Civic Intelligence

DDC Clinic for Special Needs Children

990 • Fiscal year 2013 • EIN 34-1914344

Jan 01, 2013 to Dec 31, 2013 • Filed on Nov 10, 2014

Organization ProfileWWW.DDCCLINIC.ORG

View Organization Page

14567 Madison Road44062-0845

(440) 632-1668

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

28th percentile

0.02x

Higher debt load relative to assets than 28% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Liabilities / Revenue

42nd percentile

0.07x

Higher debt load relative to revenue than 42% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Net Margin

13th percentile

-22%

Higher net margin than 13% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Top Officer Pay

91st percentile

$206,412

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 26.3% of source-year revenue.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Asset Growth

24th percentile

-3.8%

Faster asset growth than 24% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets28th percentile

Assets

Down

$3,127,508

Down $124,172 (-3.8%) from 2012

Net Assets

Down

$3,071,238

Down $171,791 (-5.3%) from 2012

Liabilities

Up

$56,270

Up $47,619 (+550%) from 2012

Revenue And Expenses
Liabilities / Revenue42nd percentileNet Margin13th percentile

Revenue

$784,879

No earlier filing loaded for comparison.

Expenses

Up

$956,670

Up $23,725 (+2.5%) from 2012

Net Income

-$171,791

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth24th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2012: $3,251,680Liabilities 2012: $8,651Net Assets 2012: $3,243,0292012Assets 2013: $3,127,508Liabilities 2013: $56,270Net Assets 2013: $3,071,2382013Assets 2014: $2,981,527Liabilities 2014: $6,303Net Assets 2014: $2,975,2242014Assets 2015: $3,212,837Liabilities 2015: $7,028Net Assets 2015: $3,205,8092015Assets 2016: $3,077,605Liabilities 2016: $2,425Net Assets 2016: $3,075,1802016Assets 2017: $3,159,142Liabilities 2017: $82,392Net Assets 2017: $3,076,7502017Assets 2018: $2,738,517Liabilities 2018: $1,062Net Assets 2018: $2,737,4552018Assets 2019: $2,538,122Liabilities 2019: $2,511Net Assets 2019: $2,535,6112019Assets 2020: $2,968,259Liabilities 2020: $202,966Net Assets 2020: $2,765,2932020Assets 2021: $3,336,076Liabilities 2021: $5,320Net Assets 2021: $3,330,7562021Assets 2022: $3,898,894Liabilities 2022: $4,966Net Assets 2022: $3,893,9282022Assets 2024: $4,936,064Liabilities 2024: $4,412Net Assets 2024: $4,931,6522024

Highlighted filing

2013

Assets$3,127,508
Liabilities$56,270
Net Assets$3,071,238
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2012: $932,9452012Revenue 2013: $784,879Expenses 2013: $956,670Net Income 2013: -$171,7912013Revenue 2014: $961,211Expenses 2014: $1,057,225Net Income 2014: -$96,0142014Revenue 2015: $1,412,771Expenses 2015: $1,182,187Net Income 2015: $230,5842015Revenue 2016: $1,178,804Expenses 2016: $1,309,433Net Income 2016: -$130,6292016Revenue 2017: $1,377,705Expenses 2017: $1,376,135Net Income 2017: $1,5702017Revenue 2018: $1,343,403Expenses 2018: $1,432,698Net Income 2018: -$89,2952018Revenue 2019: $1,241,226Expenses 2019: $1,446,922Net Income 2019: -$205,6962019Revenue 2020: $1,369,343Expenses 2020: $1,128,348Net Income 2020: $240,9952020Revenue 2021: $1,941,383Expenses 2021: $1,385,087Net Income 2021: $556,2962021Revenue 2022: $2,321,270Expenses 2022: $1,704,065Net Income 2022: $617,2052022Revenue 2024: $2,403,080Expenses 2024: $2,372,750Net Income 2024: $30,3302024

Highlighted filing

2013

Revenue$784,879
Expenses$956,670
Net Income-$171,791
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Nov 10, 2014
Return Version
2013v3.0
Gross Receipts
$805,760
Mission and Program Overview

Mission

To enhance the quality of life for special needs people with metabolic and inherited disorders through early diagnosis and treatment, research, and education.

