assets
Up$113,995
Up $14,016 (+14%) from 2017
Liabilities
Down$10,505
Down $5,554 (-35%) from 2017
Revenue
Up$190,786
Up $54,703 (+40%) from 2017
Expenses
Up$182,674
Up $27,242 (+18%) from 2017
Net Income
Up$8,112
Up $27,461 (+142%) from 2017
The autoimmune encephalitis alliance strives to improve the lives of patients with ae by connecting the community of patients, families, and medical providers to advance knowledge and advocate for each other so no one faces ae alone.
To improve the lives of patients promoting collaboration in clinical and basic research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $74,813 | $107,735 | ▲ $32,922 |
| Accounts Receivable | $12,385 | $0 | ▼ $12,385 |
| Intangible Assets | $18,028 | $9,852 | ▼ $8,176 |
| Savings and Temporary Cash Investments | $9,144 | $0 | ▼ $9,144 |
| Investments in Publicly Traded Securities | - | $6,094 | - |
| Prepaid Expenses and Deferred Charges | $908 | $819 | ▼ $89 |
| Land, Buildings, and Equipment, Net | $760 | - | - |
| Total Assets | $116,038 | $124,500 | ▲ $8,462 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $14 | $7,915 | ▲ $7,901 |
| Deferred Revenue | $16,045 | $2,590 | ▼ $13,455 |
| Total Liabilities | $16,059 | $10,505 | ▼ $5,554 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $67,889 | $81,905 | ▲ $14,016 |
| Temporarily Rstr Net Assets | $32,090 | $32,090 | → $0 |
| Total Net Assets Fund Balance | $99,979 | $113,995 | ▲ $14,016 |
| Total Liabilities and Net Assets / Fund Balance | $116,038 | $124,500 | ▲ $8,462 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| John Spencer | EXEC. DIRECTOR (TH:1/18) | FT | $9,647 | $9,647 |
| Name | Title |
|---|---|
| William C Mcdow Iii | Chair |
| Alicia Garceau | Director |
| Barbara Arditte | Director |
| Ed Arditte | DIRECTOR (FR: 12/18) |
| Robert Given | DIRECTOR (FR: 5/18) |
| Carrie Painter | DIRECTOR/TREASURER (FR:12/18) |
| Elisabeth Wharton | Interim Director 1/20/18-6/15/18 |
| Leslie G Mcdow | Secretary |
| Daniel Egger | TREASURER (THR: 12/18) |
| Line Item | Amount |
|---|---|
| Other Expenses | $145,329 |
| Salaries, Compensation, and Employee Benefits | $37,345 |
| Total Fundraising Expense | $11,514 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $5,180 | $68,733 | $4,530 | $78,443 |
| Other Salaries and Wages | $14,462 | $4,450 | $3,337 | $22,249 |
| Fees for Services Accounting | - | $13,560 | - | $13,560 |
| Travel | $7,787 | $4,163 | - | $11,950 |
| Occupancy | - | $10,491 | - | $10,491 |
| Current Officers, Directors, Trustees, and Key Employees | $6,271 | $1,929 | $1,447 | $9,647 |
| Depreciation Depletion | - | $8,195 | - | $8,195 |
| Office Expenses | $187 | $6,830 | $131 | $7,148 |
| Payroll Taxes | $3,542 | $1,090 | $817 | $5,449 |
| Information Technology | - | $5,214 | $188 | $5,402 |
| Conferences and Meetings | $2,439 | $28 | - | $2,467 |
| Fees for Services Legal | - | $2,453 | - | $2,453 |
| Advertising | $800 | $161 | $94 | $1,055 |
| Insurance | - | $933 | - | $933 |
| Other Expenses | $1,200 | $500 | $0 | $500 |
| Total Functional Expenses | $41,868 | $129,292 | $11,514 | $182,674 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $38,309 |
| Fundraising Direct Expenses | $31,716 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Florence Forth Race | $85,645 | $38,309 | $23,455 | $14,854 |
| Total Events | $85,645 | $38,309 | $31,716 | $6,593 |
“William c mcdow iii, board chair, and leslie g. Mcdow, secretary are married.”
“Organization's bylaws were updated to include the following significant changes: - limit on number of ex-officio directors removed - grandfather date allowing closely related inidividuals to serve on board changed to 12/31/2018 - removed requirement for vote to allow second 3 year term for a board member - added requirement that treasurer and secretary position be held by a separate board member - previously these positions were held by one board member - officer term limits removed (however still subject to director term limits)”
“Executive committee reviews the 990.”
