Liabilities / Assets
98th percentile
Higher debt load relative to assets than 98% of similar nonprofits.
990 • Fiscal year 2011 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
98th percentile
Higher debt load relative to assets than 98% of similar nonprofits.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
Score unavailable
No valid filing value is available for this score.
Assets
Up$616,704
Up $192,191 (+45%) from 2010
Net Assets
Down-$683,360
Down $325,082 (-91%) from 2010
Liabilities
Up$1,300,064
Up $517,273 (+66%) from 2010
Revenue
-
No earlier filing loaded for comparison.
Expenses
Down$1,043,788
Down $750,343 (-42%) from 2010
Net Income
-
No earlier filing loaded for comparison.
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReview | 0 | false |
| IRS990/AccountsPayableAccruedExpenses/BOY | 0 | 54023 |
| IRS990/AccountsPayableAccruedExpenses/EOY | 0 | 43756 |
| IRS990/AccountsReceivable/BOY | 0 | 409 |
| IRS990/ActivitiesConductedPartnership | 0 | false |
| IRS990/Activity2/Description | 0 | BBDF PARTNERED WITH THE ALZHEIMER'S DRUG DISCOVERY FOUNDATION TO SPONSOR 20 CLINICIAN SCIENTISTS AND INVESTIGATORS IN JUVENILE NEURONAL CEROID (JNCL) RESEARCH TO ATTEND THE 5TH DRUG DISCOVERY IN NEURODEGENERATION: AN INTENSIVE COURSE ON TRANSLATING RESEARCH INTO DRUGS IMMEDIATELY FOLLOWED BY A ONE-DAY CONFERENCE FOCUSED EXCLUSIVELY ON DRUG DISCOVERY IN JNCL. THE GOAL OF THE COMBINED COURSE AND CONFERENCE WAS TO ACCELERATE THE PROGRESS OF TRANSLATING JNCL BASIC SCIENCE RESEARCH INTO DRUG DISCOVER |
| IRS990/Activity2/Expense | 0 | 27842 |
| IRS990/Activity2/Revenue | 0 | 15000 |
| IRS990/Activity3/Description | 0 | THE BEYOND BATTEN DISEASE FOUNDATION AWARDED A GRANT TO TEXAS CHILDREN'S HOSPITAL FOR RESEARCH RELATED TO JUVENILE BATTEN DISEASE. |
| IRS990/Activity3/Expense | 0 | 250000 |
| IRS990/Activity3/Grants | 0 | 250000 |
| IRS990/ActivityOrMissionDescription | 0 | Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple carrier screening test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children. |
| IRS990/AddressPrincipalOfficerUS/AddressLine1 | 0 | 3300 DUVALSTE 110 |
| IRS990/AddressPrincipalOfficerUS/City | 0 | AUSTIN |
| IRS990/AddressPrincipalOfficerUS/State | 0 | TX |
| IRS990/AddressPrincipalOfficerUS/ZIPCode | 0 | 78759 |
| IRS990/Advertising/Fundraising | 0 | 4138 |
| IRS990/Advertising/ManagementAndGeneral | 0 | 2315 |
| IRS990/Advertising/ProgramServices | 0 | 15203 |
| IRS990/Advertising/Total | 0 | 21656 |
| IRS990/AllOtherContributions | 0 | 486054 |
| IRS990/AllOtherExpenses/Fundraising | 0 | 512 |
| IRS990/AllOtherExpenses/ManagementAndGeneral | 0 | 189 |
| IRS990/AllOtherExpenses/ProgramServices | 0 | 618 |
| IRS990/AllOtherExpenses/Total | 0 | 1319 |
| IRS990/AnnualDisclosureCoveredPersons | 0 | true |
| IRS990/BenefitsPaidToMembersCY | 0 | 0 |
| IRS990/BsnssRltnshpThruFamilyMember | 0 | false |
| IRS990/BsnssRltnshpWithOrganization | 0 | false |
| IRS990/CashNonInterestBearing/BOY | 0 | 421954 |
