Civic Intelligence

Pkd Foundation

990 • Fiscal year 2020 • EIN 43-1266906

Jul 01, 2019 to Jun 30, 2020 • Filed on Jan 27, 2021

1001 E 101st Ter No 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.15x

Higher debt load relative to assets than 38% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Liabilities / Revenue

32nd percentile

0.19x

Higher debt load relative to revenue than 32% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Net Margin

93rd percentile

55%

Higher net margin than 93% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Top Officer Pay

66th percentile

$322,879

Higher top officer pay than 66% of similar nonprofits.

Top officer pay equals 2.0% of source-year revenue.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Asset Growth

96th percentile

97%

Faster asset growth than 96% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2019 to 2020

Revenue Growth

96th percentile

139%

Faster revenue growth than 96% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2019 to 2020

Assets

Flat

$20,909,832

Flat from 2020

Net Assets

Flat

$17,800,383

Flat from 2020

Liabilities

Flat

$3,109,449

Flat from 2020

Revenue

Flat

$16,124,449

Flat from 2020

Expenses

Flat

$7,241,943

Flat from 2020

Net Income

Flat

$8,882,506

Flat from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2020

Assets$20,909,832
Liabilities$3,109,449
Net Assets$17,800,383

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2020

Revenue$16,124,449
Expenses$7,241,943
Net Income$8,882,506
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Jan 27, 2021
Return Version
2019v5.1
Gross Receipts
$31,731,951
Mission and Program Overview

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

Promote programs of research and education to discover treatments and a cure for pkd.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,024,730$14,768,885▲ $9,744,155
Savings and Temporary Cash Investments$1,336,795$2,329,780▲ $992,985
Pledges and Grants Receivable$2,888,585$1,975,570▼ $913,015
Cash and Non-Interest-Bearing Accounts$560,278$837,660▲ $277,382
Land, Buildings, and Equipment, Net$740,117$682,339▼ $57,778
Prepaid Expenses and Deferred Charges$12,805$246,080▲ $233,275
Accounts Receivable$26,148$53,985▲ $27,837
Total Assets$10,606,466$20,909,832▲ $10,303,366
Other Assets Total$17,008$15,533▼ $1,475
Liabilities
Deferred Revenue$1,000,000$1,441,378▲ $441,378
Accounts Payable and Accrued Expenses$852,410$870,271▲ $17,861
Grants Payable-$400,000-
Unsecured Notes Loans Payable-$397,800-
Total Liabilities$1,852,410$3,109,449▲ $1,257,039
Net Assets / Fund Balance
Net Assets With Donor Restrictions$4,236,489$13,169,529▲ $8,933,040
Net Assets Without Donor Restrictions$4,517,567$4,630,854▲ $113,287
Total Net Assets Fund Balance$8,754,056$17,800,383▲ $9,046,327
Total Liabilities and Net Assets / Fund Balance$10,606,466$20,909,832▲ $10,303,366

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$625,634$415,488$1,041,122
Leasehold Improvements$56,705$12,651$69,356

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$4,597,077$9,642,300▲ $399,614-$14,598,334
2018$4,079,744$409,814▲ $276,814$148,064$4,597,077
2017$2,960,433$1,021,831▲ $222,220$108,000$4,079,744
2016$2,773,007-▲ $310,566$108,000$2,960,433
2015-$2,700,000▲ $77,487-$2,773,007
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Betts AndrewPresident and CEOFT$233,310$89,569$322,879
Hanova AmandaChief Operating OfficerFT$135,740$57,392$193,132
Sullens StephanieChief Advancement OfficerFT$148,403$28,849$177,252
Baron DavidChief Research OfficerFT$148,036$24,367$172,403
Denny AlexisDirector of Government AffairsFT$103,020$20,091$123,111
Deremer SusanDirector of Leadership GiftsFT$103,020$20,091$123,111

