Civic Intelligence

Danny DID Foundation

990 • Fiscal year 2021 • EIN 27-1642251

Jan 01, 2021 to Dec 31, 2021 • Filed on Sep 12, 2022

3008 Central StreetEvanston, IL 60201

(773) 307-2336

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

26th percentile

0.00x

Higher debt load relative to assets than 26% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

25th percentile

0.01x

Higher debt load relative to revenue than 25% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

83rd percentile

42%

Higher net margin than 83% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

83rd percentile

$143,092

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 12.7% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

79th percentile

33%

Faster asset growth than 79% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

80th percentile

60%

Faster revenue growth than 80% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$2,130,382

Up $523,102 (+33%) from 2020

Net Assets

Up

$2,120,343

Up $564,531 (+36%) from 2020

Liabilities

Down

$10,039

Down $41,429 (-80%) from 2020

Revenue

Up

$1,124,024

Up $422,279 (+60%) from 2020

Expenses

Up

$648,162

Up $74,474 (+13%) from 2020

Net Income

Up

$475,862

Up $347,805 (+272%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $127,822Liabilities 2011: $9Net Assets 2011: $127,8132011Assets 2012: $109,863Liabilities 2012: $6,020Net Assets 2012: $103,8432012Assets 2013: $852,744Liabilities 2013: $63,895Net Assets 2013: $788,8492013Assets 2014: $855,538Liabilities 2014: $59,012Net Assets 2014: $796,5262014Assets 2015: $816,078Liabilities 2015: $7,640Net Assets 2015: $808,4382015Assets 2016: $847,898Liabilities 2016: $8,467Net Assets 2016: $839,4312016Assets 2017: $1,016,876Liabilities 2017: $30,929Net Assets 2017: $985,9472017Assets 2018: $1,077,601Liabilities 2018: $21,112Net Assets 2018: $1,056,4892018Assets 2019: $1,427,142Liabilities 2019: $14,122Net Assets 2019: $1,413,0202019Assets 2020: $1,607,280Liabilities 2020: $51,468Net Assets 2020: $1,555,8122020Assets 2021: $2,130,382Liabilities 2021: $10,039Net Assets 2021: $2,120,3432021Assets 2022: $2,564,434Liabilities 2022: $17,868Net Assets 2022: $2,546,5662022Assets 2023: $2,995,274Liabilities 2023: $102,916Net Assets 2023: $2,892,3582023Assets 2024: $3,226,076Liabilities 2024: $86,210Net Assets 2024: $3,139,8662024

Highlighted filing

2021

Assets$2,130,382
Liabilities$10,039
Net Assets$2,120,343

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $258,0702011Expenses 2012: $320,6932012Revenue 2013: $1,102,852Expenses 2013: $431,665Net Income 2013: $671,1872013Revenue 2014: $343,038Expenses 2014: $373,884Net Income 2014: -$30,8462014Revenue 2015: $441,454Expenses 2015: $408,075Net Income 2015: $33,3792015Revenue 2016: $485,070Expenses 2016: $495,442Net Income 2016: -$10,3722016Revenue 2017: $614,786Expenses 2017: $506,382Net Income 2017: $108,4042017Revenue 2018: $654,253Expenses 2018: $569,361Net Income 2018: $84,8922018Revenue 2019: $837,930Expenses 2019: $592,655Net Income 2019: $245,2752019Revenue 2020: $701,745Expenses 2020: $573,688Net Income 2020: $128,0572020Revenue 2021: $1,124,024Expenses 2021: $648,162Net Income 2021: $475,8622021Revenue 2022: $1,454,711Expenses 2022: $957,390Net Income 2022: $497,3212022Revenue 2023: $1,572,464Expenses 2023: $1,248,428Net Income 2023: $324,0362023Revenue 2024: $1,697,246Expenses 2024: $1,466,629Net Income 2024: $230,6172024