| IRS990/CashNonInterestBearing/EOY | 0 | 613911 |
| IRS990/ChangesToOrganizingDocs | 0 | false |
| IRS990/CntrbtnsRprtdFundraisingEvents | 0 | 13200 |
| IRS990/CollectionsOfArt | 0 | false |
| IRS990/CompCurrentOfficersDirectors/Fundraising | 0 | 21250 |
| IRS990/CompCurrentOfficersDirectors/ManagementAndGeneral | 0 | 12750 |
| IRS990/CompCurrentOfficersDirectors/ProgramServices | 0 | 51000 |
| IRS990/CompCurrentOfficersDirectors/Total | 0 | 85000 |
| IRS990/CompensationFromOtherSources | 0 | false |
| IRS990/CompensationProcessCEO | 0 | true |
| IRS990/CompensationProcessOther | 0 | false |
| IRS990/ComplianceWithBackupWitholding | 0 | true |
| IRS990/ConferencesMeetings/Fundraising | 0 | 4176 |
| IRS990/ConferencesMeetings/ManagementAndGeneral | 0 | 2784 |
| IRS990/ConferencesMeetings/ProgramServices | 0 | 27842 |
| IRS990/ConferencesMeetings/Total | 0 | 34802 |
| IRS990/ConflictOfInterestPolicy | 0 | true |
| IRS990/ConservationEasements | 0 | false |
| IRS990/ConsolidatedAuditFinancialStmt | 0 | false |
| IRS990/ContributionsGrantsCurrentYear | 0 | 499254 |
| IRS990/ContributionsGrantsPriorYear | 0 | 514210 |
| IRS990/CreditCounseling | 0 | false |
| IRS990/DecisionsSubjectToApproval | 0 | false |
| IRS990/DeductibleContributionsOfArt | 0 | false |
| IRS990/DeductibleNonCashContributions | 0 | false |
| IRS990/DelegationOfManagementDuties | 0 | false |
| IRS990/DepreciationDepletion/Fundraising | 0 | 230 |
| IRS990/DepreciationDepletion/ManagementAndGeneral | 0 | 129 |
| IRS990/DepreciationDepletion/ProgramServices | 0 | 423 |
| IRS990/DepreciationDepletion/Total | 0 | 782 |
| IRS990/DescribedIn501C3 | 0 | true |
| IRS990/Description | 0 | THE BEYOND BATTEN DISEASE FOUNDATION AWARDED A GRANT TO THE NATIONAL CENTER FOR GENOME RESOURCES TO DEVELOP A LOW-COST CARRIER SCREENING TEST FOR HUNDREDS OF DEVASTATING, RECESSIVE GENETIC DISEASES THAT AFFECT CHILDREN, INCLUDING BATTEN DISEASE. THE FOUNDATION'S GOAL IS TO PREVENT BATTEN DISEASE AND OTHER GENETIC DISEASES BY SCREENING YOUNG MEN AND WOMEN BEFORE THEY DECIDE TO HAVE CHILDREN. THIS APPROACH HAS PROVEN EFFECTIVE IN PREVENTING OTHER DISEASES, SUCH AS TAY-SACHS DISEASE, WHICH HAS BEEN VIRTUALLY ELIMINATED FROM AT-RISK POPULATIONS THROUGH VOLUNTARY CARRIER SCREENING AND GENETIC COUNSELING. |
| IRS990/DisregardedEntity | 0 | false |
| IRS990/DocumentRetentionPolicy | 0 | true |
| IRS990/DonorAdvisedFunds | 0 | true |
| IRS990/ElectionOfBoardMembers | 0 | false |
| IRS990/EmploymentTaxReturnsFiled | 0 | true |
| IRS990/ExcessBenefitTransaction | 0 | false |
| IRS990/Expense | 0 | 583690 |
| IRS990/FamilyOrBusinessRelationship | 0 | true |
| IRS990/FederalGrantAuditRequired | 0 | false |
| IRS990/FeesForServicesAccounting/Fundraising | 0 | 704 |
| IRS990/FeesForServicesAccounting/ManagementAndGeneral | 0 | 394 |
| IRS990/FeesForServicesAccounting/ProgramServices | 0 | 1291 |
| IRS990/FeesForServicesAccounting/Total | 0 | 2389 |
| IRS990/FeesForServicesLegal/Fundraising | 0 | 4155 |
