Civic Intelligence

1P36 Deletion Support & Awareness

990EZ • Fiscal year 2019 • EIN 26-4411797

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 16, 2020

Organization Profile1p36dsa.org
906 NE Greenwood Ave Ste 1Bend, OR 97701

(845) 545-5131

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2019

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2019

Net Margin

86th percentile

35%

Higher net margin than 86% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

64th percentile

12%

Faster asset growth than 64% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

46th percentile

-1.4%

Faster revenue growth than 46% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

$209,364

Up $22,585 (+12%) from 2018

Net Assets

Up

$209,364

Up $22,585 (+12%) from 2018

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin86th percentile

Revenue

Down

$64,163

Down $904 (-1.4%) from 2018

Expenses

Up

$41,578

Up $9,113 (+28%) from 2018

Net Income

Down

$22,585

Down $10,017 (-31%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2016: $137,396Net Assets 2016: $137,3962016Assets 2017: $154,184Net Assets 2017: $154,1842017Assets 2018: $186,779Net Assets 2018: $186,7792018Assets 2019: $209,364Net Assets 2019: $209,3642019Assets 2020: $257,637Net Assets 2020: $257,6372020Assets 2021: $288,493Net Assets 2021: $288,4932021Assets 2022: $242,365Liabilities 2022: $0Net Assets 2022: $242,3652022Assets 2023: $260,194Liabilities 2023: $0Net Assets 2023: $260,1942023Assets 2024: $248,422Net Assets 2024: $248,4222024

Highlighted filing

2019

Assets$209,364
Liabilities-
Net Assets$209,364
Open 2019 Filing

Operations Trend

Revenue Growth46th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2016: $65,686Expenses 2016: $35,402Net Income 2016: $30,2842016Revenue 2017: $62,359Expenses 2017: $45,571Net Income 2017: $16,7882017Revenue 2018: $65,067Expenses 2018: $32,465Net Income 2018: $32,6022018Revenue 2019: $64,163Expenses 2019: $41,578Net Income 2019: $22,5852019Revenue 2020: $49,950Expenses 2020: $1,677Net Income 2020: $48,2732020Revenue 2021: $32,175Expenses 2021: $1,319Net Income 2021: $30,8562021Revenue 2022: $42,769Expenses 2022: $88,897Net Income 2022: -$46,1282022Revenue 2023: $63,315Expenses 2023: $45,486Net Income 2023: $17,8292023Revenue 2024: $50,273Expenses 2024: $62,045Net Income 2024: -$11,7722024

Highlighted filing

2019

Revenue$64,163
Expenses$41,578
Net Income$22,585
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 16, 2020
Return Version
2019v5.0
Gross Receipts
$68,514
Mission and Program Overview

Mission

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Each year we hold a conference that brings families, doctors and other speakers together to learn more about 1p36 Deletion Syndrome and learn how to help those impacted with the syndrome.

Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. This year we maintained our website, had a conference in Maryland where 300 people attended, calendar with children, family facebook group and supporting families.

Program Services

DescriptionGrantsExpenses
1p36 DSA holds a conference once a year. This year it was in Baltimore MD. The conference brings families, doctors and other interested parties together to learn and discuss 1p36 Deletion Syndrome. This is our main activity each year and 300-350 are in attendence. The cost for the conference is significant for the small non-profit as we pick up the charges for the speakers, conference hall, shirts, events and some meal expense. The individual with 1p36 Deletion Syndrome who attends, attends for free.$0$0
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenneth Shirtcliff MDPresidentPT$0--
Karen BessTreasurer-$0--
Jennifer WinieckiSecretary-$0--
Filing and Contact Details

Filer

Filer Name
1p36 Deletion Support & Awareness
EIN
26-4411797
In Care Of
% Kenneth Shirtcliff
Phone
8455455131
Address
906 NE Greenwood Ave Ste 1, Bend, OR 97701

Signing Officer

Name
Karen Bess
Title
Treasurer
Phone
8455455131
Signed
2020-11-16
Discuss with paid preparer
No
Supplemental Narrative

Additional Explanations

Part I, line 8

“| Other Revenues:, Amount:| Conference Fees for attendees, $10248|”

Part I, line 16

“| Other Expenses:, Amount:| General Conference Expenses including decorations, t-shirts, speakers and food for attendees, $37987.00| General Conference Expenses including decorations, t-shirts, speakers and food for attendees, $2397.00| General Office Expenses including taxes, $343.00| Paypal Fees, $236.00|”

Raw XML Appendix159 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/PrimaryExemptPurposeTxt0Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. This year we maintained our website, had a conference in Maryland where 300 people attended, calendar with children, family facebook group and supporting families.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Other Revenues:, Amount:| Conference Fees for attendees, $10248|
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ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$209,364
Liabilities
-
Net assets
$209,364
Revenue
$64,163
Expenses
$41,578
Net income
$22,585
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.48$2.48$0.50$0.62$0.12
2023Detailed filing. Detailed filing data is available for this year.$2.60$0.00$2.60$0.63$0.45$0.18
2022Detailed filing. Detailed filing data is available for this year.$2.42$0.00$2.42$0.43$0.89$0.46
2021Detailed filing. Detailed filing data is available for this year.$2.88$2.88$0.32$0.01$0.31
2020Detailed filing. Detailed filing data is available for this year.$2.58$2.58$0.50$0.02$0.48
2019Detailed filing. Detailed filing data is available for this year.$2.09$2.09$0.64$0.42$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.87$1.87$0.65$0.32$0.33
2017Detailed filing. Detailed filing data is available for this year.$1.54$1.54$0.62$0.46$0.17
2016Detailed filing. Detailed filing data is available for this year.$1.37$1.37$0.66$0.35$0.30