Civic Intelligence

DDC Clinic for Special Needs Children

990 • Fiscal year 2016 • EIN 34-1914344

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 09, 2017

Organization ProfileWWW.DDCCLINIC.ORG

View Organization Page

14567 Madison RoadMiddlefield, OH 44062

(440) 632-1668

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.00x

Higher debt load relative to assets than 16% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

16th percentile

0.00x

Higher debt load relative to revenue than 16% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

21st percentile

-11%

Higher net margin than 21% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

92nd percentile

$247,927

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 21.0% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

24th percentile

-4.2%

Faster asset growth than 24% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

18th percentile

-17%

Faster revenue growth than 18% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets16th percentile

Assets

Down

$3,077,605

Down $135,232 (-4.2%) from 2015

Net Assets

Down

$3,075,180

Down $130,629 (-4.1%) from 2015

Liabilities

Down

$2,425

Down $4,603 (-65%) from 2015

Revenue And Expenses
Liabilities / Revenue16th percentileNet Margin21st percentile

Revenue

Down

$1,178,804

Down $233,967 (-17%) from 2015

Expenses

Up

$1,309,433

Up $127,246 (+11%) from 2015

Net Income

Down

-$130,629

Down $361,213 (-157%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth24th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2012: $3,251,680Liabilities 2012: $8,651Net Assets 2012: $3,243,0292012Assets 2013: $3,127,508Liabilities 2013: $56,270Net Assets 2013: $3,071,2382013Assets 2014: $2,981,527Liabilities 2014: $6,303Net Assets 2014: $2,975,2242014Assets 2015: $3,212,837Liabilities 2015: $7,028Net Assets 2015: $3,205,8092015Assets 2016: $3,077,605Liabilities 2016: $2,425Net Assets 2016: $3,075,1802016Assets 2017: $3,159,142Liabilities 2017: $82,392Net Assets 2017: $3,076,7502017Assets 2018: $2,738,517Liabilities 2018: $1,062Net Assets 2018: $2,737,4552018Assets 2019: $2,538,122Liabilities 2019: $2,511Net Assets 2019: $2,535,6112019Assets 2020: $2,968,259Liabilities 2020: $202,966Net Assets 2020: $2,765,2932020Assets 2021: $3,336,076Liabilities 2021: $5,320Net Assets 2021: $3,330,7562021Assets 2022: $3,898,894Liabilities 2022: $4,966Net Assets 2022: $3,893,9282022Assets 2024: $4,936,064Liabilities 2024: $4,412Net Assets 2024: $4,931,6522024

Highlighted filing

2016

Assets$3,077,605
Liabilities$2,425
Net Assets$3,075,180
Open 2016 Filing

Operations Trend

Revenue Growth18th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2012: $932,9452012Revenue 2013: $784,879Expenses 2013: $956,670Net Income 2013: -$171,7912013Revenue 2014: $961,211Expenses 2014: $1,057,225Net Income 2014: -$96,0142014Revenue 2015: $1,412,771Expenses 2015: $1,182,187Net Income 2015: $230,5842015Revenue 2016: $1,178,804Expenses 2016: $1,309,433Net Income 2016: -$130,6292016Revenue 2017: $1,377,705Expenses 2017: $1,376,135Net Income 2017: $1,5702017Revenue 2018: $1,343,403Expenses 2018: $1,432,698Net Income 2018: -$89,2952018Revenue 2019: $1,241,226Expenses 2019: $1,446,922Net Income 2019: -$205,6962019Revenue 2020: $1,369,343Expenses 2020: $1,128,348Net Income 2020: $240,9952020Revenue 2021: $1,941,383Expenses 2021: $1,385,087Net Income 2021: $556,2962021Revenue 2022: $2,321,270Expenses 2022: $1,704,065Net Income 2022: $617,2052022Revenue 2024: $2,403,080Expenses 2024: $2,372,750Net Income 2024: $30,3302024

Highlighted filing

2016

Revenue$1,178,804
Expenses$1,309,433
Net Income-$130,629
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 9, 2017
Return Version
2016v3.0
Gross Receipts
$1,205,362
Mission and Program Overview

Mission

To enhance the quality of life for special needs people with metabolic and inherited disorders through early diagnosis and treatment, research, and education.

