Liabilities / Assets
97th percentile
Higher debt load relative to assets than 97% of similar nonprofits.
990 • Fiscal year 2010 • EIN 26-3223661
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
97th percentile
Higher debt load relative to assets than 97% of similar nonprofits.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No valid filing value is available for this score.
Assets
$424,513
No earlier filing loaded for comparison.
Net Assets
-$358,278
No earlier filing loaded for comparison.
Liabilities
$782,791
No earlier filing loaded for comparison.
Revenue
-
No earlier filing loaded for comparison.
Expenses
$1,794,131
No earlier filing loaded for comparison.
Net Income
-
No earlier filing loaded for comparison.
To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReview | 0 | false |
| IRS990/AccountsPayableAccruedExpenses/BOY | 0 | 29257 |
| IRS990/AccountsPayableAccruedExpenses/EOY | 0 | 54023 |
| IRS990/AccountsReceivable/BOY | 0 | 320 |
| IRS990/AccountsReceivable/EOY | 0 | 409 |
| IRS990/ActivitiesConductedPartnership | 0 | false |
| IRS990/Activity2/Description | 0 | THE BEYOND BATTEN DISEASE FOUNDATION AWARDED A GRANT TO TEXAS CHILDREN'S HOSPITAL FOR REASEARCH RELATED TO JUVENILE BATTEN DISEASE. |
| IRS990/Activity2/Expense | 0 | 250000 |
| IRS990/Activity2/Grants | 0 | 250000 |
| IRS990/ActivityOrMissionDescription | 0 | Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple carrier screening test to detect the gene mutations for Batten disease, and hundreds of other devastating genectic diseases that affect children. |
| IRS990/AddressPrincipalOfficerUS/AddressLine1 | 0 | 3300 DUVALSTE 110 |
| IRS990/AddressPrincipalOfficerUS/City | 0 | AUSTIN |
| IRS990/AddressPrincipalOfficerUS/State | 0 | TX |
| IRS990/AddressPrincipalOfficerUS/ZIPCode | 0 | 78759 |
| IRS990/Advertising/Fundraising | 0 | 3918 |
| IRS990/Advertising/ManagementAndGeneral | 0 | 2209 |
| IRS990/Advertising/ProgramServices | 0 | 7419 |
| IRS990/Advertising/Total | 0 | 13546 |
| IRS990/AllOtherContributions | 0 | 514210 |
| IRS990/AllOtherExpenses/Fundraising | 0 | 8035 |
| IRS990/AllOtherExpenses/ManagementAndGeneral | 0 | 1501 |
| IRS990/AllOtherExpenses/ProgramServices | 0 | 2188 |
| IRS990/AllOtherExpenses/Total | 0 | 11724 |
| IRS990/AnnualDisclosureCoveredPersons | 0 | true |
| IRS990/BalanceSheetAmountsReported | 0 | true |
| IRS990/BenefitsPaidToMembersCY | 0 | 0 |
| IRS990/BsnssRltnshpThruFamilyMember | 0 | false |
| IRS990/BsnssRltnshpWithOrganization | 0 | false |
| IRS990/CashNonInterestBearing/BOY | 0 | 6259 |
| IRS990/CashNonInterestBearing/EOY | 0 | 421954 |
| IRS990/ChangesToOrganizingDocs | 0 | false |
| IRS990/CollectionsOfArt | 0 | false |
| IRS990/CompCurrentOfficersDirectors/Fundraising | 0 | 21250 |
| IRS990/CompCurrentOfficersDirectors/ManagementAndGeneral | 0 | 12750 |
| IRS990/CompCurrentOfficersDirectors/ProgramServices | 0 | 51000 |
| IRS990/CompCurrentOfficersDirectors/Total | 0 | 85000 |
