Civic Intelligence

Pkd Foundation

990 • Fiscal year 2016 • EIN 43-1266906

Jul 01, 2015 to Jun 30, 2016 • Filed on Nov 14, 2016

Organization ProfileWWW.PKDCURE.ORG

View Organization Page

1001 E 101st Ter No 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.15x

Higher debt load relative to assets than 41% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Liabilities / Revenue

37th percentile

0.15x

Higher debt load relative to revenue than 37% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Net Margin

15th percentile

-13%

Higher net margin than 15% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Top Officer Pay

70th percentile

$245,095

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 4.2% of source-year revenue.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Asset Growth

7th percentile

-12%

Faster asset growth than 7% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Revenue Growth

14th percentile

-22%

Faster revenue growth than 14% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets41st percentile

Assets

Down

$5,695,290

Down $781,041 (-12%) from 2015

Net Assets

Down

$4,839,455

Down $694,989 (-13%) from 2015

Liabilities

Down

$855,835

Down $86,052 (-9.1%) from 2015

Revenue And Expenses
Liabilities / Revenue37th percentileNet Margin15th percentile

Revenue

Down

$5,868,967

Down $1,638,812 (-22%) from 2015

Expenses

Up

$6,630,190

Up $133,924 (+2.1%) from 2015

Net Income

Down

-$761,223

Down $1,772,736 (-175%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2016

Assets$5,695,290
Liabilities$855,835
Net Assets$4,839,455
Open 2016 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2016

Revenue$5,868,967
Expenses$6,630,190
Net Income-$761,223
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
Nov 14, 2016
Return Version
2015v2.1
Gross Receipts
$11,443,342
Mission and Program Overview

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

Promote programs of research and education to discover treatments and a cure for pkd.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities-$2,938,227-
Savings and Temporary Cash Investments$4,925,411$1,888,329▼ $3,037,082
Pledges and Grants Receivable$638,208$375,424▼ $262,784
Land, Buildings, and Equipment, Net$140,529$190,886▲ $50,357
Cash and Non-Interest-Bearing Accounts$618,526$112,888▼ $505,638
Accounts Receivable$105,622$92,246▼ $13,376
Inventories for Sale or Use-$32,772-
Prepaid Expenses and Deferred Charges$20,512$21,327▲ $815
Total Assets$6,476,331$5,695,290▼ $781,041
Other Assets Total$27,523$43,191▲ $15,668
Liabilities
Accounts Payable and Accrued Expenses$357,575$480,346▲ $122,771
Grants Payable$500,000$333,333▼ $166,667
Other Liabilities$84,312$42,156▼ $42,156
Total Liabilities$941,887$855,835▼ $86,052
Net Assets / Fund Balance
Unrestricted Net Assets$4,147,878$3,672,367▼ $475,511
Permanently Rstr Net Assets$1,000,000$1,000,000→ $0
Temporarily Rstr Net Assets$386,566$167,088▼ $219,478
Total Net Assets Fund Balance$5,534,444$4,839,455▼ $694,989
Total Liabilities and Net Assets / Fund Balance$6,476,331$5,695,290▼ $781,041

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$190,886$207,314$398,200

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015-$2,700,000▲ $77,487-$2,773,007
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hancock Jackie JrCEOFT$198,455$46,640$245,095
Baron DavidChief Scientific OfficerFT$159,348$24,118$183,466
Smith RayChief Financial OfficerFT$146,417$31,546$177,963
Davis-wingate MichelleChief Development OfficerFT$128,080$34,710$162,790
Connelly AngelaChief Marketing OfficerFT$118,230$33,717$151,947

Board Members and Trustees

NameTitle
Cowley Jr Dr BenjaminChair
Condella Jr FrankVice Chair
Conway PaulDirector
Guay-woodfard Dr LisaDirector
Karl MicheleDirector
Kleber KleeDirector
Kringstein AndreaDirector
Nelson BrockDirector
Odland DwightDirector
Ramseyer CraigDirector
Roberts JuliaDirector
Rona JeffreyDirector
Watnick Dr TerryDirector
Waxman JerryDirector
Ryan AnneSecretary
Towey Jr FranTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,881,314
Program Service Revenue
$0
Investment Income
$24,748
Other Revenue
$-37,095
All Other Contributions
$5,568,621
Change in Net Assets
$-761,223

