Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No valid filing value is available for this score.
Assets
$2,390,354
No earlier filing loaded for comparison.
Net Assets
$1,674,104
No earlier filing loaded for comparison.
Liabilities
$716,250
No earlier filing loaded for comparison.
Revenue
-
No earlier filing loaded for comparison.
Expenses
$8,308,496
No earlier filing loaded for comparison.
Net Income
-
No earlier filing loaded for comparison.
We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReview | 0 | 0 |
| IRS990/AccountsPayableAccruedExpenses/BOY | 0 | 654959 |
| IRS990/AccountsPayableAccruedExpenses/EOY | 0 | 693845 |
| IRS990/ActivitiesConductedPartnership | 0 | 0 |
| IRS990/Activity2/Description | 0 | PUBLIC AWARENESS - THE FOUNDATION RAISES AWARENESS OF PKD THROUGH NATIONAL, REGIONAL AND LOCAL PUBLIC RELATIONS AND MARKETING EFFORTS. THE FOUNDATION ALSO EDUCATES THE PKD COMMUNITY THROUGH A QUARTERLY MAGAZINE (PKD PROGRESS), ONLINE BOOKS, WEBINARS, VIDEOS, A FREE MONTHLY ELECTRONIC NEWSLETTER AND THE WEBSITES WWW.PKDCURE.ORG AND WWW.KIDNEYLINK.ORG. AWARENESS IS ALSO GENERATED WITH NATIONAL AND LOCAL LAWMAKERS THROUGH OUR MONTHLY E-PUBLICATION (PKD CHAMPION CONNECTION) AND OUR ANNUAL GOVERNMENTAL ADVOCACY CONFERENCE IN WASHINGTON, D.C. (UNITED ON THE HILL). |
| IRS990/Activity2/Expense | 0 | 2320936 |
| IRS990/Activity2/Revenue | 0 | 50197 |
| IRS990/Activity3/Description | 0 | PATIENT EDUCATION AND ENGAGEMENT - THE FOUNDATION PROVIDES EDUCATION AND SUPPORT FOR PATIENTS, FAMILY AND FRIENDS THROUGH 61 VOLUNTEER-LED CHAPTERS IN CITIES ACROSS THE COUNTRY. THESE CHAPTERS WORK TO RAISE AWARENESS AND FUNDS FOR PKD FOUNDATION PROGRAMS VIA EVENTS SUCH AS THE ANNUAL WALK FOR PKD WHICH INVOLVES THOUSANDS OF FAMILIES. THE CHAPTERS ALSO PROVIDE LOCAL OPPORTUNITIES FOR EDUCATION, NETWORKING AND SUPPORT. |
| IRS990/Activity3/Expense | 0 | 1767260 |
| IRS990/ActivityOrMissionDescription | 0 | PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD. |
| IRS990/AddressPrincipalOfficerUS/AddressLine1 | 0 | 8330 WARD PARKWAY NO 510 |
| IRS990/AddressPrincipalOfficerUS/City | 0 | KANSAS CITY |
| IRS990/AddressPrincipalOfficerUS/State | 0 | MO |
| IRS990/AddressPrincipalOfficerUS/ZIPCode | 0 | 641142000 |
| IRS990/Advertising/ProgramServices | 0 | 178522 |
| IRS990/Advertising/Total | 0 | 178522 |
| IRS990/AllOtherContributions | 0 | 7528329 |
| IRS990/AnnualDisclosureCoveredPersons | 0 | 1 |
| IRS990/AuditCommittee | 0 | 1 |
| IRS990/BenefitsPaidToMembersCY | 0 | 0 |
| IRS990/BenefitsPaidToMembersPriorYear | 0 | 0 |
| IRS990/BsnssRltnshpThruFamilyMember | 0 | 0 |
| IRS990/BsnssRltnshpWithOrganization | 0 | 0 |
| IRS990/CashNonInterestBearing/BOY | 0 | 142445 |
| IRS990/CashNonInterestBearing/EOY | 0 | 146717 |
| IRS990/ChangesToOrganizingDocs | 0 | 0 |
| IRS990/CollectionsOfArt | 0 | 0 |
| IRS990/CompCurrentOfficersDirectors/Fundraising | 0 | 93206 |
| IRS990/CompCurrentOfficersDirectors/ManagementAndGeneral | 0 | 111942 |
| IRS990/CompCurrentOfficersDirectors/ProgramServices | 0 | 703248 |
| IRS990/CompCurrentOfficersDirectors/Total | 0 | 908396 |
| IRS990/CompensationFromOtherSources | 0 | 0 |
| IRS990/CompensationProcessCEO | 0 | 1 |
| IRS990/CompensationProcessOther | 0 | 1 |
| IRS990/ConferencesMeetings/Fundraising | 0 | 99 |
| IRS990/ConferencesMeetings/ProgramServices | 0 | 279404 |
| IRS990/ConferencesMeetings/Total | 0 | 279503 |
| IRS990/ConflictOfInterestPolicy | 0 | 1 |
| IRS990/ConservationEasements | 0 | 0 |
