Civic Intelligence

Danny DID Foundation

990 • Fiscal year 2022 • EIN 27-1642251

Jan 01, 2022 to Dec 31, 2022 • Filed on Oct 02, 2023

Organization ProfileWWW.DANNYDID.ORG
3008 Central StreetEvanston, IL 60201

(773) 307-2336

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

28th percentile

0.01x

Higher debt load relative to assets than 28% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

27th percentile

0.01x

Higher debt load relative to revenue than 27% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

82nd percentile

34%

Higher net margin than 82% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

84th percentile

$150,338

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 10.3% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

77th percentile

20%

Faster asset growth than 77% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

73rd percentile

29%

Faster revenue growth than 73% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets28th percentile

Assets

Up

$2,564,434

Up $434,052 (+20%) from 2021

Net Assets

Up

$2,546,566

Up $426,223 (+20%) from 2021

Liabilities

Up

$17,868

Up $7,829 (+78%) from 2021

Revenue And Expenses
Liabilities / Revenue27th percentileNet Margin82nd percentile

Revenue

Up

$1,454,711

Up $330,687 (+29%) from 2021

Expenses

Up

$957,390

Up $309,228 (+48%) from 2021

Net Income

Up

$497,321

Up $21,459 (+4.5%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth77th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $127,822Liabilities 2011: $9Net Assets 2011: $127,8132011Assets 2012: $109,863Liabilities 2012: $6,020Net Assets 2012: $103,8432012Assets 2013: $852,744Liabilities 2013: $63,895Net Assets 2013: $788,8492013Assets 2014: $855,538Liabilities 2014: $59,012Net Assets 2014: $796,5262014Assets 2015: $816,078Liabilities 2015: $7,640Net Assets 2015: $808,4382015Assets 2016: $847,898Liabilities 2016: $8,467Net Assets 2016: $839,4312016Assets 2017: $1,016,876Liabilities 2017: $30,929Net Assets 2017: $985,9472017Assets 2018: $1,077,601Liabilities 2018: $21,112Net Assets 2018: $1,056,4892018Assets 2019: $1,427,142Liabilities 2019: $14,122Net Assets 2019: $1,413,0202019Assets 2020: $1,607,280Liabilities 2020: $51,468Net Assets 2020: $1,555,8122020Assets 2021: $2,130,382Liabilities 2021: $10,039Net Assets 2021: $2,120,3432021Assets 2022: $2,564,434Liabilities 2022: $17,868Net Assets 2022: $2,546,5662022Assets 2023: $2,995,274Liabilities 2023: $102,916Net Assets 2023: $2,892,3582023Assets 2024: $3,226,076Liabilities 2024: $86,210Net Assets 2024: $3,139,8662024

Highlighted filing

2022

Assets$2,564,434
Liabilities$17,868
Net Assets$2,546,566
Open 2022 Filing

Operations Trend

Revenue Growth73rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $258,0702011Expenses 2012: $320,6932012Revenue 2013: $1,102,852Expenses 2013: $431,665Net Income 2013: $671,1872013Revenue 2014: $343,038Expenses 2014: $373,884Net Income 2014: -$30,8462014Revenue 2015: $441,454Expenses 2015: $408,075Net Income 2015: $33,3792015Revenue 2016: $485,070Expenses 2016: $495,442Net Income 2016: -$10,3722016Revenue 2017: $614,786Expenses 2017: $506,382Net Income 2017: $108,4042017Revenue 2018: $654,253Expenses 2018: $569,361Net Income 2018: $84,8922018Revenue 2019: $837,930Expenses 2019: $592,655Net Income 2019: $245,2752019Revenue 2020: $701,745Expenses 2020: $573,688Net Income 2020: $128,0572020Revenue 2021: $1,124,024Expenses 2021: $648,162Net Income 2021: $475,8622021Revenue 2022: $1,454,711Expenses 2022: $957,390Net Income 2022: $497,3212022Revenue 2023: $1,572,464Expenses 2023: $1,248,428Net Income 2023: $324,0362023Revenue 2024: $1,697,246Expenses 2024: $1,466,629Net Income 2024: $230,6172024

Highlighted filing

2022

Revenue$1,454,711
Expenses$957,390
Net Income$497,321
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Oct 2, 2023
Return Version
2022v5.0
Gross Receipts
$1,642,593
Mission and Program Overview

Mission

Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.

