Civic Intelligence

Pkd Foundation

990 • Fiscal year 2019 • EIN 43-1266906

Jul 01, 2018 to Jun 30, 2019 • Filed on Jan 28, 2021

Organization ProfileWWW.PKDCURE.ORG

View Organization Page

1001 E 101st Ter No 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

47th percentile

0.17x

Higher debt load relative to assets than 47% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

55th percentile

0.27x

Higher debt load relative to revenue than 55% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

10th percentile

-21%

Higher net margin than 10% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

75th percentile

$279,302

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 4.1% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

11th percentile

-6.9%

Faster asset growth than 11% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

5th percentile

-48%

Faster revenue growth than 5% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets47th percentile

Assets

Down

$10,606,466

Down $791,688 (-6.9%) from 2018

Net Assets

Down

$8,754,056

Down $1,289,622 (-13%) from 2018

Liabilities

Up

$1,852,410

Up $497,934 (+37%) from 2018

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin10th percentile

Revenue

Down

$6,759,603

Down $6,191,242 (-48%) from 2018

Expenses

Up

$8,169,957

Up $438,744 (+5.7%) from 2018

Net Income

Down

-$1,410,354

Down $6,629,986 (-127%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2019

Assets$10,606,466
Liabilities$1,852,410
Net Assets$8,754,056
Open 2019 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2019

Revenue$6,759,603
Expenses$8,169,957
Net Income-$1,410,354
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
Jan 28, 2021
Return Version
2018v3.2
Gross Receipts
$8,160,246
Mission and Program Overview

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,925,474$5,024,730▲ $1,099,256
Pledges and Grants Receivable$3,772,108$2,888,585▼ $883,523
Savings and Temporary Cash Investments$3,156,801$1,336,795▼ $1,820,006
Land, Buildings, and Equipment, Net$278,353$740,117▲ $461,764
Cash and Non-Interest-Bearing Accounts$228,084$560,278▲ $332,194
Accounts Receivable$12,287$26,148▲ $13,861
Prepaid Expenses and Deferred Charges$8,089$12,805▲ $4,716
Total Assets$11,398,154$10,606,466▼ $791,688
Other Assets Total$16,958$17,008▲ $50
Liabilities
Deferred Revenue$600,000$1,000,000▲ $400,000
Accounts Payable and Accrued Expenses$754,476$852,410▲ $97,934
Total Liabilities$1,354,476$1,852,410▲ $497,934
Net Assets / Fund Balance
Unrestricted Net Assets$3,917,718$4,517,567▲ $599,849
Temporarily Rstr Net Assets$5,125,960$3,236,489▼ $1,889,471
Permanently Rstr Net Assets$1,000,000$1,000,000→ $0
Total Net Assets Fund Balance$10,043,678$8,754,056▼ $1,289,622
Total Liabilities and Net Assets / Fund Balance$11,398,154$10,606,466▼ $791,688

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$671,541$244,681$916,222
Leasehold Improvements$68,576$780$69,356

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$4,079,744$409,814▲ $276,814$148,064$4,597,077
2017$2,960,433$1,021,831▲ $222,220$108,000$4,079,744
2016$2,773,007-▲ $310,566$108,000$2,960,433
2015-$2,700,000▲ $77,487-$2,773,007
Compensation and Service Providers
Top Officer Pay75th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Andy BettsPresident & CEOFT$201,793$77,509$279,302
David BaronChief Scientific OfficerFT$187,450$54,321$241,771
Kenneth MclaughlinCOO - Left December 2018FT$90,917$84,338$175,255
Alexis DennyDirector of Govt AffairsFT$106,873$28,601$135,474
Susan DeremerDirector of Leadership GiftsFT$113,440$13,171$126,611
Robin Strachan - Left July 2019Planned Giving DirectorFT$103,943$9,801$113,744

Board Members and Trustees

NameTitle
Klee KleberChair
Beverly BensonVice-chair
Andrea KringsteinDirector
Ashley BrownDirector
Bill BrazellDirector
Craig RamseyerDirector
Dwight OdlandDirector
Fran ToweyDirector
Georgina HabermanDirector
Jerry WaxmanDirector
Katherine DellDirector
Michal MrugDirector
Michele KarlDirector
Rob RothDirector
Terry WatnickDirector
Paula HutchinsonSecretary
Brock NelsonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Newport OneFundraising Service21 RAILROAD AVE, Duxbury, MA 02332, Uk$145,288
Iqvia Technology ServicesPatient Registry And Consulting Fees-$103,500
Revenue and Support