| IRS990/FeesForServicesLegal/ManagementAndGeneral | 0 | 2325 |
| IRS990/FeesForServicesLegal/ProgramServices | 0 | 7620 |
| IRS990/FeesForServicesLegal/Total | 0 | 14100 |
| IRS990/FeesForServicesOther/Fundraising | 0 | 23919 |
| IRS990/FeesForServicesOther/ManagementAndGeneral | 0 | 8409 |
| IRS990/FeesForServicesOther/ProgramServices | 0 | 106141 |
| IRS990/FeesForServicesOther/Total | 0 | 138469 |
| IRS990/FeesForServicesProfFundraising/Fundraising | 0 | 18180 |
| IRS990/FeesForServicesProfFundraising/Total | 0 | 18180 |
| IRS990/FollowSFAS117 | 0 | X |
| IRS990/ForeignActivities | 0 | false |
| IRS990/ForeignFinancialAccount | 0 | false |
| IRS990/ForeignOffice | 0 | false |
| IRS990/Form8282PropertyDisposedOf | 0 | false |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 0 | 20.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 1 | 4.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 2 | 4.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 3 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 4 | 1.00 |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 0 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 2 | X |
| IRS990/Form990PartVIISectionA/NamePerson | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionA/NamePerson | 1 | DR MARK CHANDLER |
| IRS990/Form990PartVIISectionA/NamePerson | 2 | DR KYLE L JANEK |
| IRS990/Form990PartVIISectionA/NamePerson | 3 | SUZANNE KHO |
| IRS990/Form990PartVIISectionA/NamePerson | 4 | PATRICK S MCCLAIN |
| IRS990/Form990PartVIISectionA/Officer | 0 | X |
| IRS990/Form990PartVIISectionA/Officer | 1 | X |
| IRS990/Form990PartVIISectionA/OtherCompensation | 0 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 1 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 2 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 3 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 3 | 85000 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 4 | 0 |
| IRS990/Form990PartVIISectionA/Title | 0 | Director |
| IRS990/Form990PartVIISectionA/Title | 1 | Director |
| IRS990/Form990PartVIISectionA/Title | 2 | Director |
| IRS990/Form990PartVIISectionA/Title | 3 | President & Exec Dir |
| IRS990/Form990PartVIISectionA/Title | 4 | VP, Secr, Treasurer |
| IRS990/Form990ProvidedToGoverningBody | 0 | true |
| IRS990/FormersListed | 0 | false |
| IRS990/FSAudited | 0 | false |
| IRS990/FundraisingActivities | 0 | true |
| IRS990/FundraisingDirectExpenses | 0 | 116290 |
| IRS990/FundraisingEvents | 0 | 13200 |
| IRS990/FundsToPayPremiums | 0 | false |
| IRS990/GainOrLoss/Securities | 0 | -44 |
| IRS990/Gaming | 0 | false |
| IRS990/Grants | 0 | 300562 |
| IRS990/GrantsAndSimilarAmntsCY | 0 | 556562 |
| IRS990/GrantsAndSimilarAmntsPriorYear | 0 | 1522019 |
| IRS990/GrantsPayable/BOY | 0 | 328768 |
| IRS990/GrantsPayable/EOY | 0 | 545998 |
| IRS990/GrantsToDomesticOrgs/ProgramServices | 0 | 556562 |
| IRS990/GrantsToDomesticOrgs/Total | 0 | 556562 |
| IRS990/GrantsToIndividuals | 0 | true |
| IRS990/GrantsToOrganizations | 0 | true |