| IRS990/CompensationFromOtherSources | 0 | false |
| IRS990/CompensationProcessCEO | 0 | true |
| IRS990/CompensationProcessOther | 0 | false |
| IRS990/ComplianceWithBackupWitholding | 0 | true |
| IRS990/ConferencesMeetings/Fundraising | 0 | 618 |
| IRS990/ConferencesMeetings/ManagementAndGeneral | 0 | 348 |
| IRS990/ConferencesMeetings/ProgramServices | 0 | 1169 |
| IRS990/ConferencesMeetings/Total | 0 | 2135 |
| IRS990/ConflictOfInterestPolicy | 0 | true |
| IRS990/ConservationEasements | 0 | false |
| IRS990/ConsolidatedAuditFinancialStmt | 0 | false |
| IRS990/ContributionsGrantsCurrentYear | 0 | 514210 |
| IRS990/ContributionsGrantsPriorYear | 0 | 1290974 |
| IRS990/CreditCounseling | 0 | false |
| IRS990/DecisionsSubjectToApproval | 0 | false |
| IRS990/DeductibleContributionsOfArt | 0 | false |
| IRS990/DeductibleNonCashContributions | 0 | false |
| IRS990/DelegationOfManagementDuties | 0 | false |
| IRS990/DepreciationDepletion/Fundraising | 0 | 226 |
| IRS990/DepreciationDepletion/ManagementAndGeneral | 0 | 128 |
| IRS990/DepreciationDepletion/ProgramServices | 0 | 428 |
| IRS990/DepreciationDepletion/Total | 0 | 782 |
| IRS990/DescribedIn501C3 | 0 | true |
| IRS990/Description | 0 | THE BEYOND BATTEN DISEASE FOUNDATION AWARDED A GRANT TO THE NATIONAL CENTER FOR GENOME RESOURCES TO DEVELOP A LOW-COST CARRIER SCREENING TEST FOR HUNDREDS OF DEVASTATING, RECESSIVE GENETIC DISEASES THAT AFFECT CHILDREN, INCLUDING BATTEN DISEASE. THE FOUNDATION'S GOAL IS TO PREVENT BATTEN DISEASE AND OTHER GENETIC DISEASES BY SCREENING YOUNG MEN AND WOMEN BEFORE THEY DECIDE TO HAVE CHILDREN. THIS APPROACH HAS PROVEN EFFECTIVE IN PREVENTING OTHER DISEASES, SUCH AS TAY-SACHS DISEASE, WHICH HAS BEEN VIRTUALLY ELIMINATED FROM THE NORTH AMERICAN ASHKENAZI JEWISH POPULATION THROUGH VOLUNTARY CARRIER SCREENING AND GENETIC COUNSELING. THE FOUNDATION PLANS TO MAKE THE TEST AVAILABLE TO THE PUBLIC IN 2011. |
| IRS990/DisregardedEntity | 0 | false |
| IRS990/DocumentRetentionPolicy | 0 | true |
| IRS990/DonorAdvisedFunds | 0 | true |
| IRS990/ElectionOfBoardMembers | 0 | false |
| IRS990/EmploymentTaxReturnsFiled | 0 | true |
| IRS990/ExcessBenefitTransaction | 0 | false |
| IRS990/Expense | 0 | 1425155 |
| IRS990/FamilyOrBusinessRelationship | 0 | true |
| IRS990/FederalGrantAuditRequired | 0 | false |
| IRS990/FeesForServicesAccounting/Fundraising | 0 | 391 |
| IRS990/FeesForServicesAccounting/ManagementAndGeneral | 0 | 220 |
| IRS990/FeesForServicesAccounting/ProgramServices | 0 | 739 |
| IRS990/FeesForServicesAccounting/Total | 0 | 1350 |
| IRS990/FeesForServicesLegal/Fundraising | 0 | 270 |
| IRS990/FeesForServicesLegal/ManagementAndGeneral | 0 | 152 |
| IRS990/FeesForServicesLegal/ProgramServices | 0 | 510 |
| IRS990/FeesForServicesLegal/Total | 0 | 932 |
| IRS990/FeesForServicesOther/Fundraising | 0 | 11388 |
| IRS990/FeesForServicesOther/ManagementAndGeneral | 0 | 3450 |
| IRS990/FeesForServicesOther/ProgramServices | 0 | 48112 |