Highlighted filing

2021

Revenue$1,124,024
Expenses$648,162
Net Income$475,862
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Sep 12, 2022
Return Version
2021v4.2
Gross Receipts
$1,286,957
Mission and Program Overview

Mission

Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$694,376$1,118,409▲ $424,033
Investments in Publicly Traded Securities$842,150$966,045▲ $123,895
Pledges and Grants Receivable$49,685$32,635▼ $17,050
Land, Buildings, and Equipment, Net$15,776$10,897▼ $4,879
Inventories for Sale or Use$5,293$2,396▼ $2,897
Total Assets$1,607,280$2,130,382▲ $523,102
Liabilities
Other Liabilities$45,917$0▼ $45,917
Accounts Payable and Accrued Expenses$5,551$10,039▲ $4,488
Total Liabilities$51,468$10,039▼ $41,429
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,555,812$2,120,343▲ $564,531
Total Net Assets Fund Balance$1,555,812$2,120,343▲ $564,531
Total Liabilities and Net Assets / Fund Balance$1,607,280$2,130,382▲ $523,102

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$10,897$42,734$53,631
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Thomas F StantonExecutive DirectorFT$143,092$143,092
Mary DuffyAsst Executive DirectorFT$96,330$96,330

Board Members and Trustees

NameTitle
Kurt FlorianPresident
Jennifer SimeVice President
Caroline McateerDirector
Dan KotowskiDirector
Diane GarveyDirector
Dr Jerry LuoDirector
Jeanine McsheaDirector
John WrennDirector
Julie DixDirector
Kari HeidemanDirector
Margaret StoreyDirector
Mike StantonDirector
Tracy JablonskiDirector
Lynn HanleySecretary
Josh GabbyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,058,514
Program Service Revenue
$0
Investment Income
$64,060
Other Revenue
$1,450
All Other Contributions
$518,843
Change in Net Assets
$475,862

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,124,024
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$141,528
Total Revenue per Audited Statements
$1,265,552
Total Revenue per Form 990
$1,124,024
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$272,774
Other Expenses$221,916
Grants and Similar Amounts Paid$153,472
Total Fundraising Expense$110,774
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$119,711$59,856$59,855$239,422
Grants to Domestic Individuals$153,472--$153,472
Fees for Services Management-$38,250-$38,250
Occupancy-$24,000-$24,000
Payroll Taxes$9,637$4,819$4,819$19,275
Other Salaries and Wages$4,689$2,344$2,345$9,378
Office Expenses-$7,042-$7,042
Insurance-$6,307-$6,307
Advertising-$1,457$3,578$5,035
Depreciation Depletion-$4,879-$4,879
Other Employee Benefits$2,349$1,175$1,175$4,699
Information Technology$4,548--$4,548
Other Expenses$101$2,315$3,920$3,920
Travel$1,959$929$355$3,243
All Other Expenses-$417-$417
Total Functional Expenses$383,584$153,804$110,774$648,162

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$701,021
Expenses per Audited Statements$648,162
Total Expenses per Form 990$648,162
Expenses Not Reported on Form 990$52,859
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$114,092
Fundraising Gross Income$114,092
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hearts and Hugs$412,065$90,223$90,223$0
Boa Mara$109,862$21,675-$21,675
Total Events$564,529$114,092$114,092$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Tom stanton, executive director, has a family relationship with michael stanton, director.

Form 990, Part VI, Section A, Line 8B

There are no committees that may act on behalf of the full board of directors.

Form 990, Part VI, Section B, Line 11B

The form is first reviewed by the treasurer, assistant executive director, and executive director. The board members are then asked to review the form 990.

Form 990, Part VI, Section B, Line 12C

A. A person who has a conflict of interest shall not participate in or be permitted to hear the board's or committee's discussion of the matter except to disclose material facts and to respond to questions. Such person shall not attempt to exert his or her personal influence with respect to the matter, either at or outside the meeting. B. A person who has a conflict of interest with respect to a contract or transaction that will be voted on at a meeting shall not be counted in determining the presence of a quorum for purposes of the vote. The person having a conflict of interest may not vote on the contract or transaction and shall not be present in the meeting room when the vote is taken, unless the vote is by secret ballot such person's ineligibility to vote shall be reflected in the minutes of the meeting. For purposes of this paragraph, a member of the board of directors of danny did foundation has a conflict of interest when he or she stands for election as an officer or for re-election as a member of the board of directors.

