Civic Intelligence

Pkd Foundation

990 • Fiscal year 2018 • EIN 43-1266906

Jul 01, 2017 to Jun 30, 2018 • Filed on Apr 08, 2019

Organization ProfileWWW.PKDCURE.ORG

View Organization Page

1001 E 101st Ter No 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.12x

Higher debt load relative to assets than 39% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Liabilities / Revenue

30th percentile

0.10x

Higher debt load relative to revenue than 30% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Net Margin

88th percentile

40%

Higher net margin than 88% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Top Officer Pay

70th percentile

$245,364

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 1.9% of source-year revenue.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Asset Growth

97th percentile

118%

Faster asset growth than 97% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Revenue Growth

95th percentile

124%

Faster revenue growth than 95% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$11,398,154

Up $6,179,382 (+118%) from 2017

Net Assets

Up

$10,043,678

Up $5,327,960 (+113%) from 2017

Liabilities

Up

$1,354,476

Up $851,422 (+169%) from 2017

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin88th percentile

Revenue

Up

$12,950,845

Up $7,162,287 (+124%) from 2017

Expenses

Up

$7,731,213

Up $1,610,877 (+26%) from 2017

Net Income

Up

$5,219,632

Up $5,551,410 (+1673%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth97th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2018

Assets$11,398,154
Liabilities$1,354,476
Net Assets$10,043,678
Open 2018 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2018

Revenue$12,950,845
Expenses$7,731,213
Net Income$5,219,632
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Apr 8, 2019
Return Version
2017v2.3
Gross Receipts
$15,112,193
Mission and Program Overview

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

Promote programs of research and education to discover treatments and a cure for pkd.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,316,937$3,925,474▲ $608,537
Pledges and Grants Receivable$177,030$3,772,108▲ $3,595,078
Savings and Temporary Cash Investments$1,303,737$3,156,801▲ $1,853,064
Land, Buildings, and Equipment, Net$136,924$278,353▲ $141,429
Cash and Non-Interest-Bearing Accounts$130,705$228,084▲ $97,379
Inventories for Sale or Use$31,084$0▼ $31,084
Accounts Receivable$51,290$12,287▼ $39,003
Prepaid Expenses and Deferred Charges$51,837$8,089▼ $43,748
Total Assets$5,218,772$11,398,154▲ $6,179,382
Other Assets Total$19,228$16,958▼ $2,270
Liabilities
Accounts Payable and Accrued Expenses$243,087$754,476▲ $511,389
Deferred Revenue$93,300$600,000▲ $506,700
Grants Payable$166,667$0▼ $166,667
Total Liabilities$503,054$1,354,476▲ $851,422
Net Assets / Fund Balance
Temporarily Rstr Net Assets$161,936$5,125,960▲ $4,964,024
Unrestricted Net Assets$3,553,782$3,917,718▲ $363,936
Permanently Rstr Net Assets$1,000,000$1,000,000→ $0
Total Net Assets Fund Balance$4,715,718$10,043,678▲ $5,327,960
Total Liabilities and Net Assets / Fund Balance$5,218,772$11,398,154▲ $6,179,382

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$278,353$304,473$582,826

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$2,960,433$1,021,831▲ $222,220$108,000$4,079,744
2016$2,773,007-▲ $310,566$108,000$2,960,433
2015-$2,700,000▲ $77,487-$2,773,007
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Baron DavidChief Scientific OfficerFT$187,200$58,164$245,364
Betts AndrewCEOFT$220,000$21,597$241,597
Kenneth MclaughlinChief Operating OfficerFT$119,583$17,000$136,583
Smith RayCFO:LEFT JUL 17FT$31,483$2,016$33,499

Board Members and Trustees

NameTitle
Kleber KleeChair
Cowley Jr Dr BenjaminVice Chair
Bissler JohnDirector
Brazell BillDirector
Brown AshleyDirector
Hurchinson PaulaDirector
Karl MicheleDirector
Kringstein AndreaDirector
Mrug MichalDirector
Odland DwightDirector
Ramseyer CraigDirector
Rona JeffreyDirector
Ryan AnneDirector
Towey Jr FranDirector
Watnick Dr TerryDirector
Waxman JerryDirector
Benson Dr BeverlySecretary
Nelson BrockTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$12,652,147
Program Service Revenue
$0
Investment Income
$170,904
Other Revenue
$127,794
All Other Contributions
$12,652,147
Change in Net Assets
$5,219,632

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded17$1,142,528Fair Value
Other Non Cash Contri Table220$144,313Fair Value
Total Noncash Contributions237$1,286,841-

