Civic Intelligence

Beyond Batten Disease Foundation

990 • Fiscal year 2015 • EIN 26-3223661

Jul 01, 2014 to Jun 30, 2015 • Filed on Nov 06, 2015

Organization Profilewww.beyondbatten.org

View Organization Page

PO Box 50221Austin, TX 78763

(512) 275-2600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

98th percentile

2.11x

Higher debt load relative to assets than 98% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

88th percentile

1.56x

Higher debt load relative to revenue than 88% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

5th percentile

-59%

Higher net margin than 5% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

80th percentile

$131,000

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 12.9% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

63rd percentile

4.6%

Faster asset growth than 63% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

12th percentile

-25%

Faster revenue growth than 12% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets98th percentile

Assets

Up

$746,995

Up $33,063 (+4.6%) from 2014

Net Assets

Down

-$831,195

Down $599,146 (-258%) from 2014

Liabilities

Up

$1,578,190

Up $632,209 (+67%) from 2014

Revenue And Expenses
Liabilities / Revenue88th percentileNet Margin5th percentile

Revenue

Down

$1,011,861

Down $333,241 (-25%) from 2014

Expenses

Up

$1,611,007

Up $27,189 (+1.7%) from 2014

Net Income

Down

-$599,146

Down $360,430 (-151%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth63rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$2.0M$0-$2.0MAssets 2010: $424,513Liabilities 2010: $782,791Net Assets 2010: -$358,2782010Assets 2011: $616,704Liabilities 2011: $1,300,064Net Assets 2011: -$683,3602011Assets 2012: $1,068,425Liabilities 2012: $1,407,931Net Assets 2012: -$339,5062012Assets 2013: $1,605,506Liabilities 2013: $1,598,839Net Assets 2013: $6,6672013Assets 2014: $713,932Liabilities 2014: $945,981Net Assets 2014: -$232,0492014Assets 2015: $746,995Liabilities 2015: $1,578,190Net Assets 2015: -$831,1952015Assets 2016: $137,080Liabilities 2016: $272,573Net Assets 2016: -$135,4932016Assets 2018: $722,527Liabilities 2018: $471,886Net Assets 2018: $250,6412018Assets 2019: $3,529,982Liabilities 2019: $219,334Net Assets 2019: $3,310,6482019Assets 2020: $3,864,609Liabilities 2020: $177,214Net Assets 2020: $3,687,3952020Assets 2021: $3,773,556Liabilities 2021: $8,781Net Assets 2021: $3,764,7752021Assets 2022: $3,581,583Liabilities 2022: $220,016Net Assets 2022: $3,361,5672022Assets 2023: $3,231,365Liabilities 2023: $219,351Net Assets 2023: $3,012,0142023Assets 2024: $2,121,193Liabilities 2024: $158,613Net Assets 2024: $1,962,5802024Assets 2025: $1,859,709Liabilities 2025: $182,039Net Assets 2025: $1,677,6702025

Highlighted filing

2015

Assets$746,995
Liabilities$1,578,190
Net Assets-$831,195
Open 2015 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,794,1312010Expenses 2011: $1,043,7882011Expenses 2012: $861,2322012Expenses 2013: $1,086,1512013Revenue 2014: $1,345,102Expenses 2014: $1,583,818Net Income 2014: -$238,7162014Revenue 2015: $1,011,861Expenses 2015: $1,611,007Net Income 2015: -$599,1462015Revenue 2016: $2,142,709Expenses 2016: $1,447,007Net Income 2016: $695,7022016Revenue 2018: $2,059,063Expenses 2018: $1,044,051Net Income 2018: $1,015,0122018Revenue 2019: $4,640,638Expenses 2019: $1,580,631Net Income 2019: $3,060,0072019Revenue 2020: $2,176,365Expenses 2020: $1,834,553Net Income 2020: $341,8122020Revenue 2021: $908,445Expenses 2021: $665,343Net Income 2021: $243,1022021Revenue 2022: $1,219,815Expenses 2022: $1,220,690Net Income 2022: -$8752022Revenue 2023: $1,028,636Expenses 2023: $1,036,148Net Income 2023: -$7,5122023Revenue 2024: $538,315Expenses 2024: $1,116,750Net Income 2024: -$578,4352024Revenue 2025: $306,063Expenses 2025: $892,974Net Income 2025: -$586,9112025

Highlighted filing

2015

Revenue$1,011,861
Expenses$1,611,007
Net Income-$599,146
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2014 to Jun 30, 2015
Signed
Nov 6, 2015
Return Version
2014v5.0
Gross Receipts
$1,379,565
Mission and Program Overview

Mission

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children.