| IRS990/ConsolidatedAuditFinancialStmt | 0 | 0 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/AddressLine1 | 0 | 1169 PITTSFORD-VICTOR RD STE100 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/AddressLine1 | 1 | PO BOX 68845 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/AddressLine1 | 2 | 524 WALNUT STE 220 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/AddressLine1 | 3 | 575 SEVENTH ST NW |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/City | 0 | PITTSFORD |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/City | 1 | INDIANAPOLIS |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/City | 2 | KANSAS CITY |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/City | 3 | WASHINGTON |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/State | 0 | NY |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/State | 1 | IN |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/State | 2 | MO |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/State | 3 | DC |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/ZIPCode | 0 | 14534 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/ZIPCode | 1 | 46268 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/ZIPCode | 2 | 64106 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/ZIPCode | 3 | 20004 |
| IRS990/ContractorCompensation/Compensation | 0 | 472627 |
| IRS990/ContractorCompensation/Compensation | 1 | 356696 |
| IRS990/ContractorCompensation/Compensation | 2 | 196273 |
| IRS990/ContractorCompensation/Compensation | 3 | 114500 |
| IRS990/ContractorCompensation/DescriptionOfServices | 0 | WEBSITE DEVELOPMENT & SERVER MANAGEMENT |
| IRS990/ContractorCompensation/DescriptionOfServices | 1 | DRUG REPURPOSING EVALUATION |
| IRS990/ContractorCompensation/DescriptionOfServices | 2 | WEBSITE & GRAPHIC DESIGN SERVICES |
| IRS990/ContractorCompensation/DescriptionOfServices | 3 | GOVERNMENT AND PUBLIC RELATIONS |
| IRS990/ContractorCompensation/NameOfContractor/NameBusiness/BusinessNameLine1 | 0 | ITX CORP |
| IRS990/ContractorCompensation/NameOfContractor/NameBusiness/BusinessNameLine1 | 1 | PRECLINOMICS |
| IRS990/ContractorCompensation/NameOfContractor/NameBusiness/BusinessNameLine1 | 2 | VOLTAGE CREATIVE |
| IRS990/ContractorCompensation/NameOfContractor/NameBusiness/BusinessNameLine1 | 3 | AXELA GOVERNMENT RELATIONS LLC |
| IRS990/ContributionsGrantsCurrentYear | 0 | 7528329 |
| IRS990/ContributionsGrantsPriorYear | 0 | 8359686 |
| IRS990/CostOfGoodsSold | 0 | 1702 |
| IRS990/CreditCounseling | 0 | 0 |
| IRS990/DecisionsSubjectToApproval | 0 | 0 |
| IRS990/DeductibleContributionsOfArt | 0 | 0 |
| IRS990/DeductibleNonCashContributions | 0 | 1 |
| IRS990/DeferredRevenue/BOY | 0 | 27186 |
| IRS990/DelegationOfManagementDuties | 0 | 0 |
| IRS990/DepreciationDepletion/Fundraising | 0 | 20192 |
| IRS990/DepreciationDepletion/ManagementAndGeneral | 0 | 4744 |
| IRS990/DepreciationDepletion/ProgramServices | 0 | 332528 |
| IRS990/DepreciationDepletion/Total | 0 | 357464 |
| IRS990/DescribedIn501C3 | 0 | 1 |
| IRS990/Description | 0 | ACCELERATING TREATMENTS TO PATIENTS - ACCELERATING DRUG DEVELOPMENT FOR PKD THROUGH A REPURPOSING STRATEGY IS THE CORNERSTONE OF THIS NEW INITIATIVE. OTHER PROGRAMS WITHIN THIS INITIATIVE INCLUDE THE PKD OUTCOMES CONSORTIUM PROJECT (PKDOC) WHICH IS FOCUSED ON FACILITATING CLINICAL TRIAL DEVELOPMENT FOR ADPKD THERAPIES, CORE GRANTS WHICH SUPPORT AN AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE (ADPKD) GENE MUTATION REGISTRY, AND AN AUTOSOMAL RECESSIVE POLYCYSTIC KIDNEY DISEASE (ARPKD) CLINICAL DATABASE AND ELECTRON MICROSCOPY FACILITY. OUR TISSUE DONATION PROGRAM SUPPORTS PKD SCIENTISTS AND THEIR RESEARCH. THE FOUNDATION ALSO PROVIDES SCIENTIFIC MEETING SUPPORT AND SUPPORT FOR CONTINUING MEDICAL EDUCATION IN PKD FOR NEPHROLOGISTS. |
| IRS990/DisregardedEntity | 0 | 0 |