“AVAILABLE UPON REQUEST.”
“AVAILABLE UPON REQUEST.”
“Other professional fees: program service expenses 5,180. Management and general expenses 68,733. Fundraising expenses 4,530. Total expenses 78,443.”
“The organization uses modified cash basis.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 14 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7915 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 12385 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO IMPROVE THE LIVES OF PATIENTS PROMOTING COLLABORATION IN CLINICAL AND BASIC RESEARCH. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 94 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 161 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 800 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1055 |
| IRS990/AllOtherContributionsAmt | 0 | 136733 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | CARRIE PAINTER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9194521395 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2118 SPRUNT AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | DURHAM |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NC |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 27705 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 74813 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 107735 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 1447 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 1929 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 6271 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 9647 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 28 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 2439 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2467 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 47336 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 184069 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 124 |
| IRS990/CYOtherExpensesAmt | 0 | 145329 |
| IRS990/CYOtherRevenueAmt | 0 | 6593 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 8112 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 37345 |
| IRS990/CYTotalExpensesAmt | 0 | 182674 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 11514 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 190786 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 16045 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 2590 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 8195 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 8195 |
| IRS990/Desc | 0 | CLINICAL CARE AND DOCTOR EDUCATION:THE AUTOIMMUNE ENCEPHALITIS ALLIANCE CONTINUES TO BE THE PREMIER SOURCE WORLDWIDE FOR PATIENTS AND CAREGIVERS SEEKING PHYSICIANS WHO HAVE EXPERIENCE TREATING AUTOIMMUNE ENCEPHALITIS (AE). SEVERAL OTHER ORGANIZATIONS REFER PATIENTS TO OUR LISTING. WE ADDED 48 DOCTORS TO THIS NETWORK IN 2018, AN INCREASE OF 46%. THE AE ALLIANCE PARTICIPATED IN A STUDY TO BETTER UNDERSTAND THE CHALLENGES AE SURVIVORS FACE DURING RECOVERY AND IN THE YEARS FOLLOWING DIAGNOSIS. THIS STUDY WAS CONDUCTED BY DR. ANUSHA YEKOSHUMAR OF THE ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI HOSPITAL IN NEW YORK CITY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 4958 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 25554 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 13560 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 13560 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2453 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2453 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4530 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 68733 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 5180 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 78443 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 12.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 12.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BARBARA ARDITTE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ED ARDITTE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ALICIA GARCEAU |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ROBERT GIVEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | WILLIAM C MCDOW III |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LESLIE G MCDOW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DANIEL EGGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CARRIE PAINTER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JOHN SPENCER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ELISABETH WHARTON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 9647 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR (FR: 12/18) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR (FR: 5/18) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | TREASURER (THR: 12/18) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR/TREASURER (FR:12/18) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | EXEC. DIRECTOR (TH:1/18) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | INTERIM DIRECTOR 1/20/18-6/15/18 |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 47336 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 31716 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 38309 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 19 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 740 |
| IRS990/GrossReceiptsAmt | 0 | 223223 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 188 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 5214 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5402 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 933 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 933 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 18028 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 9852 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 105 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 105 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 6094 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 760 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NC |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 721 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingOtherInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE AUTOIMMUNE ENCEPHALITIS ALLIANCE IMPROVES THE LIVES OF PATIENTS WITH AUTOIMMUNE ENCEPHALITIES BY MULTI-DISCIPLINARY, COLLARBORATIVE RESEARCH AND CLINICAL CARE AND BY CREATING A COMMUNITY OF PATIENTS AND CAREGIVERS SO THAT NO ONE FACES AUTOIMMUNE ENCEPHALITIS ALONE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 99979 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 113995 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 19 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 19 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 6593 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 6593 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 946 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 10491 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 10491 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 131 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 6830 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 187 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7148 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | PRODUCTION SERVICES |