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded11$38,268Fair Value
Other Non Cash Contri Table64$27,620Fair Value
Cars and Other Vehicles1$200Fair Value
Total Noncash Contributions76$66,088-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,868,967
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$811,650
Total Revenue per Audited Statements
$6,680,617
Total Revenue per Form 990
$5,868,967
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,792,233
Other Expenses$1,988,701
Grants and Similar Amounts Paid$1,770,056
Total Fundraising Expense$641,711
Professional Fundraising Fees$79,200

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,180,485$265,980$207,283$1,653,748
Grants to Domestic Orgs$1,644,474--$1,644,474
Conferences and Meetings$734,478$22,423$63,356$820,257
Other Employee Benefits$290,618$99,668$38,849$429,135
Current Officers, Directors, Trustees, and Key Employees$124,899$222,545$62,450$409,894
Office Expenses$139,586$105,053$43,370$288,009
Occupancy$182,885$65,104$36,959$284,948
Payroll Taxes$115,589$41,147$23,359$180,095
Foreign Grants$125,582--$125,582
Pension Plan Contributions$79,978$560$38,823$119,361
Fees for Services Legal$7,427$90,174$3,101$100,702
Fees for Services Other$69,635$5,425$11,571$86,631
Fees for Services Professional Fundraising--$79,200$79,200
Fees for Services Lobbying$58,120--$58,120
Depreciation Depletion$51,717$932$3,113$55,762
Information Technology$28,140$9,576$12,989$50,705
Other Expenses$15,907$8,657$15,835$40,399
Fees for Services Accounting-$26,200-$26,200
Advertising$23,970--$23,970
Insurance$7,188$2,559$1,453$11,200
Fees for Service Investment Mgmnt Fees-$3,417-$3,417
Total Functional Expenses$44,175$0$64,837$109,012

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,375,606
Expenses per Audited Statements$6,630,190
Total Expenses per Form 990$6,630,190
Expenses Not Reported on Form 990$745,416
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Asn Foundation for Kidney ResearchWashington, DC501(c)(3)Research Fellowship$500,000
Mayo ClinicRochester, MN501(c)(3)RESEARCH ON ADPKD GENE MUTATION REGISTRY, DEVELOPMENT OF A COMPUTER AIDED DECISION SUPPORT SYSTEM FOR PKD, AND DEREGULATED CHOLANGIOCYTE AUTOPHAGY: A NEW TARGET FOR POLYCYSTIC LIVER DISEASE$180,000
University of Kansas Medical Center Research InstituteKansas City, KS501(c)(3)Research on Functional Roles of Dnmt1 in Autosomal Dominant Polycystic Kidney Disease and Polycystin-1 Mediated Cyst Regression$160,000
Yale UniversityNew Haven, CT501(c)(3)Research on Vascular Integrity in Zebrafish Pkd Models and Examining the Role of Xbp1 in the Pathogenesis of Protein Folding-associated Polycystic Kidney Disorders$158,263
University of Alabama at BirminghamBirmingham, AL501(c)(3)Research on Renal Vascular Function in Arpkd and Injury Response Mediated Pathogenesis in Ciliopathies$140,211
Case Western Reserve UniversityCleveland, OH501(c)(3)Magnetic Resonance Fingerprinting (mrf) to Assess Arpkd Kidney and Liver Disease Progression Research$80,000
Nyu Hospital CenterNew York, NY501(c)(3)Reseach on a Novel Screen to Identify Kinases That Are Activated in Pkd Kidneys$80,000
SEATTLE CHILDREN'S HOSPITAL FOUNDATIONSeattle, WA501(c)(3)Screening for Modifiers of Pkd Severity Using Enu Mutagenesis Research$80,000
University of Maryland School of MedicineBaltimore, MDGovRole of Fibrocystin/polyductin in Health and Arpkd Research$80,000
University of WashingtonSeattle, WA501(c)(3)Modeling Human Pkd Cytogenesis With Pluripotent Stem Cells Research$80,000
Kansas University Endowment AssociationKansas City, KS501(c)(3)Pkd Biomaterials & Cellular Models Core Research and Grantham Symposium Sponsorship$60,000
University of Maryland Faculty PhysiciansBaltimore, MD501(c)(3)Sac Chair Salary Support$30,000
Tennessee Physiological SocietyNashville, TN501(c)(3)Cvr-pkd Symposium Sponsorship$6,000