To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (sudep), to protect people with epilepsy, and to prevent deaths caused by seizures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,118,409$1,461,424▲ $343,015
Investments in Publicly Traded Securities$966,045$1,058,886▲ $92,841
Pledges and Grants Receivable$32,635$34,221▲ $1,586
Land, Buildings, and Equipment, Net$10,897$6,504▼ $4,393
Inventories for Sale or Use$2,396$3,399▲ $1,003
Total Assets$2,130,382$2,564,434▲ $434,052
Liabilities
Accounts Payable and Accrued Expenses$10,039$17,868▲ $7,829
Total Liabilities$10,039$17,868▲ $7,829
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,120,343$2,546,566▲ $426,223
Total Net Assets Fund Balance$2,120,343$2,546,566▲ $426,223
Total Liabilities and Net Assets / Fund Balance$2,130,382$2,564,434▲ $434,052

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$2,635$32,051$34,686
Equipment$3,869$15,076$18,945
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Thomas F StantonExecutive DirectorFT$150,338$150,338
Mary DuffyAsst Executive DirectorFT$101,412$101,412

Board Members and Trustees

NameTitle
Kurt FlorianPresident
Jennifer SimeVice President
Caroline McateerDirector
Dan KotowskiDirector
Diane GarveyDirector
Dr Jerry LuoDirector
Jeanine McsheaDirector
John WrennDirector
Julie DixDirector
Kari HeidemanDirector
Margaret StoreyDirector
Mike StantonDirector
Tracy JablonskiDirector
Lynn HanleySecretary
Josh GabbyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,500,488
Program Service Revenue
$0
Investment Income
$49,782
Other Revenue
$-95,559
All Other Contributions
$854,858
Change in Net Assets
$497,321

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table300$41,452Fair Market Value (FMV)
Other Non Cash Contri Table300$2,400Fair Market Value (FMV)
Other Non Cash Contri Table150$1,950Fair Market Value (FMV)
Other Non Cash Contri Table500$1,828Fair Market Value (FMV)
Total Noncash Contributions1,250$47,630-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,454,711
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$103,227
Total Revenue per Audited Statements
$1,557,938
Total Revenue per Form 990
$1,454,711
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$346,662
Other Expenses$306,590
Grants and Similar Amounts Paid$304,138
Total Fundraising Expense$169,194
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$264,138--$264,138
Current Officers, Directors, Trustees, and Key Employees$137,396$57,177$57,177$251,750
Other Salaries and Wages$32,881$13,683$13,683$60,247
Office Expenses$401$8,686$34,858$43,945
Fees for Services Other-$38,514$5,137$43,651
Grants to Domestic Orgs$40,000--$40,000
Payroll Taxes$13,261$5,487$5,487$24,235
Occupancy-$24,000-$24,000
Fees for Services Accounting-$14,300-$14,300
Travel$10,958$1,234$919$13,111
Other Employee Benefits$6,160$2,135$2,135$10,430
Insurance-$6,428-$6,428
Information Technology$5,782--$5,782
Depreciation Depletion-$4,393-$4,393
Other Expenses$95,874$1,839$2,016$3,855
Fees for Services Legal-$3,469-$3,469
Total Functional Expenses$606,851$181,345$169,194$957,390

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,131,715
Expenses per Audited Statements$957,390
Total Expenses per Form 990$957,390
Expenses Not Reported on Form 990$174,325
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Epilepsy FoundationBowie, MD501c3Epilepsy Research$25,000
American Epilepsy SocietyChicago, IL501c3Epilepsy Research$15,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$146,825
Fundraising Gross Income$50,272
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Boa Marathon$149,443-$24,146-
Hearts and Hugs$542,593$50,272$120,958$-70,686
Total Events$695,902$50,272$146,825$-96,553
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Tom stanton, executive director, has a family relationship with michael stanton, director.”