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Manifest LLCPkdlife Magazine Production And Delivery228 E 45TH ST 7TH FLOOR, New York, NY 10017, Uk$324,892
Newport OneDigital And Direct Mail Strategy And Sol21 RAILRODA AVE, Duxbury, MA 02332$178,952
Iqvia Technology ServicesPatient Registry And Consulting Fees-$114,089
Revenue and Support

Revenue Composition

Contributions and Grants
$15,841,230
Program Service Revenue
$0
Investment Income
$281,624
Other Revenue
$1,595
All Other Contributions
$15,841,230
Change in Net Assets
$8,882,506

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded17$9,980,591Fair Value
Other Non Cash Contri Table298$156,300Fair Value
Other Non Cash Contri Table52$33,873Cost
Total Noncash Contributions367$10,170,764-

Audited Revenue Reconciliation

Revenue per Audited Statements
$16,083,792
Revenue Not Reported on Financial Statements
$40,657
Revenue Not Reported on Form 990
$414,751
Total Revenue per Audited Statements
$16,498,543
Total Revenue per Form 990
$16,124,449
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,094,016
Other Expenses$2,257,239
Grants and Similar Amounts Paid$1,565,964
Total Fundraising Expense$1,215,677
Professional Fundraising Fees$324,724

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,090,185$380,527$248,201$1,718,913
Grants to Domestic Orgs$1,355,964--$1,355,964
Current Officers, Directors, Trustees, and Key Employees$437,442$139,998$113,888$691,328
Conferences and Meetings$418,629$209$217,597$636,435
Fees for Services Other$535,028$19,721$68,129$622,878
Other Employee Benefits$228,056$78,341$52,409$358,806
Fees for Services Professional Fundraising--$324,724$324,724
Occupancy$165,868$42,810$34,533$243,211
Payroll Taxes$120,714$41,014$28,294$190,022
Depreciation Depletion$103,664$48,297$34,115$186,076
Foreign Grants$160,000--$160,000
Office Expenses$110,318$15,990$15,511$141,819
Pension Plan Contributions$89,124$27,921$17,902$134,947
Advertising$79,018$510$16,477$96,005
Fees for Services Lobbying$60,000--$60,000
Fees for Services Legal$37,355$8,335$8,923$54,613
Other Expenses$16,152$21,558$13,463$51,173
Information Technology$37,461-$13,581$51,042
Grants to Domestic Individuals$50,000--$50,000
Fees for Service Investment Mgmnt Fees-$40,657-$40,657
Fees for Services Accounting$19,403$5,982$4,825$30,210
Travel$23,681--$23,681
Insurance$12,485$3,849$3,105$19,439
Total Functional Expenses$83,774$0$124,703$208,477

