Civic Intelligence

Danny DID Foundation

EIN 27-1642251 • 501(c)3 • Evanston, IL

Profile

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures. 3.4 million people are facing the challenges of epilepsy in the u.s. And more than 50 million people are affected by epilepsy worldwide. The issue of aggressively addressing sudep is as urgent as it is logical.

3008 Central StreetEvanston, IL 60201

www.dannydid.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.03x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

44th percentile

0.05x

Higher debt load relative to revenue than 44% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

66th percentile

14%

Higher net margin than 66% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

73rd percentile

15%

Faster asset growth than 73% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2024

Revenue Growth

62nd percentile

15%

Faster revenue growth than 62% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$3,226,076

Up $230,802 (+7.7%) from 2023

Liabilities

Down

$86,210

Down $16,706 (-16%) from 2023

Net Assets

Up

$3,139,866

Up $247,508 (+8.6%) from 2023

Operations
Liabilities / Revenue44th percentileNet Margin66th percentile

Revenue

Up

$1,697,246

Up $124,782 (+7.9%) from 2023

Expenses

Up

$1,466,629

Up $218,201 (+17%) from 2023

Net Income

Down

$230,617

Down $93,419 (-29%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth73rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $127,822Liabilities 2011: $9Net Assets 2011: $127,8132011Assets 2012: $109,863Liabilities 2012: $6,020Net Assets 2012: $103,8432012Assets 2013: $852,744Liabilities 2013: $63,895Net Assets 2013: $788,8492013Assets 2014: $855,538Liabilities 2014: $59,012Net Assets 2014: $796,5262014Assets 2015: $816,078Liabilities 2015: $7,640Net Assets 2015: $808,4382015Assets 2016: $847,898Liabilities 2016: $8,467Net Assets 2016: $839,4312016Assets 2017: $1,016,876Liabilities 2017: $30,929Net Assets 2017: $985,9472017Assets 2018: $1,077,601Liabilities 2018: $21,112Net Assets 2018: $1,056,4892018Assets 2019: $1,427,142Liabilities 2019: $14,122Net Assets 2019: $1,413,0202019Assets 2020: $1,607,280Liabilities 2020: $51,468Net Assets 2020: $1,555,8122020Assets 2021: $2,130,382Liabilities 2021: $10,039Net Assets 2021: $2,120,3432021Assets 2022: $2,564,434Liabilities 2022: $17,868Net Assets 2022: $2,546,5662022Assets 2023: $2,995,274Liabilities 2023: $102,916Net Assets 2023: $2,892,3582023Assets 2024: $3,226,076Liabilities 2024: $86,210Net Assets 2024: $3,139,8662024

Highlighted filing

2024

Assets$3,226,076
Liabilities$86,210
Net Assets$3,139,866
Open 2024 Filing

Operations Trend

Revenue Growth62nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $258,0702011Expenses 2012: $320,6932012Revenue 2013: $1,102,852Expenses 2013: $431,665Net Income 2013: $671,1872013Revenue 2014: $343,038Expenses 2014: $373,884Net Income 2014: -$30,8462014Revenue 2015: $441,454Expenses 2015: $408,075Net Income 2015: $33,3792015Revenue 2016: $485,070Expenses 2016: $495,442Net Income 2016: -$10,3722016Revenue 2017: $614,786Expenses 2017: $506,382Net Income 2017: $108,4042017Revenue 2018: $654,253Expenses 2018: $569,361Net Income 2018: $84,8922018Revenue 2019: $837,930Expenses 2019: $592,655Net Income 2019: $245,2752019Revenue 2020: $701,745Expenses 2020: $573,688Net Income 2020: $128,0572020Revenue 2021: $1,124,024Expenses 2021: $648,162Net Income 2021: $475,8622021Revenue 2022: $1,454,711Expenses 2022: $957,390Net Income 2022: $497,3212022Revenue 2023: $1,572,464Expenses 2023: $1,248,428Net Income 2023: $324,0362023Revenue 2024: $1,697,246Expenses 2024: $1,466,629Net Income 2024: $230,6172024