| IRS990/GrantToRelatedPerson | 0 | false |
| IRS990/GrossAmountSalesAssets/Securities | 0 | 890 |
| IRS990/GrossIncomeFundraisingEvents | 0 | 335417 |
| IRS990/GrossReceipts | 0 | 835930 |
| IRS990/GroupReturnForAffiliates | 0 | false |
| IRS990/Hospital | 0 | false |
| IRS990/IndependentAuditFinancialStmt | 0 | false |
| IRS990/IndoorTanningServices | 0 | false |
| IRS990/InfoInScheduleOPartVI | 0 | X |
| IRS990/InformationTechnology/Fundraising | 0 | 94 |
| IRS990/InformationTechnology/ManagementAndGeneral | 0 | 53 |
| IRS990/InformationTechnology/ProgramServices | 0 | 172 |
| IRS990/InformationTechnology/Total | 0 | 319 |
| IRS990/Insurance/Fundraising | 0 | 594 |
| IRS990/Insurance/ManagementAndGeneral | 0 | 333 |
| IRS990/Insurance/ProgramServices | 0 | 1089 |
| IRS990/Insurance/Total | 0 | 2016 |
| IRS990/Interest/Fundraising | 0 | 3924 |
| IRS990/Interest/ManagementAndGeneral | 0 | 2196 |
| IRS990/Interest/ProgramServices | 0 | 7197 |
| IRS990/Interest/Total | 0 | 13317 |
| IRS990/InvestmentIncomeCurrentYear | 0 | 325 |
| IRS990/InvestmentIncomePriorYear | 0 | 54 |
| IRS990/InvestmentIncome/TotalRevenueColumn | 0 | 369 |
| IRS990/InvestmentInJointVenture | 0 | false |
| IRS990/LandBldgEquipmentAccumDeprec | 0 | 1564 |
| IRS990/LandBuildingsEquipmentBasis | 0 | 2932 |
| IRS990/LandBuildingsEquipmentBasisNet/BOY | 0 | 2150 |
| IRS990/LandBuildingsEquipmentBasisNet/EOY | 0 | 1368 |
| IRS990/LessCostOthBasisSalesExpenses/Securities | 0 | 934 |
| IRS990/LoansFromOfficersDirectors/BOY | 0 | 400000 |
| IRS990/LoansFromOfficersDirectors/EOY | 0 | 710310 |
| IRS990/LoanToOfficerOrDQP | 0 | true |
| IRS990/LobbyingActivities | 0 | false |
| IRS990/LocalChapters | 0 | false |
| IRS990/MaterialDiversionOrMisuse | 0 | false |
| IRS990/MembersOrStockholders | 0 | false |
| IRS990/MethodOfAccountingAccrual | 0 | X |
| IRS990/MinutesOfCommittees | 0 | true |
| IRS990/MinutesOfGoverningBody | 0 | true |
| IRS990/MissionDescription | 0 | Beyond Batten Disease Foundation was |
| IRS990/MoreThan5000KToIndividuals | 0 | false |
| IRS990/MoreThan5000KToOrganizations | 0 | false |
| IRS990/NameOfPrincipalOfficerPerson | 0 | SUZANNE KHO |
| IRS990/NbrIndependentVotingMembers | 0 | 0 |
| IRS990/NbrVotingGoverningBodyMembers | 0 | 3 |
| IRS990/NbrVotingMembersGoverningBody | 0 | 3 |
| IRS990/NetAssetsOrFundBalancesBOY | 0 | -358278 |
| IRS990/NetAssetsOrFundBalancesEOY | 0 | -683360 |
| IRS990/NetGainOrLossInvestments/RelatedOrExemptFunctionIncome | 0 | -44 |
| IRS990/NetGainOrLossInvestments/TotalRevenueColumn | 0 | -44 |
| IRS990/NetIncomeFromFundraisingEvents/TotalRevenueColumn | 0 | 219127 |
| IRS990/NetIncomeFromFundraisingEvents/UnrelatedBusinessRevenue | 0 | 219127 |
| IRS990/NoncashContributions | 0 | 7125 |
| IRS990/NonDeductibleContributions | 0 | false |
| IRS990/NumberFormsTransmittedWith1096 | 0 | 0 |
| IRS990/NumberIndependentVotingMembers | 0 | 0 |
| IRS990/NumberOfEmployees | 0 | 3 |
| IRS990/NumberW2GIncluded | 0 | 0 |
