Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on this filing.
1P36 Deletion Support & Awareness
990EZ • Fiscal year 2017 • EIN 26-4411797
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
No value available
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
82nd percentile
Higher net margin than 82% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
65th percentile
Faster asset growth than 65% of similar nonprofits.
Revenue Growth
40th percentile
Faster revenue growth than 40% of similar nonprofits.
Balance Sheet
Assets
Up$154,184
Up $16,788 (+12%) from 2016
Net Assets
Up$154,184
Up $16,788 (+12%) from 2016
Liabilities
-
No earlier filing loaded for comparison.
Revenue And Expenses
Revenue
Down$62,359
Down $3,327 (-5.1%) from 2016
Expenses
Up$45,571
Up $10,169 (+29%) from 2016
Net Income
Down$16,788
Down $13,496 (-45%) from 2016
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2017 to Dec 31, 2017
- Signed
- Nov 12, 2018
- Return Version
- 2017v2.0
- Gross Receipts
- $62,359
Mission and Program Overview
Mission
Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. Each year we hold a conference that brings families, doctors and other speakers together to learn more about 1p36 Deletion Syndrome and learn how to help those impacted with the syndrome.
Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. This year we maintained our website, had a conference in Maryland where 300 people attended, calendar with children, family facebook group and supporting families.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| 1p36 DSA holds a conference once a year. This year it was in Baltimore MD. The conference brings families, doctors and other interested parties together to learn and discuss 1p36 Deletion Syndrome. This is our main activity each year and 300-350 are in attendence. The cost for the conference is significant for the small non-profit as we pick up the charges for the speakers, conference hall, shirts, events and some meal expense. The individual with 1p36 Deletion Syndrome who attends, attends for free. | $0 | $44,672 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Kenneth Shirtcliff MD | President | PT | $0 | - | - |
| Karen Bess | Treasurer | - | $0 | - | - |
| Carrie Daggett | Secretary | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- 1p36 Deletion Support & Awareness
- EIN
- 26-4411797
- In Care Of
- % Kenneth Shirtcliff
- Phone
- 8455455131
- Address
- 906 NE Greenwood Ave Ste 1, Bend, OR 97701
Signing Officer
- Name
- Karen Bess
- Title
- Treasurer
- Phone
- 8455455131
- Signed
- 2018-11-12
Supplemental Narrative
Additional Explanations
Part I, line 8
“| Other Revenues:, Amount:| Conference Event - Payment for meals and activities, $13528|”
Part I, line 16
“| Other Expenses:, Amount:| OR SEC STATE CORPDIV, $50.00| WWW.1AND1.COM, $30.00| Conference - DAVEBUSTERS, $575.00| Conference - CHICO BAG, $1250.00| Conference Expense - Supplies, $15.00| Conference Expense - Supplies - Amazon, $744.00| Conference - Customink (Shirts), $2637.00| Conference Expense - Hotel (Lord Baltimore Hotel), $31486.00| Conference - CustomInk, $119.00| Conference - CustomeInk, $9.00| Conference - CustomInk, $100.00| Conference - CustomInk, $14.00| Conference - X-press Printing, $1180.00| Conference - Yapp App, $399.00| Conference 2018 Deposit - Hilton hotels, $1000.00| Conference - Port Discovery Childrens, $2500.00| Conference - Supplies - Amaxon, $71.00| Conference - Dave & Busters Deposit, $744.00| Conference - SquareSpace Inc, $192.00| Conference Expense - Ultimate Pizza, $542.00| Conference Expense - Amazon, $3.00| Conference Expense - Amazon, $3.00| Conference Expense - First Student, $363.00| Conference Expense - Marco Promitional Pro, $127.00| Deposit Return Fee - Stop Payment, $12.00| Deposit Item Returned, $25.00| Conference Return Fee - Christine M Sullivan, $599.00| Paypal Fee, $215.00|”
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | | Other Expenses:, Amount:| OR SEC STATE CORPDIV, $50.00| WWW.1AND1.COM, $30.00| Conference - DAVEBUSTERS, $575.00| Conference - CHICO BAG, $1250.00| Conference Expense - Supplies, $15.00| Conference Expense - Supplies - Amazon, $744.00| Conference - Customink (Shirts), $2637.00| Conference Expense - Hotel (Lord Baltimore Hotel), $31486.00| Conference - CustomInk, $119.00| Conference - CustomeInk, $9.00| Conference - CustomInk, $100.00| Conference - CustomInk, $14.00| Conference - X-press Printing, $1180.00| Conference - Yapp App, $399.00| Conference 2018 Deposit - Hilton hotels, $1000.00| Conference - Port Discovery Childrens, $2500.00| Conference - Supplies - Amaxon, $71.00| Conference - Dave & Busters Deposit, $744.00| Conference - SquareSpace Inc, $192.00| Conference Expense - Ultimate Pizza, $542.00| Conference Expense - Amazon, $3.00| Conference Expense - Amazon, $3.00| Conference Expense - First Student, $363.00| Conference Expense - Marco Promitional Pro, $127.00| Deposit Return Fee - Stop Payment, $12.00| Deposit Item Returned, $25.00| Conference Return Fee - Christine M Sullivan, $599.00| Paypal Fee, $215.00| |
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| ReturnHeader/BuildTS | 0 | 2019-02-21 02:37:17Z |
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Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2017 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $154,184
- Liabilities
- -
- Net assets
- $154,184
- Revenue
- $62,359
- Expenses
- $45,571
- Net income
- $16,788