Civic Intelligence

Danny DID Foundation

990 • Fiscal year 2023 • EIN 27-1642251

Jan 01, 2023 to Dec 31, 2023 • Filed on Jun 06, 2024

Organization ProfileWWW.DANNYDID.ORG
3008 Central StreetEvanston, IL 60201

(773) 307-2336

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.03x

Higher debt load relative to assets than 42% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

46th percentile

0.07x

Higher debt load relative to revenue than 46% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

75th percentile

21%

Higher net margin than 75% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

86th percentile

$165,863

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 10.5% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

73rd percentile

17%

Faster asset growth than 73% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

52nd percentile

8.1%

Faster revenue growth than 52% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets42nd percentile

Assets

Up

$2,995,274

Up $430,840 (+17%) from 2022

Net Assets

Up

$2,892,358

Up $345,792 (+14%) from 2022

Liabilities

Up

$102,916

Up $85,048 (+476%) from 2022

Revenue And Expenses
Liabilities / Revenue46th percentileNet Margin75th percentile

Revenue

Up

$1,572,464

Up $117,753 (+8.1%) from 2022

Expenses

Up

$1,248,428

Up $291,038 (+30%) from 2022

Net Income

Down

$324,036

Down $173,285 (-35%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $127,822Liabilities 2011: $9Net Assets 2011: $127,8132011Assets 2012: $109,863Liabilities 2012: $6,020Net Assets 2012: $103,8432012Assets 2013: $852,744Liabilities 2013: $63,895Net Assets 2013: $788,8492013Assets 2014: $855,538Liabilities 2014: $59,012Net Assets 2014: $796,5262014Assets 2015: $816,078Liabilities 2015: $7,640Net Assets 2015: $808,4382015Assets 2016: $847,898Liabilities 2016: $8,467Net Assets 2016: $839,4312016Assets 2017: $1,016,876Liabilities 2017: $30,929Net Assets 2017: $985,9472017Assets 2018: $1,077,601Liabilities 2018: $21,112Net Assets 2018: $1,056,4892018Assets 2019: $1,427,142Liabilities 2019: $14,122Net Assets 2019: $1,413,0202019Assets 2020: $1,607,280Liabilities 2020: $51,468Net Assets 2020: $1,555,8122020Assets 2021: $2,130,382Liabilities 2021: $10,039Net Assets 2021: $2,120,3432021Assets 2022: $2,564,434Liabilities 2022: $17,868Net Assets 2022: $2,546,5662022Assets 2023: $2,995,274Liabilities 2023: $102,916Net Assets 2023: $2,892,3582023Assets 2024: $3,226,076Liabilities 2024: $86,210Net Assets 2024: $3,139,8662024

Highlighted filing

2023

Assets$2,995,274
Liabilities$102,916
Net Assets$2,892,358
Open 2023 Filing

Operations Trend

Revenue Growth52nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $258,0702011Expenses 2012: $320,6932012Revenue 2013: $1,102,852Expenses 2013: $431,665Net Income 2013: $671,1872013Revenue 2014: $343,038Expenses 2014: $373,884Net Income 2014: -$30,8462014Revenue 2015: $441,454Expenses 2015: $408,075Net Income 2015: $33,3792015Revenue 2016: $485,070Expenses 2016: $495,442Net Income 2016: -$10,3722016Revenue 2017: $614,786Expenses 2017: $506,382Net Income 2017: $108,4042017Revenue 2018: $654,253Expenses 2018: $569,361Net Income 2018: $84,8922018Revenue 2019: $837,930Expenses 2019: $592,655Net Income 2019: $245,2752019Revenue 2020: $701,745Expenses 2020: $573,688Net Income 2020: $128,0572020Revenue 2021: $1,124,024Expenses 2021: $648,162Net Income 2021: $475,8622021Revenue 2022: $1,454,711Expenses 2022: $957,390Net Income 2022: $497,3212022Revenue 2023: $1,572,464Expenses 2023: $1,248,428Net Income 2023: $324,0362023Revenue 2024: $1,697,246Expenses 2024: $1,466,629Net Income 2024: $230,6172024