| IRS990/DocumentRetentionPolicy | 0 | 1 |
| IRS990/DonorAdvisedFunds | 0 | 0 |
| IRS990/ElectionOfBoardMembers | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiled | 0 | 1 |
| IRS990/ExcessBenefitTransaction | 0 | 0 |
| IRS990/Expense | 0 | 2480197 |
| IRS990/FamilyOrBusinessRelationship | 0 | 0 |
| IRS990/FederalGrantAuditRequired | 0 | 0 |
| IRS990/FeesForServicesAccounting/ManagementAndGeneral | 0 | 28700 |
| IRS990/FeesForServicesAccounting/Total | 0 | 28700 |
| IRS990/FeesForServicesLegal/Fundraising | 0 | 4216 |
| IRS990/FeesForServicesLegal/ManagementAndGeneral | 0 | 501 |
| IRS990/FeesForServicesLegal/ProgramServices | 0 | 33060 |
| IRS990/FeesForServicesLegal/Total | 0 | 37777 |
| IRS990/FeesForServicesLobbying/ProgramServices | 0 | 81000 |
| IRS990/FeesForServicesLobbying/Total | 0 | 81000 |
| IRS990/FeesForServicesOther/Fundraising | 0 | 48476 |
| IRS990/FeesForServicesOther/ManagementAndGeneral | 0 | 24377 |
| IRS990/FeesForServicesOther/ProgramServices | 0 | 639978 |
| IRS990/FeesForServicesOther/Total | 0 | 712831 |
| IRS990/FinancialStatementSeparate | 0 | X |
| IRS990/FollowSFAS117 | 0 | X |
| IRS990/ForeignActivities | 0 | 1 |
| IRS990/ForeignFinancialAccount | 0 | 0 |
| IRS990/ForeignGrants/ProgramServices | 0 | 50000 |
| IRS990/ForeignGrants/Total | 0 | 50000 |
| IRS990/ForeignOffice | 0 | 0 |
| IRS990/Form8282PropertyDisposedOf | 0 | 0 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 0 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 1 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 2 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 3 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 4 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 5 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 6 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 7 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 8 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 9 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 10 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 11 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 12 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 13 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 14 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 15 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 16 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 17 | 1.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 18 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 19 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 20 | 20.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 21 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 22 | 40.00 |
| IRS990/Form990PartVIISectionA/HighestCompensatedEmployee | 0 | X |
| IRS990/Form990PartVIISectionA/HighestCompensatedEmployee | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 0 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 2 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 3 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 4 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 5 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 6 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 7 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 8 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 9 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 10 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 11 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 12 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 13 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 14 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 15 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 16 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 17 | X |