| IRS990/OfficeExpenses/Fundraising | 0 | 600 |
| IRS990/OfficeExpenses/ManagementAndGeneral | 0 | 336 |
| IRS990/OfficeExpenses/ProgramServices | 0 | 1101 |
| IRS990/OfficeExpenses/Total | 0 | 2037 |
| IRS990/OfficerEntityWithBsnssRltnshp | 0 | false |
| IRS990/OfficerMailingAddress | 0 | false |
| IRS990/Organization501c3 | 0 | X |
| IRS990/OtherEmployeeBenefits/Fundraising | 0 | 3999 |
| IRS990/OtherEmployeeBenefits/ManagementAndGeneral | 0 | 2238 |
| IRS990/OtherEmployeeBenefits/ProgramServices | 0 | 7333 |
| IRS990/OtherEmployeeBenefits/Total | 0 | 13570 |
| IRS990/OtherExpensePriorYear | 0 | 141984 |
| IRS990/OtherExpensesCurrentYear | 0 | 325126 |
| IRS990/OtherExpenses/Description | 0 | Bank/Credit Card Fees |
| IRS990/OtherExpenses/Description | 1 | Event Costs |
| IRS990/OtherExpenses/Description | 2 | Meals & Entertainment |
| IRS990/OtherExpenses/Description | 3 | Postage & Shipping |
| IRS990/OtherExpenses/Description | 4 | Printing & Publications |
| IRS990/OtherExpenses/Fundraising | 0 | 3917 |
| IRS990/OtherExpenses/Fundraising | 1 | 13732 |
| IRS990/OtherExpenses/Fundraising | 2 | 433 |
| IRS990/OtherExpenses/Fundraising | 3 | 911 |
| IRS990/OtherExpenses/Fundraising | 4 | 1497 |
| IRS990/OtherExpenses/ManagementAndGeneral | 0 | 2192 |
| IRS990/OtherExpenses/ManagementAndGeneral | 1 | 4757 |
| IRS990/OtherExpenses/ManagementAndGeneral | 2 | 242 |
| IRS990/OtherExpenses/ManagementAndGeneral | 3 | 505 |
| IRS990/OtherExpenses/ManagementAndGeneral | 4 | 838 |
| IRS990/OtherExpenses/ProgramServices | 0 | 7183 |
| IRS990/OtherExpenses/ProgramServices | 1 | 29063 |
| IRS990/OtherExpenses/ProgramServices | 2 | 794 |
| IRS990/OtherExpenses/ProgramServices | 3 | 1691 |
| IRS990/OtherExpenses/ProgramServices | 4 | 2745 |
| IRS990/OtherExpenses/Total | 0 | 13292 |
| IRS990/OtherExpenses/Total | 1 | 47552 |
| IRS990/OtherExpenses/Total | 2 | 1469 |
| IRS990/OtherExpenses/Total | 3 | 3107 |
| IRS990/OtherExpenses/Total | 4 | 5080 |
| IRS990/OtherRevenueCurrentYear | 0 | 219127 |
| IRS990/OtherRevenuePriorYear | 0 | 99007 |
| IRS990/OtherSalariesAndWages/Fundraising | 0 | 14434 |
| IRS990/OtherSalariesAndWages/ManagementAndGeneral | 0 | 7218 |
| IRS990/OtherSalariesAndWages/ProgramServices | 0 | 14435 |
| IRS990/OtherSalariesAndWages/Total | 0 | 36087 |
| IRS990/PartialLiquidation | 0 | false |
| IRS990/PayrollTaxes/Fundraising | 0 | 2730 |
| IRS990/PayrollTaxes/ManagementAndGeneral | 0 | 1527 |
| IRS990/PayrollTaxes/ProgramServices | 0 | 5006 |
| IRS990/PayrollTaxes/Total | 0 | 9263 |
| IRS990/PoliticalActivities | 0 | false |
| IRS990/PremiumsPaid | 0 | false |
| IRS990/PrepaidExpensesDeferredCharges/EOY | 0 | 1425 |
| IRS990/PriorExcessBenefitTransaction | 0 | false |
| IRS990/ProfessionalFundraising | 0 | true |
| IRS990/ProgramServiceRevenueCY | 0 | 0 |
| IRS990/ProhibitedTaxShelterTrans | 0 | false |
| IRS990/QuidProQuoContributions | 0 | true |
| IRS990/QuidProQuoDisclosure | 0 | true |
| IRS990/ReconcilationRevenueExpenses | 0 | -325082 |
