Liabilities / Assets
23rd percentile
Higher debt load relative to assets than 23% of similar nonprofits.
990 • Fiscal year 2021 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
23rd percentile
Higher debt load relative to assets than 23% of similar nonprofits.
Liabilities / Revenue
25th percentile
Higher debt load relative to revenue than 25% of similar nonprofits.
Net Margin
71st percentile
Higher net margin than 71% of similar nonprofits.
Top Officer Pay
55th percentile
Higher top officer pay than 55% of similar nonprofits.
Top officer pay equals 7.6% of source-year revenue.
Asset Growth
20th percentile
Faster asset growth than 20% of similar nonprofits.
Revenue Growth
4th percentile
Faster revenue growth than 4% of similar nonprofits.
Assets
Down$3,773,556
Down $91,053 (-2.4%) from 2020
Net Assets
Up$3,764,775
Up $77,380 (+2.1%) from 2020
Liabilities
Down$8,781
Down $168,433 (-95%) from 2020
Revenue
Down$908,445
Down $1,267,920 (-58%) from 2020
Expenses
Down$665,343
Down $1,169,210 (-64%) from 2020
Net Income
Down$243,102
Down $98,710 (-29%) from 2020
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $2,518,000 | $2,518,000 | → $0 |
| Savings and Temporary Cash Investments | $376,868 | $908,308 | ▲ $531,440 |
| Accounts Receivable | $718,880 | $0 | ▼ $718,880 |
| Cash and Non-Interest-Bearing Accounts | $92,440 | $174,475 | ▲ $82,035 |
| Pledges and Grants Receivable | $146,423 | $151,991 | ▲ $5,568 |
| Loans From Officers Directors | $46,605 | $0 | ▼ $46,605 |
| Prepaid Expenses and Deferred Charges | $11,998 | $20,782 | ▲ $8,784 |
| Total Assets | $3,864,609 | $3,773,556 | ▼ $91,053 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $129,532 | $8,781 | ▼ $120,751 |
| Deferred Revenue | $1,077 | $0 | ▼ $1,077 |
| Total Liabilities | $177,214 | $8,781 | ▼ $168,433 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $3,540,972 | $3,612,784 | ▲ $71,812 |
| Net Assets With Donor Restrictions | $146,423 | $151,991 | ▲ $5,568 |
| Total Net Assets Fund Balance | $3,687,395 | $3,764,775 | ▲ $77,380 |
| Total Liabilities and Net Assets / Fund Balance | $3,864,609 | $3,773,556 | ▼ $91,053 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Closely Held Equity Interests | $2,518,000 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Danielle Kerkovich | Scientific Officer | FT | $69,304 | $69,304 |
| Name | Title |
|---|---|
| T Craig Benson | Board Chair |
| Mary Beth Kiser | President/CEO and Secretary |
| Caroline Goodner | Director |
| Jeff Hunt | Director |
| Sabrina Brown | Director |
| Steven Silber Md | Director |
| Wayne Herndon | Director |
| Will Murphy | Director |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Camargo Pharmaceutical Services LLC | Research | ONE EAST 4TH ST STE 1400, Cincinnati, OH 45202 | $250,239 |
| Strategic Association Management | Management | 3305 STECK AVE STE 200, Austin, TX 78757 | $240,000 |
| - | Legal | 910 LOUISIANA ST, Houston, TX 77002 | $150,000 |
| Line Item | Amount |
|---|---|
| Other Expenses | $665,343 |
| Total Fundraising Expense | $33,510 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $151,426 | $74,351 | $9,763 | $235,540 |
| Fees for Services Other | $139,796 | $44,639 | $5,861 | $190,296 |
| Fees for Services Legal | $88,313 | $43,362 | $5,694 | $137,369 |
| Occupancy | $44,479 | $0 | $0 | $44,479 |
| Office Expenses | $1,996 | $15,089 | $11,734 | $28,819 |
| Fees for Services Accounting | $7,104 | $3,488 | $458 | $11,050 |
| Advertising | $6,615 | $1,653 | $0 | $8,268 |
| Travel | $7,812 | $0 | $0 | $7,812 |
| Insurance | $0 | $1,710 | $0 | $1,710 |
| Total Functional Expenses | $447,541 | $184,292 | $33,510 | $665,343 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $665,343 |
| Total Expenses per Audited Statements | $665,343 |
| Total Expenses per Form 990 | $665,343 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $124,815 |
| Fundraising Direct Expenses | $97,402 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Hope on the Green | $210,728 | $115,228 | $32,655 | $82,573 |
| Other | $9,587 | $9,587 | $1,498 | $8,089 |
| Total Events | $220,315 | $124,815 | $97,403 | $27,412 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $46,605 | $0 | ▼ $46,605 |
“The form 990 is provided to all board members and officers for review before filing.”
“Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.”