| IRS990/Form990PartVIISectionA/NamePerson | 0 | COWLEY BEN MD |
| IRS990/Form990PartVIISectionA/NamePerson | 1 | FLESCH BILL |
| IRS990/Form990PartVIISectionA/NamePerson | 2 | HAZELWOOD BLAISE |
| IRS990/Form990PartVIISectionA/NamePerson | 3 | HUNT WALTER PHD |
| IRS990/Form990PartVIISectionA/NamePerson | 4 | LIENHARD JEROME T II |
| IRS990/Form990PartVIISectionA/NamePerson | 5 | MCCALL JOHN |
| IRS990/Form990PartVIISectionA/NamePerson | 6 | NELSON RICHARD |
| IRS990/Form990PartVIISectionA/NamePerson | 7 | PERRONE RONALD MD |
| IRS990/Form990PartVIISectionA/NamePerson | 8 | ROBERTS JULIA |
| IRS990/Form990PartVIISectionA/NamePerson | 9 | STEINMAN THEODORE MD |
| IRS990/Form990PartVIISectionA/NamePerson | 10 | WAXMAN KARYN |
| IRS990/Form990PartVIISectionA/NamePerson | 11 | WOLFE HILARY |
| IRS990/Form990PartVIISectionA/NamePerson | 12 | BRAZELL BILL |
| IRS990/Form990PartVIISectionA/NamePerson | 13 | HAGGARD MICHAEL |
| IRS990/Form990PartVIISectionA/NamePerson | 14 | PEPPET SCOTT |
| IRS990/Form990PartVIISectionA/NamePerson | 15 | GOODMAN SCOTT |
| IRS990/Form990PartVIISectionA/NamePerson | 16 | PARKER STEPHANIE |
| IRS990/Form990PartVIISectionA/NamePerson | 17 | CONDELLA FRANK |
| IRS990/Form990PartVIISectionA/NamePerson | 18 | STONE MARK |
| IRS990/Form990PartVIISectionA/NamePerson | 19 | LARSON DAN |
| IRS990/Form990PartVIISectionA/NamePerson | 20 | PANETTA JILL PHD |
| IRS990/Form990PartVIISectionA/NamePerson | 21 | KAHTAVA KEN |
| IRS990/Form990PartVIISectionA/NamePerson | 22 | CANTOR KIMBERLY |
| IRS990/Form990PartVIISectionA/Officer | 0 | X |
| IRS990/Form990PartVIISectionA/Officer | 1 | X |
| IRS990/Form990PartVIISectionA/Officer | 2 | X |
| IRS990/Form990PartVIISectionA/Officer | 3 | X |
| IRS990/Form990PartVIISectionA/Officer | 4 | X |
| IRS990/Form990PartVIISectionA/Officer | 5 | X |
| IRS990/Form990PartVIISectionA/Officer | 6 | X |
| IRS990/Form990PartVIISectionA/OtherCompensation | 0 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 1 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 2 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 3 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 4 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 5 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 6 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 7 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 8 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 9 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 10 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 11 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 12 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 13 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 14 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 15 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 16 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 17 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 18 | 41194 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 19 | 47330 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 20 | 8056 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 21 | 34780 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 22 | 20882 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 16 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 17 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 18 | 240079 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 19 | 189139 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 20 | 66667 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 21 | 116272 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 22 | 100023 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 16 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 17 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 18 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 19 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 20 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 21 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 22 | 0 |