Balance Sheet Detail
LineBeginningEndChange
Assets
Loans From Officers Directors$679,035$724,625▲ $45,590
Cash and Non-Interest-Bearing Accounts$705,283$690,379▼ $14,904
Prepaid Expenses and Deferred Charges$6,905$33,682▲ $26,777
Pledges and Grants Receivable-$22,934-
Land, Buildings, and Equipment, Net$1,744--
Total Assets$713,932$746,995▲ $33,063
Liabilities
Grants Payable$99,356$617,100▲ $517,744
Accounts Payable and Accrued Expenses$167,590$183,158▲ $15,568
Deferred Revenue-$53,307-
Total Liabilities$945,981$1,578,190▲ $632,209
Net Assets / Fund Balance
Unrestricted Net Assets$-232,049$-831,195▼ $599,146
Total Net Assets Fund Balance$-232,049$-831,195▼ $599,146
Total Liabilities and Net Assets / Fund Balance$713,932$746,995▲ $33,063
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Danielle KerkovichScientific OfficerFT$131,000$131,000
Mary Beth KiserPresident/CEOFT$122,643$122,643

Board Members and Trustees

NameTitle
Cherie FloresDirector
Dr Kyle L JanekDirector
Dr Mark ChandlerDirector
Jeff HuntDirector
T Craig BensonDirector
William MurphyDirector
Patrick S McclainVP, Secr, Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$781,925
Program Service Revenue
$0
Investment Income
$1,247
Other Revenue
$228,689
All Other Contributions
$451,137
Change in Net Assets
$-599,146
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$707,515
Other Expenses$494,300
Salaries, Compensation, and Employee Benefits$409,192
Total Fundraising Expense$251,511
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$707,515--$707,515
Current Officers, Directors, Trustees, and Key Employees$195,197$24,879$37,318$257,394
Fees for Services Other$119,061$46,413$36,323$201,797
Other Salaries and Wages$35,942$24,191$48,381$108,514
Advertising$29,355$2,106$21,101$52,562
Interest$0$45,590$0$45,590
Travel$30,364$2,484$3,311$36,159
Other Expenses$0$0$33,027$33,027
Occupancy$17,765$4,441$7,402$29,608
Office Expenses$2,866$10,602$15,188$28,656
Payroll Taxes$16,865$3,580$6,253$26,698
Fees for Services Accounting$10,697$4,170$3,263$18,130
Other Employee Benefits$10,477$2,224$3,885$16,586
Information Technology$0$2,069$11,724$13,793
Conferences and Meetings$5,236$0$0$5,236
Fees for Services Legal$3,003$1,171$916$5,090
Total Functional Expenses$1,184,343$175,153$251,511$1,611,007
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Texas Children's HospitalHouston, TX501(c)3See Sched O$617,100
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Gaming Gross Income$594,806
Gaming Direct Expenses$366,117
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala Events$478,599$216,465$158,710$57,755
Golf Events$113,434$44,780$29,205$15,575
Total Events$925,594$594,806$366,117$228,689
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$679,035$724,625▲ $45,590
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Beyond Batten Disease Foundation
EIN
26-3223661
Phone
5122752600
Address
PO Box 50221, Austin, TX 78763

Signing Officer

Name
Mary Beth Kiser
Title
Executive Director
Phone
5122752600
Signed
2015-11-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary Beth Kiser
Formed
2008
Legal Domicile
TX
Voting Board Members
6
Independent Board Members
6
Employees
8
Volunteers
400

Preparer

Firm
Britt Leissner CPA PLLC
Address
9442 Capital of Texas Hwy North Pla, Austin, TX 78759
Preparer
Britt Leissnercpa
Phone
5126593368
Supplemental Narrative

Additional Explanations

Pt VI, Line 8A

“All meetings were documented by Board minutes.”

Pt VI, Line 11B

“The Form 990 is provided to all Board Members and officers for review before filing.”

Pt VI, Line 12C

“Each director and officer is required to annually sign a statement affirming that they have received a copy of the Bylaws containing the Conflict of Interest Policy, have read and understand the Policy, and have agreed to comply with the policy.”

Pt VI, Line 15A

“Executive Director/President's compensation is reviewed by the Board of Directors.”

Pt VI, Line 15B

“Other employee compensation is reviewed with comparable sources.”

Pt VI, Line 19

“The governing documents and conflict of interest policy are”

Other

“Sched I, Purpose - Test the viral medicated gene delivery of TFEB to CLN3 Dex 7/8 mice.”

