Civic Intelligence

Beyond Batten Disease Foundation

EIN 26-3223661 • 501(c)3 • Austin, TX

View Organization Page

Profile

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

3305 Steck AveAustin, TX 78757

www.beyondbatten.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

49th percentile

0.06x

Higher debt load relative to assets than 49% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

64th percentile

0.18x

Higher debt load relative to revenue than 64% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

38th percentile

-0.1%

Higher net margin than 38% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

22nd percentile

-5.1%

Faster asset growth than 22% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

79th percentile

34%

Faster revenue growth than 79% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets49th percentile

Assets

Down

$1,859,709

Down $261,484 (-12%) from 2024

Liabilities

Up

$182,039

Up $23,426 (+15%) from 2024

Net Assets

Down

$1,677,670

Down $284,910 (-15%) from 2024

Operations
Liabilities / Revenue64th percentileNet Margin38th percentile

Revenue

Down

$306,063

Down $232,252 (-43%) from 2024

Expenses

Down

$892,974

Down $223,776 (-20%) from 2024

Net Income

Down

-$586,911

Down $8,476 (-1.5%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth22nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$2.0M$0-$2.0MAssets 2010: $424,513Liabilities 2010: $782,791Net Assets 2010: -$358,2782010Assets 2011: $616,704Liabilities 2011: $1,300,064Net Assets 2011: -$683,3602011Assets 2012: $1,068,425Liabilities 2012: $1,407,931Net Assets 2012: -$339,5062012Assets 2013: $1,605,506Liabilities 2013: $1,598,839Net Assets 2013: $6,6672013Assets 2014: $713,932Liabilities 2014: $945,981Net Assets 2014: -$232,0492014Assets 2015: $746,995Liabilities 2015: $1,578,190Net Assets 2015: -$831,1952015Assets 2016: $137,080Liabilities 2016: $272,573Net Assets 2016: -$135,4932016Assets 2018: $722,527Liabilities 2018: $471,886Net Assets 2018: $250,6412018Assets 2019: $3,529,982Liabilities 2019: $219,334Net Assets 2019: $3,310,6482019Assets 2020: $3,864,609Liabilities 2020: $177,214Net Assets 2020: $3,687,3952020Assets 2021: $3,773,556Liabilities 2021: $8,781Net Assets 2021: $3,764,7752021Assets 2022: $3,581,583Liabilities 2022: $220,016Net Assets 2022: $3,361,5672022Assets 2023: $3,231,365Liabilities 2023: $219,351Net Assets 2023: $3,012,0142023Assets 2024: $2,121,193Liabilities 2024: $158,613Net Assets 2024: $1,962,5802024Assets 2025: $1,859,709Liabilities 2025: $182,039Net Assets 2025: $1,677,6702025

Highlighted filing

2025

Assets$1,859,709
Liabilities$182,039
Net Assets$1,677,670
Open 2025 Filing

Operations Trend

Revenue Growth79th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,794,1312010Expenses 2011: $1,043,7882011Expenses 2012: $861,2322012Expenses 2013: $1,086,1512013Revenue 2014: $1,345,102Expenses 2014: $1,583,818Net Income 2014: -$238,7162014Revenue 2015: $1,011,861Expenses 2015: $1,611,007Net Income 2015: -$599,1462015Revenue 2016: $2,142,709Expenses 2016: $1,447,007Net Income 2016: $695,7022016Revenue 2018: $2,059,063Expenses 2018: $1,044,051Net Income 2018: $1,015,0122018Revenue 2019: $4,640,638Expenses 2019: $1,580,631Net Income 2019: $3,060,0072019Revenue 2020: $2,176,365Expenses 2020: $1,834,553Net Income 2020: $341,8122020Revenue 2021: $908,445Expenses 2021: $665,343Net Income 2021: $243,1022021Revenue 2022: $1,219,815Expenses 2022: $1,220,690Net Income 2022: -$8752022Revenue 2023: $1,028,636Expenses 2023: $1,036,148Net Income 2023: -$7,5122023Revenue 2024: $538,315Expenses 2024: $1,116,750Net Income 2024: -$578,4352024Revenue 2025: $306,063Expenses 2025: $892,974Net Income 2025: -$586,9112025