International Summary

Offices
0
Employees
0
Spending
$125,582

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients Located in the RegionN/a00$85,582
North America - Canada and Mexico, But But Not the United StatesGrants to Recipients Located in the RegionN/a00$40,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$79,200
Fundraising Direct Expenses$60,366
Fundraising Gross Income$30,300

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gratitude Benefit$342,993$30,300$17,435$12,865
Total Events$342,993$30,300$60,366$-30,066
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Software Contract$42,156
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“Annually, the chairman of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of each fiscal year, the executive committee evaluates the ceo against these goals and recommends to the board the ceo's compensation package for approval, based on this evaluation. Annually, the executive committee reviews a national salary survey conducted by an independent consultant. Upon that review, salaries are compared to the ranges recommended for each position. Foundation management then acts to ensure that salaries are within appropriate ranges.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”

FORM 990, PART VII, SECTION A, LINE 1:

“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”

Filing and Contact Details

Filer

Filer Name
Pkd Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101ST TER NO 220, KANSAS CITY, MO 64131

Signing Officer

Name
Ray Smith
Title
Chief Financial Officer
Phone
8169312600
Signed
2016-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jackie Hancock Jr
Formed
1982
Legal Domicile
Mo
Voting Board Members
15
Independent Board Members
15
Employees
50
Volunteers
2,400

Preparer

Firm
Cliftonlarsonallen Llp
Address
2301 VILLAGE DRIVE, ST JOSEPH, MO 64506
Preparer
Cristina Wiebelt-smith CPA
Phone
8162328441
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“No change from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2016 or 2015. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 18,456.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 18,456.”

