Civic Intelligence

Beyond Batten Disease Foundation

990 • Fiscal year 2019 • EIN 26-3223661

Jul 01, 2018 to Jun 30, 2019 • Filed on Mar 01, 2020

PO Box 50221Austin, TX 78763

(512) 275-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.06x

Higher debt load relative to assets than 46% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

39th percentile

0.05x

Higher debt load relative to revenue than 39% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

95th percentile

66%

Higher net margin than 95% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

85th percentile

$160,081

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 3.4% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

99th percentile

389%

Faster asset growth than 99% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

95th percentile

125%

Faster revenue growth than 95% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Assets

Up

$3,529,982

Up $2,807,455 (+389%) from 2018

Net Assets

Up

$3,310,648

Up $3,060,007 (+1221%) from 2018

Liabilities

Down

$219,334

Down $252,552 (-54%) from 2018

Revenue

Up

$4,640,638

Up $2,581,575 (+125%) from 2018

Expenses

Up

$1,580,631

Up $536,580 (+51%) from 2018

Net Income

Up

$3,060,007

Up $2,044,995 (+201%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$2.0M$0-$2.0MAssets 2010: $424,513Liabilities 2010: $782,791Net Assets 2010: -$358,2782010Assets 2011: $616,704Liabilities 2011: $1,300,064Net Assets 2011: -$683,3602011Assets 2012: $1,068,425Liabilities 2012: $1,407,931Net Assets 2012: -$339,5062012Assets 2013: $1,605,506Liabilities 2013: $1,598,839Net Assets 2013: $6,6672013Assets 2014: $713,932Liabilities 2014: $945,981Net Assets 2014: -$232,0492014Assets 2015: $746,995Liabilities 2015: $1,578,190Net Assets 2015: -$831,1952015Assets 2016: $137,080Liabilities 2016: $272,573Net Assets 2016: -$135,4932016Assets 2018: $722,527Liabilities 2018: $471,886Net Assets 2018: $250,6412018Assets 2019: $3,529,982Liabilities 2019: $219,334Net Assets 2019: $3,310,6482019Assets 2020: $3,864,609Liabilities 2020: $177,214Net Assets 2020: $3,687,3952020Assets 2021: $3,773,556Liabilities 2021: $8,781Net Assets 2021: $3,764,7752021Assets 2022: $3,581,583Liabilities 2022: $220,016Net Assets 2022: $3,361,5672022Assets 2023: $3,231,365Liabilities 2023: $219,351Net Assets 2023: $3,012,0142023Assets 2024: $2,121,193Liabilities 2024: $158,613Net Assets 2024: $1,962,5802024Assets 2025: $1,859,709Liabilities 2025: $182,039Net Assets 2025: $1,677,6702025

Highlighted filing

2019

Assets$3,529,982
Liabilities$219,334
Net Assets$3,310,648

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,794,1312010Expenses 2011: $1,043,7882011Expenses 2012: $861,2322012Expenses 2013: $1,086,1512013Revenue 2014: $1,345,102Expenses 2014: $1,583,818Net Income 2014: -$238,7162014Revenue 2015: $1,011,861Expenses 2015: $1,611,007Net Income 2015: -$599,1462015Revenue 2016: $2,142,709Expenses 2016: $1,447,007Net Income 2016: $695,7022016Revenue 2018: $2,059,063Expenses 2018: $1,044,051Net Income 2018: $1,015,0122018Revenue 2019: $4,640,638Expenses 2019: $1,580,631Net Income 2019: $3,060,0072019Revenue 2020: $2,176,365Expenses 2020: $1,834,553Net Income 2020: $341,8122020Revenue 2021: $908,445Expenses 2021: $665,343Net Income 2021: $243,1022021Revenue 2022: $1,219,815Expenses 2022: $1,220,690Net Income 2022: -$8752022Revenue 2023: $1,028,636Expenses 2023: $1,036,148Net Income 2023: -$7,5122023Revenue 2024: $538,315Expenses 2024: $1,116,750Net Income 2024: -$578,4352024Revenue 2025: $306,063Expenses 2025: $892,974Net Income 2025: -$586,9112025

