Civic Intelligence

Pkd Foundation

990 • Fiscal year 2017 • EIN 43-1266906

Jul 01, 2016 to Jun 30, 2017 • Filed on Dec 11, 2017

Organization ProfileWWW.PKDCURE.ORG

View Organization Page

1001 E 101st Ter No 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.10x

Higher debt load relative to assets than 41% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Liabilities / Revenue

34th percentile

0.09x

Higher debt load relative to revenue than 34% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Net Margin

23rd percentile

-5.7%

Higher net margin than 23% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2017

Asset Growth

10th percentile

-8.4%

Faster asset growth than 10% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Revenue Growth

31st percentile

-1.4%

Faster revenue growth than 31% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets41st percentile

Assets

Down

$5,218,772

Down $476,518 (-8.4%) from 2016

Net Assets

Down

$4,715,718

Down $123,737 (-2.6%) from 2016

Liabilities

Down

$503,054

Down $352,781 (-41%) from 2016

Revenue And Expenses
Liabilities / Revenue34th percentileNet Margin23rd percentile

Revenue

Down

$5,788,558

Down $80,409 (-1.4%) from 2016

Expenses

Down

$6,120,336

Down $509,854 (-7.7%) from 2016

Net Income

Up

-$331,778

Up $429,445 (+56%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth10th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2017

Assets$5,218,772
Liabilities$503,054
Net Assets$4,715,718
Open 2017 Filing

Operations Trend

Revenue Growth31st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2017

Revenue$5,788,558
Expenses$6,120,336
Net Income-$331,778
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Dec 11, 2017
Return Version
2016v3.0
Gross Receipts
$7,304,471
Mission and Program Overview

Mission

Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for polycystic kidney disease and improve the lives of all it affects.

Promote programs of research and education to discover treatments and a cure for pkd.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,938,227$3,316,937▲ $378,710
Savings and Temporary Cash Investments$1,888,329$1,303,737▼ $584,592
Pledges and Grants Receivable$375,424$177,030▼ $198,394
Land, Buildings, and Equipment, Net$190,886$136,924▼ $53,962
Cash and Non-Interest-Bearing Accounts$112,888$130,705▲ $17,817
Prepaid Expenses and Deferred Charges$21,327$51,837▲ $30,510
Accounts Receivable$92,246$51,290▼ $40,956
Inventories for Sale or Use$32,772$31,084▼ $1,688
Total Assets$5,695,290$5,218,772▼ $476,518
Other Assets Total$43,191$19,228▼ $23,963
Liabilities
Accounts Payable and Accrued Expenses$480,346$243,087▼ $237,259
Grants Payable$333,333$166,667▼ $166,666
Deferred Revenue-$93,300-
Other Liabilities$42,156--
Total Liabilities$855,835$503,054▼ $352,781
Net Assets / Fund Balance
Unrestricted Net Assets$3,672,367$3,553,782▼ $118,585
Permanently Rstr Net Assets$1,000,000$1,000,000→ $0
Temporarily Rstr Net Assets$167,088$161,936▼ $5,152
Total Net Assets Fund Balance$4,839,455$4,715,718▼ $123,737
Total Liabilities and Net Assets / Fund Balance$5,695,290$5,218,772▼ $476,518

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$136,924$289,837$426,761

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$2,773,007-▲ $310,566$108,000$2,960,433
2015-$2,700,000▲ $77,487-$2,773,007
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hancock Jr JackieCEO:LEFT OCT 16FT$196,004$89,190$285,194
Baron DavidChief Scientific OfficerFT$181,300$66,829$248,129
Smith RayCFO:LEFT JUL 17FT$139,838$45,864$185,702
Connelly AngelaCHIEF MARKETING OFFICER:LEFT DEC 16FT$108,705$68,120$176,825
Rose JameyDirector of ItFT$112,642$27,523$140,165
Betts AndrewCEOFT$40,333$4,272$44,605

Board Members and Trustees

NameTitle
Cowley Jr Dr BenjaminChair
Kleber KleeVice Chair
Benson Dr BeverlyDirector
Brazell BillDirector
Brown AshleyDirector
Guay-woodfard LisaDirector
Karl MicheleDirector
Kringstein AndreaDirector
Nelson BrockDirector
Odland DwightDirector
Ramseyer CraigDirector
Rona JeffreyDirector
Watnick Dr TerryDirector
Waxman JerryDirector
Ryan AnneSecretary
Towey Jr FranTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Gabriel GroupFundraising Consultant3190 RIDER TRL S, Earth City, MO 63045$139,046
Revenue and Support