Raw XML AppendixShowing 400 of 1,034 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCHSINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $42 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AS WELL AS FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING US THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THIS HAS LED TO NEW DISCOVERIES ABOUT PKD, INCLUDING IDENTIFYING THE GENES RESPONSIBLE FOR PKD, WHICH ENABLES RESEARCHERS TO INVESTIGATE POSSIBLE TREATMENTS. THE FOUNDATION HAS A COMPREHENSIVE, INTEGRATED RESEARCH AND DEVELOPMENT PROGRAM THAT REPRESENTS THE CORE OF OUR WORK, AIMED TO SPEED UP DEVELOPMENT OF TREATMENTS WHICH COULD SLOW OR STOP THE PROGRESSION OF PKD. THE FOUNDATION'S FISCAL YEAR INVESTMENT IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,160,000 ON GRANT FUNDING TO 15 PKD PROJECTS THAT FOCUS ON THE DEVELOPMENT OF A TREATMENT FOR PKD OR ON UNDERSTANDING THE WAY IN WHICH CYSTS DEVELOP OR ENLARGE IN PKD.FELLOWSHIPS: PROVIDED $500,000 IN SEED MONEY TO ESTABLISH THE JARED J. GRANTHAM RESEARCH FELLOWSHIP IN PERPETUITY. THIS INVESTMENT WAS MATCHED WITH $1.5 MILLION BY THE AMERICAN SOCIETY OF NEPHROLOGY.CORE GRANTS: INVESTED $70,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN THREE CORE LABS SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY.DRUG REPURPOSING: INVESTED $27,000 TO MAINTAIN PKD-SPECIFIC MOUSE COLONIES AND ENSURE AVAILABILITY FOR COMPOUND TESTING. INVESTED $30,000 TO FUND THE COST OF MEDICATIONS FOR A PKD CLINICAL TRIAL ON A REPURPOSED DRUG APPROVED BY THE FDA TO TREAT TYPE 2 DIABETES.SCIENTIFIC MEETINGS: INVESTED $83,122 TO FUND PKD-RELATED MEETINGS THAT BRING EXPERTS TOGETHER AND PROVIDE CONTINUING EDUCATION FOR HEALTH PROFESSIONALS.TISSUE DONATION PROGRAM: INVESTED $10,000 TO COORDINATE DONATIONS OF DISCARDED PKD KIDNEYS TO RESEARCH LABS, ALLOWING PATIENTS TO ACTIVELY PARTICIPATE AND SUPPORT DISCOVERY RESEARCH.CLINICAL TRIAL AWARENESS PROGRAM (CTAP): INVESTED $25,000 TO SUPPORT PARTICIPATION IN CLINICAL TRIALS BY RAISING AWARENESS THROUGH PKD FOUNDATION PATIENTS, FAMILIES AND HEALTH CARE PROFESSIONALS. SEVEN CLINICAL TRIAL ALERTS WERE SENT DURING THE FISCAL YEAR.
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IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt13TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt14VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF DEVELOPMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF MARKETING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20CHIEF SCIENTIFIC OFFICER
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IRS990/InformationTechnologyGrp/FundraisingAmt012989
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
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IRS990/OccupancyGrp/ManagementAndGeneralAmt065104
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IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0105053
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt099668
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0290618
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0429135
IRS990/OtherExpensesGrp/Desc0RESEARCH
IRS990/OtherExpensesGrp/Desc1DUES, FEES, MEMBERSHIPS
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08657
IRS990/OtherExpensesGrp/ProgramServicesAmt0138381
IRS990/OtherExpensesGrp/ProgramServicesAmt115907
IRS990/OtherExpensesGrp/TotalAmt0138381
IRS990/OtherExpensesGrp/TotalAmt140399
IRS990/OtherLiabilitiesGrp/BOYAmt084312
IRS990/OtherLiabilitiesGrp/EOYAmt042156
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IRS990/OtherRevenueMiscGrp/BusinessCd1900099
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IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0265980
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01180485
IRS990/OtherSalariesAndWagesGrp/TotalAmt01653748
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IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt041147
IRS990/PayrollTaxesGrp/ProgramServicesAmt0115589
IRS990/PayrollTaxesGrp/TotalAmt0180095
IRS990/PensionPlanContributionsGrp/FundraisingAmt038823
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0560
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt079978
IRS990/PensionPlanContributionsGrp/TotalAmt0119361
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01000000