To enhance the quality of life for people with special needs caused by rare genetic disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Land, Buildings, and Equipment, Net$1,781,643$1,712,674▼ $68,969
Savings and Temporary Cash Investments$920,976$932,649▲ $11,673
Pledges and Grants Receivable$399,460$265,002▼ $134,458
Accounts Receivable$88,890$141,548▲ $52,658
Prepaid Expenses and Deferred Charges$21,868$25,732▲ $3,864
Total Assets$3,212,837$3,077,605▼ $135,232
Liabilities
Accounts Payable and Accrued Expenses$7,028$2,425▼ $4,603
Total Liabilities$7,028$2,425▼ $4,603
Net Assets / Fund Balance
Unrestricted Net Assets$2,394,661$2,273,418▼ $121,243
Permanently Rstr Net Assets$533,950$642,393▲ $108,443
Temporarily Rstr Net Assets$277,198$159,369▼ $117,829
Total Net Assets Fund Balance$3,205,809$3,075,180▼ $130,629
Total Liabilities and Net Assets / Fund Balance$3,212,837$3,077,605▼ $135,232

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$1,439,864$328,773$1,768,637
Equipment$186,479$294,645$481,124
Land$59,500-$59,500
Leasehold Improvements$22,991$15,830$38,821
Other Land Buildings$3,840$16,228$20,068

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$381,388$10,000▲ $1,005-$392,393
2015$371,218$7,450▲ $2,720-$381,388
2014$139,718$231,500--$371,218
2013$114,567$25,000▲ $151-$139,718
2012$114,161-▲ $406-$114,567
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Heng Wang MdCEO, Medical DirectorFT$213,051$34,876$247,927
Blake AndresExecutive DirectorFT$104,798$5,478$110,276

Board Members and Trustees

NameTitle
Frann R ZverinaPresident
Eli MillerVice President
Aden a MillerDirector
Chuck FowlerDirector
Crist YoderDirector
Denise RichardsonDirector
Don DautDirector
Gordon SafranDirector
John DetweilerDirector
John Tumbush DoDirector
Jr Bockoven MdDirector
Leroy CoblentzDirector
Merrie DarrahDirector
Natalie SukalacDirector
Patra Duangjak MdDirector
Raymond J MillerDirector
Robert YoderDirector
Scott BraceDirector
Tom Stone PhdDirector
Chester DetweilerSecretary
Joe VitaleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$517,304
Program Service Revenue
$592,179
Investment Income
$2,870
Other Revenue
$66,451
All Other Contributions
$517,304
Change in Net Assets
$-130,629

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,178,804
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$65,570
Total Revenue per Audited Statements
$1,244,374
Total Revenue per Form 990
$1,178,804
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$811,874
Other Expenses$497,559
Total Fundraising Expense$147,146
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$309,463$25,415$34,699$369,577
Current Officers, Directors, Trustees, and Key Employees$266,148$21,858$29,843$317,849
Depreciation Depletion$81,748$7,767$7,573$97,088
Other Employee Benefits$39,009$3,706$3,614$46,329
Payroll Taxes$38,551$3,829$3,563$45,943
Fees for Services Other$22,731$1,379$18,661$42,771
Occupancy$29,173$2,749$2,640$34,562
Pension Plan Contributions$27,092$2,574$2,510$32,176
Insurance$21,532$2,856$586$24,974
All Other Expenses$11,931$816$2,003$14,750
Other Expenses$4,747$1,817$935$7,499
Office Expenses$4,837$535$1,686$7,058
Travel$5,497-$235$5,732
Information Technology$3,141$1,059$757$4,957
Conferences and Meetings$774$260$185$1,219
Total Functional Expenses$1,084,425$77,862$147,146$1,309,433

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,375,003
Expenses per Audited Statements$1,309,433
Total Expenses per Form 990$1,309,433
Expenses Not Reported on Form 990$65,570
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$93,009
Fundraising Direct Expenses$26,558
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Patchwork Benefit$93,009$93,009$26,558$66,451
Total Events$93,009$93,009$26,558$66,451
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A copy of the form 990 is provided to the finance committee to review and then a signed copy is provided to all board members prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Board members are asked to report any conflicts to the office as necessary.”