| IRS990/FeesForServicesOther/Total | 0 | 62950 |
| IRS990/FollowSFAS117 | 0 | X |
| IRS990/ForeignActivities | 0 | false |
| IRS990/ForeignFinancialAccount | 0 | false |
| IRS990/ForeignOffice | 0 | false |
| IRS990/Form8282PropertyDisposedOf | 0 | false |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 0 | 20.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 1 | 4.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 2 | 4.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 3 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 4 | 1.00 |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 0 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 2 | X |
| IRS990/Form990PartVIISectionA/NamePerson | 0 | T CRAIG BENSON |
| IRS990/Form990PartVIISectionA/NamePerson | 1 | DR MARK CHANDLER |
| IRS990/Form990PartVIISectionA/NamePerson | 2 | DR KYLE L JANEK |
| IRS990/Form990PartVIISectionA/NamePerson | 3 | SUZANNE KHO |
| IRS990/Form990PartVIISectionA/NamePerson | 4 | PATRICK S MCCLAIN |
| IRS990/Form990PartVIISectionA/Officer | 0 | X |
| IRS990/Form990PartVIISectionA/Officer | 1 | X |
| IRS990/Form990PartVIISectionA/OtherCompensation | 0 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 1 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 2 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 3 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 3 | 85000 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 4 | 0 |
| IRS990/Form990PartVIISectionA/Title | 0 | Director |
| IRS990/Form990PartVIISectionA/Title | 1 | Director |
| IRS990/Form990PartVIISectionA/Title | 2 | Director |
| IRS990/Form990PartVIISectionA/Title | 3 | President & Exec Dir |
| IRS990/Form990PartVIISectionA/Title | 4 | VP, Secr, Treasurer |
| IRS990/Form990ProvidedToGoverningBody | 0 | true |
| IRS990/FormersListed | 0 | false |
| IRS990/FSAudited | 0 | false |
| IRS990/FundraisingActivities | 0 | true |
| IRS990/FundraisingDirectExpenses | 0 | 69965 |
| IRS990/FundsToPayPremiums | 0 | false |
| IRS990/GainOrLoss/Securities | 0 | 2 |
| IRS990/Gaming | 0 | false |
| IRS990/Grants | 0 | 1266814 |
| IRS990/GrantsAndSimilarAmntsCY | 0 | 1522019 |
| IRS990/GrantsAndSimilarAmntsPriorYear | 0 | 266691 |
| IRS990/GrantsPayable/EOY | 0 | 328768 |
| IRS990/GrantsToDomesticOrgs/ProgramServices | 0 | 1522019 |
| IRS990/GrantsToDomesticOrgs/Total | 0 | 1522019 |
| IRS990/GrantsToIndividuals | 0 | true |
| IRS990/GrantsToOrganizations | 0 | true |
| IRS990/GrantToRelatedPerson | 0 | false |
| IRS990/GrossAmountSalesAssets/Securities | 0 | 2901 |
| IRS990/GrossIncomeFundraisingEvents | 0 | 168972 |
| IRS990/GrossReceipts | 0 | 686135 |
| IRS990/GroupReturnForAffiliates | 0 | false |
| IRS990/Hospital | 0 | false |
| IRS990/IndependentAuditFinancialStmt | 0 | false |
| IRS990/Insurance/Fundraising | 0 | 942 |
| IRS990/Insurance/ManagementAndGeneral | 0 | 531 |
| IRS990/Insurance/ProgramServices | 0 | 1784 |