Revenue Composition

Contributions and Grants
$6,507,595
Program Service Revenue
$0
Investment Income
$217,531
Other Revenue
$34,477
All Other Contributions
$6,507,595
Change in Net Assets
$-1,410,354

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table274$191,238Fair Market Value (FMV)
Securities Publicly Traded7$37,744Fair Value
Cars and Other Vehicles28$12,614Fair Value
Total Noncash Contributions309$241,596-

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,738,373
Revenue Not Reported on Financial Statements
$21,230
Revenue Not Reported on Form 990
$492,742
Total Revenue per Audited Statements
$7,231,115
Total Revenue per Form 990
$6,759,603
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,127,659
Grants and Similar Amounts Paid$2,960,317
Other Expenses$1,944,168
Total Fundraising Expense$932,904
Professional Fundraising Fees$137,813

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,620,317--$2,620,317
Other Salaries and Wages$1,204,733$582,968$332,908$2,120,609
Fees for Services Other$609,081$51,189$27,349$687,619
Other Employee Benefits$191,854$91,147$55,030$338,031
Current Officers, Directors, Trustees, and Key Employees$167,640$30,481$106,679$304,800
Office Expenses$189,190$35,645$27,602$252,437
Conferences and Meetings$171,617$997$77,007$249,621
Foreign Grants$240,000--$240,000
Occupancy$127,526$40,500$30,203$198,229
Payroll Taxes$110,870$50,182$34,770$195,822
Pension Plan Contributions$95,712$46,725$25,960$168,397
Depreciation Depletion$81,519$37,980$26,827$146,326
Fees for Services Professional Fundraising--$137,813$137,813
Grants to Domestic Individuals$100,000--$100,000
Fees for Services Legal$69,534$5,125$16,537$91,196
Fees for Services Lobbying$58,899--$58,899
Information Technology$30,517$8,449$15,284$54,250
Other Expenses$16,743$24,152$8,755$49,650
Travel$40,010--$40,010
Fees for Services Accounting$25,962$1,914$6,174$34,050
Advertising$33,108--$33,108
Insurance$17,866$5,671$4,006$27,543
Fees for Service Investment Mgmnt Fees-$21,230-$21,230
Total Functional Expenses$81,098$0$119,973$201,071