Highlighted filing

2023

Revenue$1,572,464
Expenses$1,248,428
Net Income$324,036
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jun 6, 2024
Return Version
2023v5.0
Gross Receipts
$1,895,230
Mission and Program Overview

Mission

Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,058,886$1,929,206▲ $870,320
Cash and Non-Interest-Bearing Accounts$1,461,424$950,524▼ $510,900
Pledges and Grants Receivable$34,221$25,785▼ $8,436
Inventories for Sale or Use$3,399$6,913▲ $3,514
Land, Buildings, and Equipment, Net$6,504$4,042▼ $2,462
Prepaid Expenses and Deferred Charges-$1,116-
Total Assets$2,564,434$2,995,274▲ $430,840
Other Assets Total$0$77,688▲ $77,688
Liabilities
Other Liabilities$0$77,873▲ $77,873
Accounts Payable and Accrued Expenses$17,868$25,043▲ $7,175
Total Liabilities$17,868$102,916▲ $85,048
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,546,566$2,892,358▲ $345,792
Total Net Assets Fund Balance$2,546,566$2,892,358▲ $345,792
Total Liabilities and Net Assets / Fund Balance$2,564,434$2,995,274▲ $430,840

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$3,493$32,892$36,385
Equipment$549$18,396$18,945
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Thomas F StantonPresidentFT$165,863$165,863
Mary DuffyExecutive DirectorFT$112,114$112,114

Board Members and Trustees

NameTitle
Kurt FlorianBoard President
Caroline McateerVice President
Jeanine McsheaDirector
Jennifer SimeDirector
Jennifer StonerDirector
John WrennDirector
Julie DixDirector
Kari HeidemanDirector
Katie OnsagerDirector
Lynn HanleyDirector
Rebecca Garcia SosaDirector
Scot GillespieDirector
Tracy JablonskiDirector
Diane GarveySecretary
Josh GabbyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,672,029
Program Service Revenue
$0
Investment Income
$69,907
Other Revenue
$-169,472
All Other Contributions
$1,017,334
Change in Net Assets
$324,036

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table300$73,001Fair Market Value (FMV)
Other Non Cash Contri Table150$1,325Fair Market Value (FMV)
Other Non Cash Contri Table500$924Fair Market Value (FMV)
Other Non Cash Contri Table300$810Fair Market Value (FMV)
Total Noncash Contributions1,250$76,060-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,572,464
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$294,327
Total Revenue per Audited Statements
$1,866,791
Total Revenue per Form 990
$1,572,464
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$523,173
Salaries, Compensation, and Employee Benefits$385,056
Other Expenses$340,199
Total Fundraising Expense$162,810
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$493,173--$493,173
Current Officers, Directors, Trustees, and Key Employees$154,102$61,943$61,931$277,976
Office Expenses$404$8,905$66,790$76,099
Other Salaries and Wages$38,443$15,453$15,450$69,346
Fees for Services Other-$22,933$7,291$30,224
Grants to Domestic Orgs$30,000--$30,000
Fees for Services Accounting-$27,331-$27,331
Payroll Taxes$14,912$5,951$5,951$26,814
Occupancy-$24,185-$24,185
Travel$19,214$1,335-$20,549
Other Employee Benefits$6,552$2,184$2,184$10,920
Information Technology$7,788--$7,788
Insurance-$6,928-$6,928
Other Expenses$132,616$2,938$2,368$5,306
Fees for Services Legal-$4,167-$4,167
Depreciation Depletion-$4,161-$4,161
Conferences and Meetings--$591$591
Total Functional Expenses$897,204$188,414$162,810$1,248,428

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,520,999
Expenses per Audited Statements$1,248,428
Total Expenses per Form 990$1,248,428
Expenses Not Reported on Form 990$272,571
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
American Epilepsy SocietyChicago, IL501c3Epilepsy Research$15,000
Epilepsy FoundationBowie, MD501c3Epilepsy Research$15,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$245,071
Fundraising Gross Income$73,351
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Boa Marathon$178,330-$30,103-
Hearts and Hugs$547,132$73,351$136,532$-63,181
Total Events$728,046$73,351$245,071$-171,720
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$77,873
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Tom stanton, president, has a family relationship with michael stanton, co-founder.”