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01000000
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IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0375424
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IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt020512
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IRS990/PrincipalOfficerNm0JACKIE HANCOCK JR
IRS990/ProfessionalFundraisingInd01
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORTTHE FOUNDATION PROVIDES LOCAL SERVICES THROUGH ITS MORE THAN 60 VOLUNTEER-RUN CHAPTERS ACROSS THE COUNTRY. THESE VOLUNTEERS BRING TO LIFE THE MISSION OF THE ORGANIZATION BY ENSURING THAT NO ONE FACES THIS DISEASE ALONE. EDUCATION MEETINGS PROVIDE VALUABLE INFORMATION FROM HEALTH CARE PROFESSIONALS, WHILE SUPPORT ACTIVITIES RANGE FROM LENDING A LISTENING EAR TO ORGANIZED GROUP OUTINGS. THIS YEAR ALONE, OUR CHAPTERS HELD 212 EDUCATION AND SUPPORT EVENTS.CHAPTERS RAISE FUNDS FOR THE FOUNDATION THROUGH EVENTS WHICH ALSO INCREASE AWARENESS OF PKD AND CONNECT LOCAL PATIENTS AND FAMILIES TO EACH OTHER. EIGHTY-NINE CHAPTER FUNDRAISING AND THIRD- PARTY EVENTS WERE HELD THIS YEAR THAT RAISED $387,000. CHAPTERS ALSO RAISE AWARENESS AND MONEY THROUGH THE WALK FOR PKD, THE FOUNDATION'S SIGNATURE FUNDRAISING AND PUBLIC AWARENESS EVENT. THE WALK TAKES PLACE IN MORE THAN 50 CITIES ACROSS THE NATION EACH YEAR AND HAS RAISED NEARLY $26 MILLION SINCE 2000.ON A NATIONAL LEVEL, THE FOUNDATION PROVIDES IN-DEPTH RESOURCES AND EDUCATION ABOUT LIVING WITH PKD TO EMPOWER PEOPLE TO MANAGE THEIR HEALTH. OFFERINGS INCLUDE WEBINARS, VIDEOS, A MULTI-FACETED WEBSITE (PKDCURE.ORG/LEARN), ONLINE COMMUNITIES AND PRINT MATERIALS. THE BIENNIAL PKD NATIONAL CONVENTION IS THE FOUNDATION'S LARGEST EDUCATION EVENT. THE 2016 CONVENTION WAS ATTENDED BY MORE THAN 400 PKD PATIENTS, FAMILIES, VOLUNTEERS AND RESEARCHERS TO SHARE THE LATEST IN PKD RESEARCH AND SCIENCE, TO LEARN TOGETHER AND TO CONNECT WITH OTHERS IN THE PKD COMMUNITY. THIS YEAR, CONVENTION ATTENDEES HAD THE OPPORTUNITY TO CHOOSE FROM 45 EDUCATION SESSIONS ON TOPICS INCLUDING DIET AND NUTRITION, PAIN AND PKD, POTENTIAL NEW THERAPIES, TRANSPLANTATION AND MORE. ADDITIONALLY, 13 WEBINARS WERE ATTENDED OR VIEWED BY MORE THAN 2,500 PEOPLE.THE PKD PATIENT HANDBOOK IS AVAILABLE FOR PEOPLE WITH ADPKD TO HELP THEM NAVIGATE THEIR DISEASE. IT WAS SENT TO 3,306 PEOPLE LAST YEAR.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01550409
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt09780
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS AND ADVOCACYTHE FOUNDATION RAISES AWARENESS THROUGH MARKETING AND PUBLIC RELATIONS SO PEOPLE KNOW WHAT PKD IS, ABOUT THE FOUNDATION AND HOW TO DONATE. MARKETING MATERIALS INCLUDE PKD PROGRESS MAGAZINE, PKDEWS MONTHLY EMAIL NEWSLETTER, SOCIAL MEDIA, DISCUSSION FORUMS, BLOGS AND PKDCURE.ORG. VOICES OF PKD (PKDCURE.ORG/VOICESOFPKD) FEATURES TESTIMONIALS AND STORIES ABOUT PEOPLE'S EXPERIENCES WITH THE DISEASE. THERE WAS A SIGNIFICANT INCREASE ON SOCIAL MEDIA, REACHING MORE THAN 33,000 FOLLOWERS. OUR WEBSITES RECEIVED 604,952 VISITS AND THE PKD CONNECTION BLOG RECEIVED 67,063 VISITS. DISCUSSION FORUMS RECEIVED 14,112 VISITS AND THREE ISSUES OF PKD PROGRESS WERE SENT TO MORE THAN 20,000 MEMBERS OF THE PKD COMMUNITY.THE FOUNDATION PLAYS A KEY ROLE IN LEGISLATIVE ADVOCACY TO SUPPORT PKD-RELATED INITIATIVES. THE PKD ADVOCACY ACTION CENTER (PKDCURE.ORG/ADVOCATE) THAT PROVIDES RESOURCES AND WAYS FOR PEOPLE TO ADVOCATE RECEIVED 6,307 VISITORS, AND 5,137 PEOPLE RECEIVE ADVOCACY ALERTS ABOUT LEGISLATIVE AND PUBLIC POLICY ISSUES IMPACTING PKD PATIENTS AND FAMILIES. THE FOUNDATION JOINS WITH OTHER KIDNEY DISEASE-RELATED ORGANIZATIONS IN EVENTS THAT ALLOW ADVOCATES TO MEET WITH MEMBERS OF CONGRESS TO RAISE AWARENESS OF PKD AND DISCUSS LEGISLATIVE PRIORITIES. PKD FOUNDATION STAFF MEMBERS AND PATIENTS ATTENDED THREE EVENTS IN WASHINGTON, D.C.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01055928
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,695,290
Liabilities
$855,835
Net assets
$4,839,455
Revenue
$5,868,967
Expenses
$6,630,190
Net income
-$761,223
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$1.85$8.75$6.76$8.17$1.41
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.4$1.35$10.0$13.0$7.73$5.22
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31