| IRS990/Insurance/Total | 0 | 3257 |
| IRS990/InvestmentIncomeCurrentYear | 0 | 54 |
| IRS990/InvestmentIncomePriorYear | 0 | 5159 |
| IRS990/InvestmentIncome/RelatedOrExemptFunctionIncome | 0 | 52 |
| IRS990/InvestmentIncome/TotalRevenueColumn | 0 | 52 |
| IRS990/InvestmentInJointVenture | 0 | false |
| IRS990/LandBldgEquipmentAccumDeprec | 0 | 782 |
| IRS990/LandBuildingsEquipmentBasis | 0 | 2932 |
| IRS990/LandBuildingsEquipmentBasisNet/BOY | 0 | 2932 |
| IRS990/LandBuildingsEquipmentBasisNet/EOY | 0 | 2150 |
| IRS990/LessCostOthBasisSalesExpenses/Securities | 0 | 2899 |
| IRS990/LoansFromOfficersDirectors/EOY | 0 | 400000 |
| IRS990/LoanToOfficerOrDQP | 0 | true |
| IRS990/LobbyingActivities | 0 | false |
| IRS990/LocalChapters | 0 | false |
| IRS990/MaterialDiversionOrMisuse | 0 | false |
| IRS990/MembersOrStockholders | 0 | false |
| IRS990/MethodOfAccountingAccrual | 0 | X |
| IRS990/MinutesOfCommittees | 0 | true |
| IRS990/MinutesOfGoverningBody | 0 | true |
| IRS990/MissionDescription | 0 | Beyond Batten Disease Foundation was |
| IRS990/MoreThan5000KToIndividuals | 0 | false |
| IRS990/MoreThan5000KToOrganizations | 0 | false |
| IRS990/NameOfPrincipalOfficerPerson | 0 | SUZANNE KHO |
| IRS990/NbrIndependentVotingMembers | 0 | 3 |
| IRS990/NbrVotingGoverningBodyMembers | 0 | 3 |
| IRS990/NbrVotingMembersGoverningBody | 0 | 3 |
| IRS990/NetAssetsOrFundBalancesBOY | 0 | 823836 |
| IRS990/NetAssetsOrFundBalancesEOY | 0 | -358278 |
| IRS990/NetGainOrLossInvestments/RelatedOrExemptFunctionIncome | 0 | 2 |
| IRS990/NetGainOrLossInvestments/TotalRevenueColumn | 0 | 2 |
| IRS990/NetIncomeFromFundraisingEvents/RelatedOrExemptFunctionIncome | 0 | 99007 |
| IRS990/NetIncomeFromFundraisingEvents/TotalRevenueColumn | 0 | 99007 |
| IRS990/NoncashContributions | 0 | 3849 |
| IRS990/NonDeductibleContributions | 0 | false |
| IRS990/NumberFormsTransmittedWith1096 | 0 | 8 |
| IRS990/NumberIndependentVotingMembers | 0 | 3 |
| IRS990/NumberIndividualsGT100K | 0 | 0 |
| IRS990/NumberOfEmployees | 0 | 3 |
| IRS990/NumberW2GIncluded | 0 | 0 |
| IRS990/OfficeExpenses/Fundraising | 0 | 549 |
| IRS990/OfficeExpenses/ManagementAndGeneral | 0 | 309 |
| IRS990/OfficeExpenses/ProgramServices | 0 | 1039 |
| IRS990/OfficeExpenses/Total | 0 | 1897 |
| IRS990/OfficerEntityWithBsnssRltnshp | 0 | false |
| IRS990/OfficerMailingAddress | 0 | false |
| IRS990/Organization501c | 0 | X |
| IRS990/OtherEmployeeBenefits/Fundraising | 0 | 1987 |
| IRS990/OtherEmployeeBenefits/ManagementAndGeneral | 0 | 1121 |
| IRS990/OtherEmployeeBenefits/ProgramServices | 0 | 3764 |
| IRS990/OtherEmployeeBenefits/Total | 0 | 6872 |
| IRS990/OtherExpensePriorYear | 0 | 183977 |
| IRS990/OtherExpensesCurrentYear | 0 | 141984 |
| IRS990/OtherExpenses/Description | 0 | Bank/Credit Card Fees |
| IRS990/OtherExpenses/Description | 1 | Dues & Subscriptions |
| IRS990/OtherExpenses/Description | 2 | Event Costs |
| IRS990/OtherExpenses/Description | 3 | Meals & Entertainment |