Form 990, Part VI, Section B, Line 15

Board members compared relevant data and met to discuss and approve compensation.

Form 990, Part VI, Section C, Line 19

Copies of the organization's public documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Danny Did Foundation
EIN
27-1642251
Phone
7733072336
Address
3008 CENTRAL STREET, EVANSTON, IL 60201

Signing Officer

Name
Thomas Stanton
Title
Executive Director
Phone
7733072336
Signed
2022-09-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Thomas Stanton
Formed
2010
Legal Domicile
Il
Voting Board Members
15
Independent Board Members
15
Employees
4
Volunteers
20

Preparer

Firm
Sassetti LLC
Address
2107 SWIFT DRIVE SUITE 210, OAK BROOK, IL 60523
Preparer
Jeff Schroeder
Phone
7083861433
Supplemental Narrative

Additional Explanations

Form 990, Part V, Line 13A

IL

Raw XML AppendixShowing 400 of 525 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt05551
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt010039
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES.
IRS990/AdvertisingGrp/FundraisingAmt03578
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01457
IRS990/AdvertisingGrp/TotalAmt05035
IRS990/AllOtherContributionsAmt0518843
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0417
IRS990/AllOtherExpensesGrp/TotalAmt0417
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0TOM STANTON
IRS990/BooksInCareOfDetail/PhoneNum07733072336
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03008 CENTRAL STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0EVANSTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060201
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0694376
IRS990/CashNonInterestBearingGrp/EOYAmt01118409
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt059855
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt059856
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0119711
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0239422
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0450437
IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01058514
IRS990/CYGrantsAndSimilarPaidAmt0153472
IRS990/CYInvestmentIncomeAmt064060
IRS990/CYOtherExpensesAmt0221916
IRS990/CYOtherRevenueAmt01450
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0475862
IRS990/CYSalariesCompEmpBnftPaidAmt0272774
IRS990/CYTotalExpensesAmt0648162
IRS990/CYTotalFundraisingExpenseAmt0110774
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01124024
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt04879
IRS990/DepreciationDepletionGrp/TotalAmt04879
IRS990/Desc0THE DANNY DID FOUNDATION HOLDS AS ITS MAIN GOALS 1) ADVANCING AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), 2) ENHANCING THE SUDEP COMMUNICATION MODEL BETWEEN MEDICAL PROFESSIONALS AND FAMILIES WHO ARE IMPACTED BY SEIZURES, AND 3) THE MAINSTREAMING OF DEVICES AND TECHNOLOGIES THAT MAY ASSIST IN PREVENTING DEATHS CAUSED BY SEIZURES. DANNY DID ACHIEVED THESE GOALS BY SUBSIDIZING THE COST OF THE EMFIT MOVEMENT MONITOR FOR 30 FAMILIES IN NEED, SUBSIDIZING THE COST OF THE SMARTWATCH DEVICE FOR 30 FAMILIES IN NEED, SUBSIDIZING THE COST OF SAMI ALERT DEVICES FOR 86 FAMILIES IN NEED, SUBSIDIZING THE COST OF SLEEP SAFE ANTISUFFOCATION PILLOWS FOR 7 FAMILIES IN NEED SUBSIDIZING THE COST OF PULSEGUARD DEVICES FOR 8 FAMILIES IN NEED AND COUNSELING HUNDREDS OF ADDITIONAL FAMILIES REGARDING THESE OPTIONS. DANNY DID ALSO REACHED ITS GOALS VIA THE DISTRIBUTION OF ITS SEIZURE SAFETY ANDSUDEP BROCHURES TO HOSPITALS, DOCTORS, ADVOCATES AND FAMILIES NATIONWIDE, IN BOTH ENGLISH AND SPANISH. DANNY DID USED RADIO ADS, CABLE TV PSA, AND SOCIAL MEDIA TO ADVANCE SUDEP AWARENESS AND EDUCATION AND BY SPONSORING SUDEP-RELATED EVENTS; AND BY PRESENTING AT ZOOM CONFERENCES AND MEETINGS ACROSS THE COUNTRY TO EDUCATE ON SUDEP.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0383584
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt038250
IRS990/FeesForServicesManagementGrp/TotalAmt038250
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt03.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt23.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt83.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt103.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt113.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt123.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt133.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt143.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1550.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1650.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0KURT FLORIAN