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,452,216
Total Expenses per Form 990$7,241,943
Expenses per Audited Statements$7,201,286
Expenses Not Reported on Form 990$250,930
Expenses Not Reported on Financial Statements$40,657
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Kansas Medical SchoolKansas City, KS501(c)(3)Pre-clinical Evaluation of Caspase 1 as a Therapeutic Target in Adpkdrescuing Polycystin-1 G-protein Functionuse of Exosomal Polycystin-1 (pc1) Level to Diagnose and Monitor Adpkd$240,000
Mayo ClinicMinneapolis, MN501(c)(3)The Effect of Dietary Methionine Restriction on Pathogenesis of Adpkd and Therapeutic Implication of Fgf21 Analoguesrole of Nox4, Mitochondria and Related Biomarkers in Adpkd$226,000
University of Alabama at BirminghamBirmingham, AL501(c)(3)Developing Early Prognosis Imaging Biomarkers of Adpkd Based on Dynamic Changes in Cyst Grown Rateskidney Specific Drug Delivery Using Nanoparticles in Pkd1 Micesalary Support$209,964
University of Maryland BaltimoreBaltimore, MDGovPOLYCYSTIN-1 CLEAVAGE PRODUCT P100: DISTINCTIVE TOPOLOGY, SPECIFIC PROPERTIES, AND POLYCYSTIN-2-ASSOCIATED CHANNEL ACTIVITYRELIEVING THE STRESS OF PKD: A NEW ROLE OF PKHD1 IN DETOXIFICATION MEDIATED VIA DIFFERENTIAL CLEAVAGE OF THE INTRACELLULAR DOMAIN$140,000
University of Texas Southwestern Medical CenterIrving, TX501(c)(3)Investigating the M6a Rna Methylation Pathway as a Therapeutic Option for Adpkd Treatmentrole of Tulp3-mediated Ciliary Protein Trafficking in Kidney Cystogenesis$120,000
Critical Path InstituteTucson, AZ501(c)(3)Polycystic Kidney Disease Outcomes Consortium$100,000
BRIGHAM AND WOMEN'S HOSPITALBoston, MA501(c)(3)Elucidating the Cystogenic Proteome in Polycystic Kidney Disease$80,000
Emory UniversityDecatur, GA501(c)(3)Machine Learning for Predicting Egfr Decline in the Crisp Cohort of Adpkd Patients$80,000
University of DenverDenver, CO501(c)(3)Adiposity and Time Restricted Feeding in Adpkd$80,000
Yale UniversityNew Haven, CT501(c)(3)Controlling the Viability of Pkd Mutant Cells Via Inactivation of Xbp1 as a Novel Strategy to Treat$80,000

International Summary

Offices
0
Employees
0
Spending
$160,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrants to Recipients Located in the RegionN/a00$80,000
East Asia & the PacificGrants to Recipients Located in the RegionN/a00$80,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$324,724
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.

Form 990, Part VI, Section B, Line 15

Annually, the chair of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of the each fiscal year, the hr committee evaluates the ceo against these goals and determines merit and bonus levels based on their review. Annually, the hr committee reviews a national nonprofit compensation report for comparability data for the ceo salary. After a full review of performance and comparability data, the hr committee votes to approve any salary increase and bonus and informs the full board of trustees with their decision.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.

FORM 990, PART VII, SECTION A, LINE 1:

Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.

Filing and Contact Details

Filer

Filer Name
Pkd Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101ST TER NO 220, KANSAS CITY, MO 64131

Signing Officer

Name
Andy Betts
Title
President and CEO
Phone
8169312600
Signed
2021-01-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andy Betts
Formed
1982
Legal Domicile
Mo
Voting Board Members
16
Independent Board Members
15
Employees
54
Volunteers
3,509

Preparer

Firm
Cliftonlarsonallen Llp
Address
801 FELIX STREET, ST JOSEPH, MO 64501
Preparer
Harold Ray
Phone
8162328441
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Return of prior year grant 9,533.

FORM 990, PART XII, LINE 2 C EXPLANATION:

No change from the prior year.

Financial Statement Notes

PART V, LINE 4:

The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.

PART X, LINE 2:

The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2020 or 2019. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Cost of goods sold for merchandise sales 1,777.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Cost of goods sold for merchandise sales 1,777. Return of prior year grant -9,533.