Audited Revenue Reconciliation

Revenue per Audited Statements
$12,934,104
Revenue Not Reported on Financial Statements
$16,741
Revenue Not Reported on Form 990
$524,347
Total Revenue per Audited Statements
$13,458,451
Total Revenue per Form 990
$12,950,845
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,134,496
Other Expenses$2,948,197
Grants and Similar Amounts Paid$1,412,624
Total Fundraising Expense$1,310,343
Professional Fundraising Fees$235,896

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,221,722$545,344$411,694$2,178,760
Grants to Domestic Orgs$1,292,624--$1,292,624
Fees for Services Other$965,644$37,546$49,865$1,053,055
Conferences and Meetings$518,059$31,785$218,899$768,743
Other Employee Benefits$181,782$76,303$66,733$324,818
Office Expenses$230,373$30,782$29,776$290,931
Current Officers, Directors, Trustees, and Key Employees$156,249$28,409$99,432$284,090
Fees for Services Professional Fundraising--$235,896$235,896
Payroll Taxes$113,437$47,290$42,012$202,739
Occupancy$105,029$43,816$40,520$189,365
Advertising$186,389--$186,389
Pension Plan Contributions$80,635$33,792$29,662$144,089
Foreign Grants$120,000--$120,000
Information Technology$55,989$17,603$25,846$99,438
Fees for Services Legal$61,133$19,081$17,647$97,861
Depreciation Depletion$49,393$20,606$19,065$89,064
Fees for Services Lobbying$60,000--$60,000
Other Expenses$25,578$14,332$14,202$54,112
Fees for Services Accounting$14,974$6,248$5,778$27,000
Fees for Service Investment Mgmnt Fees-$16,741-$16,741
Insurance$8,596$3,586$3,316$15,498
Total Functional Expenses$5,447,606$973,264$1,310,343$7,731,213

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$8,130,491
Total Expenses per Form 990$7,731,213
Expenses per Audited Statements$7,714,472
Expenses Not Reported on Form 990$416,019
Expenses Not Reported on Financial Statements$16,741
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cleveland Clinic FoundationCleveland, OH501(c)(3)Regulation of Ciliary G-protein Signaling by Polycystin-1$80,000
Mayo ClinicMinneapolis, MN501(c)(3)The Roles of Dna Methylation in Autosomal Dominant Polycystic Kidney Disease$80,000
Medical University of South CarolinaCharleston, SCGovEffects of Dietary Salt Restriction on Cystogenesis in Arpkd$80,000
Northwestern University-asrsp Cash ManagementEvanston, IL501(c)(3)The Molecular and Mechanistic Impacts of Finger 1 Variants on Pkd2 Ion Channel Function in the Primary Cilia.$80,000
President and Fellows of Harvard CollegeBoston, MA501(c)(3)TAKING PKD OUT OF THE KIDNEY: DISSECTION OF POLYCYSTIN SIGNALING IN A NOVEL CELL-BASED SYSTEM$80,000
Regents of the University of CaliforniaLos Angeles, CA501(c)(3)Understanding How the Ciliary Transition Zone Controls Polycystin-2 Localization to Cilia$80,000
ST JOHN'S UNIVERSITYQueens, NY501(c)(3)The Role of Polycystin-1 in the Polycystin-1/polycystin-2 Ion Channel Complex$80,000
THE CHILDREN'S MERCY HOSPITALKansas City, MO501(c)(3)Molecular Characterization of Cyst Formation in a Porcine Model of Early Adpkd$80,000
University of ColoradoDenver, CO501(c)(3)UNDERSTANDING THE ROLE OF CD8+ T-CELLS IN HALTING RENAL CYSTOGENESIS$80,000
University of Kansas Medical Center Research InstituteKansas City, KS501(c)(3)Mechanism of Polycystin-1-regulated G Protein Signaling and Its Role in the Pathogenesis and Treatment of Pkd$80,000
University of Maryland BaltimoreBaltimore, MDGovDisruption of the Apical Junctional Complex in Cystogenesis and Adpkd$80,000
Yale UniversityNew Haven, CT501(c)(3)Genetic Approach to Define Mediators of Polycystin-1 Function in Polycystic Kidney Disease$80,000
Yale UniversityNew Haven, CT501(c)(3)Role of Interstitial Cells in Renal Cystogenesis$80,000
Mayo ClinicMinneapolis, MN501(c)(3)Restoring Ciliary Level of Functional Polycystins as a Novel Therapeutic Approach for Adpkd Treatment$60,000
Yale UniversityNew Haven, CT501(c)(3)TARGETING THE CELL CYCLE AS A POTENTIAL TREATMENT FOR ADPKD: THE ROLE OF CYCLIN-DEPENDENT KINASE 1$60,000
University of IowaiupuiIndianapolis, INGovPioglitazone Study$52,624
Mayo ClinicMinneapolis, MN501(c)(3)RESOURCING PKD IMAGING BIOMARKERS PILOT: AUTOMATED TKV$40,000
Mayo ClinicMinneapolis, MN501(c)(3)Adpkd Mutation Database$40,000