Form 990, Part VI, Section A, Line 8B

“There are no committees that may act on behalf of the full board of directors.”

Form 990, Part VI, Section B, Line 11B

“The form is first reviewed by the treasurer, executive director and president. The board members are then asked to review the form 990.”

Form 990, Part VI, Section B, Line 12C

“A. A person who has a conflict of interest shall not participate in or be permitted to hear the board's or committee's discussion of the matter except to disclose material facts and to respond to questions. Such person shall not attempt to exert his or her personal influence with respect to the matter, either at or outside the meeting. B. A person who has a conflict of interest with respect to a contract or transaction that will be voted on at a meeting shall not be counted in determining the presence of a quorum for purposes of the vote. The person having a conflict of interest may not vote on the contract or transaction and shall not be present in the meeting room when the vote is taken, unless the vote is by secret ballot such person's ineligibility to vote shall be reflected in the minutes of the meeting. For purposes of this paragraph, a member of the board of directors of danny did foundation has a conflict of interest when he or she stands for election as an officer or for re-election as a member of the board of directors.”

Form 990, Part VI, Section B, Line 15

“Board members compared relevant data and met to discuss and approve compensation.”

Form 990, Part VI, Section C, Line 19

“Copies of the organization's public documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Danny Did Foundation
EIN
27-1642251
Phone
7733072336
Address
3008 CENTRAL STREET, EVANSTON, IL 60201

Signing Officer

Name
Thomas Stanton
Title
President
Phone
7733072336
Signed
2024-06-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Thomas Stanton
Formed
2010
Legal Domicile
Il
Voting Board Members
15
Independent Board Members
15
Employees
5
Volunteers
125

Preparer

Firm
Sassetti LLC
Address
2107 SWIFT DRIVE SUITE 210, OAK BROOK, IL 60523
Preparer
Timothy G Griffith
Phone
7083861433
Supplemental Narrative

Additional Explanations

Form 990, Part V, Line 13A

“IL”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundrasing expense 245,071.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expense 245,071.”