Highlighted filing

2025

Revenue$306,063
Expenses$892,974
Net Income-$586,911
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,859,709
Liabilities
$182,039
Net assets
$1,677,670
Revenue
$306,063
Expenses
$892,974
Net income
-$586,911
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.86$0.18$1.68$0.31$0.89$0.59
2024Detailed filing. Detailed filing data is available for this year.$2.12$0.16$1.96$0.54$1.12$0.58
2023Detailed filing. Detailed filing data is available for this year.$3.23$0.22$3.01$1.03$1.04$0.01
2022Detailed filing. Detailed filing data is available for this year.$3.58$0.22$3.36$1.22$1.22$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.77$0.01$3.76$0.91$0.67$0.24
2020Detailed filing. Detailed filing data is available for this year.$3.86$0.18$3.69$2.18$1.83$0.34
2019Detailed filing. Detailed filing data is available for this year.$3.53$0.22$3.31$4.64$1.58$3.06
2018Detailed filing. Detailed filing data is available for this year.$0.72$0.47$0.25$2.06$1.04$1.02
2016Detailed filing. Detailed filing data is available for this year.$0.14$0.27$0.14$2.14$1.45$0.70
2015Detailed filing. Detailed filing data is available for this year.$0.75$1.58$0.83$1.01$1.61$0.60
2014Detailed filing. Detailed filing data is available for this year.$0.71$0.95$0.23$1.35$1.58$0.24
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.61$1.60$0.01$1.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$1.41$0.34$0.86
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$1.30$0.68$1.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.78$0.36$1.79
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Mar 4, 2026
Return Version
2024v5.2
Gross Receipts
$349,331
Mission and Program Overview

Mission

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$781,275$1,083,276▲ $302,001
Savings and Temporary Cash Investments$1,078,753$591,000▼ $487,753
Cash and Non-Interest-Bearing Accounts$246,114$176,047▼ $70,067
Accounts Receivable$7,031$7,031→ $0
Prepaid Expenses and Deferred Charges$8,020$2,355▼ $5,665
Total Assets$2,121,193$1,859,709▼ $261,484
Liabilities
Accounts Payable and Accrued Expenses$158,613$182,039▲ $23,426
Total Liabilities$158,613$182,039▲ $23,426
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,962,580$1,677,670▼ $284,910
Total Net Assets Fund Balance$1,962,580$1,677,670▼ $284,910
Total Liabilities and Net Assets / Fund Balance$2,121,193$1,859,709▼ $261,484

Asset Categories

AssetBook ValueDepreciationBasis
Closely Held Equity Interests$1,083,276--
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
T Craig BensonBoard Chair
Mary Beth KiserPresident/CEO and Secretary
Caroline GoodnerDirector
Jeff HuntDirector
Jonathan FeifsDirector
Sabrina BrownDirector
Steven Silber MdDirector
Wayne HerndonDirector
Will MurphyDirector
Mark ChandlerDirector Emeritus

Highest Paid Contractors

ContractorServicesLocationCompensation
Strategic Association ManagementManagement3305 STECK AVE STE 200, Austin, TX 78757$225,000
Revenue and Support

Revenue Composition

Contributions and Grants
$295,881
Program Service Revenue
$0
Investment Income
$37,250
Other Revenue
$-27,068
All Other Contributions
$248,181
Change in Net Assets
$-586,911

Audited Revenue Reconciliation

Revenue per Audited Statements
$306,063
Revenue Not Reported on Form 990
$302,001
Total Revenue per Audited Statements
$608,064
Total Revenue per Form 990
$306,063
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$892,974
Total Fundraising Expense$10,821
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$489,073$0$0$489,073
Fees for Services Management$108,228$116,772$0$225,000
Conferences and Meetings$54,513$10,255$0$64,768
Fees for Services Legal$19,979$12,773$0$32,752
Information Technology$27,389$0$0$27,389
Office Expenses$4,762$10,402$5,721$20,885
Fees for Services Accounting$12,237$7,823$0$20,060
Travel$6,240$0$0$6,240
Occupancy$0$570$5,100$5,670
Insurance$0$1,137$0$1,137
Total Functional Expenses$722,421$159,732$10,821$892,974

