Civic Intelligence

1P36 Deletion Support & Awareness

990EZ • Fiscal year 2016 • EIN 26-4411797

Jan 01, 2016 to Dec 31, 2016 • Filed on Dec 19, 2017

Organization Profile1p36dsa.org
906 NE Greenwood Ave Ste 1Bend, OR 97701

(845) 545-5131

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2016

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2016

Net Margin

91st percentile

46%

Higher net margin than 91% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2016

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2016

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

$137,396

No earlier filing loaded for comparison.

Net Assets

$137,396

No earlier filing loaded for comparison.

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin91st percentile

Revenue

$65,686

No earlier filing loaded for comparison.

Expenses

$35,402

No earlier filing loaded for comparison.

Net Income

$30,284

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2016: $137,396Net Assets 2016: $137,3962016Assets 2017: $154,184Net Assets 2017: $154,1842017Assets 2018: $186,779Net Assets 2018: $186,7792018Assets 2019: $209,364Net Assets 2019: $209,3642019Assets 2020: $257,637Net Assets 2020: $257,6372020Assets 2021: $288,493Net Assets 2021: $288,4932021Assets 2022: $242,365Liabilities 2022: $0Net Assets 2022: $242,3652022Assets 2023: $260,194Liabilities 2023: $0Net Assets 2023: $260,1942023Assets 2024: $248,422Net Assets 2024: $248,4222024

Highlighted filing

2016

Assets$137,396
Liabilities-
Net Assets$137,396
Open 2016 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2016: $65,686Expenses 2016: $35,402Net Income 2016: $30,2842016Revenue 2017: $62,359Expenses 2017: $45,571Net Income 2017: $16,7882017Revenue 2018: $65,067Expenses 2018: $32,465Net Income 2018: $32,6022018Revenue 2019: $64,163Expenses 2019: $41,578Net Income 2019: $22,5852019Revenue 2020: $49,950Expenses 2020: $1,677Net Income 2020: $48,2732020Revenue 2021: $32,175Expenses 2021: $1,319Net Income 2021: $30,8562021Revenue 2022: $42,769Expenses 2022: $88,897Net Income 2022: -$46,1282022Revenue 2023: $63,315Expenses 2023: $45,486Net Income 2023: $17,8292023Revenue 2024: $50,273Expenses 2024: $62,045Net Income 2024: -$11,7722024

Highlighted filing

2016

Revenue$65,686
Expenses$35,402
Net Income$30,284
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Dec 19, 2017
Return Version
2016v3.0
Gross Receipts
$71,768
Mission and Program Overview

Mission

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Each year we hold a conference that brings families, doctors and other speakers together to learn more about 1p36 Deletion Syndrome and learn how to help those impacted with the syndrome.

Program Services

DescriptionGrantsExpenses
Annual 1p36 Deletion Support & Awareness conference for families with an individual with 1p36 Deletion Syndrome. Doctors, therapists and other speakers provide information to families. It is also an opportunity for the families to learn from each other. Yearly average attendance is 60-75 families, 250-300 individuals.$0$35,037
Compensation and Service Providers
Top Officer Pay75th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenneth ShirtcliffPresidentPT$0--
Karen BessTreasurerPT$0--
Carrie DaggertSecretary-$0--
Todd OliverMember Relations-$0--
Jason FriedmanCommunity Relations-$0--
Filing and Contact Details

Filer

Filer Name
1p36 Deletion Support & Awareness
EIN
26-4411797
In Care Of
% Kenneth Shirtcliff
Phone
8455455131
Address
906 NE Greenwood Ave Ste 1, Bend, OR 97701

Signing Officer

Name
Karen Bess
Title
Treasurer
Phone
8455455131
Signed
2017-12-19
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| Conference Expenses - This includes hotel costs, food costs, events at conference, speaker costs, etc., $35037.00|”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/PrimaryExemptPurposeTxt0Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Each year we hold a conference that brings families, doctors and other speakers together to learn more about 1p36 Deletion Syndrome and learn how to help those impacted with the syndrome.
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ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$137,396
Liabilities
-
Net assets
$137,396
Revenue
$65,686
Expenses
$35,402
Net income
$30,284
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.48$2.48$0.50$0.62$0.12
2023Detailed filing. Detailed filing data is available for this year.$2.60$0.00$2.60$0.63$0.45$0.18
2022Detailed filing. Detailed filing data is available for this year.$2.42$0.00$2.42$0.43$0.89$0.46
2021Detailed filing. Detailed filing data is available for this year.$2.88$2.88$0.32$0.01$0.31
2020Detailed filing. Detailed filing data is available for this year.$2.58$2.58$0.50$0.02$0.48
2019Detailed filing. Detailed filing data is available for this year.$2.09$2.09$0.64$0.42$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.87$1.87$0.65$0.32$0.33
2017Detailed filing. Detailed filing data is available for this year.$1.54$1.54$0.62$0.46$0.17
2016Detailed filing. Detailed filing data is available for this year.$1.37$1.37$0.66$0.35$0.30