Raw XML AppendixShowing 400 of 1,021 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $50 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AWARDS, FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING IT THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THE FOUNDATION'S FINANCIAL COMMITMENT OVER THE YEARS HAS SEEN RESULTS ON A LOCAL, NATIONAL AND EVEN GLOBAL LEVEL, INCLUDING INITIATING FUNDING FOR YOUNG INVESTIGATORS FROM AROUND THE WORLD; SUPPORTING INNOVATIVE RESEARCH IDEAS; AND PROVIDING SEED FUNDING TO RESEARCH TO ALLOW RESEARCHERS WORLD-WIDE TO APPLY FOR LARGER NATIONAL INSTITUTES OF HEALTH (NIH) GRANTS. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,110,500 ON GRANT FUNDING TO 19 PKD PROJECTS THAT FOCUS ON RISK FACTORS FOR PKD MANIFESTATIONS, BETTER UNDERSTANDING OF CELLULAR MECHANISMS THAT ACCELERATE PROGRESSION AND IDENTIFYING TARGETS FOR PKD. FELLOWSHIPS: PROVIDED $180,000 IN FELLOWSHIP FUNDING TO 3 SUPPORT TRAINEES IN OBTAINING RESEARCH EXPERIENCE AS THEY INITIATE CAREERS IN PKD.CORE GRANTS: INVESTED $66,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN A PROMINENT GENETIC LAB SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY.ADPKD REGISTRY: LED THE DEVELOPMENT AND IMPLEMENTATION OF THE NATION'S FIRST ADPKD PATIENT REGISTRY TO COLLECT VALUABLE DATA ABOUT THE PKD EXPERIENCE DIRECTLY FROM PATIENTS AND SUPPORT THE RECRUITMENT OF PARTICIPANTS FOR CLINICAL STUDIES. POLYCYSTIC KIDNEY DISEASE OUTCOMES CONSORTIUM: INVESTED $100,000 IN COLLABORATION BETWEEN THE PKD FOUNDATION, CRITICAL PATH INSTITUTE, REPRESENTATIVES OF THE PHARMACEUTICAL INDUSTRY, PKD CLINICIANS AND THE U.S. FOOD AND DRUG ADMINISTRATION (FDA) TO FACILITATE CLINICAL TRIAL DEVELOPMENT FOR PKD THERAPIES.
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IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt054
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt02801908
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/FundraisingAmt04825
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt05982
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt019403
IRS990/FeesForServicesAccountingGrp/TotalAmt030210
IRS990/FeesForServicesLegalGrp/FundraisingAmt08923
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt08335
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt037355
IRS990/FeesForServicesLegalGrp/TotalAmt054613
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt060000
IRS990/FeesForServicesLobbyingGrp/TotalAmt060000
IRS990/FeesForServicesOtherGrp/FundraisingAmt068129
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt019721
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0535028
IRS990/FeesForServicesOtherGrp/TotalAmt0622878
IRS990/FeesForServicesProfFundraising/FundraisingAmt0324724
IRS990/FeesForServicesProfFundraising/TotalAmt0324724
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt040657
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt040657
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt0160000
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IRS990/ForeignOfficeInd00
IRS990/Form1098CFiledInd00
IRS990/Form8282PropertyDisposedOfInd00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2040.00
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IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd0X
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IRS990/Form990PartVIISectionAGrp/OfficerInd0X
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IRS990/Form990PartVIISectionAGrp/OfficerInd4X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1654457
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1736582
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1823849
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1924367
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2020091
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2120091
IRS990/Form990PartVIISectionAGrp/PersonNm0BRAZELL BILL
IRS990/Form990PartVIISectionAGrp/PersonNm1BROWN ASHLEY
IRS990/Form990PartVIISectionAGrp/PersonNm2DELL KATHERINE
IRS990/Form990PartVIISectionAGrp/PersonNm3HABERMANN GEORGINA
IRS990/Form990PartVIISectionAGrp/PersonNm4KARL MICHELE
IRS990/Form990PartVIISectionAGrp/PersonNm5KRINGSTEIN ANDREA
IRS990/Form990PartVIISectionAGrp/PersonNm6MANGLANI NAVIN
IRS990/Form990PartVIISectionAGrp/PersonNm7MRUG MICHAL
IRS990/Form990PartVIISectionAGrp/PersonNm8RAMSEYER CRAIG
IRS990/Form990PartVIISectionAGrp/PersonNm9TOWEY FRAN JR
IRS990/Form990PartVIISectionAGrp/PersonNm10WAXMAN JERRY
IRS990/Form990PartVIISectionAGrp/PersonNm11WESS CHRIS
IRS990/Form990PartVIISectionAGrp/PersonNm12HUTCHINSON PAULA
IRS990/Form990PartVIISectionAGrp/PersonNm13ROTH ROB
IRS990/Form990PartVIISectionAGrp/PersonNm14KLEBER KLEE
IRS990/Form990PartVIISectionAGrp/PersonNm15BENSON DR BEVERLY
IRS990/Form990PartVIISectionAGrp/PersonNm16BETTS ANDREW
IRS990/Form990PartVIISectionAGrp/PersonNm17HANOVA AMANDA
IRS990/Form990PartVIISectionAGrp/PersonNm18SULLENS STEPHANIE
IRS990/Form990PartVIISectionAGrp/PersonNm19BARON DAVID
