Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
32nd percentile
Higher debt load relative to revenue than 32% of similar nonprofits.
Net Margin
93rd percentile
Higher net margin than 93% of similar nonprofits.
Top Officer Pay
66th percentile
Higher top officer pay than 66% of similar nonprofits.
Top officer pay equals 2.0% of source-year revenue.
Asset Growth
96th percentile
Faster asset growth than 96% of similar nonprofits.
Revenue Growth
96th percentile
Faster revenue growth than 96% of similar nonprofits.
Assets
Flat$20,909,832
Flat from 2020
Net Assets
Flat$17,800,383
Flat from 2020
Liabilities
Flat$3,109,449
Flat from 2020
Revenue
Flat$16,124,449
Flat from 2020
Expenses
Flat$7,241,943
Flat from 2020
Net Income
Flat$8,882,506
Flat from 2020
We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.
Promote programs of research and education to discover treatments and a cure for pkd.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $5,024,730 | $14,768,885 | ▲ $9,744,155 |
| Savings and Temporary Cash Investments | $1,336,795 | $2,329,780 | ▲ $992,985 |
| Pledges and Grants Receivable | $2,888,585 | $1,975,570 | ▼ $913,015 |
| Cash and Non-Interest-Bearing Accounts | $560,278 | $837,660 | ▲ $277,382 |
| Land, Buildings, and Equipment, Net | $740,117 | $682,339 | ▼ $57,778 |
| Prepaid Expenses and Deferred Charges | $12,805 | $246,080 | ▲ $233,275 |
| Accounts Receivable | $26,148 | $53,985 | ▲ $27,837 |
| Total Assets | $10,606,466 | $20,909,832 | ▲ $10,303,366 |
| Other Assets Total | $17,008 | $15,533 | ▼ $1,475 |
| Liabilities | |||
| Deferred Revenue | $1,000,000 | $1,441,378 | ▲ $441,378 |
| Accounts Payable and Accrued Expenses | $852,410 | $870,271 | ▲ $17,861 |
| Grants Payable | - | $400,000 | - |
| Unsecured Notes Loans Payable | - | $397,800 | - |
| Total Liabilities | $1,852,410 | $3,109,449 | ▲ $1,257,039 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $4,236,489 | $13,169,529 | ▲ $8,933,040 |
| Net Assets Without Donor Restrictions | $4,517,567 | $4,630,854 | ▲ $113,287 |
| Total Net Assets Fund Balance | $8,754,056 | $17,800,383 | ▲ $9,046,327 |
| Total Liabilities and Net Assets / Fund Balance | $10,606,466 | $20,909,832 | ▲ $10,303,366 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $625,634 | $415,488 | $1,041,122 |
| Leasehold Improvements | $56,705 | $12,651 | $69,356 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2019 | $4,597,077 | $9,642,300 | ▲ $399,614 | - | $14,598,334 |
| 2018 | $4,079,744 | $409,814 | ▲ $276,814 | $148,064 | $4,597,077 |
| 2017 | $2,960,433 | $1,021,831 | ▲ $222,220 | $108,000 | $4,079,744 |
| 2016 | $2,773,007 | - | ▲ $310,566 | $108,000 | $2,960,433 |
| 2015 | - | $2,700,000 | ▲ $77,487 | - | $2,773,007 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Betts Andrew | President and CEO | FT | $233,310 | $89,569 | $322,879 |
| Hanova Amanda | Chief Operating Officer | FT | $135,740 | $57,392 | $193,132 |
| Sullens Stephanie | Chief Advancement Officer | FT | $148,403 | $28,849 | $177,252 |
| Baron David | Chief Research Officer | FT | $148,036 | $24,367 | $172,403 |
| Denny Alexis | Director of Government Affairs | FT | $103,020 | $20,091 | $123,111 |
| Deremer Susan | Director of Leadership Gifts | FT | $103,020 | $20,091 | $123,111 |
| Name | Title |
|---|---|
| Benson Dr Beverly | Chair |
| Kleber Klee | Vice-chair |
| Brazell Bill | Director |
| Brown Ashley | Director |
| Dell Katherine | Director |
| Habermann Georgina | Director |
| Karl Michele | Director |
| Kringstein Andrea | Director |
| Manglani Navin | Director |
| Mrug Michal | Director |
| Ramseyer Craig | Director |
| Towey Fran Jr | Director |
| Waxman Jerry | Director |
| Wess Chris | Director |
| Hutchinson Paula | Secretary |
| Roth Rob | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Manifest LLC | Pkdlife Magazine Production And Delivery | 228 E 45TH ST 7TH FLOOR, New York, NY 10017, Uk | $324,892 |
| Newport One | Digital And Direct Mail Strategy And Sol | 21 RAILRODA AVE, Duxbury, MA 02332 | $178,952 |
| Iqvia Technology Services | Patient Registry And Consulting Fees | - | $114,089 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 17 | $9,980,591 | Fair Value |
| Other Non Cash Contri Table | 298 | $156,300 | Fair Value |
| Other Non Cash Contri Table | 52 | $33,873 | Cost |
| Total Noncash Contributions | 367 | $10,170,764 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $3,094,016 |
| Other Expenses | $2,257,239 |
| Grants and Similar Amounts Paid | $1,565,964 |
| Total Fundraising Expense | $1,215,677 |
| Professional Fundraising Fees | $324,724 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $1,090,185 | $380,527 | $248,201 | $1,718,913 |
| Grants to Domestic Orgs | $1,355,964 | - | - | $1,355,964 |
| Current Officers, Directors, Trustees, and Key Employees | $437,442 | $139,998 | $113,888 | $691,328 |
| Conferences and Meetings | $418,629 | $209 | $217,597 | $636,435 |
| Fees for Services Other | $535,028 | $19,721 | $68,129 | $622,878 |
| Other Employee Benefits | $228,056 | $78,341 | $52,409 | $358,806 |
| Fees for Services Professional Fundraising | - | - | $324,724 | $324,724 |
| Occupancy | $165,868 | $42,810 | $34,533 | $243,211 |
| Payroll Taxes | $120,714 | $41,014 | $28,294 | $190,022 |
| Depreciation Depletion | $103,664 | $48,297 | $34,115 | $186,076 |
| Foreign Grants | $160,000 | - | - | $160,000 |
| Office Expenses | $110,318 | $15,990 | $15,511 | $141,819 |
| Pension Plan Contributions | $89,124 | $27,921 | $17,902 | $134,947 |
| Advertising | $79,018 | $510 | $16,477 | $96,005 |
| Fees for Services Lobbying | $60,000 | - | - | $60,000 |
| Fees for Services Legal | $37,355 | $8,335 | $8,923 | $54,613 |
| Other Expenses | $16,152 | $21,558 | $13,463 | $51,173 |
| Information Technology | $37,461 | - | $13,581 | $51,042 |
| Grants to Domestic Individuals | $50,000 | - | - | $50,000 |
| Fees for Service Investment Mgmnt Fees | - | $40,657 | - | $40,657 |
| Fees for Services Accounting | $19,403 | $5,982 | $4,825 | $30,210 |
