Liabilities / Assets
17th percentile
Higher debt load relative to assets than 17% of similar nonprofits.
990 • Fiscal year 2012 • EIN 34-1914344
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
17th percentile
Higher debt load relative to assets than 17% of similar nonprofits.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
29th percentile
Faster asset growth than 29% of similar nonprofits.
Revenue Growth
Score unavailable
No valid filing value is available for this score.
Assets
$3,251,680
No earlier filing loaded for comparison.
Net Assets
$3,243,029
No earlier filing loaded for comparison.
Liabilities
$8,651
No earlier filing loaded for comparison.
Revenue
-
No earlier filing loaded for comparison.
Expenses
$932,945
No earlier filing loaded for comparison.
Net Income
-
No earlier filing loaded for comparison.
To enhance the quality of life for special needs people with metabolic and inherited disorders through early diagnosis and treatment, research, and education.
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReview | 0 | 0 |
| IRS990/AccountsPayableAccruedExpenses/BOY | 0 | 24396 |
| IRS990/AccountsPayableAccruedExpenses/EOY | 0 | 8651 |
| IRS990/AccountsReceivable/BOY | 0 | 10922 |
| IRS990/AccountsReceivable/EOY | 0 | 11928 |
| IRS990/ActivitiesConductedPartnership | 0 | 0 |
| IRS990/Activity2/Description | 0 | PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUND-BREAKING TREATMENT, BRINGING RELIEF TO THE CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS WITH OUR RESEARCH IS TRANSLATED IMMEDIATELY TO PATIENT CARE TO HELP AFFECTED CHILDREN. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY-AFFECTED PATIENTS. |
| IRS990/Activity2/Expense | 0 | 173333 |
| IRS990/Activity3/Description | 0 | WE PARTNER WITH FAMILIES, THE COMMUNITY AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE.WE OFFER FAMILY SUPPORT SERVICES SUCH AS FAMILY GATHERINGS AND A PARENT LENDING LIBRARY.WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS. |
| IRS990/Activity3/Expense | 0 | 81485 |
| IRS990/ActivityOrMissionDescription | 0 | TO ENHANCE THE QUALITY OF LIFE FOR PEOPLE WITH SPECIAL NEEDS CAUSED BY RARE GENETIC DISORDERS. |
| IRS990/ActivityOther/Expense | 0 | 174341 |
| IRS990/AddressPrincipalOfficerUS/AddressLine1 | 0 | 14567 MADISON ROAD |
| IRS990/AddressPrincipalOfficerUS/City | 0 | MIDDLEFIELD |
| IRS990/AddressPrincipalOfficerUS/State | 0 | OH |
| IRS990/AddressPrincipalOfficerUS/ZIPCode | 0 | 440620845 |
| IRS990/AllOtherContributions | 0 | 529724 |
| IRS990/AllOtherExpenses/Fundraising | 0 | 2057 |
| IRS990/AllOtherExpenses/ManagementAndGeneral | 0 | 1244 |
| IRS990/AllOtherExpenses/ProgramServices | 0 | 7847 |
| IRS990/AllOtherExpenses/Total | 0 | 11148 |
| IRS990/AnnualDisclosureCoveredPersons | 0 | 1 |
| IRS990/AuditCommittee | 0 | 0 |
| IRS990/BenefitsPaidToMembersCY | 0 | 0 |
| IRS990/BenefitsPaidToMembersPriorYear | 0 | 0 |
| IRS990/BsnssRltnshpThruFamilyMember | 0 | 0 |
| IRS990/BsnssRltnshpWithOrganization | 0 | 0 |
| IRS990/CashNonInterestBearing/BOY | 0 | 44129 |
| IRS990/CashNonInterestBearing/EOY | 0 | 77479 |
| IRS990/ChangesToOrganizingDocs | 0 | 0 |
| IRS990/CollectionsOfArt | 0 | 0 |
| IRS990/CompCurrentOfficersDirectors/Fundraising | 0 | 28347 |
| IRS990/CompCurrentOfficersDirectors/ManagementAndGeneral | 0 | 20479 |
| IRS990/CompCurrentOfficersDirectors/ProgramServices | 0 | 206851 |
| IRS990/CompCurrentOfficersDirectors/Total | 0 | 255677 |
| IRS990/CompensationFromOtherSources | 0 | 0 |