Revenue Composition

Contributions and Grants
$5,709,118
Program Service Revenue
$0
Investment Income
$114,587
Other Revenue
$-35,147
All Other Contributions
$5,419,922
Change in Net Assets
$-331,778

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded14$166,249Fair Value
Other Non Cash Contri Table374$56,065Fair Value
Total Noncash Contributions388$222,314-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,773,418
Revenue Not Reported on Financial Statements
$15,140
Revenue Not Reported on Form 990
$651,189
Total Revenue per Audited Statements
$6,424,607
Total Revenue per Form 990
$5,788,558
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,720,408
Other Expenses$1,822,437
Grants and Similar Amounts Paid$1,531,349
Total Fundraising Expense$762,604
Professional Fundraising Fees$46,142

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,115,136$349,335$287,706$1,752,177
Grants to Domestic Orgs$1,298,194--$1,298,194
Conferences and Meetings$586,855$30,095$63,284$680,234
Current Officers, Directors, Trustees, and Key Employees$146,217$225,986$84,789$456,992
Occupancy$196,521$86,382$35,969$318,872
Other Employee Benefits$133,057$45,885$47,158$226,100
Fees for Services Other$128,984$16,982$76,677$222,643
Office Expenses$116,590$75,345$26,807$218,742
Payroll Taxes$102,915$45,692$30,066$178,673
Foreign Grants$120,000--$120,000
Grants to Domestic Individuals$113,155--$113,155
Pension Plan Contributions$69,302$17,926$19,238$106,466
Information Technology$57,026$24,165$14,657$95,848
Depreciation Depletion$75,414$12,037$7,388$94,839
Fees for Services Lobbying$50,000--$50,000
Fees for Services Professional Fundraising--$46,142$46,142
Fees for Services Accounting-$26,700-$26,700
Other Expenses$19,585$8,240$19,011$19,585
Fees for Service Investment Mgmnt Fees-$15,140-$15,140
Fees for Services Legal$8,147$2,532$1,662$12,341
Insurance$6,921$3,115$2,050$12,086
Advertising$11,315--$11,315
Total Functional Expenses$4,372,175$985,557$762,604$6,120,336

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,548,344
Total Expenses per Form 990$6,120,336
Expenses per Audited Statements$6,105,196
Expenses Not Reported on Form 990$443,148
Expenses Not Reported on Financial Statements$15,140
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo ClinicRochester, MN501(c)(3)RESEARCH ON ADPKD GENE MUTATION REGISTRY (40,000), PKD MUTATION GENETIC DATABASE SUPPORT (20,000), DEVELOPMENT OF A COMPUTER AIDED DECISION SUPPORT SYSTEM FOR PKD (80,000), AND DEREGULATED CHOLANGIOCYTE AUTOPHAGY: A NEW TARGET FOR POLYCYSTIC LIVER DISEASE (80,000)$220,000
Yale UniversityNew Haven, CT501(c)(3)Research on Examining the Role of Xbp1 in the Pathogenesis of Protein Folding-associated Polycystic Kidney Disorders (80,000), Vascular Integrity in Zebrafish Pkd Models (80,000) and Genetic Variants Predisposing to Intracranial Aneurysm Formation in Autosomal Dominant Polycystic Kidney Disease (50,000)$210,000
University of Kansas Medical Center Research InstituteFairway, KS501(c)(3)Research on Targeting the Lkb1-ampk Signaling Pathway in Polycystic Kidney Disease (50,000), Functional Roles of Dnmt1 in Autosomal Dominant Polycystic Kidney Disease (25,000), Polycystin-1 Mediated Cyst Regression (80,000), and the Roles of Histone/lysine Methyltransferase in Adpkd (50,000)$205,000
University of Alabama at BirminghamBirmingham, AL501(c)(3)Research on Injury Response Mediated Pathogenesis in Ciliopathies (80,000) and Renal Vascular Function in Arpkd (80,000)$160,000
Case Western Reserve UniversityCleveland, OH501(c)(3)Research on Magnetic Resonance Fingerprinting (mrf) to Assess Arpkd Kidney and Liver Disease Progression$80,000
New York UniversityNew York, NY501(c)(3)Research on a Novel Screen to Identify Kinases That Are Activated in Pkd Kidneys$80,000
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)Research on Screening for Modifiers of Pkd Severity Using Enu Mutagenesis$80,000
University of Maryland School of MedicineBaltimore, MDGovResearch on the Role of Fibrocystin/polyductin in Health and Arpkd (80,000)$80,000
University of WashingtonSeattle, WAGovResearch on Modeling Human Pkd Cystogenesis With Pluripotent Stem Cells$80,000
University of ColoradoDenver, COGovResearch on Pkd Gene Therapy Targeting the 4e-bp1 Pathway$50,000
FasebBethesda, MD501(c)(3)2017 Faseb Science Research Conference on Pkd (18,000) and Research on the Biology of Cilie and Flagella (15,000)$33,000
Ku Medical Center EndowmentKansas City, KS501(c)(3)Grantham Symposium Sponsorship$10,000
American PhysiologicalBethesda, MD501(c)(3)Research on Iups 2017 Symposium - the Physiology of Pkd$5,000
BRIGHAM & WOMEN'S HOSPITALBoston, MA501(c)(3)Support for 2017 Pkd Symposium$5,000