| Travel | $23,681 | - | - | $23,681 |
| Insurance | $12,485 | $3,849 | $3,105 | $19,439 |
| Total Functional Expenses | $83,774 | $0 | $124,703 | $208,477 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $7,452,216 |
| Total Expenses per Form 990 | $7,241,943 |
| Expenses per Audited Statements | $7,201,286 |
| Expenses Not Reported on Form 990 | $250,930 |
| Expenses Not Reported on Financial Statements | $40,657 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Kansas Medical School | Kansas City, KS | 501(c)(3) | Pre-clinical Evaluation of Caspase 1 as a Therapeutic Target in Adpkdrescuing Polycystin-1 G-protein Functionuse of Exosomal Polycystin-1 (pc1) Level to Diagnose and Monitor Adpkd | $240,000 |
| Mayo Clinic | Minneapolis, MN | 501(c)(3) | The Effect of Dietary Methionine Restriction on Pathogenesis of Adpkd and Therapeutic Implication of Fgf21 Analoguesrole of Nox4, Mitochondria and Related Biomarkers in Adpkd | $226,000 |
| University of Alabama at Birmingham | Birmingham, AL | 501(c)(3) | Developing Early Prognosis Imaging Biomarkers of Adpkd Based on Dynamic Changes in Cyst Grown Rateskidney Specific Drug Delivery Using Nanoparticles in Pkd1 Micesalary Support | $209,964 |
| University of Maryland Baltimore | Baltimore, MD | Gov | POLYCYSTIN-1 CLEAVAGE PRODUCT P100: DISTINCTIVE TOPOLOGY, SPECIFIC PROPERTIES, AND POLYCYSTIN-2-ASSOCIATED CHANNEL ACTIVITYRELIEVING THE STRESS OF PKD: A NEW ROLE OF PKHD1 IN DETOXIFICATION MEDIATED VIA DIFFERENTIAL CLEAVAGE OF THE INTRACELLULAR DOMAIN | $140,000 |
| University of Texas Southwestern Medical Center | Irving, TX | 501(c)(3) | Investigating the M6a Rna Methylation Pathway as a Therapeutic Option for Adpkd Treatmentrole of Tulp3-mediated Ciliary Protein Trafficking in Kidney Cystogenesis | $120,000 |
| Critical Path Institute | Tucson, AZ | 501(c)(3) | Polycystic Kidney Disease Outcomes Consortium | $100,000 |
| BRIGHAM AND WOMEN'S HOSPITAL | Boston, MA | 501(c)(3) | Elucidating the Cystogenic Proteome in Polycystic Kidney Disease | $80,000 |
| Emory University | Decatur, GA | 501(c)(3) | Machine Learning for Predicting Egfr Decline in the Crisp Cohort of Adpkd Patients | $80,000 |
| University of Denver | Denver, CO | 501(c)(3) | Adiposity and Time Restricted Feeding in Adpkd | $80,000 |
| Yale University | New Haven, CT | 501(c)(3) | Controlling the Viability of Pkd Mutant Cells Via Inactivation of Xbp1 as a Novel Strategy to Treat | $80,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) - Albania, Andorra, Austria, Belgium | Grants to Recipients Located in the Region | N/a | 0 | 0 | $80,000 |
| East Asia & the Pacific | Grants to Recipients Located in the Region | N/a | 0 | 0 | $80,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $324,724 |
“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.”
“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”
“Annually, the chair of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of the each fiscal year, the hr committee evaluates the ceo against these goals and determines merit and bonus levels based on their review. Annually, the hr committee reviews a national nonprofit compensation report for comparability data for the ceo salary. After a full review of performance and comparability data, the hr committee votes to approve any salary increase and bonus and informs the full board of trustees with their decision.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”
“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”
“Return of prior year grant 9,533.”
“No change from the prior year.”
“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”
“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2020 or 2019. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”
“Cost of goods sold for merchandise sales 1,777.”
“Cost of goods sold for merchandise sales 1,777. Return of prior year grant -9,533.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 852410 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 870271 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 26148 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 53985 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 16477 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 510 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 79018 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 96005 |
| IRS990/AllOtherContributionsAmt | 0 | 15841230 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | STEPHANIE BRENDEL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8169312600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1001 E 101ST TER NO 220 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | KANSAS CITY |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 64131 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 560278 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 837660 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 113888 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 139998 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 437442 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 691328 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 217597 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 209 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 418629 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 636435 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 324892 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 178952 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 114089 |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/AddressLine1Txt | 0 | 210 PENTONVILLE RD |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/CityNm | 0 | LONDON |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/CountryCd | 0 | UK |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/ForeignPostalCd | 0 | N1 OYJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 228 E 45TH ST 7TH FLOOR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 21 RAILRODA AVE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | NEW YORK |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | DUXBURY |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 10017 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 02332 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | MANIFEST LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | NEWPORT ONE |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | IQVIA TECHNOLOGY SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | PKDLIFE MAGAZINE PRODUCTION AND DELIVERY |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | DIGITAL AND DIRECT MAIL STRATEGY AND SOL |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | PATIENT REGISTRY AND CONSULTING FEES |