Form 990, Part VI, Section A, Line 8B

“There are no committees that may act on behalf of the full board of directors.”

Form 990, Part VI, Section B, Line 11B

“The form is first reviewed by the treasurer, assistant executive director, and executive director. The board members are then asked to review the form 990.”

Form 990, Part VI, Section B, Line 12C

“A. A person who has a conflict of interest shall not participate in or be permitted to hear the board's or committee's discussion of the matter except to disclose material facts and to respond to questions. Such person shall not attempt to exert his or her personal influence with respect to the matter, either at or outside the meeting. B. A person who has a conflict of interest with respect to a contract or transaction that will be voted on at a meeting shall not be counted in determining the presence of a quorum for purposes of the vote. The person having a conflict of interest may not vote on the contract or transaction and shall not be present in the meeting room when the vote is taken, unless the vote is by secret ballot such person's ineligibility to vote shall be reflected in the minutes of the meeting. For purposes of this paragraph, a member of the board of directors of danny did foundation has a conflict of interest when he or she stands for election as an officer or for re-election as a member of the board of directors.”

Form 990, Part VI, Section B, Line 15

“Board members compared relevant data and met to discuss and approve compensation.”

Form 990, Part VI, Section C, Line 19

“Copies of the organization's public documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Danny Did Foundation
EIN
27-1642251
Phone
7733072336
Address
3008 CENTRAL STREET, EVANSTON, IL 60201

Signing Officer

Name
Thomas Stanton
Title
Executive Director
Phone
7733072336
Signed
2023-10-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Thomas Stanton
Formed
2010
Legal Domicile
Il
Voting Board Members
15
Independent Board Members
15
Employees
5
Volunteers
125

Preparer

Firm
Sassetti LLC
Address
2107 SWIFT DRIVE SUITE 210, OAK BROOK, IL 60523
Preparer
Timothy G Griffith
Phone
7083861433
Supplemental Narrative

Additional Explanations

Form 990, Part V, Line 13A

“IL”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“FUNDRASING EXPENSE”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“FUNDRAISING EXPENSE”