IRS990/Form990PartVIISectionAGrp/PersonNm20DEREMER SUSAN
IRS990/Form990PartVIISectionAGrp/PersonNm21DENNY ALEXIS
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16268422
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17156550
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18153403
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19148036
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20103020
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21103020
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt13TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt14VICE-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt16PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF ADVANCEMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF RESEARCH OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF LEADERSHIP GIFTS
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR OF GOVERNMENT AFFAIRS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01982
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0-54153
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantAmt01565964
IRS990/GrantsPayableGrp/EOYAmt0400000
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt050000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt050000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01355964
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01355964
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt015551572
IRS990/GrossReceiptsAmt031731951
IRS990/GrossSalesOfInventoryAmt03372
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt06
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt013581
IRS990/InformationTechnologyGrp/ProgramServicesAmt037461
IRS990/InformationTechnologyGrp/TotalAmt051042
IRS990/InsuranceGrp/FundraisingAmt03105
IRS990/InsuranceGrp/ManagementAndGeneralAmt03849
IRS990/InsuranceGrp/ProgramServicesAmt012485
IRS990/InsuranceGrp/TotalAmt019439
IRS990/InvestmentIncomeGrp/ExclusionAmt0335777
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0335777
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt05024730
IRS990/InvestmentsPubTradedSecGrp/EOYAmt014768885
IRS990/IRPDocumentCnt011
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
IRS990/LandBldgEquipAccumDeprecAmt0428139
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0740117
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0682339
IRS990/LandBldgEquipCostOrOtherBssAmt01110478
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt015605725
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt08754056
IRS990/NetAssetsOrFundBalancesEOYAmt017800383
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-54153
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-54153
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt01595
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt01595
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0154288
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04517567
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04630854
IRS990/NoncashContributionsAmt010170764
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt034533
IRS990/OccupancyGrp/ManagementAndGeneralAmt042810
IRS990/OccupancyGrp/ProgramServicesAmt0165868
IRS990/OccupancyGrp/TotalAmt0243211
IRS990/OfficeExpensesGrp/FundraisingAmt015511
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt015990
IRS990/OfficeExpensesGrp/ProgramServicesAmt0110318
IRS990/OfficeExpensesGrp/TotalAmt0141819
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt017008
IRS990/OtherAssetsTotalGrp/EOYAmt015533
IRS990/OtherChangesInNetAssetsAmt09533
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt052409
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt078341
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0228056
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0358806
IRS990/OtherExpensesGrp/Desc0DUES, FEES, MEMBERSHIPS
IRS990/OtherExpensesGrp/FundraisingAmt013463
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt021558
IRS990/OtherExpensesGrp/ProgramServicesAmt016152
IRS990/OtherExpensesGrp/TotalAmt051173
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0248201
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0380527
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01090185
IRS990/OtherSalariesAndWagesGrp/TotalAmt01718913
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt028294
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt041014
IRS990/PayrollTaxesGrp/ProgramServicesAmt0120714
IRS990/PayrollTaxesGrp/TotalAmt0190022
IRS990/PensionPlanContributionsGrp/FundraisingAmt017902
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt027921

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Detailed filing. Detailed filing data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$1.85$8.75$6.76$8.17$1.41
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.4$1.35$10.0$13.0$7.73$5.22
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31