International Summary

Offices
0
Employees
0
Spending
$160,000

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrants to Recipients Located in the RegionN/a00$80,000
East Asia & the PacificGrants to Recipients Located in the RegionN/a00$80,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$235,896
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“Annually, the chairman of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of each fiscal year, the executive committee evaluates the ceo against these goals and recommends to the board the ceo's compensation package for approval, based on this evaluation. Annually, the executive committee reviews a national salary survey conducted by an independent consultant. Upon that review, salaries are compared to the ranges recommended for each position. Foundation management then acts to ensure that salaries are within appropriate ranges.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”

FORM 990, PART VII, SECTION A, LINE 1:

“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”

Filing and Contact Details

Filer

Filer Name
Pkd Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101ST TER NO 220, KANSAS CITY, MO 64131

Signing Officer

Name
Andy Betts
Title
Chief Executive Officer
Phone
8169312600
Signed
2019-04-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andy Betts
Formed
1982
Legal Domicile
Mo
Voting Board Members
18
Independent Board Members
18
Employees
48
Volunteers
2,530

Preparer

Firm
Cliftonlarsonallen Llp
Address
801 FELIX STREET, ST JOSEPH, MO 64501
Preparer
Harold Ray CPA
Phone
8162328441
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Professional fees: program service expenses 965,644. Management and general expenses 37,546. Fundraising expenses 49,865. Total expenses 1,053,055.”

FORM 990, PART XI, LINE 9:

“Return of prior year grant 33,863.”

FORM 990, PART XII, LINE 2C:

“No change from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2018 or 2017. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 6,633. Return of prior year grant 24,588.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold for merchandise sales 6,633. Return of prior year grant -9,275.”