IRS990/Form990PartVIISectionAGrp/PersonNm1JULIE DIX
IRS990/Form990PartVIISectionAGrp/PersonNm2JOSH GABBY
IRS990/Form990PartVIISectionAGrp/PersonNm3DIANE GARVEY
IRS990/Form990PartVIISectionAGrp/PersonNm4LYNN HANLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KARI HEIDEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6TRACY JABLONSKI
IRS990/Form990PartVIISectionAGrp/PersonNm7DAN KOTOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm8DR JERRY LUO
IRS990/Form990PartVIISectionAGrp/PersonNm9JEANINE MCSHEA
IRS990/Form990PartVIISectionAGrp/PersonNm10CAROLINE MCATEER
IRS990/Form990PartVIISectionAGrp/PersonNm11JENNIFER SIME
IRS990/Form990PartVIISectionAGrp/PersonNm12MIKE STANTON
IRS990/Form990PartVIISectionAGrp/PersonNm13MARGARET STOREY
IRS990/Form990PartVIISectionAGrp/PersonNm14JOHN WRENN
IRS990/Form990PartVIISectionAGrp/PersonNm15MARY DUFFY
IRS990/Form990PartVIISectionAGrp/PersonNm16THOMAS F STANTON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1596330
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16143092
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15ASST EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0450437
IRS990/FundraisingDirectExpensesAmt0114092
IRS990/FundraisingGrossIncomeAmt0114092
IRS990/GainOrLossGrp/SecuritiesAmt042341
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GovernmentGrantsAmt089234
IRS990/GrantAmt0153472
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0153472
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0153472
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt091182
IRS990/GrossReceiptsAmt01286957
IRS990/GrossSalesOfInventoryAmt01450
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt04548
IRS990/InformationTechnologyGrp/TotalAmt04548
IRS990/InsuranceGrp/ManagementAndGeneralAmt06307
IRS990/InsuranceGrp/TotalAmt06307
IRS990/InventoriesForSaleOrUseGrp/BOYAmt05293
IRS990/InventoriesForSaleOrUseGrp/EOYAmt02396
IRS990/InvestmentIncomeGrp/ExclusionAmt021719
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt021719
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0842150
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0966045
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt042734
IRS990/LandBldgEquipBasisNetGrp/BOYAmt015776
IRS990/LandBldgEquipBasisNetGrp/EOYAmt010897
IRS990/LandBldgEquipCostOrOtherBssAmt053631
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt048841
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 3.4 MILLION PEOPLE ARE FACING THE CHALLENGES OF EPILEPSY IN THE U.S. AND MORE THAN 50 MILLION PEOPLE ARE AFFECTED BY EPILEPSY WORLDWIDE. THE ISSUE OF AGGRESSIVELY ADDRESSING SUDEP IS AS URGENT AS IT IS LOGICAL.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01555812
IRS990/NetAssetsOrFundBalancesEOYAmt02120343
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt042341
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt042341
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt01450
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt01450
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt088669
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01555812
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02120343
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt024000
IRS990/OccupancyGrp/TotalAmt024000
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07042
IRS990/OfficeExpensesGrp/TotalAmt07042
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01175
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01175
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt02349
IRS990/OtherEmployeeBenefitsGrp/TotalAmt04699
IRS990/OtherExpensesGrp/Desc0PUBLIC AWARENESS
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2SERVICE PROVIDER FEES
IRS990/OtherExpensesGrp/Desc3GRANT ASSISTANCE
IRS990/OtherExpensesGrp/FundraisingAmt029842
IRS990/OtherExpensesGrp/FundraisingAmt14885
IRS990/OtherExpensesGrp/FundraisingAmt23920
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt014
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12315
IRS990/OtherExpensesGrp/ProgramServicesAmt087118
IRS990/OtherExpensesGrp/ProgramServicesAmt1101
IRS990/OtherExpensesGrp/TotalAmt087118
IRS990/OtherExpensesGrp/TotalAmt129957
IRS990/OtherExpensesGrp/TotalAmt27200
IRS990/OtherExpensesGrp/TotalAmt33920
IRS990/OtherLiabilitiesGrp/BOYAmt045917
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt02345
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt02344
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt04689