“The president/ceo's compensation is reviewed and approved by the board of directors.”
“Other employee compensation is reviewed with comparable sources and approved by the board of directors.”
“Information available upon request.”
“Line 9 - OTHER CHANGES IN NET ASSETS - INCOME ON LLC INTEREST $165,722.”
“Consulting/research 190296. 139796. 44639. 5861.”
“Income on llc interest not included in audit.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 129532 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 8781 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 718880 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1653 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 6615 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 8268 |
| IRS990/AllOtherContributionsAmt | 0 | 619752 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | STRATEGIC ASSOCIATION MANAGEMENT |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5122752600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3305 STECK AVE STE 200 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AUSTIN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 78757 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 92440 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 174475 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 240000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 250239 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 150000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 3305 STECK AVE STE 200 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | ONE EAST 4TH ST STE 1400 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 910 LOUISIANA ST |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | AUSTIN |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | CINCINNATI |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | HOUSTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | OH |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | TX |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 78757 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 45202 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 77002 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | STRATEGIC ASSOCIATION MANAGEMENT |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | CAMARGO PHARMACEUTICAL SERVICES LLC |
| IRS990/ContractorCompensationGrp/ContractorName/PersonNm | 0 | BAKER BOTTS LLP |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | MANAGEMENT |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | RESEARCH |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | LEGAL |
| IRS990/ContriRptFundraisingEventAmt | 0 | 95500 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 715252 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 58 |
| IRS990/CYOtherExpensesAmt | 0 | 665343 |
| IRS990/CYOtherRevenueAmt | 0 | 193135 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 243102 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 665343 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 33510 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 908445 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 1077 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 146423 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 151991 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 447541 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 458 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 3488 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 7104 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 11050 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 5694 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 43362 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 88313 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 137369 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 9763 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 74351 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 151426 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 235540 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 5861 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 44639 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 139796 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 190296 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MARY BETH KISER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFF HUNT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SABRINA BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | WAYNE HERNDON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | WILL MURPHY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CAROLINE GOODNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | STEVEN SILBER MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 69304 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT/CEO AND SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 95500 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 97402 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 124815 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1005847 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1710 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1710 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 58 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 58 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 2518000 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 2518000 |
| IRS990/IRPDocumentCnt | 0 | 11 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 46605 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 3687395 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 3764775 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 27413 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 27413 |
| IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 129787 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 3540972 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3612784 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 44479 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 44479 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 11734 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 15089 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1996 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 28819 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -165722 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 812210 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | NET INCOME (LOSS) FROM LLC INTERESTS |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 165722 |
| IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt | 0 | 165722 |
| IRS990/OtherRevenueTotalAmt | 0 | 165722 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 146423 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 151991 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 11998 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 20782 |
| IRS990/PrincipalOfficerNm | 0 | MARY BETH KISER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1640342 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 20000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 3471 |
| IRS990/PYOtherExpensesAmt | 0 | 1604615 |
| IRS990/PYOtherRevenueAmt | 0 | 532552 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 341812 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 209938 |
| IRS990/PYTotalExpensesAmt | 0 | 1834553 |
| IRS990/PYTotalRevenueAmt | 0 | 2176365 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 243102 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 376868 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 908308 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 715251 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1640342 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2128850 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1548777 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2171376 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 8204596 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 58 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3471 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4083 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 35 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 34 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 7681 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherSupportSumAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.76980 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.75310 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7932237 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 272359 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 715251 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1640342 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2128850 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1548777 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2171376 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 8204596 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 10304505 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 27413 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 317487 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 449223 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 510254 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 787851 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 2092228 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/CloselyHeldEquityInterestsGrp/BookValueAmt | 0 | 2518000 |
| IRS990ScheduleD/CloselyHeldEquityInterestsGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 665343 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | -165722 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -165722 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 908445 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | INCOME ON LLC INTEREST NOT INCLUDED IN AUDIT. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt XI, Line 2d |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 2518000 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 665343 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 908445 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 742723 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 665343 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 95500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 95500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 97403 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | HOPE ON THE GREEN |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | OTHER |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 37702 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 37702 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 210728 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 9587 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 220315 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 115228 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 9587 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 124815 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 27412 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 34153 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 32655 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 1498 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 22548 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 3000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 25548 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE PRESIDENT/CEO'S COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | OTHER EMPLOYEE COMPENSATION IS REVIEWED WITH COMPARABLE SOURCES AND APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | INFORMATION AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Line 9 - OTHER CHANGES IN NET ASSETS - INCOME ON LLC INTEREST $165,722. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | CONSULTING/RESEARCH 190296. 139796. 44639. 5861. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Pt VI, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Pt VI, Line 15b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Pt VI, Line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Pt XI |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Form 990, Part IX, Line 11g |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 3864609 |
| IRS990/TotalAssetsEOYAmt | 0 | 3773556 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 3864609 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 3773556 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.