Highlighted filing

2024

Revenue$1,697,246
Expenses$1,466,629
Net Income$230,617
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,226,076
Liabilities
$86,210
Net assets
$3,139,866
Revenue
$1,697,246
Expenses
$1,466,629
Net income
$230,617
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.23$0.09$3.14$1.70$1.47$0.23
2023Detailed filing. Detailed filing data is available for this year.$3.00$0.10$2.89$1.57$1.25$0.32
2022Detailed filing. Detailed filing data is available for this year.$2.56$0.02$2.55$1.45$0.96$0.50
2021Detailed filing. Detailed filing data is available for this year.$2.13$0.01$2.12$1.12$0.65$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.61$0.05$1.56$0.70$0.57$0.13
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.41$0.84$0.59$0.25
2018Detailed filing. Detailed filing data is available for this year.$1.08$0.02$1.06$0.65$0.57$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.02$0.03$0.99$0.61$0.51$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.85$0.01$0.84$0.49$0.50$0.01
2015Detailed filing. Detailed filing data is available for this year.$0.82$0.01$0.81$0.44$0.41$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.86$0.06$0.80$0.34$0.37$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.85$0.06$0.79$1.10$0.43$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.11$0.01$0.10$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.13$0.00$0.13$0.26
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jun 18, 2025
Return Version
2024v5.1
Gross Receipts
$3,583,624
Mission and Program Overview

Mission

Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,929,206$2,048,011▲ $118,805
Cash and Non-Interest-Bearing Accounts$950,524$602,205▼ $348,319
Savings and Temporary Cash Investments-$444,226-
Pledges and Grants Receivable$25,785$69,470▲ $43,685
Inventories for Sale or Use$6,913$5,440▼ $1,473
Land, Buildings, and Equipment, Net$4,042$2,422▼ $1,620
Prepaid Expenses and Deferred Charges$1,116$0▼ $1,116
Total Assets$2,995,274$3,226,076▲ $230,802
Other Assets Total$77,688$54,302▼ $23,386
Liabilities
Other Liabilities$77,873$54,701▼ $23,172
Accounts Payable and Accrued Expenses$25,043$31,509▲ $6,466
Total Liabilities$102,916$86,210▼ $16,706
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,892,358$3,139,866▲ $247,508
Total Net Assets Fund Balance$2,892,358$3,139,866▲ $247,508
Total Liabilities and Net Assets / Fund Balance$2,995,274$3,226,076▲ $230,802

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,422$33,963$36,385
Leasehold Improvements$0$18,945$18,945
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Thomas F StantonPresidentFT$171,765$171,765
Mary DuffyExecutive DirectorFT$110,963$110,963

Board Members and Trustees

NameTitle
Kurt FlorianBoard President
Caroline McateerVice President
Jeanine McsheaDirector
Jennifer SimeDirector
Jennifer StonerDirector
John DreixlerDirector
John WrennDirector
Julie DixDirector
Kari HeidemanDirector
Katie OnsagerDirector
Lynn HanleyDirector
Rebecca Garcia SosaDirector
Scot GillespieDirector
Tracy JablonskiDirector
Diane GarveySecretary
Josh GabbyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,782,198
Program Service Revenue
$0
Investment Income
$94,533
Other Revenue
$-179,485
All Other Contributions
$1,003,054
Change in Net Assets
$230,617

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table300$68,689Fair Market Value (FMV)
Securities Publicly Traded1$24,717Fair Market Value (FMV)
Other Non Cash Contri Table150$1,520Fair Market Value (FMV)
Other Non Cash Contri Table300$840Fair Market Value (FMV)
Other Non Cash Contri Table500$610Fair Market Value (FMV)
Total Noncash Contributions1,251$96,376-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,697,246
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$651,286
Total Revenue per Audited Statements
$2,348,532
Total Revenue per Form 990
$1,697,246
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$698,710
Salaries, Compensation, and Employee Benefits$410,503
Other Expenses$357,416
Total Fundraising Expense$160,364
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$627,650--$627,650
Current Officers, Directors, Trustees, and Key Employees$164,727$56,695$61,306$282,728
Other Salaries and Wages$46,663$16,060$17,366$80,089
Grants to Domestic Orgs$71,060--$71,060
Office Expenses$102$11,092$56,109$67,303
Fees for Services Other-$53,736$8,223$61,959
Payroll Taxes$16,396$5,636$6,106$28,138
Occupancy-$26,215-$26,215
Other Employee Benefits$11,695$3,684$4,169$19,548
Travel$18,071$1,249-$19,320
Information Technology$10,293--$10,293
Insurance-$7,620-$7,620
Other Expenses$150,746$2,659$2,382$5,041
Fees for Service Investment Mgmnt Fees-$2,596-$2,596
Depreciation Depletion-$1,620-$1,620
Conferences and Meetings--$369$369
Total Functional Expenses$1,117,403$188,862$160,364$1,466,629

