Liabilities / Assets
98th percentile
Higher debt load relative to assets than 98% of similar nonprofits.
990 • Fiscal year 2016 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
98th percentile
Higher debt load relative to assets than 98% of similar nonprofits.
Liabilities / Revenue
54th percentile
Higher debt load relative to revenue than 54% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
80th percentile
Higher top officer pay than 80% of similar nonprofits.
Top officer pay equals 6.1% of source-year revenue.
Asset Growth
1st percentile
Faster asset growth than 1% of similar nonprofits.
Revenue Growth
94th percentile
Faster revenue growth than 94% of similar nonprofits.
Assets
Down$137,080
Down $609,915 (-82%) from 2015
Net Assets
Up-$135,493
Up $695,702 (+84%) from 2015
Liabilities
Down$272,573
Down $1,305,617 (-83%) from 2015
Revenue
Up$2,142,709
Up $1,130,848 (+112%) from 2015
Expenses
Down$1,447,007
Down $164,000 (-10%) from 2015
Net Income
Up$695,702
Up $1,294,848 (+216%) from 2015
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $690,379 | $108,974 | ▼ $581,405 |
| Loans From Officers Directors | $724,625 | $46,605 | ▼ $678,020 |
| Prepaid Expenses and Deferred Charges | $33,682 | $18,106 | ▼ $15,576 |
| Pledges and Grants Receivable | $22,934 | $10,000 | ▼ $12,934 |
| Total Assets | $746,995 | $137,080 | ▼ $609,915 |
| Liabilities | |||
| Grants Payable | $617,100 | - | - |
| Deferred Revenue | $53,307 | $132,401 | ▲ $79,094 |
| Accounts Payable and Accrued Expenses | $183,158 | $93,567 | ▼ $89,591 |
| Total Liabilities | $1,578,190 | $272,573 | ▼ $1,305,617 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $-831,195 | $-135,493 | ▲ $695,702 |
| Total Net Assets Fund Balance | $-831,195 | $-135,493 | ▲ $695,702 |
| Total Liabilities and Net Assets / Fund Balance | $746,995 | $137,080 | ▼ $609,915 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Mary Beth Kiser | President/CEO | FT | $131,657 | $131,657 |
| Danielle Kerkovich | Scientific Officer | FT | $131,500 | $131,500 |
| Name | Title |
|---|---|
| Caroline Goodner | Director |
| Dr Kyle L Janek | Director |
| Dr Mark Chandler | Director |
| Jeff Hunt | Director |
| Sabrina Brown | Director |
| Scott Young | Director |
| T Craig Benson | Director |
| William Murphy | Director |
| Patrick S Mcclain | VP, Secr, Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $684,765 |
| Salaries, Compensation, and Employee Benefits | $418,973 |
| Other Expenses | $343,269 |
| Total Fundraising Expense | $296,747 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $574,461 | - | - | $574,461 |
| Current Officers, Directors, Trustees, and Key Employees | $142,105 | $31,579 | $89,473 | $263,157 |
| Grants to Domestic Orgs | $110,304 | - | - | $110,304 |
| Other Salaries and Wages | $56,356 | $12,524 | $35,485 | $104,365 |
| Fees for Services Other | $7,907 | $2,471 | $39,040 | $49,418 |
| Occupancy | $21,827 | $12,030 | $12,047 | $45,904 |
| Advertising | $23,305 | $1,974 | $14,407 | $39,686 |
| Interest | $0 | $37,873 | $0 | $37,873 |
| Office Expenses | $3,644 | $13,482 | $19,309 | $36,435 |
| Other Expenses | $0 | $0 | $35,599 | $35,599 |
| Travel | $27,277 | $1,902 | $2,538 | $31,717 |
| Payroll Taxes | $14,531 | $3,229 | $9,149 | $26,909 |
| Other Employee Benefits | $13,251 | $2,945 | $8,346 | $24,542 |
| Fees for Services Accounting | $8,809 | $4,855 | $4,862 | $18,526 |
| Fees for Services Legal | $7,756 | $4,275 | $4,281 | $16,312 |
| Information Technology | $668 | $2,474 | $3,543 | $6,685 |
| Conferences and Meetings | $6,065 | $0 | $0 | $6,065 |
| Total Functional Expenses | $1,018,266 | $131,994 | $296,747 | $1,447,007 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,447,007 |
| Total Expenses per Audited Statements | $1,447,007 |
| Total Expenses per Form 990 | $1,447,007 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Texas Children's Hospital | Houston, TX | 501(c)3 | See Sched O | $617,100 |
| Mass General Hospital | Boston, MA | 501(c)3 | See Sched O | $58,855 |
| Line Item | Amount |
|---|---|
| Gaming Gross Income | $442,882 |
| Gaming Direct Expenses | $272,192 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala Events | $490,384 | $304,531 | $36,169 | $268,362 |
| Golf Events | $118,521 | $49,694 | $17,562 | $32,132 |
| Total Events | $697,562 | $442,882 | $272,192 | $170,690 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $724,625 | $46,605 | ▼ $678,020 |
“All meetings were documented by Board minutes.”