| IRS990/Form990PartVIISectionA/Title | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 14 | CHAIRMAN |
| IRS990/Form990PartVIISectionA/Title | 15 | CHAIRMAN, VICE CHAIR & SECRETARY |
| IRS990/Form990PartVIISectionA/Title | 16 | SECRETARY |
| IRS990/Form990PartVIISectionA/Title | 17 | VICE CHAIR & TREASURER |
| IRS990/Form990PartVIISectionA/Title | 18 | EXECUTIVE VP & COO |
| IRS990/Form990PartVIISectionA/Title | 19 | PRESIDENT & CEO |
| IRS990/Form990PartVIISectionA/Title | 20 | CHIEF SCIENTIFIC OFFICER/INTERIM CEO |
| IRS990/Form990PartVIISectionA/Title | 21 | CHIEF BUSINESS DEVELOPMENT OFFICER |
| IRS990/Form990PartVIISectionA/Title | 22 | DIRECTOR - GOVERNMENT RELATIONS |
| IRS990/Form990ProvidedToGoverningBody | 0 | 1 |
| IRS990/FormersListed | 0 | 0 |
| IRS990/FSAudited | 0 | 1 |
| IRS990/FundraisingActivities | 0 | 0 |
| IRS990/FundsToPayPremiums | 0 | 0 |
| IRS990/GainOrLoss/Other | 0 | -700 |
| IRS990/GainOrLoss/Securities | 0 | 10 |
| IRS990/Gaming | 0 | 0 |
| IRS990/Grants | 0 | 1022748 |
| IRS990/GrantsAndSimilarAmntsCY | 0 | 1022748 |
| IRS990/GrantsAndSimilarAmntsPriorYear | 0 | 359871 |
| IRS990/GrantsPayable/BOY | 0 | 216000 |
| IRS990/GrantsPayable/EOY | 0 | 22405 |
| IRS990/GrantsToDomesticIndividuals/ProgramServices | 0 | 50000 |
| IRS990/GrantsToDomesticIndividuals/Total | 0 | 50000 |
| IRS990/GrantsToDomesticOrgs/ProgramServices | 0 | 922748 |
| IRS990/GrantsToDomesticOrgs/Total | 0 | 922748 |
| IRS990/GrantsToIndividuals | 0 | 1 |
| IRS990/GrantsToOrganizations | 0 | 1 |
| IRS990/GrantToRelatedPerson | 0 | 0 |
| IRS990/GrossAmountSalesAssets/Securities | 0 | 1088575 |
| IRS990/GrossReceipts | 0 | 8669670 |
| IRS990/GrossSalesOfInventory | 0 | 9139 |
| IRS990/GroupReturnForAffiliates | 0 | 0 |
| IRS990/Hospital | 0 | 0 |
| IRS990/IndependentAuditFinancialStmt | 0 | 1 |
| IRS990/IndoorTanningServices | 0 | 0 |
| IRS990/InfoInScheduleOPartVI | 0 | X |
| IRS990/InfoInScheduleOPartXI | 0 | X |
| IRS990/InfoInScheduleOPartXII | 0 | X |
| IRS990/InformationTechnology/Fundraising | 0 | 4921 |
| IRS990/InformationTechnology/ManagementAndGeneral | 0 | 9372 |
| IRS990/InformationTechnology/ProgramServices | 0 | 23466 |
| IRS990/InformationTechnology/Total | 0 | 37759 |
| IRS990/Insurance/Fundraising | 0 | 1300 |
| IRS990/Insurance/ManagementAndGeneral | 0 | 1726 |
| IRS990/Insurance/ProgramServices | 0 | 14738 |
| IRS990/Insurance/Total | 0 | 17764 |
| IRS990/InventoriesForSaleOrUse/BOY | 0 | 25717 |
| IRS990/InventoriesForSaleOrUse/EOY | 0 | 24015 |
| IRS990/InvestmentIncomeCurrentYear | 0 | -462 |
| IRS990/InvestmentIncome/ExclusionAmount | 0 | 228 |
| IRS990/InvestmentIncomePriorYear | 0 | -4213 |
| IRS990/InvestmentIncome/TotalRevenueColumn | 0 | 228 |
| IRS990/InvestmentInJointVenture | 0 | 1 |
| IRS990/InvestmentsOtherSecurities/BOY | 0 | 157672 |
| IRS990/JointCosts | 0 | X |
| IRS990/LandBldgEquipmentAccumDeprec | 0 | 218967 |
| IRS990/LandBuildingsEquipmentBasis | 0 | 275377 |
| IRS990/LandBuildingsEquipmentBasisNet/BOY | 0 | 71208 |
| IRS990/LandBuildingsEquipmentBasisNet/EOY | 0 | 56410 |
| IRS990/LessCostOthBasisSalesExpenses/Other | 0 | 700 |
| IRS990/LessCostOthBasisSalesExpenses/Securities | 0 | 1088565 |