| IRS990/CostOfGoodsSoldAmt | 0 | 1777 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 15841230 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1565964 |
| IRS990/CYInvestmentIncomeAmt | 0 | 281624 |
| IRS990/CYOtherExpensesAmt | 0 | 2257239 |
| IRS990/CYOtherRevenueAmt | 0 | 1595 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 8882506 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 3094016 |
| IRS990/CYTotalExpensesAmt | 0 | 7241943 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 1215677 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 324724 |
| IRS990/CYTotalRevenueAmt | 0 | 16124449 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 1000000 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 1441378 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 34115 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 48297 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 103664 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 186076 |
| IRS990/Desc | 0 | SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $50 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AWARDS, FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING IT THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THE FOUNDATION'S FINANCIAL COMMITMENT OVER THE YEARS HAS SEEN RESULTS ON A LOCAL, NATIONAL AND EVEN GLOBAL LEVEL, INCLUDING INITIATING FUNDING FOR YOUNG INVESTIGATORS FROM AROUND THE WORLD; SUPPORTING INNOVATIVE RESEARCH IDEAS; AND PROVIDING SEED FUNDING TO RESEARCH TO ALLOW RESEARCHERS WORLD-WIDE TO APPLY FOR LARGER NATIONAL INSTITUTES OF HEALTH (NIH) GRANTS. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,110,500 ON GRANT FUNDING TO 19 PKD PROJECTS THAT FOCUS ON RISK FACTORS FOR PKD MANIFESTATIONS, BETTER UNDERSTANDING OF CELLULAR MECHANISMS THAT ACCELERATE PROGRESSION AND IDENTIFYING TARGETS FOR PKD. FELLOWSHIPS: PROVIDED $180,000 IN FELLOWSHIP FUNDING TO 3 SUPPORT TRAINEES IN OBTAINING RESEARCH EXPERIENCE AS THEY INITIATE CAREERS IN PKD.CORE GRANTS: INVESTED $66,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN A PROMINENT GENETIC LAB SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY.ADPKD REGISTRY: LED THE DEVELOPMENT AND IMPLEMENTATION OF THE NATION'S FIRST ADPKD PATIENT REGISTRY TO COLLECT VALUABLE DATA ABOUT THE PKD EXPERIENCE DIRECTLY FROM PATIENTS AND SUPPORT THE RECRUITMENT OF PARTICIPANTS FOR CLINICAL STUDIES. POLYCYSTIC KIDNEY DISEASE OUTCOMES CONSORTIUM: INVESTED $100,000 IN COLLABORATION BETWEEN THE PKD FOUNDATION, CRITICAL PATH INSTITUTE, REPRESENTATIVES OF THE PHARMACEUTICAL INDUSTRY, PKD CLINICIANS AND THE U.S. FOOD AND DRUG ADMINISTRATION (FDA) TO FACILITATE CLINICAL TRIAL DEVELOPMENT FOR PKD THERAPIES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 4236489 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 13169529 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 1 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 54 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2801908 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 4825 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 5982 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 19403 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 30210 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 8923 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 8335 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 37355 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 54613 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 60000 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 60000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 68129 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 19721 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 535028 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 622878 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 324724 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 324724 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 40657 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 40657 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 160000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 160000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form1098CFiledInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 54457 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 36582 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 23849 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 24367 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 20091 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 20091 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRAZELL BILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BROWN ASHLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DELL KATHERINE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | HABERMANN GEORGINA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | KARL MICHELE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | KRINGSTEIN ANDREA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MANGLANI NAVIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MRUG MICHAL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RAMSEYER