Form 990, Part VI, Section C, Line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Ddc Clinic for Special Needs Children
EIN
34-1914344
Phone
4406321668
Address
14567 MADISON ROAD, MIDDLEFIELD, OH 44062

Signing Officer

Name
Eli N Miller
Title
President
Phone
4406321668
Signed
2017-11-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Eli N Miller
Formed
2000
Legal Domicile
Oh
Voting Board Members
21
Independent Board Members
21
Employees
9
Volunteers
35

Preparer

Firm
Walthall Llp
Address
6300 ROCKSIDE ROAD SUITE 100, CLEVELAND, OH 44131-2221
Preparer
Richard H Cause CPA
Phone
2165732330
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has not changed its oversight process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The clinic is tax-exempt, under section 501(c)(3) of the internal revenue code of 1986. No provision for federal income taxes has been reported in its financial statements. The clinic accounts for income taxes in accordance with the "income taxes" topic of the fasb asc. Uncertain income tax positions are evaluated at least annually by management. The clinic classifies interest and penalties related to income tax matters as miscellaneous expenses in the accompanying financial statements. As of december 31, 2016 and 2015, the clinic has identified no uncertain income tax positions and has incurred no amounts for income tax penalties and interest for the years then ended. The clinic files its federal form 990 in the u.s. Federal jurisdiction and a state registration in the office of the state's attorney general for the state of ohio.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 26,558.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 26,558.”