| IRS990/OtherExpenses/Description | 4 | Postage & Shipping |
| IRS990/OtherExpenses/Fundraising | 0 | 1828 |
| IRS990/OtherExpenses/Fundraising | 1 | 299 |
| IRS990/OtherExpenses/Fundraising | 2 | 13719 |
| IRS990/OtherExpenses/Fundraising | 3 | 1028 |
| IRS990/OtherExpenses/Fundraising | 4 | 1549 |
| IRS990/OtherExpenses/ManagementAndGeneral | 0 | 1031 |
| IRS990/OtherExpenses/ManagementAndGeneral | 1 | 169 |
| IRS990/OtherExpenses/ManagementAndGeneral | 2 | 0 |
| IRS990/OtherExpenses/ManagementAndGeneral | 3 | 1110 |
| IRS990/OtherExpenses/ManagementAndGeneral | 4 | 496 |
| IRS990/OtherExpenses/ProgramServices | 0 | 3462 |
| IRS990/OtherExpenses/ProgramServices | 1 | 567 |
| IRS990/OtherExpenses/ProgramServices | 2 | 0 |
| IRS990/OtherExpenses/ProgramServices | 3 | 1009 |
| IRS990/OtherExpenses/ProgramServices | 4 | 556 |
| IRS990/OtherExpenses/Total | 0 | 6321 |
| IRS990/OtherExpenses/Total | 1 | 1035 |
| IRS990/OtherExpenses/Total | 2 | 13719 |
| IRS990/OtherExpenses/Total | 3 | 3147 |
| IRS990/OtherExpenses/Total | 4 | 2601 |
| IRS990/OtherRevenueCurrentYear | 0 | 99007 |
| IRS990/OtherSalariesAndWages/Fundraising | 0 | 12037 |
| IRS990/OtherSalariesAndWages/ManagementAndGeneral | 0 | 6019 |
| IRS990/OtherSalariesAndWages/ProgramServices | 0 | 12037 |
| IRS990/OtherSalariesAndWages/Total | 0 | 30093 |
| IRS990/PartialLiquidation | 0 | false |
| IRS990/PayrollTaxes/Fundraising | 0 | 2361 |
| IRS990/PayrollTaxes/ManagementAndGeneral | 0 | 1331 |
| IRS990/PayrollTaxes/ProgramServices | 0 | 4471 |
| IRS990/PayrollTaxes/Total | 0 | 8163 |
| IRS990/PoliticalActivities | 0 | false |
| IRS990/PremiumsPaid | 0 | false |
| IRS990/PriorExcessBenefitTransaction | 0 | false |
| IRS990/ProfessionalFundraising | 0 | false |
| IRS990/ProgramServiceRevenueCY | 0 | 0 |
| IRS990/ProhibitedTaxShelterTrans | 0 | false |
| IRS990/QuidProQuoContributions | 0 | true |
| IRS990/QuidProQuoDisclosure | 0 | true |
| IRS990/RegularMonitoringEnforcement | 0 | true |
| IRS990/RelatedEntity | 0 | false |
| IRS990/RelatedOrgControlledEntity | 0 | false |
| IRS990/Revenue | 0 | 683182 |
| IRS990/RevenuesLessExpensesCY | 0 | -1180860 |
| IRS990/RevenuesLessExpensesPriorYear | 0 | 768836 |
| IRS990/SalariesEtcCurrentYear | 0 | 130128 |
| IRS990/SalariesEtcPriorYear | 0 | 70629 |
| IRS990/SavingsAndTempCashInvestments/BOY | 0 | 843582 |
| IRS990ScheduleA/First5Years170 | 0 | X |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear | 0 | 683182 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year | 0 | 1290974 |
| IRS990ScheduleA/GiftsGrantsContribReceived170/Total | 0 | 1974156 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear | 0 | 54 |
| IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year | 0 | 5159 |
| IRS990ScheduleA/GrossInvestmentIncome170/Total | 0 | 5213 |
| IRS990ScheduleA/InvestmentIncomePercentage | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg170b1Avi | 0 | X |