Raw XML AppendixShowing 400 of 614 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt017868
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt025043
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES.
IRS990/AllOtherContributionsAmt01017334
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0TOM STANTON
IRS990/BooksInCareOfDetail/PhoneNum07733072336
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03008 CENTRAL STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0EVANSTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060201
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt01461424
IRS990/CashNonInterestBearingGrp/EOYAmt0950524
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt061931
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt061943
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0154102
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0277976
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt0591
IRS990/ConferencesMeetingsGrp/TotalAmt0591
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0654695
IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01672029
IRS990/CYGrantsAndSimilarPaidAmt0523173
IRS990/CYInvestmentIncomeAmt069907
IRS990/CYOtherExpensesAmt0340199
IRS990/CYOtherRevenueAmt0-169472
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0324036
IRS990/CYSalariesCompEmpBnftPaidAmt0385056
IRS990/CYTotalExpensesAmt01248428
IRS990/CYTotalFundraisingExpenseAmt0162810
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01572464
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd01
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt04161
IRS990/DepreciationDepletionGrp/TotalAmt04161
IRS990/Desc0THE FOUNDATION ADVANCES PUBLIC AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), STRIVES TO IMPROVE SUDEP DISCLOSURE BETWEEN MEDICAL PROFESSIONALS AND FAMILIES AFFECTED BY SEIZURES, AND ADVOCATES FOR THE MAINSTREAM ACCEPTANCE AND USE OF SEIZURE DETECTION AND PREDICTION DEVICES THAT MAY ASSIST IN PREVENTING SEIZURE-RELATED DEATHS. DANNY DID SUBSIDIZED 343 SEIZURE DETECTION DEVICES FOR FAMILIES IN FINANCIAL NEED AND HUNDREDS MORE WERE COUNSELED ON DEVICES AND WAYS TO PROTECT THEIR LOVED ONES LIVING WITH EPILEPSY. THIRTY-NINE FAMILIES WERE PROVIDED TRAVEL ASSISTANCE GRANTS SO THEY COULD ATTEND EPILEPSY EDUCATIONAL CONFERENCES. SUDEP AWARENESS WAS SHARED ON BILLBOARDS ALONG HIGHWAYS AND IN AIRPORTS, ON CABLE TELEVISION, AND ON SEVERAL RADIO STATIONS.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt05
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0897204
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt027331
IRS990/FeesForServicesAccountingGrp/TotalAmt027331
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt04167
IRS990/FeesForServicesLegalGrp/TotalAmt04167
IRS990/FeesForServicesOtherGrp/FundraisingAmt07291
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt022933
IRS990/FeesForServicesOtherGrp/TotalAmt030224
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt03.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt23.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt83.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt103.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt113.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt123.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt133.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt143.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1550.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1650.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0KURT FLORIAN
IRS990/Form990PartVIISectionAGrp/PersonNm1JULIE DIX
IRS990/Form990PartVIISectionAGrp/PersonNm2JOSH GABBY
IRS990/Form990PartVIISectionAGrp/PersonNm3DIANE GARVEY
IRS990/Form990PartVIISectionAGrp/PersonNm4LYNN HANLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KARI HEIDEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6TRACY JABLONSKI
IRS990/Form990PartVIISectionAGrp/PersonNm7JEANINE MCSHEA
IRS990/Form990PartVIISectionAGrp/PersonNm8CAROLINE MCATEER
IRS990/Form990PartVIISectionAGrp/PersonNm9JENNIFER SIME
IRS990/Form990PartVIISectionAGrp/PersonNm10JOHN WRENN
IRS990/Form990PartVIISectionAGrp/PersonNm11REBECCA GARCIA SOSA
IRS990/Form990PartVIISectionAGrp/PersonNm12SCOT GILLESPIE
IRS990/Form990PartVIISectionAGrp/PersonNm13KATIE ONSAGER
IRS990/Form990PartVIISectionAGrp/PersonNm14JENNIFER STONER
IRS990/Form990PartVIISectionAGrp/PersonNm15MARY DUFFY
IRS990/Form990PartVIISectionAGrp/PersonNm16THOMAS F STANTON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15112114
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16165863
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16PRESIDENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0654695
IRS990/FundraisingDirectExpensesAmt0245071
IRS990/FundraisingGrossIncomeAmt073351
IRS990/GainOrLossGrp/SecuritiesAmt026563
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt0523173
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0493173
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0493173
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt030000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt030000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0104258
IRS990/GrossReceiptsAmt01895230
IRS990/GrossSalesOfInventoryAmt02248
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt07788
IRS990/InformationTechnologyGrp/TotalAmt07788
IRS990/InsuranceGrp/ManagementAndGeneralAmt06928
IRS990/InsuranceGrp/TotalAmt06928
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03399
IRS990/InventoriesForSaleOrUseGrp/EOYAmt06913
IRS990/InvestmentIncomeGrp/ExclusionAmt043344
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt043344
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01058886
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01929206
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt051288
IRS990/LandBldgEquipBasisNetGrp/BOYAmt06504
IRS990/LandBldgEquipBasisNetGrp/EOYAmt04042
IRS990/LandBldgEquipCostOrOtherBssAmt055330
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt077695
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 3.4 MILLION PEOPLE ARE FACING THE CHALLENGES OF EPILEPSY IN THE U.S. AND MORE THAN 50 MILLION PEOPLE ARE AFFECTED BY EPILEPSY WORLDWIDE. THE ISSUE OF AGGRESSIVELY ADDRESSING SUDEP IS AS URGENT AS IT IS LOGICAL.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02546566
