Civic Intelligence

Beyond Batten Disease Foundation

990 • Fiscal year 2018 • EIN 26-3223661

Jul 01, 2017 to Jun 30, 2018 • Filed on Nov 15, 2018

PO Box 50221Austin, TX 78763

(512) 275-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

85th percentile

0.65x

Higher debt load relative to assets than 85% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

67th percentile

0.23x

Higher debt load relative to revenue than 67% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

91st percentile

49%

Higher net margin than 91% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

82nd percentile

$141,489

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 6.9% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

96th percentile

130%

Faster asset growth than 96% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2018

Revenue Growth

34th percentile

-2.0%

Faster revenue growth than 34% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2018

Assets

Up

$722,527

Up $585,447 (+427%) from 2016

Net Assets

Up

$250,641

Up $386,134 (+285%) from 2016

Liabilities

Up

$471,886

Up $199,313 (+73%) from 2016

Revenue

Down

$2,059,063

Down $83,646 (-3.9%) from 2016

Expenses

Down

$1,044,051

Down $402,956 (-28%) from 2016

Net Income

Up

$1,015,012

Up $319,310 (+46%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$2.0M$0-$2.0MAssets 2010: $424,513Liabilities 2010: $782,791Net Assets 2010: -$358,2782010Assets 2011: $616,704Liabilities 2011: $1,300,064Net Assets 2011: -$683,3602011Assets 2012: $1,068,425Liabilities 2012: $1,407,931Net Assets 2012: -$339,5062012Assets 2013: $1,605,506Liabilities 2013: $1,598,839Net Assets 2013: $6,6672013Assets 2014: $713,932Liabilities 2014: $945,981Net Assets 2014: -$232,0492014Assets 2015: $746,995Liabilities 2015: $1,578,190Net Assets 2015: -$831,1952015Assets 2016: $137,080Liabilities 2016: $272,573Net Assets 2016: -$135,4932016Assets 2018: $722,527Liabilities 2018: $471,886Net Assets 2018: $250,6412018Assets 2019: $3,529,982Liabilities 2019: $219,334Net Assets 2019: $3,310,6482019Assets 2020: $3,864,609Liabilities 2020: $177,214Net Assets 2020: $3,687,3952020Assets 2021: $3,773,556Liabilities 2021: $8,781Net Assets 2021: $3,764,7752021Assets 2022: $3,581,583Liabilities 2022: $220,016Net Assets 2022: $3,361,5672022Assets 2023: $3,231,365Liabilities 2023: $219,351Net Assets 2023: $3,012,0142023Assets 2024: $2,121,193Liabilities 2024: $158,613Net Assets 2024: $1,962,5802024Assets 2025: $1,859,709Liabilities 2025: $182,039Net Assets 2025: $1,677,6702025

Highlighted filing

2018

Assets$722,527
Liabilities$471,886
Net Assets$250,641

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,794,1312010Expenses 2011: $1,043,7882011Expenses 2012: $861,2322012Expenses 2013: $1,086,1512013Revenue 2014: $1,345,102Expenses 2014: $1,583,818Net Income 2014: -$238,7162014Revenue 2015: $1,011,861Expenses 2015: $1,611,007Net Income 2015: -$599,1462015Revenue 2016: $2,142,709Expenses 2016: $1,447,007Net Income 2016: $695,7022016Revenue 2018: $2,059,063Expenses 2018: $1,044,051Net Income 2018: $1,015,0122018Revenue 2019: $4,640,638Expenses 2019: $1,580,631Net Income 2019: $3,060,0072019Revenue 2020: $2,176,365Expenses 2020: $1,834,553Net Income 2020: $341,8122020Revenue 2021: $908,445Expenses 2021: $665,343Net Income 2021: $243,1022021Revenue 2022: $1,219,815Expenses 2022: $1,220,690Net Income 2022: -$8752022Revenue 2023: $1,028,636Expenses 2023: $1,036,148Net Income 2023: -$7,5122023Revenue 2024: $538,315Expenses 2024: $1,116,750Net Income 2024: -$578,4352024Revenue 2025: $306,063Expenses 2025: $892,974Net Income 2025: -$586,9112025

Highlighted filing

2018

Revenue$2,059,063
Expenses$1,044,051
Net Income$1,015,012
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Nov 15, 2018
Return Version
2017v2.2
Gross Receipts
$2,305,236
Mission and Program Overview