| IRS990ScheduleA/PublicSupportPercentage509 | 0 | 0 |
| IRS990ScheduleA/PublicSupportPertcentage170 | 0 | 0 |
| IRS990ScheduleA/PublicSupportTotal170 | 0 | 1974156 |
| IRS990ScheduleA/PublicSupportTotal509 | 0 | 0 |
| IRS990ScheduleA/Total170/CurrentTaxYear | 0 | 683182 |
| IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year | 0 | 1290974 |
| IRS990ScheduleA/Total170/Total | 0 | 1974156 |
| IRS990ScheduleA/TotalSupport | 0 | 1979369 |
| IRS990ScheduleB/ContributorInfo/AggregateContributions | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInfo/ContributorNumber | 0 | RESTRICTED |
| IRS990/ScheduleBRequired | 0 | true |
| IRS990ScheduleD/AggregateDAFValue | 0 | 234673 |
| IRS990ScheduleD/DisclosedForCharitablePurposes | 0 | true |
| IRS990ScheduleD/DisclosedOrgsLegalControl | 0 | true |
| IRS990ScheduleD/DonorAdvisedContributions | 0 | 283829 |
| IRS990ScheduleD/Equipment/BookValue | 0 | 2150 |
| IRS990ScheduleD/Equipment/Depreciation | 0 | 782 |
| IRS990ScheduleD/Equipment/InvestmentCostOrOtherBasis | 0 | 2932 |
| IRS990ScheduleD/NumberDAFsHeld | 0 | 1 |
| IRS990ScheduleD/TotalOfBookValueLandBuildings | 0 | 2150 |
| IRS990ScheduleG/EventsInformation/DirectExpenseSummaryEvents | 0 | 69965 |
| IRS990ScheduleG/EventsInformation/EntertainmentEvent2 | 0 | 5200 |
| IRS990ScheduleG/EventsInformation/EntertainmentTotalEvents | 0 | 5200 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageEvent2 | 0 | 29925 |
| IRS990ScheduleG/EventsInformation/FoodAndBeverageTotalEvents | 0 | 29925 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsEvent1 | 0 | 40030 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsEvent2 | 0 | 128942 |
| IRS990ScheduleG/EventsInformation/GrossReceiptsTotal | 0 | 168972 |
| IRS990ScheduleG/EventsInformation/GrossRevenueEvent1 | 0 | 40030 |
| IRS990ScheduleG/EventsInformation/GrossRevenueEvent2 | 0 | 128942 |
| IRS990ScheduleG/EventsInformation/GrossRevenueTotalEvents | 0 | 168972 |
| IRS990ScheduleG/EventsInformation/NameOfEvent1 | 0 | Golf Event |
| IRS990ScheduleG/EventsInformation/NameOfEvent2 | 0 | Gala Event |
| IRS990ScheduleG/EventsInformation/NetIncomeSummary | 0 | 99007 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesEvent1 | 0 | 4179 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesEvent2 | 0 | 2467 |
| IRS990ScheduleG/EventsInformation/NonCashPrizesTotalEvents | 0 | 6646 |
| IRS990ScheduleG/EventsInformation/OtherDirectExpensesEvent2 | 0 | 4273 |
| IRS990ScheduleG/EventsInformation/OtherDirectExpensesTotalEvents | 0 | 4273 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsEvent1 | 0 | 18810 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsEvent2 | 0 | 5111 |
| IRS990ScheduleG/EventsInformation/RentFacilityCostsTotalEvents | 0 | 23921 |
| IRS990ScheduleI/Form990ScheduleIPartIV/Explanation | 0 | Grantees are required to submit periodic progress reports, both narrative and financial, outlining their progress toward meeting the goals of their project, and describing all expenditures. The reports are reviewed to ensure compliance with the original scope of work and proposed budget. |