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,101,024
Expenses per Audited Statements$1,466,628
Total Expenses per Form 990$1,466,628
Expenses Not Reported on Form 990$634,396
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Epilepsy FoundationBowie, MD501c3Support for Epilepsy Community Events & Conferences$25,000
American Epilepsy SocietyChicago, IL501c3Support for Sudep Educational Conference$15,000
Row FoundationNaperville, IL501c3Support for Sudep Education$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$238,947
Fundraising Gross Income$57,900
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Boa Marathon$179,861---
Hearts and Hugs$629,939$57,900$178,220$-120,320
Total Events$837,044$57,900$238,947$-181,047
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Brenden DuffyFamily Relationship to Mary DuffyEmployee of OrganizationNo$11,508
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$54,701
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Tom stanton, president, has a family relationship with michael stanton, co-founder.”

Form 990, Part VI, Section A, Line 8B

“There are no committees that may act on behalf of the full board of directors.”

Form 990, Part VI, Section B, Line 11B

“The form is first reviewed by the treasurer, executive director and president. The board members are then asked to review the form 990.”

Form 990, Part VI, Section B, Line 12C

“A. A person who has a conflict of interest shall not participate in or be permitted to hear the board's or committee's discussion of the matter except to disclose material facts and to respond to questions. Such person shall not attempt to exert his or her personal influence with respect to the matter, either at or outside the meeting. B. A person who has a conflict of interest with respect to a contract or transaction that will be voted on at a meeting shall not be counted in determining the presence of a quorum for purposes of the vote. The person having a conflict of interest may not vote on the contract or transaction and shall not be present in the meeting room when the vote is taken, unless the vote is by secret ballot such person's ineligibility to vote shall be reflected in the minutes of the meeting. For purposes of this paragraph, a member of the board of directors of danny did foundation has a conflict of interest when he or she stands for election as an officer or for re-election as a member of the board of directors.”

Form 990, Part VI, Section B, Line 15

“Board members compared relevant data and met to discuss and approve compensation.”

Form 990, Part VI, Section C, Line 19

“Copies of the organization's public documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Danny Did Foundation
EIN
27-1642251
Phone
7733072336
Address
3008 CENTRAL STREET, EVANSTON, IL 60201

Signing Officer

Name
Thomas Stanton
Title
President
Phone
7733072336
Signed
2025-06-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Thomas Stanton
Formed
2010
Legal Domicile
Il
Voting Board Members
16
Independent Board Members
16
Employees
5
Volunteers
115

Preparer

Firm
Sassetti LLC
Address
2107 SWIFT DRIVE SUITE 210, OAK BROOK, IL 60523
Preparer
Timothy G Griffith
Phone
7083861433
Supplemental Narrative

Additional Explanations

Form 990, Part V, Line 13A

“IL”

Form 990, Part XII, Line 2C

“There were no changes to the audit selection process from the prior year.”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundrasing expense 238,947.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expense 238,947.”

Raw XML AppendixShowing 400 of 646 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES.
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IRS990/Desc0THE FOUNDATION ADVANCES PUBLIC AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), STRIVES TO IMPROVE SUDEP DISCLOSURE BETWEEN MEDICAL PROFESSIONALS AND FAMILIES AFFECTED BY SEIZURES, AND ADVOCATES FOR THE MAINSTREAM ACCEPTANCE AND USE OF SEIZURE DETECTION AND PREDICTION DEVICES THAT MAY ASSIST IN PREVENTING SEIZURE-RELATED DEATHS. IN 2024, DANNY DID SUBSIDIZED 712 SEIZURE DETECTION DEVICES FOR FAMILIES IN FINANCIAL NEED AND HUNDREDS MORE WERE COUNSELED ON DEVICES AND WAYS TO PROTECT THEIR LOVED ONES LIVING WITH EPILEPSY. IN 2024, THIRTY NINE FAMILIES WERE PROVIDED TRAVEL ASSISTANCE GRANTS SO THEY COULD ATTEND EPILEPSY EDUCATIONAL CONFERENCES. SUDEP AWARENESS WAS SHARED ON BILLBOARDS ALONG HIGHWAYS AND IN AIRPORTS, IN SPANISH ON BUILDING BOARDS THROUGHOUT CHICAGO, ON WEBMD, MEDSCAPE, STREAMING TV CHANNELS, ON ELEVEN RADIO STATIONS, THROUGHOUT CHICAGO ON A BUS, AND AT WALKS, CONFERENCES AND EXPOS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
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