Highlighted filing

2019

Revenue$4,640,638
Expenses$1,580,631
Net Income$3,060,007
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
Mar 1, 2020
Return Version
2018v3.1
Gross Receipts
$4,945,078
Mission and Program Overview

Mission

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities-$2,518,000-
Savings and Temporary Cash Investments$188$704,545▲ $704,357
Pledges and Grants Receivable$286,544$211,289▼ $75,255
Cash and Non-Interest-Bearing Accounts$335,726$83,667▼ $252,059
Loans From Officers Directors$46,605$46,605→ $0
Prepaid Expenses and Deferred Charges$44,676$7,330▼ $37,346
Accounts Receivable$55,393$5,151▼ $50,242
Total Assets$722,527$3,529,982▲ $2,807,455
Liabilities
Accounts Payable and Accrued Expenses$408,783$163,593▼ $245,190
Deferred Revenue$16,498$9,136▼ $7,362
Total Liabilities$471,886$219,334▼ $252,552
Net Assets / Fund Balance
Unrestricted Net Assets$-35,903$3,099,359▲ $3,135,262
Temporarily Rstr Net Assets$286,544$211,289▼ $75,255
Total Net Assets Fund Balance$250,641$3,310,648▲ $3,060,007
Total Liabilities and Net Assets / Fund Balance$722,527$3,529,982▲ $2,807,455

Asset Categories

AssetBook ValueDepreciationBasis
Closely Held Equity Interests$2,518,000--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary Beth Kiser--$161,081-$161,081
Mary Beth KiserPresident/CEO and SecretaryFT$160,081-$160,081
Danielle KerkovichScientific OfficerFT$131,346$9,700$141,046

Board Members and Trustees

NameTitle
T Craig BensonBoard Chair
Caroline GoodnerDirector
Jeff HuntDirector
Sabrina BrownDirector
Wayne HerndonDirector
Will MurphyDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$4,652,945
Program Service Revenue
$0
Investment Income
$4,083
Other Revenue
$-16,390
All Other Contributions
$3,500,745
Change in Net Assets
$3,060,007

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Closely Held Stock3$2,518,000Fair Market Value (FMV)
Other Non Cash Contri Table1$21,500Fair Market Value (FMV)
Other Non Cash Contri Table1$3,776Fair Market Value (FMV)
Total Noncash Contributions5$2,543,276-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,640,638
Total Revenue per Audited Statements
$4,640,638
Total Revenue per Form 990
$4,640,638
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,157,511
Salaries, Compensation, and Employee Benefits$423,120
Total Fundraising Expense$206,880
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$668,846$0$37,117$705,963
Current Officers, Directors, Trustees, and Key Employees$151,773$100,438$48,916$301,127
Fees for Services Legal$157,399$0$0$157,399
Office Expenses$9,179$54,523$33,292$96,994
Other Salaries and Wages$47,403$31,369$15,278$94,050
Advertising$0$18,048$45,948$63,996
Occupancy$0$44,525$0$44,525
Fees for Services Accounting$0$28,523$0$28,523
Travel$24,730$257$3,510$28,497
Payroll Taxes$13,528$8,952$4,360$26,840
Information Technology$975$7,151$8,127$16,253
Conferences and Meetings$0$0$10,153$10,153
Interest$0$3,961$0$3,961
Insurance$0$1,247$0$1,247
Other Employee Benefits$556$368$179$1,103
Total Functional Expenses$1,074,389$299,362$206,880$1,580,631

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,580,631
Total Expenses per Audited Statements$1,580,631
Total Expenses per Form 990$1,580,631
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$304,440
Fundraising Gross Income$288,050
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hope Under the Stars$881,443$176,284$48,364$127,920
Hope on the Green$121,451$24,291$18,819$5,472
Total Events$1,117,120$223,420$243,486$-20,066
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$46,605$46,605→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Beyond Batten Disease Foundation
EIN
26-3223661
Phone
5122752600
Address
PO BOX 50221, AUSTIN, TX 78763

Signing Officer

Name
Mary Beth Kiser
Title
President/CEO
Phone
5122752600
Signed
2020-03-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary Beth Kiser
Formed
2008
Legal Domicile
TX
Voting Board Members
6
Independent Board Members
6
Employees
5
Volunteers
400

Preparer

Firm
Allman & Associates Inc
Address
9600 Great Hills Trail Suite 150W, Austin, TX 78759
Preparer
Peter L Allman CPA
Phone
5125023077
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

The form 990 is provided to all board members and officers for review before filing.