| IRS990/RegularMonitoringEnforcement | 0 | true |
| IRS990/RelatedEntity | 0 | false |
| IRS990/RelatedOrgControlledEntity | 0 | false |
| IRS990/ReportFin48Footnote | 0 | false |
| IRS990/ReportInvestOthSecurities | 0 | false |
| IRS990/ReportLandBldgEquip | 0 | true |
| IRS990/ReportOtherAssets | 0 | false |
| IRS990/ReportOtherLiabilities | 0 | false |
| IRS990/ReportProgRelInvest | 0 | false |
| IRS990/Revenue | 0 | 829046 |
| IRS990/RevenuesLessExpensesCY | 0 | -325082 |
| IRS990/RevenuesLessExpensesPriorYear | 0 | -1180860 |
| IRS990/SalariesEtcCurrentYear | 0 | 143920 |
| IRS990/SalariesEtcPriorYear | 0 | 130128 |
| IRS990ScheduleA/First5Years170 | 0 | X |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear | 0 | 829046 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year | 0 | 683182 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus2Years | 0 | 1290974 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/Total | 0 | 2803202 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear | 0 | 369 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year | 0 | 54 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus2Years | 0 | 5159 |
| IRS990ScheduleA/GrossInvestmentIncome170/Total | 0 | 5582 |
| IRS990ScheduleA/InvestmentIncomePercentage | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg170b1Avi | 0 | X |
| IRS990ScheduleA/PublicSupportPercentage509 | 0 | 0 |
| IRS990ScheduleA/PublicSupportPertcentage170 | 0 | 0 |
| IRS990ScheduleA/PublicSupportTotal170 | 0 | 2803202 |
| IRS990ScheduleA/PublicSupportTotal509 | 0 | 0 |
| IRS990ScheduleA/Total170/CurrentTaxYear | 0 | 829046 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year | 0 | 683182 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years | 0 | 1290974 |
| IRS990ScheduleA/Total170/Total | 0 | 2803202 |
| IRS990ScheduleA/TotalSupport | 0 | 2808784 |
| IRS990ScheduleB/ContributorInfo/AggregateContributions | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNumber | 0 | RESTRICTED |
| IRS990/ScheduleBRequired | 0 | true |
| IRS990ScheduleD/AggregateDAFValue | 0 | 357221 |
| IRS990ScheduleD/DisclosedForCharitablePurposes | 0 | true |
| IRS990ScheduleD/DisclosedOrgsLegalControl | 0 | true |
| IRS990ScheduleD/DonorAdvisedContributions | 0 | 110242 |
| IRS990ScheduleD/Equipment/BookValue | 0 | 1368 |
| IRS990ScheduleD/Equipment/Depreciation | 0 | 1564 |
| IRS990ScheduleD/Equipment/InvestmentCostOrOtherBasis | 0 | 2932 |
| IRS990ScheduleD/GrantsPaidFromDonorFunds | 0 | 6000 |
| IRS990ScheduleD/NumberDAFsHeld | 0 | 1 |
| IRS990ScheduleD/TotalOfBookValueLandBuildings | 0 | 1368 |
| IRS990ScheduleG/AgreementRefFundraising | 0 | true |
| IRS990ScheduleG/EventsInformation/DirectExpenseSummaryEvents | 0 | 116290 |
| IRS990ScheduleG/EventsInformation/EntertainmentEvent2 | 0 | 10295 |
| IRS990ScheduleG/EventsInformation/EntertainmentOtherEvents | 0 | 1250 |
