Civic Intelligence

1P36 Deletion Support & Awareness

990EZ • Fiscal year 2021 • EIN 26-4411797

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 13, 2022

Organization Profile1p36dsa.org
906 NE Greenwood Ave Ste 1Bend, OR 97701

(845) 545-5131

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2021

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2021

Net Margin

98th percentile

96%

Higher net margin than 98% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Asset Growth

58th percentile

12%

Faster asset growth than 58% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

23rd percentile

-36%

Faster revenue growth than 23% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

$288,493

Up $30,856 (+12%) from 2020

Net Assets

Up

$288,493

Up $30,856 (+12%) from 2020

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin98th percentile

Revenue

Down

$32,175

Down $17,775 (-36%) from 2020

Expenses

Down

$1,319

Down $358 (-21%) from 2020

Net Income

Down

$30,856

Down $17,417 (-36%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth58th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2016: $137,396Net Assets 2016: $137,3962016Assets 2017: $154,184Net Assets 2017: $154,1842017Assets 2018: $186,779Net Assets 2018: $186,7792018Assets 2019: $209,364Net Assets 2019: $209,3642019Assets 2020: $257,637Net Assets 2020: $257,6372020Assets 2021: $288,493Net Assets 2021: $288,4932021Assets 2022: $242,365Liabilities 2022: $0Net Assets 2022: $242,3652022Assets 2023: $260,194Liabilities 2023: $0Net Assets 2023: $260,1942023Assets 2024: $248,422Net Assets 2024: $248,4222024

Highlighted filing

2021

Assets$288,493
Liabilities-
Net Assets$288,493
Open 2021 Filing

Operations Trend

Revenue Growth23rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2016: $65,686Expenses 2016: $35,402Net Income 2016: $30,2842016Revenue 2017: $62,359Expenses 2017: $45,571Net Income 2017: $16,7882017Revenue 2018: $65,067Expenses 2018: $32,465Net Income 2018: $32,6022018Revenue 2019: $64,163Expenses 2019: $41,578Net Income 2019: $22,5852019Revenue 2020: $49,950Expenses 2020: $1,677Net Income 2020: $48,2732020Revenue 2021: $32,175Expenses 2021: $1,319Net Income 2021: $30,8562021Revenue 2022: $42,769Expenses 2022: $88,897Net Income 2022: -$46,1282022Revenue 2023: $63,315Expenses 2023: $45,486Net Income 2023: $17,8292023Revenue 2024: $50,273Expenses 2024: $62,045Net Income 2024: -$11,7722024

Highlighted filing

2021

Revenue$32,175
Expenses$1,319
Net Income$30,856
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 13, 2022
Return Version
2021v4.0
Gross Receipts
$36,803
Mission and Program Overview

Mission

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Each year we hold a conference that brings families, doctors and other speakers together to learn more about 1p36 Deletion Syndrome and learn how to help those impacted with the syndrome.

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Due to COVID we were unable to hold many of our yearly activities including the annual conference. The only activities this year were maintaining the website and facebook pages to provide support.

Program Services

DescriptionGrantsExpenses
Website design$0$0
Due to COVID we did not have a conference this year.$0$0
None$0$0
We have a facebook page website and answer emails for people who have questions$0$0
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenneth ShirtcliffPresidentPT$0--
Karen BessTreasurerPT$0--
Jennifer WinieckiSecretaryPT$0--
Filing and Contact Details

Filer

Filer Name
1p36 Deletion Support & Awareness
EIN
26-4411797
In Care Of
% Kenneth Shirtcliff
Address
906 NE Greenwood Ave Ste 1, Bend, OR 97701

Signing Officer

Name
Karen Bess
Title
Treasurer
Signed
2022-11-13
Discuss with paid preparer
No
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| Website Maintenance, $940.00| State & Government Payments to file Taxes, $226.00| Paypal Fees, $153.00|”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/PrimaryExemptPurposeTxt0Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Due to COVID we were unable to hold many of our yearly activities including the annual conference. The only activities this year were maintaining the website and facebook pages to provide support.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Other Expenses:, Amount:| Website Maintenance, $940.00| State & Government Payments to file Taxes, $226.00| Paypal Fees, $153.00|
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, line 16
ReturnHeader/BuildTS02022-09-23 18:48:47Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0Karen Bess
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02022-11-13
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt01P36 DELETION SUPPORT & AWARENESS
ReturnHeader/Filer/BusinessNameControlTxt01P36
ReturnHeader/Filer/EIN0264411797
ReturnHeader/Filer/ForeignPhoneNum08455455131
ReturnHeader/Filer/InCareOfNm0% Kenneth Shirtcliff
ReturnHeader/Filer/USAddress/AddressLine1Txt0906 NE Greenwood Ave Ste 1
ReturnHeader/Filer/USAddress/CityNm0Bend
ReturnHeader/Filer/USAddress/StateAbbreviationCd0OR
ReturnHeader/Filer/USAddress/ZIPCd097701
ReturnHeader/ReturnTs02022-11-13T08:43:54-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02021-01-01
ReturnHeader/TaxPeriodEndDt02021-12-31
ReturnHeader/TaxYr02021

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$288,493
Liabilities
-
Net assets
$288,493
Revenue
$32,175
Expenses
$1,319
Net income
$30,856
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.48$2.48$0.50$0.62$0.12
2023Detailed filing. Detailed filing data is available for this year.$2.60$0.00$2.60$0.63$0.45$0.18
2022Detailed filing. Detailed filing data is available for this year.$2.42$0.00$2.42$0.43$0.89$0.46
2021Detailed filing. Detailed filing data is available for this year.$2.88$2.88$0.32$0.01$0.31
2020Detailed filing. Detailed filing data is available for this year.$2.58$2.58$0.50$0.02$0.48
2019Detailed filing. Detailed filing data is available for this year.$2.09$2.09$0.64$0.42$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.87$1.87$0.65$0.32$0.33
2017Detailed filing. Detailed filing data is available for this year.$1.54$1.54$0.62$0.46$0.17
2016Detailed filing. Detailed filing data is available for this year.$1.37$1.37$0.66$0.35$0.30