| IRS990/CompensationProcessCEO | 0 | 0 |
| IRS990/CompensationProcessOther | 0 | 0 |
| IRS990/ComplianceWithBackupWitholding | 0 | 1 |
| IRS990/ConferencesMeetings/Fundraising | 0 | 331 |
| IRS990/ConferencesMeetings/ManagementAndGeneral | 0 | 626 |
| IRS990/ConferencesMeetings/ProgramServices | 0 | 4561 |
| IRS990/ConferencesMeetings/Total | 0 | 5518 |
| IRS990/ConflictOfInterestPolicy | 0 | 1 |
| IRS990/ConservationEasements | 0 | 0 |
| IRS990/ConsolidatedAuditFinancialStmt | 0 | 0 |
| IRS990/ContributionsGrantsCurrentYear | 0 | 529724 |
| IRS990/ContributionsGrantsPriorYear | 0 | 314464 |
| IRS990/CreditCounseling | 0 | 0 |
| IRS990/DecisionsSubjectToApproval | 0 | 0 |
| IRS990/DeductibleContributionsOfArt | 0 | 0 |
| IRS990/DeductibleNonCashContributions | 0 | 0 |
| IRS990/DelegationOfManagementDuties | 0 | 0 |
| IRS990/DepreciationDepletion/Fundraising | 0 | 8412 |
| IRS990/DepreciationDepletion/ManagementAndGeneral | 0 | 7828 |
| IRS990/DepreciationDepletion/ProgramServices | 0 | 64967 |
| IRS990/DepreciationDepletion/Total | 0 | 81207 |
| IRS990/DescribedIn501C3 | 0 | 1 |
| IRS990/Description | 0 | WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE AND CULTURALLY EFFECTIVE.WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 70 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME , GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH MEDICAL SUPPLIES AND NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS. |
| IRS990/DisregardedEntity | 0 | 0 |
| IRS990/DocumentRetentionPolicy | 0 | 0 |
| IRS990/DonorAdvisedFunds | 0 | 0 |
| IRS990/ElectionOfBoardMembers | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiled | 0 | 1 |
| IRS990/ExcessBenefitTransaction | 0 | 0 |
| IRS990/Expense | 0 | 269846 |
| IRS990/FamilyOrBusinessRelationship | 0 | 0 |
| IRS990/FederalGrantAuditRequired | 0 | 0 |
| IRS990/FeesForServicesAccounting/Fundraising | 0 | 1433 |
| IRS990/FeesForServicesAccounting/ManagementAndGeneral | 0 | 1333 |
| IRS990/FeesForServicesAccounting/ProgramServices | 0 | 11062 |
| IRS990/FeesForServicesAccounting/Total | 0 | 13828 |
| IRS990/FeesForServicesOther/Fundraising | 0 | 2047 |
| IRS990/FeesForServicesOther/ManagementAndGeneral | 0 | 623 |
| IRS990/FeesForServicesOther/ProgramServices | 0 | 4804 |
| IRS990/FeesForServicesOther/Total | 0 | 7474 |
| IRS990/FeesForServicesProfFundraising/Fundraising | 0 | 50875 |
| IRS990/FeesForServicesProfFundraising/Total | 0 | 50875 |
| IRS990/FollowSFAS117 | 0 | X |
| IRS990/ForeignActivities | 0 | 0 |
| IRS990/ForeignFinancialAccount | 0 | 0 |
| IRS990/ForeignOffice | 0 | 0 |
| IRS990/Form8282PropertyDisposedOf | 0 | 0 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 0 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 1 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 2 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 3 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 4 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 5 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 6 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 7 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 8 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 9 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 10 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 11 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 12 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 13 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 14 