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$8,520,737
Total Expenses per Form 990$8,169,957
Expenses per Audited Statements$8,148,727
Expenses Not Reported on Form 990$372,010
Expenses Not Reported on Financial Statements$21,230
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
BRIGHAM AND WOMEN'S HOSPITALBoston, MA501(c)(3)Elucidating the Cystogenic Proteome in Polycystic Kidney Disease$80,000
Cleveland Clinic FoundationCleveland, OH501(c)(3)Regulation of Ciliary G-protein Signaling by Polycystin-1$80,000
Johns Hopkins UniversityBaltimore, MD501(c)(3)Small Molecule Correctors Reduce Cyst Growth in Adpkd$80,000
Mayo ClinicMinneapolis, MN501(c)(3)The Roles of Dna Methylation in Autosomal Dominant Polycystic Kidney Disease$80,000
Medical University of South CarolinaCharleston, SCGovEffects of Dietary Salt Restriction on Cystogenesis in Arpkd$80,000
Northwestern University - Asrsp Cash ManagementEvanston, IL501(c)(3)The Molecular and Mechanistic Impacts of Finger 1 Variants on Pkd2 Ion Channel Function in the Primary Cilia.$80,000
President and Fellows of Harvard CollegeBoston, MA501(c)(3)TAKING PKD OUT OF THE KIDNEY: DISSECTION OF POLYCYSTIN SIGNALING IN A NOVEL CELL-BASED SYSTEM$80,000
Regents of University of ColoradoDenver, CO501(c)(3)UNDERSTANDING THE ROLE OF CD8+ T-CELLS IN HALTING RENAL CYSTOGENESIS$80,000
Regents of the University of CaliforniaLos Angeles, CA501(c)(3)Understanding How the Ciliary Transition Zone Controls Polycystin-2 Localization to Cilia$80,000
ST JOHN'S UNIVERSITYQueens, NY501(c)(3)The Role of Polycystin-1 in the Polycystin-1/polycystin-2 Ion Channel Complex$80,000
THE CHILDREN'S MERCY HOSPITALKansas City, MO501(c)(3)Molecular Characterization of Cyst Formation in a Porcine Model of Early Adpkd$80,000
Univ of Ks Medical Center Research Institute IncKansas City, KS501(c)(3)Mechanism of Polycystin-1-regulated G Protein Signaling and Its Role in the Pathogenesis and Treatment of Pkd$80,000
University of Alabama at BirminghamBirmingham, AL501(c)(3)Kidney Specific Drug Delivery Using Nanoparticles in Pkd1 Mice$80,000
University of Kansas Medical SchoolKansas City, MO501(c)(3)Pre-clinical Evaluation of Caspase 1 as a Therapeutic Target in Adpkd.$80,000
University of MarylandBaltimore, MD501(c)(3)POLYCYSTIN-1 CLEAVAGE PRODUCT P100: DISTINCTIVE TOPOLOGY, SPECIFIC PROPERTIES, AND POLYCYSTIN-2-ASSOCIATED CHANNEL ACTIVITY$80,000
University of Maryland BaltimoreBaltimore, MDGovDisruption of the Apical Junctional Complex in Cystogenesis and Adpkd$80,000
University of Maryland School of MedicineBaltimore, MD501(c)(3)Bac Transgenesis to Model an Aneurysm-associated Human Mutation in Mice$80,000
Yale UniversityNew Haven, CT501(c)(3)Genetic Approach to Define Mediators of Polycystin-1 Function in Polycystic Kidney Disease$80,000
Yale UniversityGlastonbury, CT501(c)(3)Controlling the Viability of Pkd Mutant Cells Via Inactivation of Xbp1 as a Novel Strategy to Treat Adpkd$80,000
Yale UniversityNew Haven, CT501(c)(3)Role of Interstitial Cells in Renal Cystogenesis$80,000
Mayo ClinicMinneapolis, MN501(c)(3)Restoring Ciliary Level of Functional Polycystins as a Novel Therapeutic Approach for Adpkd Treatment$60,000
University of MarylandBaltimore, MD501(c)(3)RELIEVING THE STRESS OF PKD: A NEW ROLE OF PKHD1 IN DETOXIFICATION MEDIATED VIA DIFFERENTIAL CLEAVAGE OF THE INTRACELLULAR DOMAIN$60,000
University of Texas Southwestern Medical CenterIrving, TX501(c)(3)Investigating the M6a Rna Methylation Pathway as a Therapeutic Option for Adpkd Treatment$60,000
Ut Southwestern Medical CenterDallas, TX501(c)(3)Role of Tulp3-mediated Ciliary Protein Trafficking in Kidney Cystogenesis$60,000
Yale UniversityNew Haven, CT501(c)(3)TARGETING THE CELL CYCLE AS A POTENTIAL TREATMENT FOR ADPKD: THE ROLE OF CYCLIN-DEPENDENT KINASE 1$60,000
Kumc Kidney InstituteFairway, KS501(c)(3)Targeting the Lkb1-ampk Signaling Pathway in Polycystic Kidney Disease$50,000
University of ColoradoDenver, CO501(c)(3)Pkd Gene Therapy Targeting the 4e-bp1 Pathway$50,000
Yale UniversityNew Haven, CT501(c)(3)Genetic Variants Predisposing to Intracranial Aneurysm Formation in Adpkd$50,000
Mayo ClinicMinneapolis, MN501(c)(3)Adpkd Mutation Database$40,000

International Summary

Offices
0
Employees
0
Spending
$200,000

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
East Asia & the PacificGrants to Recipients Located in the RegionN/a00$120,000
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrants to Recipients Located in the RegionN/a00$80,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$137,813
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“Annually, the chairman of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of each fiscal year, the executive committee evaluates the ceo against these goals and recommends to the board the ceo's compensation package for approval, based on this evaluation. The ceo's compensation was last reviewed in 2018.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”