International Summary

Offices
0
Employees
0
Spending
$120,000

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrants to Recipients Located in the RegionN/a00$80,000
North America - Canada and Mexico, But But Not the United StatesGrants to Recipients Located in the RegionN/a00$40,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$74,212
Professional Fundraising Fees$46,142
Fundraising Gross Income$38,880

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gratitude Benefit$328,076$38,880$29,832$9,048
Total Events$328,076$38,880$74,212$-35,332
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“Annually, the chairman of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of each fiscal year, the executive committee evaluates the ceo against these goals and recommends to the board the ceo's compensation package for approval, based on this evaluation. Annually, the executive committee reviews a national salary survey conducted by an independent consultant. Upon that review, salaries are compared to the ranges recommended for each position. Foundation management then acts to ensure that salaries are within appropriate ranges.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”

FORM 990, PART VII, SECTION A, LINE 1:

“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”

Filing and Contact Details

Filer

Filer Name
Pkd Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101ST TER NO 220, KANSAS CITY, MO 64131

Signing Officer

Name
Andy Betts
Title
Chief Executive Officer
Phone
8169312600
Signed
2017-12-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andy Betts
Formed
1982
Legal Domicile
Mo
Voting Board Members
16
Independent Board Members
16
Employees
46
Volunteers
2,400

Preparer

Firm
Cliftonlarsonallen Llp
Address
2301 VILLAGE DRIVE, ST JOSEPH, MO 64506
Preparer
Connie M Lira
Phone
8162328441
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“No change from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2017 or 2016. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 8,330.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 8,330.”