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 15 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 16 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 17 | 40.00 |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 0 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 2 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 3 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 4 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 5 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 6 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 7 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 8 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 9 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 10 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 11 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 12 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 13 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 14 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 15 | X |
| IRS990/Form990PartVIISectionA/NamePerson | 0 | JR BOCKOVEN MD |
| IRS990/Form990PartVIISectionA/NamePerson | 1 | CHESTER DETWEILER |
| IRS990/Form990PartVIISectionA/NamePerson | 2 | CHUCK FOWLER |
| IRS990/Form990PartVIISectionA/NamePerson | 3 | ROBERT HERSHBERGER |
| IRS990/Form990PartVIISectionA/NamePerson | 4 | LEROY COBLENTZ |
| IRS990/Form990PartVIISectionA/NamePerson | 5 | JOANN BRACE |
| IRS990/Form990PartVIISectionA/NamePerson | 6 | ELMER MAST |
| IRS990/Form990PartVIISectionA/NamePerson | 7 | PATRA DUANGJAK MD |
| IRS990/Form990PartVIISectionA/NamePerson | 8 | RAYMOND MILLER |
| IRS990/Form990PartVIISectionA/NamePerson | 9 | ELI MILLER |
| IRS990/Form990PartVIISectionA/NamePerson | 10 | TOM STONE PHD |
| IRS990/Form990PartVIISectionA/NamePerson | 11 | ELAINE MOTYLINSKI |
| IRS990/Form990PartVIISectionA/NamePerson | 12 | JOE VITALE |
| IRS990/Form990PartVIISectionA/NamePerson | 13 | FRANN ZVERINA |
| IRS990/Form990PartVIISectionA/NamePerson | 14 | MERRIE DARRAH |
| IRS990/Form990PartVIISectionA/NamePerson | 15 | DON DAUT |
| IRS990/Form990PartVIISectionA/NamePerson | 16 | HENG WANG MD |
| IRS990/Form990PartVIISectionA/NamePerson | 17 | BLAKE ANDRES |
| IRS990/Form990PartVIISectionA/Officer | 0 | X |
| IRS990/Form990PartVIISectionA/Officer | 1 | X |
| IRS990/Form990PartVIISectionA/OtherCompensation | 0 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 1 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 2 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 3 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 4 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 5 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 6 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 7 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 8 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 9 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 10 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 11 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 12 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 13 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 14 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 15 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 16 | 1734 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 17 | 1679 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 16 | 187413 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 17 | 85264 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 16 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 17 | 0 |
