Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
990 • Fiscal year 2020 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
Liabilities / Revenue
40th percentile
Higher debt load relative to revenue than 40% of similar nonprofits.
Net Margin
68th percentile
Higher net margin than 68% of similar nonprofits.
Top Officer Pay
85th percentile
Higher top officer pay than 85% of similar nonprofits.
Top officer pay equals 7.2% of source-year revenue.
Asset Growth
58th percentile
Faster asset growth than 58% of similar nonprofits.
Revenue Growth
7th percentile
Faster revenue growth than 7% of similar nonprofits.
Assets
Up$3,864,609
Up $334,627 (+9.5%) from 2019
Net Assets
Up$3,687,395
Up $376,747 (+11%) from 2019
Liabilities
Down$177,214
Down $42,120 (-19%) from 2019
Revenue
Down$2,176,365
Down $2,464,273 (-53%) from 2019
Expenses
Up$1,834,553
Up $253,922 (+16%) from 2019
Net Income
Down$341,812
Down $2,718,195 (-89%) from 2019
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $2,518,000 | $2,518,000 | → $0 |
| Accounts Receivable | $5,151 | $718,880 | ▲ $713,729 |
| Savings and Temporary Cash Investments | $704,545 | $376,868 | ▼ $327,677 |
| Pledges and Grants Receivable | $211,289 | $146,423 | ▼ $64,866 |
| Cash and Non-Interest-Bearing Accounts | $83,667 | $92,440 | ▲ $8,773 |
| Loans From Officers Directors | $46,605 | $46,605 | → $0 |
| Prepaid Expenses and Deferred Charges | $7,330 | $11,998 | ▲ $4,668 |
| Total Assets | $3,529,982 | $3,864,609 | ▲ $334,627 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $163,593 | $129,532 | ▼ $34,061 |
| Deferred Revenue | $9,136 | $1,077 | ▼ $8,059 |
| Total Liabilities | $219,334 | $177,214 | ▼ $42,120 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $3,099,359 | $3,540,972 | ▲ $441,613 |
| Net Assets With Donor Restrictions | $211,289 | $146,423 | ▼ $64,866 |
| Total Net Assets Fund Balance | $3,310,648 | $3,687,395 | ▲ $376,747 |
| Total Liabilities and Net Assets / Fund Balance | $3,529,982 | $3,864,609 | ▲ $334,627 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Closely Held Equity Interests | $2,518,000 | - | - |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Mary Beth Kiser | President/CEO and Secretary | FT | $157,753 | - | $157,753 |
| Mary Beth Kiser | - | - | $157,753 | - | $157,753 |
| Danielle Kerkovich | Scientific Officer | FT | $131,959 | $9,700 | $141,659 |
| Name | Title |
|---|---|
| T Craig Benson | Board Chair |
| Caroline Goodner | Director |
| Jeff Hunt | Director |
| Sabrina Brown | Director |
| Wayne Herndon | Director |
| Will Murphy | Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,604,615 |
| Salaries, Compensation, and Employee Benefits | $209,938 |
| Total Fundraising Expense | $118,011 |
| Grants and Similar Amounts Paid | $20,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $1,079,880 | $29,808 | $11,406 | $1,121,094 |
| Fees for Services Management | $114,135 | $49,480 | $18,935 | $182,550 |
| Current Officers, Directors, Trustees, and Key Employees | $86,550 | $43,007 | $15,299 | $144,856 |
| Fees for Services Legal | $88,594 | $38,408 | $14,698 | $141,700 |
| Office Expenses | $11,847 | $25,273 | $37,553 | $74,673 |
| Occupancy | $35,038 | $5,311 | $5,311 | $45,660 |
| Other Salaries and Wages | $26,702 | $13,268 | $4,720 | $44,690 |
| Grants to Domestic Orgs | $20,000 | - | - | $20,000 |
| Fees for Services Accounting | $10,768 | $4,668 | $1,786 | $17,222 |
| Payroll Taxes | $8,218 | $1,453 | $4,084 | $13,755 |
| Travel | $11,073 | $864 | $1,766 | $13,703 |
| Other Employee Benefits | $3,966 | $701 | $1,970 | $6,637 |
| Interest | $0 | $3,961 | $0 | $3,961 |
| Advertising | $203 | $2,082 | $483 | $2,768 |
| Insurance | $0 | $1,284 | $0 | $1,284 |
| Total Functional Expenses | $1,496,974 | $219,568 | $118,011 | $1,834,553 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,834,553 |
| Total Expenses per Audited Statements | $1,834,553 |
| Total Expenses per Form 990 | $1,834,553 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Baylor College of Medicine | Houston, TX | 501(c)3 | Research Grant | $20,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $548,984 |
| Fundraising Direct Expenses | $231,497 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Huts | $554,886 | $276,722 | $29,826 | $246,896 |
| Rare Sisters Gala | $206,800 | $194,600 | $54,587 | $140,013 |
| Total Events | $842,580 | $548,982 | $231,495 | $317,487 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $46,605 | $46,605 | → $0 |
“The form 990 is provided to all board members and officers for review before filing.”
“Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.”
“The president/ceo's compensation is reviewed and approved by the board of directors.”
“Other employee compensation is reviewed with comparable sources and approved by the board of directors.”
“Information available upon request.”
“Line 9 - OTHER CHANGES IN NET ASSETS - LOSS ON LLC INTEREST ($34,935).”
“Loss on llc interest not included in audit.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 163593 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 129532 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 5151 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 718880 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 483 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2082 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 203 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2768 |
| IRS990/AllOtherContributionsAmt | 0 | 1342265 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | STRATEGIC ASSOCIATION MANAGEMENT |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5122752600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3305 STECK AVE STE 200 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AUSTIN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 78757 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 83667 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 92440 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 15299 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 43007 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 86550 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 144856 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 293596 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1640342 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 20000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 3471 |
| IRS990/CYOtherExpensesAmt | 0 | 1604615 |
| IRS990/CYOtherRevenueAmt | 0 | 532552 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 341812 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 209938 |
| IRS990/CYTotalExpensesAmt | 0 | 1834553 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 118011 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2176365 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 9136 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 1077 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 211289 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 146423 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 1496974 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 1786 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 4668 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 10768 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 17222 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 14698 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 38408 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 88594 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 141700 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 18935 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 49480 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 114135 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 182550 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 11406 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 29808 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1079880 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1121094 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 9700 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MARY BETH KISER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFF HUNT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SABRINA BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | WAYNE HERNDON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | WILL MURPHY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CAROLINE GOODNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 157753 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 131959 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT/CEO AND SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 293596 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 231497 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 548984 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 20000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 20000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 20000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 2407862 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1284 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1284 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 3961 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 3961 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 3471 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 3471 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 2518000 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 2518000 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | true |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 46605 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 46605 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembershipDuesAmt | 0 | 4481 |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 3310648 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 3687395 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 317487 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 317487 |
| IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 3099359 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3540972 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5311 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 5311 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 35038 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 45660 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 37553 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 25273 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 11847 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 74673 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 34935 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 1970 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 701 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 3966 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 6637 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 812210 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | NET INCOME (LOSS) FROM LLC INTERESTS |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | -34935 |
| IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt | 0 | -34935 |
| IRS990/OtherRevenueTotalAmt | 0 | -34935 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 4720 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 13268 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 26702 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 44690 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4084 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1453 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8218 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 13755 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 211289 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 146423 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 7330 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 11998 |
| IRS990/PrincipalOfficerNm | 0 | MARY BETH KISER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 4652945 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 4083 |
| IRS990/PYOtherExpensesAmt | 0 | 1157511 |
| IRS990/PYOtherRevenueAmt | 0 | -16390 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 3060007 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 423120 |
| IRS990/PYTotalExpensesAmt | 0 | 1580631 |
| IRS990/PYTotalRevenueAmt | 0 | 4640638 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 341812 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/ExclusionAmt | 0 | 250000 |
| IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 250000 |
| IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 704545 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 376868 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1640342 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2128850 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1548777 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2171376 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1970916 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 9460261 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 3471 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 4083 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 35 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 34 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1143 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 8766 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherSupportSumAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.75310 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.74200 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 8815092 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 645169 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1640342 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2128850 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1548777 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2171376 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1970916 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 9460261 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 11704532 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 317487 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 449223 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 510254 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 787851 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 170690 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 2235505 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/CloselyHeldEquityInterestsGrp/BookValueAmt | 0 | 2518000 |
| IRS990ScheduleD/CloselyHeldEquityInterestsGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1834553 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 34935 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 34935 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 2176365 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | LOSS ON LLC INTEREST NOT INCLUDED IN AUDIT. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt XI, Line 2d |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 2518000 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1834553 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 2176365 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 2211300 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1834553 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 293598 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 278164 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 12200 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 3234 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 231495 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentOtherEventsAmt | 0 | 37 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 37 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | HUTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | RARE SISTERS GALA |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 32490 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 32490 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 554886 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 206800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 80894 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 842580 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 276722 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 194600 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 77660 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 548982 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 317487 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 21219 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 105632 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 29826 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 54587 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 91560 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 1776 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 93336 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 20000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH GRANT |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | BAYLOR COLLEGE OF MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 741613878 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | ONE BAYLOR PLAZA BCM 200 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | HOUSTON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 77030 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATIONS RECEIVING GRANT FUNDS REPORT PERIODICALLY REGARDING THE USE OF FUNDS. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt I Line 2 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 0 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 1 |
| IRS990ScheduleJ/AnyNonFixedPaymentsInd | 0 | false |
| IRS990ScheduleJ/BoardOrCommitteeApprovalInd | 0 | X |
| IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd | 0 | false |
| IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd | 0 | false |
| IRS990ScheduleJ/CompensationSurveyInd | 0 | X |
| IRS990ScheduleJ/EquityBasedCompArrngmInd | 0 | false |
| IRS990ScheduleJ/InitialContractExceptionInd | 0 | false |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.