Raw XML AppendixShowing 400 of 603 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt010039
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt017868
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES.
IRS990/AllOtherContributionsAmt0854858
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0TOM STANTON
IRS990/BooksInCareOfDetail/PhoneNum07733072336
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03008 CENTRAL STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0EVANSTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060201
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt01118409
IRS990/CashNonInterestBearingGrp/EOYAmt01461424
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt057177
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt057177
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0137396
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0251750
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0645630
IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01500488
IRS990/CYGrantsAndSimilarPaidAmt0304138
IRS990/CYInvestmentIncomeAmt049782
IRS990/CYOtherExpensesAmt0306590
IRS990/CYOtherRevenueAmt0-95559
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0497321
IRS990/CYSalariesCompEmpBnftPaidAmt0346662
IRS990/CYTotalExpensesAmt0957390
IRS990/CYTotalFundraisingExpenseAmt0169194
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01454711
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd01
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt04393
IRS990/DepreciationDepletionGrp/TotalAmt04393
IRS990/Desc0THE FOUNDATION ADVANCES PUBLIC AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), STRIVES TO IMPROVE SUDEP DISCLOSURE BETWEEN MEDICAL PROFESSIONALS AND FAMILIES AFFECTED BY SEIZURES, AND ADVOCATES FOR THE MAINSTREAM ACCEPTANCE AND USE OF SEIZURE DETECTION AND PREDICTION DEVICES THAT MAY ASSIST IN PREVENTING SEIZURE-RELATED DEATHS. DANNY DID SUBSIDIZED 343 SEIZURE DETECTION DEVICES FOR FAMILIES IN FINANCIAL NEED AND HUNDREDS MORE WERE COUNSELED ON DEVICES AND WAYS TO PROTECT THEIR LOVED ONES LIVING WITH EPILEPSY. THIRTY-NINE FAMILIES WERE PROVIDED TRAVEL ASSISTANCE GRANTS SO THEY COULD ATTEND EPILEPSY EDUCATIONAL CONFERENCES. SUDEP AWARENESS WAS SHARED ON BILLBOARDS ALONG HIGHWAYS AND IN AIRPORTS, ON CABLE TELEVISION, AND ON SEVERAL RADIO STATIONS.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt05
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0606851
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt014300
IRS990/FeesForServicesAccountingGrp/TotalAmt014300
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt03469
IRS990/FeesForServicesLegalGrp/TotalAmt03469
IRS990/FeesForServicesOtherGrp/FundraisingAmt05137
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt038514
IRS990/FeesForServicesOtherGrp/TotalAmt043651
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt03.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt23.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt83.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt103.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt113.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt123.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt133.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt143.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1550.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1650.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0KURT FLORIAN
IRS990/Form990PartVIISectionAGrp/PersonNm1JULIE DIX
IRS990/Form990PartVIISectionAGrp/PersonNm2JOSH GABBY
IRS990/Form990PartVIISectionAGrp/PersonNm3DIANE GARVEY
IRS990/Form990PartVIISectionAGrp/PersonNm4LYNN HANLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KARI HEIDEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6TRACY JABLONSKI
IRS990/Form990PartVIISectionAGrp/PersonNm7DAN KOTOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm8DR JERRY LUO
IRS990/Form990PartVIISectionAGrp/PersonNm9JEANINE MCSHEA
IRS990/Form990PartVIISectionAGrp/PersonNm10CAROLINE MCATEER
IRS990/Form990PartVIISectionAGrp/PersonNm11JENNIFER SIME
IRS990/Form990PartVIISectionAGrp/PersonNm12MIKE STANTON
IRS990/Form990PartVIISectionAGrp/PersonNm13MARGARET STOREY
IRS990/Form990PartVIISectionAGrp/PersonNm14JOHN WRENN
IRS990/Form990PartVIISectionAGrp/PersonNm15MARY DUFFY
IRS990/Form990PartVIISectionAGrp/PersonNm16THOMAS F STANTON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15101412
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16150338
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15ASST EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02010
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0645630
IRS990/FundraisingDirectExpensesAmt0146825
IRS990/FundraisingGrossIncomeAmt050272
IRS990/GainOrLossGrp/SecuritiesAmt025301
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt0304138
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0264138
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0264138
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt040000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt040000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt066358
IRS990/GrossReceiptsAmt01642593
IRS990/GrossSalesOfInventoryAmt0994
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt05782
IRS990/InformationTechnologyGrp/TotalAmt05782
IRS990/InsuranceGrp/ManagementAndGeneralAmt06428
IRS990/InsuranceGrp/TotalAmt06428
IRS990/InventoriesForSaleOrUseGrp/BOYAmt02396
IRS990/InventoriesForSaleOrUseGrp/EOYAmt03399
IRS990/InvestmentIncomeGrp/ExclusionAmt024481
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt024481
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0966045
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01058886
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt047127
IRS990/LandBldgEquipBasisNetGrp/BOYAmt010897
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06504
IRS990/LandBldgEquipCostOrOtherBssAmt053631
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt041057
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVANCE PUBLIC AWARENESS OF EPILEPSY AND THE RISK OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), TO PROTECT PEOPLE WITH EPILEPSY, AND TO PREVENT DEATHS CAUSED BY SEIZURES. 3.4 MILLION PEOPLE ARE FACING THE CHALLENGES OF EPILEPSY IN THE U.S. AND MORE THAN 50 MILLION PEOPLE ARE AFFECTED BY EPILEPSY WORLDWIDE. THE ISSUE OF AGGRESSIVELY ADDRESSING SUDEP IS AS URGENT AS IT IS LOGICAL.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02120343