IRS990/NetAssetsOrFundBalancesEOYAmt02892358
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt026563
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt026563
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-171720
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-171720
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt02248
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt02248
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt021756
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02546566
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02892358
IRS990/NoncashContributionsAmt076060
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt024185
IRS990/OccupancyGrp/TotalAmt024185
IRS990/OfficeExpensesGrp/FundraisingAmt066790
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt08905
IRS990/OfficeExpensesGrp/ProgramServicesAmt0404
IRS990/OfficeExpensesGrp/TotalAmt076099
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt077688
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02184
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02184
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt06552
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010920
IRS990/OtherExpensesGrp/Desc0PUBLIC AWARENESS
IRS990/OtherExpensesGrp/Desc1PUBLIC RELATIONS
IRS990/OtherExpensesGrp/FundraisingAmt0254
IRS990/OtherExpensesGrp/FundraisingAmt12368
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02938
IRS990/OtherExpensesGrp/ProgramServicesAmt0132616
IRS990/OtherExpensesGrp/TotalAmt0132870
IRS990/OtherExpensesGrp/TotalAmt15306
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt077873
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt015450
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt015453
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt038443
IRS990/OtherSalariesAndWagesGrp/TotalAmt069346
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05951
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05951
IRS990/PayrollTaxesGrp/ProgramServicesAmt014912
IRS990/PayrollTaxesGrp/TotalAmt026814
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt034221
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt025785
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01116
IRS990/PrincipalOfficerNm0THOMAS STANTON
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01500488
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0304138
IRS990/PYInvestmentIncomeAmt049782
IRS990/PYOtherExpensesAmt0306590
IRS990/PYOtherRevenueAmt0-95559
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0497321
IRS990/PYSalariesCompEmpBnftPaidAmt0346662
IRS990/PYTotalExpensesAmt0957390
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01454711
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0324036
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01672029
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01500488
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01058514
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0306064
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0833388
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt05370483
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt043344
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt024481
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt021719
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt022732
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt039068
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0151344
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt04692
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97000
IRS990ScheduleA/PublicSupportPY170Pct00.97320
IRS990ScheduleA/PublicSupportTotal170Amt05355920
IRS990ScheduleA/SubstantialContributorsTotAmt014563
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01672029
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01500488
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01058514
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0306064
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0833388
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt05370483
IRS990ScheduleA/TotalSupportAmt05521827
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt027500
IRS990ScheduleD/DonatedServicesUseFcltsAmt027500
IRS990ScheduleD/EquipmentGrp/BookValueAmt0549
IRS990ScheduleD/EquipmentGrp/DepreciationAmt018396
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt018945
IRS990ScheduleD/ExpensesNotReportedAmt0272571
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01248428
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt03493
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt032892
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt036385
IRS990ScheduleD/NetUnrealizedGainsInvstAmt021756
IRS990ScheduleD/OtherExpensesIncludedAmt0245071
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt077873
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0LEASE LIABILITY
IRS990ScheduleD/OtherRevenueAmt0245071
IRS990ScheduleD/RevenueNotReportedAmt0294327
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,995,274
Liabilities
$102,916
Net assets
$2,892,358
Revenue
$1,572,464
Expenses
$1,248,428
Net income
$324,036
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.23$0.09$3.14$1.70$1.47$0.23
2023Detailed filing. Detailed filing data is available for this year.$3.00$0.10$2.89$1.57$1.25$0.32
2022Detailed filing. Detailed filing data is available for this year.$2.56$0.02$2.55$1.45$0.96$0.50
2021Detailed filing. Detailed filing data is available for this year.$2.13$0.01$2.12$1.12$0.65$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.61$0.05$1.56$0.70$0.57$0.13
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.41$0.84$0.59$0.25
2018Detailed filing. Detailed filing data is available for this year.$1.08$0.02$1.06$0.65$0.57$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.02$0.03$0.99$0.61$0.51$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.85$0.01$0.84$0.49$0.50$0.01
2015Detailed filing. Detailed filing data is available for this year.$0.82$0.01$0.81$0.44$0.41$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.86$0.06$0.80$0.34$0.37$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.85$0.06$0.79$1.10$0.43$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.11$0.01$0.10$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.13$0.00$0.13$0.26