| IRS990ScheduleG/EventsInformation/EntertainmentTotalEvents | 0 | 11545 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageEvent1 | 0 | 30236 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageEvent2 | 0 | 23728 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageOtherEvents | 0 | 5417 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageTotalEvents | 0 | 59381 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsEvent1 | 0 | 93550 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsEvent2 | 0 | 201967 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsOtherEvents | 0 | 39900 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsTotal | 0 | 335417 |
| IRS990ScheduleG/EventsInformation/GrossRevenueEvent1 | 0 | 93550 |
| IRS990ScheduleG/EventsInformation/GrossRevenueEvent2 | 0 | 201967 |
| IRS990ScheduleG/EventsInformation/GrossRevenueOtherEvents | 0 | 39900 |
| IRS990ScheduleG/EventsInformation/GrossRevenueTotalEvents | 0 | 335417 |
| IRS990ScheduleG/EventsInformation/NameOfEvent1 | 0 | GOLF EVENTS |
| IRS990ScheduleG/EventsInformation/NameOfEvent2 | 0 | GALA EVENTS |
| IRS990ScheduleG/EventsInformation/NetIncomeSummary | 0 | 219127 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesEvent1 | 0 | 3988 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesEvent2 | 0 | 6261 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesOtherEvents | 0 | 2042 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesTotalEvents | 0 | 12291 |
| IRS990ScheduleG/EventsInformation/OtherDirectExpensesEvent1 | 0 | 214 |
| IRS990ScheduleG/EventsInformation/OtherDirectExpensesEvent2 | 0 | 10119 |
| IRS990ScheduleG/EventsInformation/OtherDirectExpensesTotalEvents | 0 | 10333 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsEvent1 | 0 | 12316 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsEvent2 | 0 | 9064 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsOtherEvents | 0 | 1360 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsTotalEvents | 0 | 22740 |
| IRS990ScheduleG/FundraiserActivityInformation/Activity | 0 | EVENTS |
| IRS990ScheduleG/FundraiserActivityInformation/AmountRetainedByContractor | 0 | 13950 |
| IRS990ScheduleG/FundraiserActivityInformation/FundraiserControlOfFunds | 0 | false |
| IRS990ScheduleG/FundraiserActivityInformation/GrossReceipts | 0 | 231741 |
| IRS990ScheduleG/FundraiserActivityInformation/NameOfIndividual | 0 | RACHEL ARMBRUSTER |
| IRS990ScheduleG/FundraiserActivityInformation/NetToOrganization | 0 | 217791 |
| IRS990ScheduleG/SpecialFundraisingEvents | 0 | X |
| IRS990ScheduleG/TotalGrossReceipts | 0 | 231741 |
| IRS990ScheduleG/TotalNetToOrganization | 0 | 217791 |
| IRS990ScheduleG/TotalRetainedByContractors | 0 | 13950 |
| IRS990ScheduleI/Form990ScheduleIPartIV/Explanation | 0 | Grantees are required to submit periodic progress reports, both narrative |
| IRS990ScheduleI/Form990ScheduleIPartIV/Explanation | 1 | and financial, outlining their progress toward meeting the goals of their |
| IRS990ScheduleI/Form990ScheduleIPartIV/Explanation | 2 | project, and describing all expenditures. The reports are reviewed to |