Mission

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$113,249$335,726▲ $222,477
Pledges and Grants Receivable$479,684$286,544▼ $193,140
Accounts Receivable$28,230$55,393▲ $27,163
Loans From Officers Directors$46,605$46,605→ $0
Prepaid Expenses and Deferred Charges$12,781$44,676▲ $31,895
Savings and Temporary Cash Investments$266$188▼ $78
Total Assets$634,210$722,527▲ $88,317
Liabilities
Accounts Payable and Accrued Expenses$934,431$408,783▼ $525,648
Grants Payable$374,910--
Deferred Revenue$42,635$16,498▼ $26,137
Total Liabilities$1,398,581$471,886▼ $926,695
Net Assets / Fund Balance
Temporarily Rstr Net Assets$479,684$286,544▼ $193,140
Unrestricted Net Assets$-1,244,055$-35,903▲ $1,208,152
Total Net Assets Fund Balance$-764,371$250,641▲ $1,015,012
Total Liabilities and Net Assets / Fund Balance$634,210$722,527▲ $88,317
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary Beth KiserPresident/CEO and SecretaryFT$141,489-$141,489
Danielle KerkovichScientific OfficerFT$126,224$9,700$135,924

Board Members and Trustees

NameTitle
T Craig BensonBoard Chair
Caroline GoodnerDirector
Jeff HuntDirector
Sabrina BrownDirector
Scott YoungDirector
Will MurphyDirector
Pat McclainTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,548,774
Program Service Revenue
$0
Investment Income
$35
Other Revenue
$510,254
All Other Contributions
$1,439,187
Change in Net Assets
$1,015,012

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table16$98,695Fair Market Value
Other Non Cash Contri Table9$5,300Fair Market Value
Total Noncash Contributions25$103,995-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,059,063
Revenue Not Reported on Form 990
$12,300
Total Revenue per Audited Statements
$2,071,363
Total Revenue per Form 990
$2,059,063
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$434,632
Other Expenses$388,796
Total Fundraising Expense$277,736
Grants and Similar Amounts Paid$220,623
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$142,525$51,309$91,216$285,050
Grants to Domestic Orgs$180,055--$180,055
Advertising$75,604$0$75,604$151,208
Other Salaries and Wages$57,515$20,568$35,373$113,456
Office Expenses$14,153$36,304$49,686$100,143
Foreign Grants$40,568--$40,568
Fees for Services Accounting$0$34,705$0$34,705
Payroll Taxes$13,961$5,026$8,935$27,922
Travel$19,165$3,211$1,101$23,477
Fees for Services Other$0$20,598$217$20,815
Occupancy$0$17,818$0$17,818
Interest$13,628$3,961$0$17,589
Information Technology$0$0$12,979$12,979
Fees for Services Legal$8,728$0$0$8,728
Other Employee Benefits$4,102$1,477$2,625$8,204
Insurance$0$1,334$0$1,334
Total Functional Expenses$570,004$196,311$277,736$1,044,051

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,056,351
Expenses per Audited Statements$1,044,051
Total Expenses per Form 990$1,044,051
Expenses Not Reported on Form 990$12,300
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Camargo Pharmaceutical Services LLCBlue Ash, OH-Research$227,586

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$756,427
Fundraising Direct Expenses$246,173
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hope Under the Stars$604,714$496,752$44,065$452,687
Hope on the Green$101,725$101,100$15,284$85,816
Total Events$841,083$731,496$223,926$507,570
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$46,605$46,605→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Beyond Batten Disease Foundation
EIN
26-3223661
Phone
5122752600
Address
PO BOX 50221, AUSTIN, TX 78763

Signing Officer

Name
Mary Beth Kiser
Title
President/CEO
Phone
5122752600
Signed
2018-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary Beth Kiser
Formed
2008
Legal Domicile
TX
Voting Board Members
6
Independent Board Members
6
Employees
9
Volunteers
400

Preparer

Firm
Allman & Associates Inc
Address
9600 Great Hills Trail Suite 150W, Austin, TX 78759
Preparer
Peter L Allman CPA
Phone
5125023077
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

The form 990 is provided to all board members and officers for review before filing.

Pt VI, Line 12C

Each director and officer is required to annually sign a statement affirming that they have received a copy of the bylaws containing the conflict of interest policy, have read and understand the policy, and have agreed to comply with the policy.

Pt VI, Line 15A

The president/ceo's compensation is reviewed and approved by the board of directors.

Pt VI, Line 15B

Other employee compensation is reviewed with comparable sources and approved by the board of directors.

Pt VI, Line 19

Information available upon request.