To enhance the quality of life for people with special needs caused by rare genetic disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Land, Buildings, and Equipment, Net$1,919,769$1,914,526▼ $5,243
Savings and Temporary Cash Investments$995,324$976,763▼ $18,561
Pledges and Grants Receivable$242,845$177,896▼ $64,949
Cash and Non-Interest-Bearing Accounts$77,479--
Accounts Receivable$11,928$29,949▲ $18,021
Inventories for Sale or Use-$18,960-
Prepaid Expenses and Deferred Charges$4,335$9,414▲ $5,079
Total Assets$3,251,680$3,127,508▼ $124,172
Liabilities
Accounts Payable and Accrued Expenses$8,651$56,270▲ $47,619
Total Liabilities$8,651$56,270▲ $47,619
Net Assets / Fund Balance
Unrestricted Net Assets$2,954,787$2,865,286▼ $89,501
Temporarily Rstr Net Assets$278,242$170,952▼ $107,290
Permanently Rstr Net Assets$10,000$35,000▲ $25,000
Total Net Assets Fund Balance$3,243,029$3,071,238▼ $171,791
Total Liabilities and Net Assets / Fund Balance$3,251,680$3,127,508▼ $124,172

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$1,575,913$192,724$1,768,637
Equipment$247,180$157,822$405,002
Land$59,500-$59,500
Leasehold Improvements$24,401$8,139$32,540
Other Land Buildings$7,532$9,801$17,333

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2013$114,567$25,000▲ $151-$139,718
2012$114,161-▲ $406-$114,567
2011$113,117-▲ $1,044-$114,161
2010$111,494-▲ $1,623-$113,117
2009$109,244-▲ $2,250-$111,494
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Heng Wang MdCEO, Medical DirectorFT$187,428$18,984$206,412
Blake AndresExecutive DirectorFT$98,605$11,943$110,548

Board Members and Trustees

NameTitle
Tom Stone PhdPresident
Eli MillerVice President
Chuck FowlerDirector
Don DautDirector
Frann ZverinaDirector
Jr Bockoven MdDirector
Leroy CoblentzDirector
Merrie DarrahDirector
Patra Duangjak MdDirector
Raymond MillerDirector
Robert YoderDirector
Chester DetweilerSecretary
Joe VitaleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$572,872
Program Service Revenue
$157,752
Investment Income
$2,606
Other Revenue
$51,649
All Other Contributions
$572,872
Change in Net Assets
$-171,791

Audited Revenue Reconciliation

Revenue per Audited Statements
$784,879
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$60,349
Total Revenue per Audited Statements
$845,228
Total Revenue per Form 990
$784,879
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$624,930
Other Expenses$331,740
Total Fundraising Expense$107,586
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$230,280$21,711$34,043$286,034
Other Salaries and Wages$195,925$18,472$28,964$243,361
Depreciation Depletion$68,189$8,217$8,830$85,236
Other Employee Benefits$32,146$3,030$4,752$39,928
Payroll Taxes$28,506$2,688$4,214$35,408
Occupancy$27,192$3,118$3,315$33,625
Fees for Services Other$27,792$542$683$29,017
Pension Plan Contributions$16,262$1,533$2,404$20,199
Fees for Services Accounting$11,320$1,364$1,466$14,150
All Other Expenses$9,164$1,631$3,261$14,056
Insurance$8,160$1,956$745$10,861
Other Expenses$5,486$2,028$580$8,094
Travel$5,664$108$602$6,374
Office Expenses$2,283$1,028$405$3,716
Conferences and Meetings$238$591$90$919
Information Technology$618$74$80$772
Total Functional Expenses$779,915$69,169$107,586$956,670

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,017,019
Expenses per Audited Statements$956,670
Total Expenses per Form 990$956,670
Expenses Not Reported on Form 990$60,349
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$61,666
Fundraising Direct Expenses$20,881
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$61,666$61,666$20,881$40,785
Total Events$61,666$61,666$20,881$40,785
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“A copy of the form 990 is provided to the finance committee to review and then made available to any board member wishing to review. It is on file in the business manager's office.”

Form 990, Part VI, Section B, Line 12C

“Board members are asked to report any conflicts to the office as necessary.”