| IRS990/Form990PartVIISectionA/Title | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 1 | SECRETARY |
| IRS990/Form990PartVIISectionA/Title | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 3 | PRESIDENT |
| IRS990/Form990PartVIISectionA/Title | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 5 | PRESIDENT |
| IRS990/Form990PartVIISectionA/Title | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 11 | TREASURER |
| IRS990/Form990PartVIISectionA/Title | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 16 | CEO, MEDICAL DIRECTOR |
| IRS990/Form990PartVIISectionA/Title | 17 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGoverningBody | 0 | 1 |
| IRS990/FormersListed | 0 | 0 |
| IRS990/FSAudited | 0 | 1 |
| IRS990/FSAuditedBasis/FinancialStatementSeparate | 0 | X |
| IRS990/FundraisingActivities | 0 | 1 |
| IRS990/FundraisingDirectExpenses | 0 | 64641 |
| IRS990/FundsToPayPremiums | 0 | 0 |
| IRS990/Gaming | 0 | 0 |
| IRS990/GrantsAndSimilarAmntsCY | 0 | 0 |
| IRS990/GrantsAndSimilarAmntsPriorYear | 0 | 0 |
| IRS990/GrantsToIndividuals | 0 | 0 |
| IRS990/GrantsToOrganizations | 0 | 0 |
| IRS990/GrantToRelatedPerson | 0 | 0 |
| IRS990/GrossIncomeFundraisingEvents | 0 | 217223 |
| IRS990/GrossReceipts | 0 | 907183 |
| IRS990/GroupReturnForAffiliates | 0 | 0 |
| IRS990/Hospital | 0 | 0 |
| IRS990/IndependentAuditFinancialStmt | 0 | 1 |
| IRS990/IndoorTanningServices | 0 | 0 |
| IRS990/InfoInScheduleOPartIII | 0 | X |
| IRS990/InfoInScheduleOPartVI | 0 | X |
| IRS990/InformationTechnology/Fundraising | 0 | 1773 |
| IRS990/InformationTechnology/ManagementAndGeneral | 0 | 119 |
| IRS990/InformationTechnology/ProgramServices | 0 | 783 |
| IRS990/InformationTechnology/Total | 0 | 2675 |
| IRS990/Insurance/Fundraising | 0 | 522 |
| IRS990/Insurance/ManagementAndGeneral | 0 | 6510 |
| IRS990/Insurance/ProgramServices | 0 | 8366 |
| IRS990/Insurance/Total | 0 | 15398 |
| IRS990/InvestmentIncomeCurrentYear | 0 | 3819 |
| IRS990/InvestmentIncome/ExclusionAmount | 0 | 3819 |
| IRS990/InvestmentIncomePriorYear | 0 | 6720 |
| IRS990/InvestmentIncome/TotalRevenueColumn | 0 | 3819 |
| IRS990/InvestmentInJointVenture | 0 | 0 |
| IRS990/LandBldgEquipmentAccumDeprec | 0 | 288485 |
| IRS990/LandBuildingsEquipmentBasis | 0 | 2208254 |
| IRS990/LandBuildingsEquipmentBasisNet/BOY | 0 | 1961356 |
| IRS990/LandBuildingsEquipmentBasisNet/EOY | 0 | 1919769 |
| IRS990/LoanToOfficerOrDQP | 0 | 0 |
| IRS990/LobbyingActivities | 0 | 0 |
| IRS990/LocalChapters | 0 | 0 |
| IRS990/MaterialDiversionOrMisuse | 0 | 0 |
| IRS990/MembersOrStockholders | 0 | 0 |
| IRS990/MethodOfAccountingAccrual | 0 | X |
| IRS990/MinutesOfCommittees | 0 | 1 |
| IRS990/MinutesOfGoverningBody | 0 | 1 |
| IRS990/MissionDescription | 0 | TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERITED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH, AND EDUCATION. |
| IRS990/MoreThan5000KToIndividuals | 0 | 0 |
| IRS990/MoreThan5000KToOrganizations | 0 | 0 |
| IRS990/NameOfPrincipalOfficerPerson | 0 | DR TOM STONE |
| IRS990/NbrIndependentVotingMembers | 0 | 16 |
| IRS990/NbrVotingGoverningBodyMembers | 0 | 16 |
| IRS990/NbrVotingMembersGoverningBody | 0 | 16 |
| IRS990/NetAssetsOrFundBalancesBOY | 0 | 3333432 |
| IRS990/NetAssetsOrFundBalancesEOY | 0 | 3243029 |
| IRS990/NetIncomeFromFundraisingEvents/ExclusionAmount | 0 | 152582 |
| IRS990/NetIncomeFromFundraisingEvents/TotalRevenueColumn | 0 | 152582 |