Raw XML AppendixShowing 400 of 490 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0934431
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0408783
IRS990/AccountsReceivableGrp/BOYAmt028230
IRS990/AccountsReceivableGrp/EOYAmt055393
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
IRS990/AdvertisingGrp/FundraisingAmt075604
IRS990/AdvertisingGrp/ManagementAndGeneralAmt00
IRS990/AdvertisingGrp/ProgramServicesAmt075604
IRS990/AdvertisingGrp/TotalAmt0151208
IRS990/AllOtherContributionsAmt01439187
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0MARY BETH KISER
IRS990/BooksInCareOfDetail/PhoneNum05122752600
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt02714 BEE CAVE ROAD
IRS990/BooksInCareOfDetail/USAddress/CityNm0AUSTIN
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0TX
IRS990/BooksInCareOfDetail/USAddress/ZIPCd078746
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0113249
IRS990/CashNonInterestBearingGrp/EOYAmt0335726
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt091216
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt051309
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0142525
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0285050
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt0109587
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01548774
IRS990/CYGrantsAndSimilarPaidAmt0220623
IRS990/CYInvestmentIncomeAmt035
IRS990/CYOtherExpensesAmt0388796
IRS990/CYOtherRevenueAmt0510254
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt01015012
IRS990/CYSalariesCompEmpBnftPaidAmt0434632
IRS990/CYTotalExpensesAmt01044051
IRS990/CYTotalFundraisingExpenseAmt0277736
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt02059063
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0true
IRS990/DeferredRevenueGrp/BOYAmt042635
IRS990/DeferredRevenueGrp/EOYAmt016498
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt09
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0570004
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt034705
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt034705
IRS990/FeesForServicesLegalGrp/FundraisingAmt00
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt00
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt08728
IRS990/FeesForServicesLegalGrp/TotalAmt08728
IRS990/FeesForServicesOtherGrp/FundraisingAmt0217
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt020598
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt00
IRS990/FeesForServicesOtherGrp/TotalAmt020815
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt040568
IRS990/ForeignGrantsGrp/TotalAmt040568
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt020.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt24.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt34.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt44.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt54.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt64.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt74.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt840.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt89700
IRS990/Form990PartVIISectionAGrp/PersonNm0T CRAIG BENSON
IRS990/Form990PartVIISectionAGrp/PersonNm1MARY BETH KISER
IRS990/Form990PartVIISectionAGrp/PersonNm2PAT MCCLAIN
IRS990/Form990PartVIISectionAGrp/PersonNm3JEFF HUNT
IRS990/Form990PartVIISectionAGrp/PersonNm4SABRINA BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm5WILL MURPHY
IRS990/Form990PartVIISectionAGrp/PersonNm6SCOTT YOUNG
IRS990/Form990PartVIISectionAGrp/PersonNm7CAROLINE GOODNER
IRS990/Form990PartVIISectionAGrp/PersonNm8DANIELLE KERKOVICH
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1141489
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8126224
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT/CEO AND SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8SCIENTIFIC OFFICER
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0109587
IRS990/FundraisingDirectExpensesAmt0246173
IRS990/FundraisingGrossIncomeAmt0756427
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt06
IRS990/GrantAmt0220623
IRS990/GrantsPayableGrp/BOYAmt0374910
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0180055
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0180055
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt02305236
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt06
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt012979
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt00
IRS990/InformationTechnologyGrp/ProgramServicesAmt00
IRS990/InformationTechnologyGrp/TotalAmt012979
IRS990/InsuranceGrp/FundraisingAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt01334
IRS990/InsuranceGrp/ProgramServicesAmt00
IRS990/InsuranceGrp/TotalAmt01334
IRS990/InterestGrp/FundraisingAmt00
IRS990/InterestGrp/ManagementAndGeneralAmt03961
IRS990/InterestGrp/ProgramServicesAmt013628
IRS990/InterestGrp/TotalAmt017589
IRS990/InvestmentIncomeGrp/ExclusionAmt035
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt035
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0TX
IRS990/LoanOutstandingInd0true
IRS990/LoansFromOfficersDirectorsGrp/BOYAmt046605
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt046605
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt0-764371
IRS990/NetAssetsOrFundBalancesEOYAmt0250641
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0510254
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0510254
IRS990/NoncashContributionsAmt0103995
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt00
IRS990/OccupancyGrp/ManagementAndGeneralAmt017818
IRS990/OccupancyGrp/ProgramServicesAmt00
IRS990/OccupancyGrp/TotalAmt017818
IRS990/OfficeExpensesGrp/FundraisingAmt049686
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt036304
IRS990/OfficeExpensesGrp/ProgramServicesAmt014153
IRS990/OfficeExpensesGrp/TotalAmt0100143
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02625
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01477
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04102
IRS990/OtherEmployeeBenefitsGrp/TotalAmt08204
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt035373
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt020568
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt057515
IRS990/OtherSalariesAndWagesGrp/TotalAmt0113456
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt08935
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05026
IRS990/PayrollTaxesGrp/ProgramServicesAmt013961
IRS990/PayrollTaxesGrp/TotalAmt027922
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0479684
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0286544
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt012781
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt044676
IRS990/PrincipalOfficerNm0MARY BETH KISER
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt02171376
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt02559730
IRS990/PYInvestmentIncomeAmt034
IRS990/PYOtherExpensesAmt0579625
IRS990/PYOtherRevenueAmt0787851
IRS990/PYRevenuesLessExpensesAmt0-628878
IRS990/PYSalariesCompEmpBnftPaidAmt0448784
IRS990/PYTotalExpensesAmt03588139
IRS990/PYTotalRevenueAmt02959261
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt01015012
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0266
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0188
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01548777
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02171376
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01970916
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0781925
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01191057
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt07664051
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt035
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt034
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01143
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01478
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0199
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt02889
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.74040
IRS990ScheduleA/PublicSupportCY509Pct00
IRS990ScheduleA/PublicSupportPY170Pct00.76330
IRS990ScheduleA/PublicSupportTotal170Amt07047789
IRS990ScheduleA/PublicSupportTotal509Amt00
IRS990ScheduleA/SubstantialContributorsTotAmt0616262
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01548777
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02171376
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01970916
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0781925
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01191057
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt07664051
IRS990ScheduleA/TotalSupportAmt09518270
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt0510254
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt0787851
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt0170690
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt0228689
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt0153846
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt01851330
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt012300
IRS990ScheduleD/DonatedServicesUseFcltsAmt012300
IRS990ScheduleD/ExpensesNotReportedAmt012300
IRS990ScheduleD/ExpensesSubtotalAmt01044051
IRS990ScheduleD/RevenueNotReportedAmt012300
IRS990ScheduleD/RevenueSubtotalAmt02059063
IRS990ScheduleD/TotalExpensesPerForm990Amt01044051
IRS990ScheduleD/TotalRevenuePerForm990Amt02059063
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02071363
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01056351
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt040568
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Europe
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalOtherOrgCnt00
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0109587
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0625
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0107962
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt01000
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0223926
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0HOPE ON THE GREEN
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0HOPE UNDER THE STARS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0101725
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0604714
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0134644
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0841083
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0101100
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt0496752
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt0133644
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0731496
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0507570
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt0995
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt060344
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt015284
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt044065
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt026991
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt076056
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt060535
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt0163582
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0227586
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CAMARGO PHARMACEUTICAL SERVICES LLC
IRS990ScheduleI/RecipientTable/RecipientEIN0753119957
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt09825 KENWOOD RD STE 203
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BLUE ASH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd045242
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATIONS RECEIVING GRANT FUNDS REPORT PERIODICALLY REGARDING THE USE OF FUNDS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt I Line 2
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt01
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt046605
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0CARRIER SCREENING
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt0200000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm0MICHAEL SPAIN
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0RELATED PARTY
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd0true
IRS990ScheduleL/TotalBalanceDueAmt046605
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd0false
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt016
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt19
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc0MEDIA/PR/ADS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc1VARIOUS
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0FAIR MARKET VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1FAIR MARKET VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd1X
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt098695
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt15300
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0true
IRS990ScheduleM/ThirdPartiesUsedInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS AND OFFICERS FOR REVIEW BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1EACH DIRECTOR AND OFFICER IS REQUIRED TO ANNUALLY SIGN A STATEMENT AFFIRMING THAT THEY HAVE RECEIVED A COPY OF THE BYLAWS CONTAINING THE CONFLICT OF INTEREST POLICY, HAVE READ AND UNDERSTAND THE POLICY, AND HAVE AGREED TO COMPLY WITH THE POLICY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE PRESIDENT/CEO'S COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3OTHER EMPLOYEE COMPENSATION IS REVIEWED WITH COMPARABLE SOURCES AND APPROVED BY THE BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4INFORMATION AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt VI, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt VI, Line 12c