FORM 990, PART VII, SECTION A, LINE 1:

“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”

Filing and Contact Details

Filer

Filer Name
Pkd Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101ST TER NO 220, KANSAS CITY, MO 64131

Signing Officer

Name
Andy Betts
Title
Chief Executive Officer
Phone
8169312600
Signed
2021-01-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andy Betts
Formed
1982
Legal Domicile
Mo
Voting Board Members
17
Independent Board Members
17
Employees
45
Volunteers
3,593

Preparer

Firm
Cliftonlarsonallen Llp
Address
801 FELIX STREET, ST JOSEPH, MO 64501
Preparer
Harold Ray
Phone
8162328441
Supplemental Narrative

Additional Explanations

Part I, Section B

“The form is amended to show the dollar amounts of joint costs on part ix, line 26, which were previously omitted.”

FORM 990, PART XII, LINE 2C:

“No change from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2019 or 2018. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 226.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 226.”

Raw XML AppendixShowing 400 of 1,162 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCH:SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $50 MILLION IN MORE THAN 1,300 RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, FELLOWSHIPS AND SCIENTIFIC MEETINGS. THE FOUNDATION'S FINANCIAL COMMITMENT OVER THE YEARS HAS SEEN RESULTS ON A LOCAL AND EVEN GLOBAL LEVEL, INCLUDING INITIATING FUNDING FOR YOUNG INVESTIGATORS FROM AROUND THE WORLD; SUPPORTING INNOVATIVE RESEARCH IDEAS; AND PROVIDING BRIDGE FUNDING TO RESEARCHERS WORLD-WIDE TO APPLY FOR LARGER NATIONAL INSTITUTES OF HEALTH (NIH) GRANTS. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,800,000 ON GRANT FUNDING TO 23 PKD PROJECTS THAT FOCUS ON RISK FACTORS FOR PKD MANIFESTATIONS, BETTER UNDERSTANDING OF CELLULAR MECHANISMS THAT ACCELERATE PROGRESSION AND IDENTIFYING TARGETS FOR PKD. THE FOUNDATION ALSO COMMITTED TO FUNDING ONE JUNIOR INVESTIGATOR WITH A THREE-YEAR COMMITMENT THROUGH THE YOUNG INVESTIGATOR AWARD.FELLOWSHIPS: PROVIDED $450,000 IN FELLOWSHIP FUNDING TO 5 SUPPORT TRAINEES IN OBTAINING RESEARCH EXPERIENCE AS THEY INITIATE CAREERS IN PKD.CORE GRANTS: INVESTED $40,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN A PROMINENT GENETIC LAB SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY. ADPKD REGISTRY: LED THE DEVELOPMENT AND IMPLEMENTATION OF THE NATION'S FIRST ADPKD PATIENT REGISTRY TO COLLECT VALUABLE DATA ABOUT THE PKD EXPERIENCE DIRECTLY FROM PATIENTS AND SUPPORT THE RECRUITMENT OF PARTICIPANTS FOR CLINICAL STUDIES.
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IRS990/Form990PartVIISectionAGrp/PersonNm5ASHLEY BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm6KATHERINE DELL
IRS990/Form990PartVIISectionAGrp/PersonNm7GEORGINA HABERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm8MICHELE KARL
IRS990/Form990PartVIISectionAGrp/PersonNm9ANDREA KRINGSTEIN
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IRS990/Form990PartVIISectionAGrp/PersonNm21SUSAN DEREMER
IRS990/Form990PartVIISectionAGrp/PersonNm22ROBIN STRACHAN - LEFT JULY 2019
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IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19COO - LEFT DECEMBER 2018
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF GOVT AFFAIRS
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR OF LEADERSHIP GIFTS
IRS990/Form990PartVIISectionAGrp/TitleTxt22PLANNED GIVING DIRECTOR
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IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$10,606,466
Liabilities
$1,852,410
Net assets
$8,754,056
Revenue
$6,759,603
Expenses
$8,169,957
Net income
-$1,410,354
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019Detailed filing. Detailed filing data is available for this year.$10.6$1.85$8.75$6.76$8.17$1.41
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.4$1.35$10.0$13.0$7.73$5.22
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31