“The Form 990 is provided to all Board Members and officers for review before filing.”
“Each director and officer is required to annually sign a statement affirming that they have received a copy of the Bylaws containing the Conflict of Interest Policy, have read and understand the Policy, and have agreed to comply with the policy.”
“Executive Director/President's compensation is reviewed by the Board of Directors.”
“Other employee compensation is reviewed with comparable sources.”
“The governing documents and conflict of interest policy are”
“Sched I, Texas Children's, Purpose - Validate TFEB as a drug target in Batten disease.”
“Sched I, Mass General, Purpose - Investigation of CLN# in unaffected and JNCL iPS cells and differentiated neurons.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 183158 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 93567 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 14407 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1974 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 23305 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 39686 |
| IRS990/AllOtherContributionsAmt | 0 | 1716196 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARY BETH KISER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5122752600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 4004 Marathon Blvd |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Austin |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 78756 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 690379 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 108974 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 89473 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 31579 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 142105 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 263157 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 6065 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 6065 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 254680 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1970876 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 684765 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1143 |
| IRS990/CYOtherExpensesAmt | 0 | 343269 |
| IRS990/CYOtherRevenueAmt | 0 | 170690 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 695702 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 418973 |
| IRS990/CYTotalExpensesAmt | 0 | 1447007 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 296747 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2142709 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 53307 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 132401 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH THE GRANTING OF FUNDS AND CONTRACTING OF SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. BBDF ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 1018266 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 4862 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 4855 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 8809 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 18526 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 4281 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 4275 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 7756 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 16312 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 39040 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2471 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 7907 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 49418 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 574461 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 574461 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DR MARK CHANDLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DR KYLE L JANEK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MARY BETH KISER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PATRICK S MCCLAIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JEFF HUNT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CAROLINE GOODNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | WILLIAM MURPHY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | SABRINA BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SCOTT YOUNG |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 131657 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 131500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | President/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | VP, Secr, Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Scientific Officer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 254680 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GamingDirectExpensesAmt | 0 | 272192 |
| IRS990/GamingGrossIncomeAmt | 0 | 442882 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 684765 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 617100 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 110304 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 110304 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 2414901 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 3543 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2474 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 668 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6685 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 37873 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 37873 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1143 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 19 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | true |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 724625 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 46605 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Beyond Batten Disease Foundation was |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | -831195 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | -135493 |
| IRS990/NetIncomeFromGamingGrp/RelatedOrExemptFuncIncomeAmt | 0 | 170690 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 170690 |
| IRS990/NoncashContributionsAmt | 0 | 355769 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 12047 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 12030 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 21827 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 45904 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 19309 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 13482 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 3644 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 36435 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 8346 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2945 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 13251 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 24542 |
| IRS990/OtherExpensesGrp/Desc | 0 | Bank/Credit Card Fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Event Costs |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 18668 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 35599 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 381 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 19049 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 35599 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 35485 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 12524 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 56356 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 104365 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 9149 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3229 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 14531 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 26909 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 22934 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 10000 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 33682 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 18106 |
| IRS990/PrincipalOfficerNm | 0 | MARY BETH KISER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 781925 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 707515 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1247 |
| IRS990/PYOtherExpensesAmt | 0 | 494300 |
| IRS990/PYOtherRevenueAmt | 0 | 228689 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -599146 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 409192 |
| IRS990/PYTotalExpensesAmt | 0 | 1611007 |
| IRS990/PYTotalRevenueAmt | 0 | 1011861 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 695702 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 1970876 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1970916 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 781925 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1191057 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1213663 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1541127 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6698688 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1143 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1478 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 199 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 545 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 327 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 3692 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99940 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99950 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6698688 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1970916 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 781925 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1191057 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1213663 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1541127 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 6698688 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 6702380 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DisclosedForCharitablePrpsInd | 0 | true |
| IRS990ScheduleD/DisclosedOrgLegCtrlInd | 0 | true |
| IRS990ScheduleD/DonorAdvisedFundsContriAmt | 0 | 167258 |
| IRS990ScheduleD/DonorAdvisedFundsHeldCnt | 0 | 1 |
| IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt | 0 | 55860 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1447007 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 2142709 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1447007 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 2142709 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 2142709 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1447007 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 562461 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 12000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | Check |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 1 | Check |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | Europe |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 254680 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 68827 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 185853 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 272192 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | GOLF EVENTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | GALA EVENTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 7857 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 76189 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 84046 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 118521 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 490384 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 88657 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 697562 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 49694 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 304531 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 88657 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 442882 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 170690 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 53731 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 17562 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 36169 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 26167 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 45133 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 63115 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 134415 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 617100 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 58855 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | See Sched O |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Texas Children's Hospital |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Mass General Hospital |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 741100555 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 202905531 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1919 S Braeswood Ste 5200 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | PO Box 414876 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Houston |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | TX |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.