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.86$0.18$1.68$0.31$0.89$0.59
2024Detailed filing. Detailed filing data is available for this year.$2.12$0.16$1.96$0.54$1.12$0.58
2023Detailed filing. Detailed filing data is available for this year.$3.23$0.22$3.01$1.03$1.04$0.01
2022Detailed filing. Detailed filing data is available for this year.$3.58$0.22$3.36$1.22$1.22$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.77$0.01$3.76$0.91$0.67$0.24
2020Detailed filing. Detailed filing data is available for this year.$3.86$0.18$3.69$2.18$1.83$0.34
2019Detailed filing. Detailed filing data is available for this year.$3.53$0.22$3.31$4.64$1.58$3.06
2018Detailed filing. Detailed filing data is available for this year.$0.72$0.47$0.25$2.06$1.04$1.02
2016Detailed filing. Detailed filing data is available for this year.$0.14$0.27$0.14$2.14$1.45$0.70
2015Detailed filing. Detailed filing data is available for this year.$0.75$1.58$0.83$1.01$1.61$0.60
2014Detailed filing. Detailed filing data is available for this year.$0.71$0.95$0.23$1.35$1.58$0.24
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.61$1.60$0.01$1.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$1.41$0.34$0.86
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$1.30$0.68$1.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.78$0.36$1.79