| IRS990/NetUnrelatedBusinessTxblIncome | 0 | 0 |
| IRS990/NonDeductibleContributions | 0 | 0 |
| IRS990/NumberFormsTransmittedWith1096 | 0 | 8 |
| IRS990/NumberIndependentVotingMembers | 0 | 16 |
| IRS990/NumberIndividualsGT100K | 0 | 1 |
| IRS990/NumberOfContractorsGT100K | 0 | 0 |
| IRS990/NumberOfEmployees | 0 | 8 |
| IRS990/NumberW2GIncluded | 0 | 0 |
| IRS990/Occupancy/Fundraising | 0 | 3725 |
| IRS990/Occupancy/ManagementAndGeneral | 0 | 3467 |
| IRS990/Occupancy/ProgramServices | 0 | 29767 |
| IRS990/Occupancy/Total | 0 | 36959 |
| IRS990/OfficeExpenses/Fundraising | 0 | 158 |
| IRS990/OfficeExpenses/ManagementAndGeneral | 0 | 754 |
| IRS990/OfficeExpenses/ProgramServices | 0 | 2666 |
| IRS990/OfficeExpenses/Total | 0 | 3578 |
| IRS990/OfficerEntityWithBsnssRltnshp | 0 | 0 |
| IRS990/OfficerMailingAddress | 0 | 0 |
| IRS990/Organization501c3 | 0 | X |
| IRS990/OtherEmployeeBenefits/Fundraising | 0 | 4301 |
| IRS990/OtherEmployeeBenefits/ManagementAndGeneral | 0 | 3107 |
| IRS990/OtherEmployeeBenefits/ProgramServices | 0 | 31383 |
| IRS990/OtherEmployeeBenefits/Total | 0 | 38791 |
| IRS990/OtherExpensePriorYear | 0 | 327280 |
| IRS990/OtherExpensesCurrentYear | 0 | 299618 |
| IRS990/OtherExpenses/Description | 0 | MEDICAL SERVICE |
| IRS990/OtherExpenses/Description | 1 | BAD DEBT |
| IRS990/OtherExpenses/Description | 2 | PRINTING AND REPRODUCTI |
| IRS990/OtherExpenses/Description | 3 | SERVICE FEES |
| IRS990/OtherExpenses/Fundraising | 0 | 19500 |
| IRS990/OtherExpenses/Fundraising | 1 | 1135 |
| IRS990/OtherExpenses/Fundraising | 2 | 418 |
| IRS990/OtherExpenses/ManagementAndGeneral | 0 | 40 |
| IRS990/OtherExpenses/ManagementAndGeneral | 1 | 3126 |
| IRS990/OtherExpenses/ManagementAndGeneral | 2 | 2791 |
| IRS990/OtherExpenses/ProgramServices | 0 | 83201 |
| IRS990/OtherExpenses/ProgramServices | 1 | 3464 |
| IRS990/OtherExpenses/ProgramServices | 2 | 2593 |
| IRS990/OtherExpenses/Total | 0 | 83241 |
| IRS990/OtherExpenses/Total | 1 | 19500 |
| IRS990/OtherExpenses/Total | 2 | 7725 |
| IRS990/OtherExpenses/Total | 3 | 5802 |
| IRS990/OtherRevenueCurrentYear | 0 | 185980 |
| IRS990/OtherRevenueMisc/BusinessCode | 0 | 621400 |
| IRS990/OtherRevenueMisc/Description | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMisc/RelatedOrExemptFunctionIncome | 0 | 33398 |
| IRS990/OtherRevenueMisc/TotalRevenueColumn | 0 | 33398 |
| IRS990/OtherRevenuePriorYear | 0 | 157905 |
| IRS990/OtherSalariesAndWages/Fundraising | 0 | 27169 |
| IRS990/OtherSalariesAndWages/ManagementAndGeneral | 0 | 19629 |
| IRS990/OtherSalariesAndWages/ProgramServices | 0 | 198258 |
| IRS990/OtherSalariesAndWages/Total | 0 | 245056 |
| IRS990/PartialLiquidation | 0 | 0 |
| IRS990/PayrollTaxes/Fundraising | 0 | 3790 |
| IRS990/PayrollTaxes/ManagementAndGeneral | 0 | 2738 |
| IRS990/PayrollTaxes/ProgramServices | 0 | 27655 |
| IRS990/PayrollTaxes/Total | 0 | 34183 |
| IRS990/PensionPlanContributions/Fundraising | 0 | 970 |
| IRS990/PensionPlanContributions/ManagementAndGeneral | 0 | 700 |
| IRS990/PensionPlanContributions/ProgramServices | 0 | 7075 |
| IRS990/PensionPlanContributions/Total | 0 | 8745 |
| IRS990/PermanentlyRestrictedNetAssets/BOY | 0 | 10000 |
| IRS990/PermanentlyRestrictedNetAssets/EOY | 0 | 10000 |
| IRS990/PledgesAndGrantsReceivable/BOY | 0 | 146057 |
| IRS990/PledgesAndGrantsReceivable/EOY | 0 | 242845 |
| IRS990/PoliticalActivities | 0 | 0 |
| IRS990/PremiumsPaid | 0 | 0 |
| IRS990/PrepaidExpensesDeferredCharges/BOY | 0 | 1332 |