Raw XML AppendixShowing 400 of 656 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE AND CULTURALLY EFFECTIVE. WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 70 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME, GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH MEDICAL SUPPLIES AND NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21213051
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22104798
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21CEO, MEDICAL DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt026558
IRS990/FundraisingGrossIncomeAmt093009
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt021
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01205362
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt021
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0757
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01059
IRS990/InformationTechnologyGrp/ProgramServicesAmt03141
IRS990/InformationTechnologyGrp/TotalAmt04957
IRS990/InsuranceGrp/FundraisingAmt0586
IRS990/InsuranceGrp/ManagementAndGeneralAmt02856
IRS990/InsuranceGrp/ProgramServicesAmt021532
IRS990/InsuranceGrp/TotalAmt024974
IRS990/InvestmentIncomeGrp/ExclusionAmt02870
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02870
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0655476
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01781643
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01712674
IRS990/LandBldgEquipCostOrOtherBssAmt02368150
IRS990/LegalDomicileStateCd0OH
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERTIED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH AND EDUCATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt03205809
IRS990/NetAssetsOrFundBalancesEOYAmt03075180
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt066451
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt066451
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02640
IRS990/OccupancyGrp/ManagementAndGeneralAmt02749
IRS990/OccupancyGrp/ProgramServicesAmt029173
IRS990/OccupancyGrp/TotalAmt034562
IRS990/OfficeExpensesGrp/FundraisingAmt01686
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0535
IRS990/OfficeExpensesGrp/ProgramServicesAmt04837
IRS990/OfficeExpensesGrp/TotalAmt07058
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03614
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03706
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt039009
IRS990/OtherEmployeeBenefitsGrp/TotalAmt046329
IRS990/OtherExpensesGrp/Desc0MEDICAL SERVICE
IRS990/OtherExpensesGrp/Desc1PRINTING AND REPRODUCTI
IRS990/OtherExpensesGrp/Desc2COMMUNITY AUCTIONS
IRS990/OtherExpensesGrp/Desc3SERVICE FEES
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt110323
IRS990/OtherExpensesGrp/FundraisingAmt227333
IRS990/OtherExpensesGrp/FundraisingAmt3935
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11242
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31817
IRS990/OtherExpensesGrp/ProgramServicesAmt0199829
IRS990/OtherExpensesGrp/ProgramServicesAmt117078
IRS990/OtherExpensesGrp/ProgramServicesAmt21144
IRS990/OtherExpensesGrp/ProgramServicesAmt34747
IRS990/OtherExpensesGrp/TotalAmt0199829
IRS990/OtherExpensesGrp/TotalAmt128643
IRS990/OtherExpensesGrp/TotalAmt228477
IRS990/OtherExpensesGrp/TotalAmt37499
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt034699
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt025415
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0309463
IRS990/OtherSalariesAndWagesGrp/TotalAmt0369577
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03563
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03829
IRS990/PayrollTaxesGrp/ProgramServicesAmt038551
IRS990/PayrollTaxesGrp/TotalAmt045943
IRS990/PensionPlanContributionsGrp/FundraisingAmt02510
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02574
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt027092
IRS990/PensionPlanContributionsGrp/TotalAmt032176
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0533950
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0642393
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0399460
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0265002
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt021868
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt025732
IRS990/PrincipalOfficerNm0ELI N MILLER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0621400
IRS990/ProgramServiceRevenueGrp/BusinessCd1621400
IRS990/ProgramServiceRevenueGrp/BusinessCd2621400
IRS990/ProgramServiceRevenueGrp/Desc0CLIA LAB
IRS990/ProgramServiceRevenueGrp/Desc1RESEARCH CONTRACT
IRS990/ProgramServiceRevenueGrp/Desc2PATIENT CARE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0259106
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1187450
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt2145623
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0259106
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1187450
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt2145623
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUNDBREAKING TREATMENT, BRINGING RELIEF TO CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS TRANSLATED IMMEDIATELY TO PATIENT CARE. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY AFFECTED PATIENTS.OUR MOLECULAR DIAGNOSTICS LABORATORY OFFERS STATE-OF-THE-ART GENETIC TESTING FOR HUNDREDS OF GENETIC DISORDERS. THE LAB WAS DEVELOPED IN 2005 TO SUPPORT TRANSLATIONAL RESEARCH AND PERSONALIZED MEDICINE FOR PATIENTS. IN 2012, WITH A GROWING NUMBER OF REQUESTS BY CLINICIANS ACROSS THE COUNTRY LOOKING FOR HIGH-QUALITY AND AFFORDABLE TESTING SERVICES FOR RARE GENETIC CONDITIONS, OUR LAB SOUGHT AND EARNED CERTIFICATION BY THE CLINICAL LABORATORY IMPROVEMENT AMENDMENTS (CLIA). OUR TESTS INCLUDE DNA SEQUENCE ANALYSIS VIA SANGER SEQUENCING AND NEXT-GENERATION SEQUENCING (NGS), AS WELL AS DNA COPY NUMBER VARIATION ANALYSIS BY CHROMOSOMAL MICROARRAY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0656992
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0446556
IRS990/ProgSrvcAccomActy3Grp/Desc0WE PARTNER WITH FAMILIES, THE COMMUNITY AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE. WE OFFER FAMILY SUPPORT SERVICES INCLUDING GENETIC COUNSELING, DISORDER-SPECIFIC FAMILY GATHERINGS AND MOTHERS SUPPORT GROUPS. WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt095962
IRS990/ProgSrvcAccomActyOtherGrp/Desc0DENTAL
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt07599
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0990955
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt05906
IRS990/PYOtherExpensesAmt0428879
IRS990/PYOtherRevenueAmt050313
IRS990/PYProgramServiceRevenueAmt0365597
IRS990/PYRevenuesLessExpensesAmt0230584
IRS990/PYSalariesCompEmpBnftPaidAmt0753308
IRS990/PYTotalExpensesAmt01182187
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01412771
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-130629

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,077,605
Liabilities
$2,425
Net assets
$3,075,180
Revenue
$1,178,804
Expenses
$1,309,433
Net income
-$130,629
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.94$0.00$4.93$2.40$2.37$0.03
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.90$0.00$3.89$2.32$1.70$0.62
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.34$0.01$3.33$1.94$1.39$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.97$0.20$2.77$1.37$1.13$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.54$0.00$2.54$1.24$1.45$0.21
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.00$2.74$1.34$1.43$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.16$0.08$3.08$1.38$1.38$0.00
2016Detailed filing. Detailed filing data is available for this year.$3.08$0.00$3.08$1.18$1.31$0.13
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.21$0.01$3.21$1.41$1.18$0.23
2014Detailed filing. Detailed filing data is available for this year.$2.98$0.01$2.98$0.96$1.06$0.10
2013Detailed filing. Detailed filing data is available for this year.$3.13$0.06$3.07$0.78$0.96$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.25$0.01$3.24$0.93