Raw XML AppendixShowing 400 of 1,020 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCH:SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $44 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AS WELL AS FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING US THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THIS HAS LED TO NEW DISCOVERIES ABOUT PKD, INCLUDING IDENTIFYING THE GENES RESPONSIBLE FOR PKD, WHICH ENABLES RESEARCHERS TO INVESTIGATE POSSIBLE TREATMENTS. THE FOUNDATION HAS A COMPREHENSIVE, INTEGRATED RESEARCH AND DEVELOPMENT PROGRAM THAT REPRESENTS THE CORE OF OUR WORK, AIMED TO SPEED UP DEVELOPMENT OF TREATMENTS WHICH COULD SLOW OR STOP THE PROGRESSION OF PKD. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,160,000 ON GRANT FUNDING TO 15 PKD PROJECTS THAT FOCUS ON THE DEVELOPMENT OF A TREATMENT FOR PKD OR ON UNDERSTANDING THE WAY IN WHICH CYSTS DEVELOP OR ENLARGE IN PKD.FELLOWSHIPS: PROVIDED $110,724 IN FELLOWSHIP FUNDING TO 4 PKD PROJECTS.CORE GRANTS: INVESTED $40,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN TWO CORE LABS SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY.
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IRS990/Form990PartVIISectionAGrp/PersonNm11TOWEY JR FRAN
IRS990/Form990PartVIISectionAGrp/PersonNm12WATNICK DR TERRY
IRS990/Form990PartVIISectionAGrp/PersonNm13WAXMAN JERRY
IRS990/Form990PartVIISectionAGrp/PersonNm14BENSON DR BEVERLY
IRS990/Form990PartVIISectionAGrp/PersonNm15NELSON BROCK
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IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt16VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt18CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt19CFO:LEFT JUL 17
IRS990/Form990PartVIISectionAGrp/TitleTxt20CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt21CHIEF OPERATING OFFICER
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
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IRS990/PrincipalOfficerNm0ANDY BETTS
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT:THE FOUNDATION PROVIDES LOCAL SERVICES THROUGH ITS MORE THAN 60 VOLUNTEER-RUN CHAPTERS ACROSS THE COUNTRY. THESE VOLUNTEERS BRING TO LIFE THE MISSION OF THE ORGANIZATION BY ENSURING THAT NO ONE FACES THIS DISEASE ALONE. EDUCATION MEETINGS PROVIDE VALUABLE INFORMATION FROM HEALTH CARE PROFESSIONALS, WHILE SUPPORT ACTIVITIES RANGE FROM LENDING A LISTENING EAR TO ORGANIZED GROUP OUTINGS. THIS YEAR ALONE, OUR CHAPTERS HELD 109 EDUCATION AND SUPPORT EVENTS.CHAPTERS RAISE FUNDS FOR THE FOUNDATION THROUGH EVENTS WHICH ALSO INCREASE AWARENESS OF PKD AND CONNECT LOCAL PATIENTS AND FAMILIES TO EACH OTHER. NINETY ONE CHAPTER FUNDRAISING AND THIRD- PARTY EVENTS WERE HELD THIS YEAR THAT RAISED $469,170. CHAPTERS ALSO RAISE AWARENESS AND MONEY THROUGH THE WALK FOR PKD, THE FOUNDATION'S SIGNATURE FUNDRAISING AND PUBLIC AWARENESS EVENT. THE WALK TAKES PLACE IN MORE THAN 50 CITIES ACROSS THE NATION EACH YEAR AND HAS RAISED NEARLY $28 MILLION SINCE 2000.ON A NATIONAL LEVEL, THE FOUNDATION PROVIDES IN-DEPTH RESOURCES AND EDUCATION ABOUT LIVING WITH PKD TO EMPOWER PEOPLE TO MANAGE THEIR HEALTH. OFFERINGS INCLUDE WEBINARS, VIDEOS, A MULTI-FACETED WEBSITE (PKDCURE.ORG/LEARN), ONLINE COMMUNITIES AND PRINT MATERIALS. ADDITIONALLY, 10 WEBINARS WERE ATTENDED OR VIEWED BY MORE THAN 819 PEOPLE.THE PKD PATIENT HANDBOOK IS AVAILABLE FOR PEOPLE WITH ADPKD TO HELP THEM NAVIGATE THEIR DISEASE. IT WAS SENT TO 731 PEOPLE LAST YEAR.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01073903
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt04327
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS AND ADVOCACY:THE FOUNDATION RAISES AWARENESS THROUGH MARKETING AND PUBLIC RELATIONS SO PEOPLE KNOW WHAT PKD IS, ABOUT THE FOUNDATION AND HOW TO DONATE. MARKETING MATERIALS INCLUDE PKD PROGRESS MAGAZINE, PKDNEWS MONTHLY EMAIL NEWSLETTER, SOCIAL MEDIA, DISCUSSION FORUMS, BLOGS AND PKDCURE.ORG. VOICES OF PKD (PKDCURE.ORG/VOICESOFPKD) FEATURES TESTIMONIALS AND STORIES ABOUT PEOPLE'S EXPERIENCES WITH THE DISEASE. THERE WAS A SIGNIFICANT INCREASE ON SOCIAL MEDIA, REACHING MORE THAN 45,000 FOLLOWERS INCLUDING FACEBOOK, TWITTER, INSTAGRAM AND YOUTUBE. PKDCURE.ORG RECEIVED 644,578 VISITS, PKDCONNECTION.ORG RECEIVED 34,196 VISIT, WALKFORPKD.ORG RECEIVED 191,443 VISITS. DISCUSSION FORUMS RECEIVED 23,014 VISITS.THE FOUNDATION PLAYS A KEY ROLE IN LEGISLATIVE ADVOCACY TO SUPPORT PKD-RELATED INITIATIVES. THE PKD ADVOCACY ACTION CENTER (PKDCURE.ORG/ADVOCATE) SENT ADVOCACY ALERTS TO 6,500 PEOPLE ABOUT LEGISLATIVE AND PUBLIC POLICY ISSUES IMPACTING PKD PATIENTS AND FAMILIES. THE FOUNDATION JOINS WITH OTHER KIDNEY DISEASE-RELATED ORGANIZATIONS IN EVENTS THAT ALLOW ADVOCATES TO MEET WITH MEMBERS OF CONGRESS TO RAISE AWARENESS OF PKD AND DISCUSS LEGISLATIVE PRIORITIES.

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,398,154
Liabilities
$1,354,476
Net assets
$10,043,678
Revenue
$12,950,845
Expenses
$7,731,213
Net income
$5,219,632
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$1.85$8.75$6.76$8.17$1.41
2018Detailed filing. Detailed filing data is available for this year.$11.4$1.35$10.0$13.0$7.73$5.22
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31