IRS990/NetAssetsOrFundBalancesEOYAmt02546566
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt025301
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt025301
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-96553
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-96553
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0994
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0994
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-71098
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02120343
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02546566
IRS990/NoncashContributionsAmt047630
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt024000
IRS990/OccupancyGrp/TotalAmt024000
IRS990/OfficeExpensesGrp/FundraisingAmt034858
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt08686
IRS990/OfficeExpensesGrp/ProgramServicesAmt0401
IRS990/OfficeExpensesGrp/TotalAmt043945
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02135
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02135
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt06160
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010430
IRS990/OtherExpensesGrp/Desc0PUBLIC AWARENESS
IRS990/OtherExpensesGrp/Desc1GIFTS AND AWARDS
IRS990/OtherExpensesGrp/Desc2PUBLIC RELATIONS
IRS990/OtherExpensesGrp/FundraisingAmt0152
IRS990/OtherExpensesGrp/FundraisingAmt147630
IRS990/OtherExpensesGrp/FundraisingAmt22016
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01839
IRS990/OtherExpensesGrp/ProgramServicesAmt095874
IRS990/OtherExpensesGrp/TotalAmt096026
IRS990/OtherExpensesGrp/TotalAmt147630
IRS990/OtherExpensesGrp/TotalAmt23855
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt013683
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt013683
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt032881
IRS990/OtherSalariesAndWagesGrp/TotalAmt060247
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05487
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05487
IRS990/PayrollTaxesGrp/ProgramServicesAmt013261
IRS990/PayrollTaxesGrp/TotalAmt024235
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt032635
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt034221
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0THOMAS STANTON
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01058514
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0153472
IRS990/PYInvestmentIncomeAmt064060
IRS990/PYOtherExpensesAmt0221916
IRS990/PYOtherRevenueAmt01450
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0475862
IRS990/PYSalariesCompEmpBnftPaidAmt0272774
IRS990/PYTotalExpensesAmt0648162
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01124024
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0497321
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01500488
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01058514
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0306064
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0833388
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0728571
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04427025
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt024481
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt021719
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt022732
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt039068
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt013760
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0121760
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt02444
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.97320
IRS990ScheduleA/PublicSupportPY170Pct00.96780
IRS990ScheduleA/PublicSupportTotal170Amt04427025
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01500488
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01058514
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0306064
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0833388
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0728571
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04427025
IRS990ScheduleA/TotalSupportAmt04548785
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt027500
IRS990ScheduleD/DonatedServicesUseFcltsAmt027500
IRS990ScheduleD/EquipmentGrp/BookValueAmt03869
IRS990ScheduleD/EquipmentGrp/DepreciationAmt015076
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt018945
IRS990ScheduleD/ExpensesNotReportedAmt0174325
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0957390
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt02635
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt032051
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt034686
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-71098
IRS990ScheduleD/OtherExpensesIncludedAmt0146825
IRS990ScheduleD/OtherRevenueAmt0146825
IRS990ScheduleD/RevenueNotReportedAmt0103227
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01454711
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0FUNDRASING EXPENSE
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSE
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt06504
IRS990ScheduleD/TotalExpensesPerForm990Amt0957390

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,564,434
Liabilities
$17,868
Net assets
$2,546,566
Revenue
$1,454,711
Expenses
$957,390
Net income
$497,321
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.23$0.09$3.14$1.70$1.47$0.23
2023Detailed filing. Detailed filing data is available for this year.$3.00$0.10$2.89$1.57$1.25$0.32
2022Detailed filing. Detailed filing data is available for this year.$2.56$0.02$2.55$1.45$0.96$0.50
2021Detailed filing. Detailed filing data is available for this year.$2.13$0.01$2.12$1.12$0.65$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.61$0.05$1.56$0.70$0.57$0.13
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.41$0.84$0.59$0.25
2018Detailed filing. Detailed filing data is available for this year.$1.08$0.02$1.06$0.65$0.57$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.02$0.03$0.99$0.61$0.51$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.85$0.01$0.84$0.49$0.50$0.01
2015Detailed filing. Detailed filing data is available for this year.$0.82$0.01$0.81$0.44$0.41$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.86$0.06$0.80$0.34$0.37$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.85$0.06$0.79$1.10$0.43$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.11$0.01$0.10$0.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.13$0.00$0.13$0.26