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$892,974
Total Expenses per Audited Statements$892,974
Total Expenses per Form 990$892,974
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$43,268
Fundraising Gross Income$16,200
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Events$63,900$16,200$43,268$-27,068
Total Events$63,900$16,200$43,268$-27,068
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes
Filing and Contact Details

Filer

Filer Name
Beyond Batten Disease Foundation
EIN
26-3223661
Phone
5122752600
Address
3305 STECK AVE, AUSTIN, TX 78757

Signing Officer

Name
Mary Beth Kiser
Title
President/CEO
Phone
5122752600
Signed
2026-03-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary Beth Kiser
Formed
2008
Legal Domicile
TX
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
50

Preparer

Firm
Allman & Associates Inc
Address
9600 Great Hills Trail Suite 150W, Austin, TX 78759
Preparer
Peter L Allman CPA
Phone
5125023077
Supplemental Narrative

Additional Explanations

Pt VI, Line 3

“The organization hired strategic association management to perform management services.”

Pt VI, Line 11B

“The form 990 is provided to all board members and officers for review before filing.”

Pt VI, Line 12C

“Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.”

Pt VI, Line 19

“Information available upon request.”

Form 990, Part IX, Line 11G

“Research contracts and grants 489073. 489073. 0. 0.”

Raw XML AppendixShowing 400 of 431 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-27068
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0302001
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01962580
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01677670
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt05100
IRS990/OccupancyGrp/ManagementAndGeneralAmt0570
IRS990/OccupancyGrp/ProgramServicesAmt00
IRS990/OccupancyGrp/TotalAmt05670
IRS990/OfficeExpensesGrp/FundraisingAmt05721
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt010402
IRS990/OfficeExpensesGrp/ProgramServicesAmt04762
IRS990/OfficeExpensesGrp/TotalAmt020885
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt08020
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt02355
IRS990/PrincipalOfficerNm0MARY BETH KISER
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IRS990/ProhibitedTaxShelterTransInd0false
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IRS990/PYTotalExpensesAmt01116750
IRS990/PYTotalRevenueAmt0538315
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IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-586911
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IRS990/RelatedEntityInd0false
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0488110
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0283680
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0825881
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0715251
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt021005
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt058
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0166033
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0117846
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IRS990ScheduleA/PublicSupportCY509Pct00
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IRS990ScheduleA/PublicSupportTotal170Amt02608803
IRS990ScheduleA/PublicSupportTotal509Amt00
IRS990ScheduleA/SubstantialContributorsTotAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0825881
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0715251
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02608803
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt010969
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt027413
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0200698
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleD/CloselyHeldEquityInterestsGrp/BookValueAmt01083276
IRS990ScheduleD/CloselyHeldEquityInterestsGrp/MethodValuationCd0F
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IRS990ScheduleD/NetUnrealizedGainsInvstAmt0302001
IRS990ScheduleD/RevenueNotReportedAmt0302001
IRS990ScheduleD/RevenueSubtotalAmt0306063
IRS990ScheduleD/TotalBookValueSecuritiesAmt01083276
IRS990ScheduleD/TotalExpensesPerForm990Amt0892974
IRS990ScheduleD/TotalRevenuePerForm990Amt0306063
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0608064
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0892974
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt047700
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt047700
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt043268
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0EVENTS
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt016200
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-27068
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt043268
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IRS990/ScheduleJRequiredInd0false
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION HIRED STRATEGIC ASSOCIATION MANAGEMENT TO PERFORM MANAGEMENT SERVICES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3INFORMATION AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4RESEARCH CONTRACTS AND GRANTS 489073. 489073. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt VI, Line 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt VI, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Pt VI, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Pt VI, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 11g
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IRS990/TotalContributionsAmt0295881
IRS990/TotalEmployeeCnt00
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IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0722421
IRS990/TotalFunctionalExpensesGrp/TotalAmt0892974
IRS990/TotalGrossUBIAmt00
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IRS990/TotalLiabilitiesEOYAmt0182039
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IRS990/TotalProgramServiceExpensesAmt0722421
IRS990/TotalRevenueGrp/ExclusionAmt010182
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
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IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
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IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt02121193
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01859709
IRS990/TravelGrp/FundraisingAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt00
IRS990/TravelGrp/ProgramServicesAmt06240
IRS990/TravelGrp/TotalAmt06240
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IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
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IRS990/VotingMembersGoverningBodyCnt08
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