Form 990, Part VI, Section C, Line 18

“UPON REQUEST”

Form 990, Part VI, Section C, Line 19

“UPON REQUEST”

Filing and Contact Details

Filer

EIN
34-1914344
Phone
4406321668

Signing Officer

Name
Frann R Zverina
Title
President
Phone
4406321668
Signed
2014-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Frann R Zverina
Formed
2000
Legal Domicile
Oh
Voting Board Members
13
Independent Board Members
13
Employees
8
Volunteers
35

Preparer

Preparer
David M Reape CPA
Phone
2168317171
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The clinic is tax-exempt, under section 501(c)(3) of the internal revenue code of 1986. No provision for federal income taxes has been reported in its financial statements. The clinic accounts for income taxes in accordance with the "income taxes" topic of the fasb asc. Uncertain income tax positions are evaluated at least annually by management. The clinic classifies interest and penalties related to income tax matters as miscellaneous expenses in the accompanying financial statements. As of december 31, 2013 and 2012, the clinic has identified no uncertain income tax positions and has incurred no amounts for income tax penalties and interest for the years then ended. The clinic files its federal form 990 in the u.s. Federal jurisdiction and a state registration in the office of the state's attorney general for the state of ohio. The clinic believes it is no longer subject to examination by the internal revenue service for fiscal years before 2010.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 20,881.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 20,881.”