CRAIG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | TOWEY FRAN JR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | WAXMAN JERRY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | WESS CHRIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | HUTCHINSON PAULA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ROTH ROB |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | KLEBER KLEE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | BENSON DR BEVERLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | BETTS ANDREW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | HANOVA AMANDA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | SULLENS STEPHANIE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | BARON DAVID |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | DEREMER SUSAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | DENNY ALEXIS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 268422 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 156550 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 153403 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 148036 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 103020 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 103020 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | PRESIDENT AND CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | CHIEF OPERATING OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | CHIEF ADVANCEMENT OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | CHIEF RESEARCH OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR OF LEADERSHIP GIFTS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | DIRECTOR OF GOVERNMENT AFFAIRS |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1982 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -54153 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 16 |
| IRS990/GrantAmt | 0 | 1565964 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 400000 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 50000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 50000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1355964 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1355964 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 15551572 |
| IRS990/GrossReceiptsAmt | 0 | 31731951 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 3372 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 13581 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 37461 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 51042 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 3105 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3849 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 12485 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 19439 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 335777 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 335777 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 5024730 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 14768885 |
| IRS990/IRPDocumentCnt | 0 | 11 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/JointCostsInd | 0 | X |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 428139 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 740117 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 682339 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 1110478 |
| IRS990/LegalDomicileStateCd | 0 | MO |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 15605725 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 8754056 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 17800383 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -54153 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -54153 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1595 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 1595 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 154288 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 4517567 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 4630854 |
| IRS990/NoncashContributionsAmt | 0 | 10170764 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 34533 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 42810 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 165868 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 243211 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 15511 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 15990 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 110318 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 141819 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 17008 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 15533 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 9533 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 52409 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 78341 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 228056 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 358806 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES, FEES, MEMBERSHIPS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 13463 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 21558 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 16152 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 51173 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 248201 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 380527 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 1090185 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 1718913 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 28294 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 41014 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 120714 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 190022 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 17902 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 27921 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.