| IRS990/OtherExpensesGrp/Desc | 2 | MATERIALS,SUPPLIES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 970 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 562 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 500 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1200 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1532 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1200 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 500 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3337 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 4450 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 14462 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 22249 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 817 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1090 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 3542 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5449 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 908 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 819 |
| IRS990/PrincipalOfficerNm | 0 | WILLIAM C MCDOW III |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE AE ALLIANCE HOSTED A LUNCHEON FOR FAMILY MEMBERS AND PATIENTS TO SHARE EXPERIENCES DURING FLORENCE FORTH WEEKEND IN MARCH. WE ALSO CONDUCTED A WELL-ATTENDED Q&A SESSION FOR FAMILIES AND CAREGIVERS WITH TWO PHYSICIANS. MULTIPLE DAILY INQUIRIES FROM PATIENTS AND CAREGIVERS VIA EMAIL WERE ANSWERED WITH EDUCATIONAL MATERIALS AND INFORMATION. OUR E-NEWSLETTER, CONTAINING SUMMARIES OF RECENT MEDICAL JOURNAL PUBLICATIONS AND BLOGS WERE SENT MONTHLY TO OUR MAILING LIST OF OVER 1,900 PATIENTS, CAREGIVERS AND PHYSICIANS. WE LAUNCHED THE ONLINE AE SUPPORT COMMUNITY IN SEPTEMBER 2018. IN THE FIRST MONTH WE SAW 148 PATIENTS AND CAREGIVERS JOIN THE COMMUNITY. BY THE END OF 2018 251 MEMBERS WERE EXCHANGING KNOWLEDGE, INFORMATION AND EXPERIENCES. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 16314 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 135040 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 67733 |
| IRS990/PYOtherRevenueAmt | 0 | 242 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 801 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -19349 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 86699 |
| IRS990/PYTotalExpensesAmt | 0 | 155432 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 136083 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 8112 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 9144 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 184069 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 135040 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 106943 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 63789 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 83856 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 573697 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 105 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 110 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 801 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.75170 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 431354 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 142343 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 184069 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 135040 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 106943 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 63789 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 83856 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 573697 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 573807 |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 2300 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 2300 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 47336 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 47336 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 31716 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | FLORENCE FORTH RACE |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 85645 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 85645 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 38309 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 38309 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 6593 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 4676 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 4676 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 23455 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 23455 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 1285 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 1285 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | WILLIAM C MCDOW III, BOARD CHAIR, AND LESLIE G. MCDOW, SECRETARY ARE MARRIED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ORGANIZATION'S BYLAWS WERE UPDATED TO INCLUDE THE FOLLOWING SIGNIFICANT CHANGES: - LIMIT ON NUMBER OF EX-OFFICIO DIRECTORS REMOVED - GRANDFATHER DATE ALLOWING CLOSELY RELATED INIDIVIDUALS TO SERVE ON BOARD CHANGED TO 12/31/2018 - REMOVED REQUIREMENT FOR VOTE TO ALLOW SECOND 3 YEAR TERM FOR A BOARD MEMBER - ADDED REQUIREMENT THAT TREASURER AND SECRETARY POSITION BE HELD BY A SEPARATE BOARD MEMBER - PREVIOUSLY THESE POSITIONS WERE HELD BY ONE BOARD MEMBER - OFFICER TERM LIMITS REMOVED (HOWEVER STILL SUBJECT TO DIRECTOR TERM LIMITS) |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | EXECUTIVE COMMITTEE REVIEWS THE 990. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 5,180. MANAGEMENT AND GENERAL EXPENSES 68,733. FUNDRAISING EXPENSES 4,530. TOTAL EXPENSES 78,443. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THE ORGANIZATION USES MODIFIED CASH BASIS. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION A, LINE 4 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART IX, LINE 11G |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART XII, LINE 1: |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NC |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 32090 |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 32090 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 116038 |
| IRS990/TotalAssetsEOYAmt | 0 | 124500 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 116038 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 124500 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 184069 |
| IRS990/TotalEmployeeCnt | 0 | 3 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 11514 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 129292 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 41868 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 182674 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 16059 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 10505 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 16059 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 10505 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 99979 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 113995 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 41868 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 9647 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 6717 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 190786 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 107 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 116038 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 124500 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 4163 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 7787 |
| IRS990/TravelGrp/TotalAmt | 0 | 11950 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UnrestrictedNetAssetsGrp/BOYAmt | 0 | 67889 |
| IRS990/UnrestrictedNetAssetsGrp/EOYAmt | 0 | 81905 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 920 URBAN AVE |
| IRS990/USAddress/CityNm | 0 | DURHAM |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.