| IRS990/PrepaidExpensesDeferredCharges/EOY | 0 | 4335 |
| IRS990/PriorExcessBenefitTransaction | 0 | 0 |
| IRS990/ProfessionalFundraising | 0 | 1 |
| IRS990/ProgramServiceRevenue/BusinessCode | 0 | 621400 |
| IRS990/ProgramServiceRevenueCY | 0 | 123019 |
| IRS990/ProgramServiceRevenue/Description | 0 | PATIENT CARE |
| IRS990/ProgramServiceRevenuePriorYear | 0 | 75226 |
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| IRS990/ProgramServiceRevenue/TotalRevenueColumn | 0 | 123019 |
| IRS990/ProhibitedTaxShelterTrans | 0 | 0 |
| IRS990/QuidProQuoContributions | 0 | 0 |
| IRS990/ReconcilationOtherChanges | 0 | 0 |
| IRS990/ReconcilationRevenueExpenses | 0 | -90403 |
| IRS990/RegularMonitoringEnforcement | 0 | 1 |
| IRS990/RelatedEntity | 0 | 0 |
| IRS990/RelatedOrgControlledEntity | 0 | 0 |
| IRS990/ReportFin48Footnote | 0 | 1 |
| IRS990/ReportInvestOthSecurities | 0 | 0 |
| IRS990/ReportLandBldgEquip | 0 | 1 |
| IRS990/ReportOtherAssets | 0 | 0 |
| IRS990/ReportOtherLiabilities | 0 | 0 |
| IRS990/ReportProgRelInvest | 0 | 0 |
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| IRS990/RevenuesLessExpensesCY | 0 | -90403 |
| IRS990/RevenuesLessExpensesPriorYear | 0 | -295737 |
| IRS990/SalariesEtcCurrentYear | 0 | 582452 |
| IRS990/SalariesEtcPriorYear | 0 | 522772 |
| IRS990/SavingsAndTempCashInvestments/BOY | 0 | 1194032 |
| IRS990/SavingsAndTempCashInvestments/EOY | 0 | 995324 |
| IRS990ScheduleA/AmountsSubstContributorsTotal | 0 | 1400908 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear | 0 | 529724 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year | 0 | 314464 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus2Years | 0 | 1429600 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus3Years | 0 | 401047 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus4Years | 0 | 552686 |
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| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year | 0 | 6720 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus2Years | 0 | 13102 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus3Years | 0 | 25466 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus4Years | 0 | 34149 |
| IRS990ScheduleA/GrossInvestmentIncome170/Total | 0 | 83256 |
| IRS990ScheduleA/GrossReceiptsFromAdmissionsEtc | 0 | 423366 |
| IRS990ScheduleA/NetUBI/CurrentTaxYear | 0 | 9000 |
| IRS990ScheduleA/NetUBI/CurrentTaxYearMinus1Year | 0 | 9000 |
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| IRS990ScheduleA/PubliclySupportedOrg170b1Avi | 0 | X |
| IRS990ScheduleA/PublicSupportPertcentage170 | 0 | 0.54870 |
| IRS990ScheduleA/PublicSupportPertcentPriorYear | 0 | 0.48380 |
| IRS990ScheduleA/PublicSupportTotal170 | 0 | 1826613 |
| IRS990ScheduleA/ThirtyThreePercntTestsCY170 | 0 | X |
| IRS990ScheduleA/Total170/CurrentTaxYear | 0 | 529724 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year | 0 | 314464 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years | 0 | 1429600 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus3Years | 0 | 401047 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus4Years | 0 | 552686 |
| IRS990ScheduleA/Total170/Total | 0 | 3227521 |
| IRS990ScheduleA/TotalSupport | 0 | 3328777 |
| IRS990ScheduleB/ContributorInfo/AggregateContributions | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNumber | 0 | RESTRICTED |
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Displayed year
2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.