Raw XML AppendixShowing 400 of 595 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO ENHANCE THE QUALITY OF LIFE FOR PEOPLE WITH SPECIAL NEEDS CAUSED BY RARE GENETIC DISORDERS.
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IRS990/Desc0WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE AND CULTURALLY EFFECTIVE.WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 70 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME , GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH MEDICAL SUPPLIES AND NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13CEO, MEDICAL DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd00
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt020881
IRS990/FundraisingGrossIncomeAmt061666
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0805760
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt013
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt080
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt074
IRS990/InformationTechnologyGrp/ProgramServicesAmt0618
IRS990/InformationTechnologyGrp/TotalAmt0772
IRS990/InsuranceGrp/FundraisingAmt0745
IRS990/InsuranceGrp/ManagementAndGeneralAmt01956
IRS990/InsuranceGrp/ProgramServicesAmt08160
IRS990/InsuranceGrp/TotalAmt010861
IRS990/InventoriesForSaleOrUseGrp/EOYAmt018960
IRS990/InvestmentIncomeGrp/ExclusionAmt02606
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02606
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0368486
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01919769
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01914526
IRS990/LandBldgEquipCostOrOtherBssAmt02283012
IRS990/LegalDomicileStateCd0OH
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERITED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH, AND EDUCATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NetAssetsOrFundBalancesEOYAmt03071238
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt040785
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt040785
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt02172
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03315
IRS990/OccupancyGrp/ManagementAndGeneralAmt03118
IRS990/OccupancyGrp/ProgramServicesAmt027192
IRS990/OccupancyGrp/TotalAmt033625
IRS990/OfficeExpensesGrp/FundraisingAmt0405
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01028
IRS990/OfficeExpensesGrp/ProgramServicesAmt02283
IRS990/OfficeExpensesGrp/TotalAmt03716
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04752
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03030
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt032146
IRS990/OtherEmployeeBenefitsGrp/TotalAmt039928
IRS990/OtherExpensesGrp/Desc0MEDICAL SERVICE
IRS990/OtherExpensesGrp/Desc1PRINTING AND REPRODUCTI
IRS990/OtherExpensesGrp/Desc2COMMUNITY AUCTIONS
IRS990/OtherExpensesGrp/Desc3SERVICE FEES
IRS990/OtherExpensesGrp/FundraisingAmt04771
IRS990/OtherExpensesGrp/FundraisingAmt18381
IRS990/OtherExpensesGrp/FundraisingAmt2580
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01078
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12028
IRS990/OtherExpensesGrp/ProgramServicesAmt0102396
IRS990/OtherExpensesGrp/ProgramServicesAmt18294
IRS990/OtherExpensesGrp/ProgramServicesAmt25486
IRS990/OtherExpensesGrp/TotalAmt0102396
IRS990/OtherExpensesGrp/TotalAmt114143
IRS990/OtherExpensesGrp/TotalAmt28381
IRS990/OtherExpensesGrp/TotalAmt38094
IRS990/OtherRevenueMiscGrp/BusinessCd0621400
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt010864
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt010864
IRS990/OtherRevenueTotalAmt010864
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt028964
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018472
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0195925
IRS990/OtherSalariesAndWagesGrp/TotalAmt0243361
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04214
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02688
IRS990/PayrollTaxesGrp/ProgramServicesAmt028506
IRS990/PayrollTaxesGrp/TotalAmt035408
IRS990/PensionPlanContributionsGrp/FundraisingAmt02404
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01533
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt016262
IRS990/PensionPlanContributionsGrp/TotalAmt020199
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt010000
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt035000
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0242845
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0177896
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04335
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09414
IRS990/PrincipalOfficerNm0FRANN R ZVERINA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0621400
IRS990/ProgramServiceRevenueGrp/BusinessCd1621400
IRS990/ProgramServiceRevenueGrp/Desc0PATIENT CARE
IRS990/ProgramServiceRevenueGrp/Desc1CLIA LAB
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0152872
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt14880
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0152872
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt14880
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUND-BREAKING TREATMENT, BRINGING RELIEF TO THE CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS WITH OUR RESEARCH IS TRANSLATED IMMEDIATELY TO PATIENT CARE TO HELP AFFECTED CHILDREN. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY-AFFECTED PATIENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0237400
IRS990/ProgSrvcAccomActy3Grp/Desc0WE PARTNER WITH FAMILIES, THE COMMUNITY AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE.WE OFFER FAMILY SUPPORT SERVICES SUCH AS FAMILY GATHERINGS AND A PARENT LENDING LIBRARY.WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt087726
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0180152
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0529724
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt03819
IRS990/PYOtherExpensesAmt0299618
IRS990/PYOtherRevenueAmt0185980
IRS990/PYProgramServiceRevenueAmt0123019
IRS990/PYRevenuesLessExpensesAmt0-90403
IRS990/PYSalariesCompEmpBnftPaidAmt0582452
IRS990/PYTotalExpensesAmt0932945
IRS990/PYTotalProfFndrsngExpnsAmt050875
IRS990/PYTotalRevenueAmt0842542
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-171791
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0152872
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0995324
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0976763
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0572872
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0649074
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0440339
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01521166
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0470345
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt03653796
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt02606
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt03819
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt06720
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt013102
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt025466
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt051713
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0504688
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt01864
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01864
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.62370
IRS990ScheduleA/PublicSupportPY170Pct00.54870
IRS990ScheduleA/PublicSupportTotal170Amt02354519
IRS990ScheduleA/SubstantialContributorsTotAmt01299277
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0572872
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0649074
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01521166
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0470345
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03653796
IRS990ScheduleA/TotalSupportAmt03775158
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt049785
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt09000
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt09000
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt067785
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/AdditionsDuringYearAmt00
IRS990ScheduleD/BeginningBalanceAmt00
IRS990ScheduleD/BoardDesignatedBalanceEOYPct00.74950
IRS990ScheduleD/BuildingsGrp/BookValueAmt01575913
IRS990ScheduleD/BuildingsGrp/DepreciationAmt0192724

Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,127,508
Liabilities
$56,270
Net assets
$3,071,238
Revenue
$784,879
Expenses
$956,670
Net income
-$171,791
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.94$0.00$4.93$2.40$2.37$0.03
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.90$0.00$3.89$2.32$1.70$0.62
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.34$0.01$3.33$1.94$1.39$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.97$0.20$2.77$1.37$1.13$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.54$0.00$2.54$1.24$1.45$0.21
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.00$2.74$1.34$1.43$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.16$0.08$3.08$1.38$1.38$0.00
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$0.00$3.08$1.18$1.31$0.13
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.21$0.01$3.21$1.41$1.18$0.23
2014Detailed filing. Detailed filing data is available for this year.$2.98$0.01$2.98$0.96$1.06$0.10
2013Detailed filing. Detailed filing data is available for this year.$3.13$0.06$3.07$0.78$0.96$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.25$0.01$3.24$0.93