IRS990/OtherSalariesAndWagesGrp/TotalAmt09378
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04819
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04819
IRS990/PayrollTaxesGrp/ProgramServicesAmt09637
IRS990/PayrollTaxesGrp/TotalAmt019275
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt049685
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt032635
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0THOMAS STANTON
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0306064
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0162502
IRS990/PYInvestmentIncomeAmt010646
IRS990/PYOtherExpensesAmt0144780
IRS990/PYOtherRevenueAmt0385035
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0128057
IRS990/PYSalariesCompEmpBnftPaidAmt0266406
IRS990/PYTotalExpensesAmt0573688
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0701745
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0475862
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01058514
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0306064
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0833388
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0728571
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0671014
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt03597551
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt021719
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt022732
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt039068
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt013760
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt022292
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0119571
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01450
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.96780
IRS990ScheduleA/PublicSupportPY170Pct00.96420
IRS990ScheduleA/PublicSupportTotal170Amt03597551
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01058514
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0306064
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0833388
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0728571
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0671014
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03597551
IRS990ScheduleA/TotalSupportAmt03717122
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt052859
IRS990ScheduleD/DonatedServicesUseFcltsAmt052859
IRS990ScheduleD/EquipmentGrp/BookValueAmt010897
IRS990ScheduleD/EquipmentGrp/DepreciationAmt042734
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt053631
IRS990ScheduleD/ExpensesNotReportedAmt052859
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0648162
IRS990ScheduleD/NetUnrealizedGainsInvstAmt088669
IRS990ScheduleD/RevenueNotReportedAmt0141528
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01124024
IRS990ScheduleD/TotalBookValueLandBuildingsAmt010897
IRS990ScheduleD/TotalExpensesPerForm990Amt0648162
IRS990ScheduleD/TotalRevenuePerForm990Amt01124024
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01265552
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0701021
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0450437
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0321842
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt088187
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt040408
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0114092

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.23$0.09$3.14$1.70$1.47$0.23
2023Detailed filing. Detailed filing data is available for this year.$3.00$0.10$2.89$1.57$1.25$0.32
2022Detailed filing. Detailed filing data is available for this year.$2.56$0.02$2.55$1.45$0.96$0.50
2021Detailed filing. Detailed filing data is available for this year.$2.13$0.01$2.12$1.12$0.65$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.61$0.05$1.56$0.70$0.57$0.13
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.41$0.84$0.59$0.25
2018Detailed filing. Detailed filing data is available for this year.$1.08$0.02$1.06$0.65$0.57$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.02$0.03$0.99$0.61$0.51$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.85$0.01$0.84$0.49$0.50$0.01
2015Detailed filing. Detailed filing data is available for this year.$0.82$0.01$0.81$0.44$0.41$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.86$0.06$0.80$0.34$0.37$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.85$0.06$0.79$1.10$0.43$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.11$0.01$0.10$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.13$0.00$0.13$0.26