| IRS990ScheduleI/Form990ScheduleIPartIV/Explanation | 3 | ensure compliance with the original scope of work and proposed budget. |
| IRS990ScheduleI/Form990ScheduleIPartIV/Identifier | 0 | Pt I Line 2 |
| IRS990ScheduleI/Form990ScheduleIPartIV/Identifier | 1 | Pt I Line 2 |
| IRS990ScheduleI/Form990ScheduleIPartIV/Identifier | 2 | Pt I Line 2 |
| IRS990ScheduleI/Form990ScheduleIPartIV/Identifier | 3 | Pt I Line 2 |
| IRS990ScheduleI/RecipientTable/AddressUS/AddressLine1 | 0 | 2935 RODEO PARK DRIVE EAST |
| IRS990ScheduleI/RecipientTable/AddressUS/AddressLine1 | 1 | 166 HUMPHRIES DRIVE |
| IRS990ScheduleI/RecipientTable/AddressUS/AddressLine1 | 2 | PO BOX 300630 |
| IRS990ScheduleI/RecipientTable/AddressUS/City | 0 | SANTA FE |
| IRS990ScheduleI/RecipientTable/AddressUS/City | 1 | REYNOLDSBURG |
| IRS990ScheduleI/RecipientTable/AddressUS/City | 2 | HOUSTON |
| IRS990ScheduleI/RecipientTable/AddressUS/State | 0 | NM |
| IRS990ScheduleI/RecipientTable/AddressUS/State | 1 | OH |
| IRS990ScheduleI/RecipientTable/AddressUS/State | 2 | TX |
| IRS990ScheduleI/RecipientTable/AddressUS/ZIPCode | 0 | 87505 |
| IRS990ScheduleI/RecipientTable/AddressUS/ZIPCode | 1 | 43068 |
| IRS990ScheduleI/RecipientTable/AddressUS/ZIPCode | 2 | 77230 |
| IRS990ScheduleI/RecipientTable/AmountOfCashGrant | 0 | 300562 |
| IRS990ScheduleI/RecipientTable/AmountOfCashGrant | 1 | 6000 |
| IRS990ScheduleI/RecipientTable/AmountOfCashGrant | 2 | 250000 |
| IRS990ScheduleI/RecipientTable/EINOfRecipient | 0 | 850418280 |
| IRS990ScheduleI/RecipientTable/EINOfRecipient | 1 | 911397792 |
| IRS990ScheduleI/RecipientTable/EINOfRecipient | 2 | 741100555 |
| IRS990ScheduleI/RecipientTable/IRCSection | 0 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSection | 1 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSection | 2 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrant | 0 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrant | 1 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrant | 2 | See Sched O |
| IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine1 | 0 | NATIONAL CENTER FOR GENOME RESOURCES |
| IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine1 | 1 | BATTEN DISEASE SUPPORT & RESEARCH ASSOC |
| IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine1 | 2 | TEXAS CHILDRENS HOSPITAL |
| IRS990ScheduleI/RecordsMaintained | 0 | true |
| IRS990/ScheduleJRequired | 0 | false |
| IRS990ScheduleL/LoanTable/ApprovedByBoard | 0 | true |
| IRS990ScheduleL/LoanTable/ApprovedByBoard | 1 | true |
| IRS990ScheduleL/LoanTable/ApprovedByBoard | 2 | true |
| IRS990ScheduleL/LoanTable/BalanceDue | 0 | 206500 |
| IRS990ScheduleL/LoanTable/BalanceDue | 1 | 206500 |
| IRS990ScheduleL/LoanTable/BalanceDue | 2 | 297310 |
| IRS990ScheduleL/LoanTable/Default | 0 | false |
| IRS990ScheduleL/LoanTable/Default | 1 | false |
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Displayed year
2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.