Pt VI, Line 12C

Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.

Pt VI, Line 15A

The president/ceo's compensation is reviewed and approved by the board of directors.

Pt VI, Line 15B

Other employee compensation is reviewed with comparable sources and approved by the board of directors.

Pt VI, Line 19

Information available upon request.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/InvestmentIncomeCYPct00
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IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt08601844
IRS990ScheduleA/TotalSupportAmt010755324
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt0449223
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt0510254
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt0787851
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt02146707
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleD/CloselyHeldEquityInterestsGrp/BookValueAmt02518000
IRS990ScheduleD/CloselyHeldEquityInterestsGrp/MethodValuationCd0F
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IRS990ScheduleD/RevenueSubtotalAmt04640638
IRS990ScheduleD/TotalBookValueSecuritiesAmt02518000
IRS990ScheduleD/TotalExpensesPerForm990Amt01580631
IRS990ScheduleD/TotalRevenuePerForm990Amt04640638
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt04640638
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01580631
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt097160
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0705159
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt091381
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0243486
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0HOPE ON THE GREEN
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0HOPE UNDER THE STARS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0121451
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0881443
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0114226
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt024291
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt0176284
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IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-20066
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt02814
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt069997
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt018819
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt048364
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt026696
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt084661
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt062132
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt0173489
IRS990ScheduleJ/AnyNonFixedPaymentsInd0false
IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd0false
IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd0false
IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd0false
IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd0false
IRS990ScheduleJ/EquityBasedCompArrngmInd0false
IRS990ScheduleJ/InitialContractExceptionInd0false
IRS990/ScheduleJRequiredInd0true
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt0161081
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusFilingOrganizationAmount00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusRelatedOrganizationsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompensationBasedOnRltdOrgsAmt00
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990RltdOrgsAmt00
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompRltdOrgsAmt00
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsRltdOrgsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationFilingOrgAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationRltdOrgsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0MARY BETH KISER
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationRltdOrgsAmt00
IRS990ScheduleJ/SeverancePaymentInd0false
IRS990ScheduleJ/SupplementalNonqualRtrPlanInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt046605
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0CARRIER SCREENING
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt0200000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm0MICHAEL SPAIN
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0RELATED PARTY
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IRS990ScheduleL/TotalBalanceDueAmt046605
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd0false
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt01
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt11
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IRS990ScheduleM/OtherNonCashContriTableGrp/Desc1VARIOUS
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0FMV
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1FMV
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
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IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt021500
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt13776
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0false
IRS990ScheduleM/SecuritiesCloselyHeldStockGrp/ContributionCnt03

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.86$0.18$1.68$0.31$0.89$0.59
2024Detailed filing. Detailed filing data is available for this year.$2.12$0.16$1.96$0.54$1.12$0.58
2023Detailed filing. Detailed filing data is available for this year.$3.23$0.22$3.01$1.03$1.04$0.01
2022Detailed filing. Detailed filing data is available for this year.$3.58$0.22$3.36$1.22$1.22$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.77$0.01$3.76$0.91$0.67$0.24
2020Detailed filing. Detailed filing data is available for this year.$3.86$0.18$3.69$2.18$1.83$0.34
2019Detailed filing. Detailed filing data is available for this year.$3.53$0.22$3.31$4.64$1.58$3.06
2018Detailed filing. Detailed filing data is available for this year.$0.72$0.47$0.25$2.06$1.04$1.02
2016Detailed filing. Detailed filing data is available for this year.$0.14$0.27$0.14$2.14$1.45$0.70
2015Detailed filing. Detailed filing data is available for this year.$0.75$1.58$0.83$1.01$1.61$0.60
2014Detailed filing. Detailed filing data is available for this year.$0.71$0.95$0.23$1.35$1.58$0.24
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.61$1.60$0.01$1.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$1.41$0.34$0.86
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$1.30$0.68$1.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.78$0.36$1.79