Liabilities / Assets
95th percentile
Higher debt load relative to assets than 95% of similar nonprofits.
990 • Fiscal year 2014 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
95th percentile
Higher debt load relative to assets than 95% of similar nonprofits.
Liabilities / Revenue
81st percentile
Higher debt load relative to revenue than 81% of similar nonprofits.
Net Margin
14th percentile
Higher net margin than 14% of similar nonprofits.
Top Officer Pay
79th percentile
Higher top officer pay than 79% of similar nonprofits.
Top officer pay equals 9.5% of source-year revenue.
Asset Growth
1st percentile
Faster asset growth than 1% of similar nonprofits.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
Down$713,932
Down $891,574 (-56%) from 2013
Net Assets
Down-$232,049
Down $238,716 (-3581%) from 2013
Liabilities
Down$945,981
Down $652,858 (-41%) from 2013
Revenue
$1,345,102
No earlier filing loaded for comparison.
Expenses
Up$1,583,818
Up $497,667 (+46%) from 2013
Net Income
-$238,716
No earlier filing loaded for comparison.
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,592,035 | $705,283 | ▼ $886,752 |
| Loans From Officers Directors | $686,993 | $679,035 | ▼ $7,958 |
| Prepaid Expenses and Deferred Charges | $10,844 | $6,905 | ▼ $3,939 |
| Land, Buildings, and Equipment, Net | $2,627 | $1,744 | ▼ $883 |
| Total Assets | $1,605,506 | $713,932 | ▼ $891,574 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $306,435 | $167,590 | ▼ $138,845 |
| Grants Payable | $605,411 | $99,356 | ▼ $506,055 |
| Total Liabilities | $1,598,839 | $945,981 | ▼ $652,858 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $6,667 | $-232,049 | ▼ $238,716 |
| Total Net Assets Fund Balance | $6,667 | $-232,049 | ▼ $238,716 |
| Total Liabilities and Net Assets / Fund Balance | $1,605,506 | $713,932 | ▼ $891,574 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,744 | $5,066 | - |
| Name | Title | Full / Part Time | Other | Total |
|---|---|---|---|---|
| Danielle Kerkovich | Scientific Officer | FT | $127,500 | $127,500 |
| Mary Beth Kiser | President/CEO | FT | $121,198 | $121,198 |
| Name | Title |
|---|---|
| Cherie Flores | Director |
| Dr Kyle L Janek | Director |
| Dr Mark Chandler | Director |
| Jeff Hunt | Director |
| T Craig Benson | Director |
| William Murphy | Director |
| Patrick S Mcclain | VP, Secr, Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $757,472 |
| Other Expenses | $440,495 |
| Salaries, Compensation, and Employee Benefits | $385,851 |
| Total Fundraising Expense | $348,592 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $757,472 | - | - | $757,472 |
| Current Officers, Directors, Trustees, and Key Employees | $151,740 | $24,239 | $72,719 | $248,698 |
| Fees for Services Other | $52,010 | $24,246 | $20,833 | $97,089 |
| Other Salaries and Wages | $33,932 | $9,483 | $31,581 | $74,996 |
| Advertising | $2,460 | $4,708 | $61,223 | $68,391 |
| Interest | $54,732 | $0 | $0 | $54,732 |
| Other Employee Benefits | $19,519 | $9,252 | $10,382 | $39,153 |
| Travel | $28,691 | $2,261 | $2,601 | $33,553 |
| Information Technology | $2,721 | $27,361 | $2,370 | $32,452 |
| Payroll Taxes | $12,058 | $2,041 | $8,905 | $23,004 |
| Office Expenses | $1,836 | $5,144 | $13,521 | $20,501 |
| Other Expenses | $0 | $3,524 | $2,734 | $6,258 |
| Conferences and Meetings | $2,990 | $0 | $0 | $2,990 |
| Insurance | $1,246 | $249 | $997 | $2,492 |
| Depreciation Depletion | $0 | $883 | $0 | $883 |
| Total Functional Expenses | $1,121,522 | $113,704 | $348,592 | $1,583,818 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| 74-1100555 | - | 501(c)3 | See Sched O | $536,600 |
| 20-2905531 | - | 501(c)3 | See Sched O | $100,000 |
| 42-6004813 | - | 501(c)3 | See Sched O | $48,000 |
| 13-2937352 | - | 501(c)3 | See Sched O | $34,595 |
| 20-1082179 | - | 501(c)3 | See Sched O | $10,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $282,585 |
| Fundraising Direct Expenses | $128,739 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 2 | $288,900 | $183,563 | $15,517 | $168,046 |
| Event 1 | $100,890 | $84,594 | $1,234 | $83,360 |
| Total Events | $452,048 | $282,858 | $128,739 | $154,119 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $686,993 | $679,035 | ▼ $7,958 |
“All meetings were documented by Board minutes.”
“The Form 990 is provided to all Board Members and officers for review before filing.”
“Each director and officer is required to annually sign a statement”
“affirming that they have received a copy of the Bylaws”
“containing the Conflict of Interest Policy, have read and”
“understand the Policy, and have agreed to comply with the policy.”
“Executive Director/President's compensation is reviewed by”
“the Board of Directors.”
“Other employee compensation is reviewed with comparable sources”
“The governing documents and conflict of interest policy are”
“not available to the public and the financial statements”
“are available to the public upon request.”
“Research to study lysosomal membrane permeability in NCL”
“disease pathophysiology and therapeutic potential”
“Provides scientists with access to a virtual network of 130 drug”
“discovery experts and contract research organizations”
“Creation of the largest and first, genetically diverse, collection of induced”
“pluripotent stem (iPS) cells in juvenile Batten disease.”
