Liabilities / Assets
85th percentile
Higher debt load relative to assets than 85% of similar nonprofits.
990 • Fiscal year 2018 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
85th percentile
Higher debt load relative to assets than 85% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
91st percentile
Higher net margin than 91% of similar nonprofits.
Top Officer Pay
82nd percentile
Higher top officer pay than 82% of similar nonprofits.
Top officer pay equals 6.9% of source-year revenue.
Asset Growth
96th percentile
Faster asset growth than 96% of similar nonprofits.
Revenue Growth
34th percentile
Faster revenue growth than 34% of similar nonprofits.
Assets
Up$722,527
Up $585,447 (+427%) from 2016
Net Assets
Up$250,641
Up $386,134 (+285%) from 2016
Liabilities
Up$471,886
Up $199,313 (+73%) from 2016
Revenue
Down$2,059,063
Down $83,646 (-3.9%) from 2016
Expenses
Down$1,044,051
Down $402,956 (-28%) from 2016
Net Income
Up$1,015,012
Up $319,310 (+46%) from 2016
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $113,249 | $335,726 | ▲ $222,477 |
| Pledges and Grants Receivable | $479,684 | $286,544 | ▼ $193,140 |
| Accounts Receivable | $28,230 | $55,393 | ▲ $27,163 |
| Loans From Officers Directors | $46,605 | $46,605 | → $0 |
| Prepaid Expenses and Deferred Charges | $12,781 | $44,676 | ▲ $31,895 |
| Savings and Temporary Cash Investments | $266 | $188 | ▼ $78 |
| Total Assets | $634,210 | $722,527 | ▲ $88,317 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $934,431 | $408,783 | ▼ $525,648 |
| Grants Payable | $374,910 | - | - |
| Deferred Revenue | $42,635 | $16,498 | ▼ $26,137 |
| Total Liabilities | $1,398,581 | $471,886 | ▼ $926,695 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $479,684 | $286,544 | ▼ $193,140 |
| Unrestricted Net Assets | $-1,244,055 | $-35,903 | ▲ $1,208,152 |
| Total Net Assets Fund Balance | $-764,371 | $250,641 | ▲ $1,015,012 |
| Total Liabilities and Net Assets / Fund Balance | $634,210 | $722,527 | ▲ $88,317 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Mary Beth Kiser | President/CEO and Secretary | FT | $141,489 | - | $141,489 |
| Danielle Kerkovich | Scientific Officer | FT | $126,224 | $9,700 | $135,924 |
| Name | Title |
|---|---|
| T Craig Benson | Board Chair |
| Caroline Goodner | Director |
| Jeff Hunt | Director |
| Sabrina Brown | Director |
| Scott Young | Director |
| Will Murphy | Director |
| Pat Mcclain | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 16 | $98,695 | Fair Market Value |
| Other Non Cash Contri Table | 9 | $5,300 | Fair Market Value |
| Total Noncash Contributions | 25 | $103,995 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $434,632 |
| Other Expenses | $388,796 |
| Total Fundraising Expense | $277,736 |
| Grants and Similar Amounts Paid | $220,623 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $142,525 | $51,309 | $91,216 | $285,050 |
| Grants to Domestic Orgs | $180,055 | - | - | $180,055 |
| Advertising | $75,604 | $0 | $75,604 | $151,208 |
| Other Salaries and Wages | $57,515 | $20,568 | $35,373 | $113,456 |
| Office Expenses | $14,153 | $36,304 | $49,686 | $100,143 |
| Foreign Grants | $40,568 | - | - | $40,568 |
| Fees for Services Accounting | $0 | $34,705 | $0 | $34,705 |
| Payroll Taxes | $13,961 | $5,026 | $8,935 | $27,922 |
| Travel | $19,165 | $3,211 | $1,101 | $23,477 |
| Fees for Services Other | $0 | $20,598 | $217 | $20,815 |
| Occupancy | $0 | $17,818 | $0 | $17,818 |
| Interest | $13,628 | $3,961 | $0 | $17,589 |
| Information Technology | $0 | $0 | $12,979 | $12,979 |
| Fees for Services Legal | $8,728 | $0 | $0 | $8,728 |
| Other Employee Benefits | $4,102 | $1,477 | $2,625 | $8,204 |
| Insurance | $0 | $1,334 | $0 | $1,334 |
| Total Functional Expenses | $570,004 | $196,311 | $277,736 | $1,044,051 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,056,351 |
| Expenses per Audited Statements | $1,044,051 |
| Total Expenses per Form 990 | $1,044,051 |
| Expenses Not Reported on Form 990 | $12,300 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Camargo Pharmaceutical Services LLC | Blue Ash, OH | - | Research | $227,586 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $756,427 |
| Fundraising Direct Expenses | $246,173 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Hope Under the Stars | $604,714 | $496,752 | $44,065 | $452,687 |
| Hope on the Green | $101,725 | $101,100 | $15,284 | $85,816 |
| Total Events | $841,083 | $731,496 | $223,926 | $507,570 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $46,605 | $46,605 | → $0 |
“The form 990 is provided to all board members and officers for review before filing.”
“Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.”
“The president/ceo's compensation is reviewed and approved by the board of directors.”
“Other employee compensation is reviewed with comparable sources and approved by the board of directors.”
“Information available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 934431 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 408783 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 28230 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 55393 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 75604 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 75604 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 151208 |
| IRS990/AllOtherContributionsAmt | 0 | 1439187 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARY BETH KISER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5122752600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2714 BEE CAVE ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AUSTIN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 78746 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 113249 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 335726 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 91216 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 51309 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 142525 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 285050 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 109587 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1548774 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 220623 |
| IRS990/CYInvestmentIncomeAmt | 0 | 35 |
| IRS990/CYOtherExpensesAmt | 0 | 388796 |
| IRS990/CYOtherRevenueAmt | 0 | 510254 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 1015012 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 434632 |
| IRS990/CYTotalExpensesAmt | 0 | 1044051 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 277736 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2059063 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 42635 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 16498 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 9 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 570004 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 34705 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 34705 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 8728 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 8728 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 217 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 20598 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 20815 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 40568 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 40568 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 9700 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MARY BETH KISER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PAT MCCLAIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JEFF HUNT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | SABRINA BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | WILL MURPHY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | SCOTT YOUNG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CAROLINE GOODNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 141489 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 126224 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT/CEO AND SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 109587 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 246173 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 756427 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 220623 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 374910 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 180055 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 180055 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 2305236 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 12979 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 12979 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1334 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1334 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 3961 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 13628 |
| IRS990/InterestGrp/TotalAmt | 0 | 17589 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 35 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 35 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 9 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | true |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 46605 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 46605 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | -764371 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 250641 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 510254 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 510254 |
| IRS990/NoncashContributionsAmt | 0 | 103995 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 17818 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 17818 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 49686 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 36304 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 14153 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 100143 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2625 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1477 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4102 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 8204 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 35373 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 20568 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 57515 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 113456 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 8935 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5026 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 13961 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 27922 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 479684 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 286544 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 12781 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 44676 |
| IRS990/PrincipalOfficerNm | 0 | MARY BETH KISER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 2171376 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 2559730 |
| IRS990/PYInvestmentIncomeAmt | 0 | 34 |
| IRS990/PYOtherExpensesAmt | 0 | 579625 |
| IRS990/PYOtherRevenueAmt | 0 | 787851 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -628878 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 448784 |
| IRS990/PYTotalExpensesAmt | 0 | 3588139 |
| IRS990/PYTotalRevenueAmt | 0 | 2959261 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 1015012 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 266 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 188 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1548777 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2171376 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1970916 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 781925 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1191057 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 7664051 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 35 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 34 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1143 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1478 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 199 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 2889 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.74040 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.76330 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7047789 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 616262 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1548777 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2171376 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1970916 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 781925 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1191057 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 7664051 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 9518270 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 510254 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 787851 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 170690 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 228689 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 153846 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 1851330 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 12300 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 12300 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 12300 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1044051 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 12300 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 2059063 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1044051 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 2059063 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 2071363 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1056351 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 40568 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | CHECK |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 109587 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 625 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 107962 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 1000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 223926 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | HOPE ON THE GREEN |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | HOPE UNDER THE STARS |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 101725 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 604714 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 134644 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 841083 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 101100 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 496752 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 133644 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 731496 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 507570 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 995 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 60344 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 15284 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 44065 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 26991 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 76056 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 60535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 163582 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 227586 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | CAMARGO PHARMACEUTICAL SERVICES LLC |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 753119957 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 9825 KENWOOD RD STE 203 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | BLUE ASH |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 45242 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATIONS RECEIVING GRANT FUNDS REPORT PERIODICALLY REGARDING THE USE OF FUNDS. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt I Line 2 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 0 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt | 0 | 46605 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd | 0 | true |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd | 0 | false |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt | 0 | CARRIER SCREENING |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd | 0 | X |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt | 0 | 200000 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm | 0 | MICHAEL SPAIN |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt | 0 | RELATED PARTY |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd | 0 | true |
| IRS990ScheduleL/TotalBalanceDueAmt | 0 | 46605 |
| IRS990ScheduleM/AnyPropertyThatMustBeHeldInd | 0 | false |
| IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt | 0 | 16 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt | 1 | 9 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/Desc | 0 | MEDIA/PR/ADS |
| IRS990ScheduleM/OtherNonCashContriTableGrp/Desc | 1 | VARIOUS |
| IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt | 0 | FAIR MARKET VALUE |
| IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt | 1 | FAIR MARKET VALUE |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd | 1 | X |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt | 0 | 98695 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt | 1 | 5300 |
| IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd | 0 | true |
| IRS990ScheduleM/ThirdPartiesUsedInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE PRESIDENT/CEO'S COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | OTHER EMPLOYEE COMPENSATION IS REVIEWED WITH COMPARABLE SOURCES AND APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | INFORMATION AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 12c |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.