Raw XML AppendixShowing 400 of 1,051 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1649565
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt174272
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1832842
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1948109
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2040125
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2127523
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IRS990/Form990PartVIISectionAGrp/PersonNm1NELSON BROCK
IRS990/Form990PartVIISectionAGrp/PersonNm2BENSON DR BEVERLY
IRS990/Form990PartVIISectionAGrp/PersonNm3BRAZELL BILL
IRS990/Form990PartVIISectionAGrp/PersonNm4GUAY-WOODFARD LISA
IRS990/Form990PartVIISectionAGrp/PersonNm5ODLAND DWIGHT
IRS990/Form990PartVIISectionAGrp/PersonNm6RONA JEFFREY
IRS990/Form990PartVIISectionAGrp/PersonNm7WAXMAN JERRY
IRS990/Form990PartVIISectionAGrp/PersonNm8RAMSEYER CRAIG
IRS990/Form990PartVIISectionAGrp/PersonNm9WATNICK DR TERRY
IRS990/Form990PartVIISectionAGrp/PersonNm10KARL MICHELE
IRS990/Form990PartVIISectionAGrp/PersonNm11KRINGSTEIN ANDREA
IRS990/Form990PartVIISectionAGrp/PersonNm12RYAN ANNE
IRS990/Form990PartVIISectionAGrp/PersonNm13TOWEY JR FRAN
IRS990/Form990PartVIISectionAGrp/PersonNm14KLEBER KLEE
IRS990/Form990PartVIISectionAGrp/PersonNm15COWLEY JR DR BENJAMIN
IRS990/Form990PartVIISectionAGrp/PersonNm16HANCOCK JR JACKIE
IRS990/Form990PartVIISectionAGrp/PersonNm17BETTS ANDREW
IRS990/Form990PartVIISectionAGrp/PersonNm18SMITH RAY
IRS990/Form990PartVIISectionAGrp/PersonNm19BARON DAVID
IRS990/Form990PartVIISectionAGrp/PersonNm20CONNELLY ANGELA
IRS990/Form990PartVIISectionAGrp/PersonNm21ROSE JAMEY
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19200020
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt13TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt14VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CEO:LEFT OCT 16
IRS990/Form990PartVIISectionAGrp/TitleTxt17CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt18CFO:LEFT JUL 17
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20CHIEF MARKETING OFFICER:LEFT DEC 16
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR OF IT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01982
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0289196
IRS990/FundraisingDirectExpensesAmt074212
IRS990/FundraisingGrossIncomeAmt038880
IRS990/GainOrLossGrp/SecuritiesAmt041143
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantAmt01531349
IRS990/GrantsPayableGrp/BOYAmt0333333
IRS990/GrantsPayableGrp/EOYAmt0166667
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0113155
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0113155
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01298194
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01298194
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01474514
IRS990/GrossReceiptsAmt07304471
IRS990/GrossSalesOfInventoryAmt06293
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt014657
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt024165
IRS990/InformationTechnologyGrp/ProgramServicesAmt057026
IRS990/InformationTechnologyGrp/TotalAmt095848
IRS990/InsuranceGrp/FundraisingAmt02050
IRS990/InsuranceGrp/ManagementAndGeneralAmt03115
IRS990/InsuranceGrp/ProgramServicesAmt06921
IRS990/InsuranceGrp/TotalAmt012086
IRS990/InventoriesForSaleOrUseGrp/BOYAmt032772
IRS990/InventoriesForSaleOrUseGrp/EOYAmt031084
IRS990/InvestmentIncomeGrp/ExclusionAmt073444
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt073444
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02938227
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03316937
IRS990/IRPDocumentCnt018
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
IRS990/LandBldgEquipAccumDeprecAmt0289837
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0190886
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0136924
IRS990/LandBldgEquipCostOrOtherBssAmt0426761
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01433371
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04839455
IRS990/NetAssetsOrFundBalancesEOYAmt04715718
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt041143
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt041143
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-35332
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-35332
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0-2037
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0-2037
IRS990/NetUnrelatedBusTxblIncmAmt0-249
IRS990/NetUnrlzdGainsLossesInvstAmt0208041
IRS990/NoncashContributionsAmt0222314
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt035969
IRS990/OccupancyGrp/ManagementAndGeneralAmt086382
IRS990/OccupancyGrp/ProgramServicesAmt0196521
IRS990/OccupancyGrp/TotalAmt0318872
IRS990/OfficeExpensesGrp/FundraisingAmt026807
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt075345
IRS990/OfficeExpensesGrp/ProgramServicesAmt0116590
IRS990/OfficeExpensesGrp/TotalAmt0218742
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt019228
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt047158
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt045885
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0133057
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0226100
IRS990/OtherExpensesGrp/Desc0DUES, FEES, MEMBERSHIPS
IRS990/OtherExpensesGrp/Desc1RESEARCH
IRS990/OtherExpensesGrp/FundraisingAmt019011
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08240
IRS990/OtherExpensesGrp/ProgramServicesAmt016841
IRS990/OtherExpensesGrp/ProgramServicesAmt119585
IRS990/OtherExpensesGrp/TotalAmt044092
IRS990/OtherExpensesGrp/TotalAmt119585
IRS990/OtherLiabilitiesGrp/BOYAmt042156
IRS990/OtherRevenueMiscGrp/BusinessCd0511120
IRS990/OtherRevenueMiscGrp/BusinessCd1900099
IRS990/OtherRevenueMiscGrp/Desc0ADVERTISING
IRS990/OtherRevenueMiscGrp/Desc1MISCELLANEOUS INCOME
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IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01485
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt1737
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt01485
IRS990/OtherRevenueTotalAmt02222
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0287706
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0349335
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01115136
IRS990/OtherSalariesAndWagesGrp/TotalAmt01752177
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt030066
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt045692
IRS990/PayrollTaxesGrp/ProgramServicesAmt0102915
IRS990/PayrollTaxesGrp/TotalAmt0178673
IRS990/PensionPlanContributionsGrp/FundraisingAmt019238
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt017926
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt069302
IRS990/PensionPlanContributionsGrp/TotalAmt0106466

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,218,772
Liabilities
$503,054
Net assets
$4,715,718
Revenue
$5,788,558
Expenses
$6,120,336
Net income
-$331,778
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$1.85$8.75$6.76$8.17$1.41
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.4$1.35$10.0$13.0$7.73$5.22
2017Detailed filing. Detailed filing data is available for this year.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31