Form 990, Part IX, Line 24F

“Staff development telephone printing & publications”

Raw XML AppendixShowing 400 of 487 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02224
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt010477
IRS990/OtherEmployeeBenefitsGrp/TotalAmt016586
IRS990/OtherExpensesGrp/Desc0Bank/Credit Card Fees
IRS990/OtherExpensesGrp/Desc1Event Costs
IRS990/OtherExpensesGrp/FundraisingAmt023419
IRS990/OtherExpensesGrp/FundraisingAmt133027
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01233
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt10
IRS990/OtherExpensesGrp/TotalAmt024652
IRS990/OtherExpensesGrp/TotalAmt133027
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt048381
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt024191
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt035942
IRS990/OtherSalariesAndWagesGrp/TotalAmt0108514
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt06253
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03580
IRS990/PayrollTaxesGrp/ProgramServicesAmt016865
IRS990/PayrollTaxesGrp/TotalAmt026698
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt022934
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt06905
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt033682
IRS990/PrincipalOfficerNm0MARY BETH KISER
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01191057
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0757472
IRS990/PYInvestmentIncomeAmt0199
IRS990/PYOtherExpensesAmt0440495
IRS990/PYOtherRevenueAmt0153846
IRS990/PYRevenuesLessExpensesAmt0-238716
IRS990/PYSalariesCompEmpBnftPaidAmt0385851
IRS990/PYTotalExpensesAmt01583818
IRS990/PYTotalRevenueAmt01345102
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-599146
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0781925
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0781925
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01191057
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01213663
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01541127
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0829046
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt05556818
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01478
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0199
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0545
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0327
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0369
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt02918
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99950
IRS990ScheduleA/PublicSupportCY509Pct00
IRS990ScheduleA/PublicSupportPY170Pct00.99970
IRS990ScheduleA/PublicSupportTotal170Amt05556818
IRS990ScheduleA/PublicSupportTotal509Amt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0781925
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01191057
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01213663
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01541127
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0829046
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt05556818
IRS990ScheduleA/TotalSupportAmt05559736
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DisclosedForCharitablePrpsInd0true
IRS990ScheduleD/DisclosedOrgLegCtrlInd0true
IRS990ScheduleD/DonorAdvisedFundsContriAmt0208036
IRS990ScheduleD/DonorAdvisedFundsHeldCnt01
IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt0482949
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0330788
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt068654
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0262134
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0366117
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent2Amt010172
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt010172
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF EVENTS
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0GALA EVENTS
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt056181
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt05270
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt061451
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0113434
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0478599
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0333561
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0925594
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt044780
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt0216465
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt0333561
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0594806
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0228689
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt053644
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0241559
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt029205
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt0158710
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt029984
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt022951
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt052935
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0617100
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(c)3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0See Sched O
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Texas Children's Hospital
IRS990ScheduleI/RecipientTable/RecipientEIN0741100555
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01919 S Braeswood Ste 5200
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Houston
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0TX
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd077030
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt0277675
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt161426
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt2385524
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd1true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd2true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd1false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd2false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0Carrier Screening
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt1Carrier Screening
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt2Carrier Screening
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd1X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd2X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt0200000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt1200000
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt2296993
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm0MARK CHANDLER
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm1MICHAEL SPAIN
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm2MARK CHANDLER
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0Board member
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt1Related party
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt2Board member
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd1true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd2true
IRS990ScheduleL/TotalBalanceDueAmt0724625
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All meetings were documented by Board minutes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Form 990 is provided to all Board Members and officers for review before filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Each director and officer is required to annually sign a statement affirming that they have received a copy of the Bylaws containing the Conflict of Interest Policy, have read and understand the Policy, and have agreed to comply with the policy.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Executive Director/President's compensation is reviewed by the Board of Directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Other employee compensation is reviewed with comparable sources.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The governing documents and conflict of interest policy are
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Sched I, Purpose - Test the viral medicated gene delivery of TFEB to CLN3 Dex 7/8 mice.

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$746,995
Liabilities
$1,578,190
Net assets
-$831,195
Revenue
$1,011,861
Expenses
$1,611,007
Net income
-$599,146
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.86$0.18$1.68$0.31$0.89$0.59
2024Detailed filing. Detailed filing data is available for this year.$2.12$0.16$1.96$0.54$1.12$0.58
2023Detailed filing. Detailed filing data is available for this year.$3.23$0.22$3.01$1.03$1.04$0.01
2022Detailed filing. Detailed filing data is available for this year.$3.58$0.22$3.36$1.22$1.22$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.77$0.01$3.76$0.91$0.67$0.24
2020Detailed filing. Detailed filing data is available for this year.$3.86$0.18$3.69$2.18$1.83$0.34
2019Detailed filing. Detailed filing data is available for this year.$3.53$0.22$3.31$4.64$1.58$3.06
2018Detailed filing. Detailed filing data is available for this year.$0.72$0.47$0.25$2.06$1.04$1.02
2016Detailed filing. Detailed filing data is available for this year.$0.14$0.27$0.14$2.14$1.45$0.70
2015Detailed filing. Detailed filing data is available for this year.$0.75$1.58$0.83$1.01$1.61$0.60
2014Detailed filing. Detailed filing data is available for this year.$0.71$0.95$0.23$1.35$1.58$0.24
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.61$1.60$0.01$1.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$1.41$0.34$0.86
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$1.30$0.68$1.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.78$0.36$1.79