| IRS990/LoanToOfficerOrDQP | 0 | 0 |
| IRS990/LobbyingActivities | 0 | 1 |
| IRS990/LocalChapters | 0 | 1 |
| IRS990/MaterialDiversionOrMisuse | 0 | 0 |
| IRS990/MembersOrStockholders | 0 | 0 |
| IRS990/MethodOfAccountingAccrual | 0 | X |
| IRS990/MinutesOfCommittees | 0 | 1 |
| IRS990/MinutesOfGoverningBody | 0 | 1 |
| IRS990/MissionDescription | 0 | PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. |
| IRS990/MoreThan5000KToIndividuals | 0 | 1 |
| IRS990/MoreThan5000KToOrganizations | 0 | 0 |
| IRS990/NameOfPrincipalOfficerPerson | 0 | JILL PANETTA PHD |
| IRS990/NbrIndependentVotingMembers | 0 | 15 |
| IRS990/NbrVotingGoverningBodyMembers | 0 | 15 |
| IRS990/NbrVotingMembersGoverningBody | 0 | 15 |
| IRS990/NetAssetsOrFundBalancesBOY | 0 | 2715897 |
| IRS990/NetAssetsOrFundBalancesEOY | 0 | 1674104 |
| IRS990/NetGainOrLossInvestments/ExclusionAmount | 0 | -690 |
| IRS990/NetGainOrLossInvestments/TotalRevenueColumn | 0 | -690 |
| IRS990/NetIncomeOrLoss/RelatedOrExemptFunctionIncome | 0 | 7437 |
| IRS990/NetIncomeOrLoss/TotalRevenueColumn | 0 | 7437 |
| IRS990/NetUnrelatedBusinessTxblIncome | 0 | 0 |
| IRS990/NoncashContributions | 0 | 351066 |
| IRS990/NonDeductibleContributions | 0 | 0 |
| IRS990/NumberFormsTransmittedWith1096 | 0 | 25 |
| IRS990/NumberIndependentVotingMembers | 0 | 15 |
| IRS990/NumberIndividualsGT100K | 0 | 4 |
| IRS990/NumberOfContractorsGT100K | 0 | 4 |
| IRS990/NumberOfEmployees | 0 | 72 |
| IRS990/NumberW2GIncluded | 0 | 0 |
| IRS990/Occupancy/Fundraising | 0 | 32343 |
| IRS990/Occupancy/ManagementAndGeneral | 0 | 63334 |
| IRS990/Occupancy/ProgramServices | 0 | 149738 |
| IRS990/Occupancy/Total | 0 | 245415 |
| IRS990/OfficeExpenses/Fundraising | 0 | 62865 |
| IRS990/OfficeExpenses/ManagementAndGeneral | 0 | 12983 |
| IRS990/OfficeExpenses/ProgramServices | 0 | 341414 |
| IRS990/OfficeExpenses/Total | 0 | 417262 |
| IRS990/OfficerEntityWithBsnssRltnshp | 0 | 0 |
| IRS990/OfficerMailingAddress | 0 | 0 |
| IRS990/Organization501c3 | 0 | X |
| IRS990/OtherAssetsTotal/BOY | 0 | 688231 |
| IRS990/OtherAssetsTotal/EOY | 0 | 350123 |
| IRS990/OtherEmployeeBenefits/Fundraising | 0 | 78771 |
| IRS990/OtherEmployeeBenefits/ManagementAndGeneral | 0 | 97732 |
| IRS990/OtherEmployeeBenefits/ProgramServices | 0 | 278792 |
| IRS990/OtherEmployeeBenefits/Total | 0 | 455295 |
| IRS990/OtherExpensePriorYear | 0 | 3955077 |
| IRS990/OtherExpensesCurrentYear | 0 | 3511365 |
| IRS990/OtherExpenses/Description | 0 | EXTERNAL RESEARCH |
| IRS990/OtherExpenses/Description | 1 | DEVELOPMENT ACTIVITIES |
| IRS990/OtherExpenses/Description | 2 | DUES, FEES, MEMBERSHIPS |
| IRS990/OtherExpenses/Description | 3 | BANK CHARGES |
| IRS990/OtherExpenses/Description | 4 | AWARDS |
| IRS990/OtherExpenses/Fundraising | 0 | 25011 |
| IRS990/OtherExpenses/ManagementAndGeneral | 0 | 5175 |
| IRS990/OtherExpenses/ManagementAndGeneral | 1 | 67793 |
| IRS990/OtherExpenses/ManagementAndGeneral | 2 | 780 |
| IRS990/OtherExpenses/ProgramServices | 0 | 462999 |
| IRS990/OtherExpenses/ProgramServices | 1 | 278031 |
| IRS990/OtherExpenses/ProgramServices | 2 | 37682 |
| IRS990/OtherExpenses/ProgramServices | 3 | 70 |
| IRS990/OtherExpenses/ProgramServices | 4 | 6996 |
| IRS990/OtherExpenses/Total | 0 | 462999 |
| IRS990/OtherExpenses/Total | 1 | 278031 |
| IRS990/OtherExpenses/Total | 2 | 67868 |
| IRS990/OtherExpenses/Total | 3 | 67863 |
| IRS990/OtherExpenses/Total | 4 | 7776 |
| IRS990/OtherNotesLoansReceivableNet/BOY | 0 | 93678 |
| IRS990/OtherNotesLoansReceivableNet/EOY | 0 | 2051 |
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Displayed year
2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.