Danny DID Foundation

“An executive director/employee and a board member are related. However, the executive director is not a board member nor does he participate in votes.”

“The form is first reviewed by the treasurer, coo and executive director. The board members are then asked to review the form 990.”

“Board members are asked to disclose any potential conflicts of interest. All contracts are vetted by ddf staff and legal counsel for potential conflicts of interest. Any person with a conflict of interest cannot take part in votes related to that interest.”

“Board members compared relevant data and met to discuss and approve compensation.”

“Copies of the organization's public documents are available upon request.”

“Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.”

“Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.”

“The danny did foundation holds as its main goals 1) advancing awareness of epilepsy and sudden unexpected death in epilepsy (sudep), 2) enhancing the sudep communication model between medical professionals and families who are impacted by seizures, and 3) the mainstreaming of devices and technologies that may assist in preventing deaths caused by seizures. Danny did achieved these goals by subsidizing the cost of the emfit movement monitor for 36 families in need, subsidizing the cost of the smartwatch device for 28 families in need, subsidizing the cost of sami alert devices for 62 families in need, subsidizing the cost of sleep safe anti-suffocation pillows for 85 families in need; subsidizing the cost of pulseguard devices for 26 families in need; and counseling hundreds of additional families regarding these options. Danny did also reached its goals via the distribution of its seizure safety and sudep brochures to hospitals, doctors, advocates and families nationwide, in both english and spanish; by using print ads, radio ads, billboards and social media to advance awareness and education; by sponsoring sudep-related events; and by presenting at conferences, schools and meetings across the country to spread understanding and tolerance for seizures and people with epilepsy. Danny did also funded scholarships for 29 families to attend the epilepsy educational expo and awareness day at disneyland.”