“Test the viral medicated gene delivery of TFEB to CLN3 Dex 7/8 mice.”
“Test CNL3 regulation of Cdc42 and drug screening for JNCL.”
“Staff development telephone printing & publications”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 306435 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 167590 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 61223 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 4708 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 2460 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 68391 |
| IRS990/AllOtherContributionsAmt | 0 | 1021867 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARY BETH KISER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5122752600 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 2630 Exposition Blvd Ste G-10 |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | Austin |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 78703 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1592035 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 705283 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 72719 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 24239 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 151740 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 248698 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 2990 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2990 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 169190 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1191057 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 757472 |
| IRS990/CYInvestmentIncomeAmt | 0 | 199 |
| IRS990/CYOtherExpensesAmt | 0 | 440495 |
| IRS990/CYOtherRevenueAmt | 0 | 153846 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -238716 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 385851 |
| IRS990/CYTotalExpensesAmt | 0 | 1583818 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 348592 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1345102 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 883 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 883 |
| IRS990/Desc | 0 | TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH THE GRANTING OF FUNDS AND CONTRACTING OF SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. BBDF ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 1121522 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 20833 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 24246 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 52010 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 97089 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DR MARK CHANDLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DR KYLE L JANEK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MARY BETH KISER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PATRICK S MCCLAIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JEFF HUNT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CHERIE FLORES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | WILLIAM MURPHY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 121198 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 127500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | President/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | VP, Secr, Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Scientific Officer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 169190 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 128739 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 282585 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 757472 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 605411 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 99356 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 757472 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 757472 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1473841 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 2370 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 27361 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2721 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 32452 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 997 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 249 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1246 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2492 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 54732 |
| IRS990/InterestGrp/TotalAmt | 0 | 54732 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 199 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 19 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 5066 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2627 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 1744 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 6810 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | true |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 686993 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 679035 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Beyond Batten Disease Foundation was |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 6667 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | -232049 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 153846 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 153846 |
| IRS990/NoncashContributionsAmt | 0 | 40406 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 13521 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5144 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1836 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 20501 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 10382 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 9252 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 19519 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 39153 |
| IRS990/OtherExpensesGrp/Desc | 0 | Bank/Credit Card Fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Event Costs |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 18740 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 101986 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 2734 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 313 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 3524 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 115 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 19168 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 101986 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 6258 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 31581 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9483 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 33932 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 74996 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 8905 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2041 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 12058 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23004 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 10844 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 6905 |
| IRS990/PrincipalOfficerNm | 0 | MARY BETH KISER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1213663 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 271734 |
| IRS990/PYInvestmentIncomeAmt | 0 | 545 |
| IRS990/PYOtherExpensesAmt | 0 | 524352 |
| IRS990/PYOtherRevenueAmt | 0 | 59364 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 187421 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 290065 |
| IRS990/PYTotalExpensesAmt | 0 | 1086151 |
| IRS990/PYTotalRevenueAmt | 0 | 1273572 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -238716 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 1191057 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1191057 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1213663 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1541127 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 829046 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 683182 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 5458075 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 199 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 545 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 327 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 369 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 54 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1494 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99970 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 5458075 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1191057 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1213663 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1541127 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 829046 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 683182 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 5458075 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 5459569 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DisclosedForCharitablePrpsInd | 0 | true |
| IRS990ScheduleD/DisclosedOrgLegCtrlInd | 0 | true |
| IRS990ScheduleD/DonorAdvisedFundsContriAmt | 0 | 410320 |
| IRS990ScheduleD/DonorAdvisedFundsGrantsAmt | 0 | 93620 |
| IRS990ScheduleD/DonorAdvisedFundsHeldCnt | 0 | 1 |
| IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt | 0 | 681692 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 1744 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 5066 |
| IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt | 0 | 6810 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 1744 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 169190 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 16296 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 105337 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 47557 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 128739 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 23963 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 10790 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt | 0 | 4097 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 38850 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 100890 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 288900 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 62258 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 452048 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 84594 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 183563 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 14701 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 282858 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent1Amt | 0 | GOLF EVENTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent2Amt | 0 | GALA EVENTS |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 154119 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 16751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 1234 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 15517 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 17800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 40124 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 15214 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 73138 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 34595 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 100000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 536600 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 48000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | See Sched O |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 0 | Albert Einstein College |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 1 | Alzheimer Drug Discovery |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 2 | New York Stem Cell FDN Research Institute |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 3 | Texas Children's Hospital |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 4 | University of Iowa |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 132937352 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 201082179 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 202905531 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 741100555 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 426004813 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 0 | 500 W 185th St |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 1 | 57 West 57th Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 2 | 1995 Broadway Suite 600 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 3 | 1919 S Braeswood Ste 5200 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 4 | 850 Jessup Hall |
| IRS990ScheduleI/RecipientTable/USAddress/City | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/City | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/City | 2 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/City | 3 | Houston |
| IRS990ScheduleI/RecipientTable/USAddress/City | 4 | Iowa City |
| IRS990ScheduleI/RecipientTable/USAddress/State | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/State | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/State | 2 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/State | 3 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/State | 4 | IA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 0 | 10033 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 1 | 10019 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 2 | 10023 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 3 | 77030 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 4 | 52242 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | Grantees are required to submit periodic progress reports, both narrative |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 1 | and financial, outlining their progress toward meeting the goals of their |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 2 | project, and describing all expenditures. The reports are reviewed to |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 3 | ensure compliance with the original scope of work and proposed budget. |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.