| IRS990ScheduleI/Form990ScheduleIPartIV/Identifier | 0 | Pt I Line 2 |
| IRS990ScheduleI/RecipientTable/AddressUS/AddressLine1 | 0 | 2935 RODEO PARK DRIVE EAST |
| IRS990ScheduleI/RecipientTable/AddressUS/AddressLine1 | 1 | PO BOX 300630 |
| IRS990ScheduleI/RecipientTable/AddressUS/City | 0 | SANTA FE |
| IRS990ScheduleI/RecipientTable/AddressUS/City | 1 | HOUSTON |
| IRS990ScheduleI/RecipientTable/AddressUS/State | 0 | NM |
| IRS990ScheduleI/RecipientTable/AddressUS/State | 1 | TX |
| IRS990ScheduleI/RecipientTable/AddressUS/ZIPCode | 0 | 87505 |
| IRS990ScheduleI/RecipientTable/AddressUS/ZIPCode | 1 | 77230 |
| IRS990ScheduleI/RecipientTable/AmountOfCashGrant | 0 | 1266814 |
| IRS990ScheduleI/RecipientTable/AmountOfCashGrant | 1 | 250000 |
| IRS990ScheduleI/RecipientTable/EINOfRecipient | 0 | 850418280 |
| IRS990ScheduleI/RecipientTable/EINOfRecipient | 1 | 741100555 |
| IRS990ScheduleI/RecipientTable/IRCSection | 0 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/IRCSection | 1 | 501(c)3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrant | 0 | See Sched O |
| IRS990ScheduleI/RecipientTable/PurposeOfGrant | 1 | See Sched O |
| IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine1 | 0 | NATIONAL CENTER FOR GENOME RESOURCES |
| IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine1 | 1 | TEXAS CHILDRENS HOSPITAL |
| IRS990ScheduleI/RecordsMaintained | 0 | true |
| IRS990/ScheduleJRequired | 0 | false |
| IRS990ScheduleL/LoanTable/ApprovedByBoard | 0 | true |
| IRS990ScheduleL/LoanTable/ApprovedByBoard | 1 | true |
| IRS990ScheduleL/LoanTable/BalanceDue | 0 | 200000 |
| IRS990ScheduleL/LoanTable/BalanceDue | 1 | 200000 |
| IRS990ScheduleL/LoanTable/Default | 0 | false |
| IRS990ScheduleL/LoanTable/Default | 1 | false |
| IRS990ScheduleL/LoanTable/LoanToOrganization | 0 | X |
| IRS990ScheduleL/LoanTable/LoanToOrganization | 1 | X |
| IRS990ScheduleL/LoanTable/NamePerson | 0 | MARK CHANDLER |
| IRS990ScheduleL/LoanTable/NamePerson | 1 | MICHAEL SPAIN |
| IRS990ScheduleL/LoanTable/OriginalPrincipalAmount | 0 | 200000 |
| IRS990ScheduleL/LoanTable/OriginalPrincipalAmount | 1 | 200000 |
| IRS990ScheduleL/LoanTable/PurposeOfLoan | 0 | Carrier Screening |
| IRS990ScheduleL/LoanTable/PurposeOfLoan | 1 | Carrier Screening |
| IRS990ScheduleL/LoanTable/WrittenAgreement | 0 | true |
| IRS990ScheduleL/LoanTable/WrittenAgreement | 1 | true |
| IRS990ScheduleL/TotalBalanceDue | 0 | 400000 |
| IRS990ScheduleO/GeneralExplanation/Explanation | 0 | Craig Benson is the founder of the Foundation. Craig Benson and Dr. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 1 | Mark Chandler are both directors in an unrelated for profit |
| IRS990ScheduleO/GeneralExplanation/Explanation | 2 | company, Rules-Based Medicine. Craig Benson and Patrick |
| IRS990ScheduleO/GeneralExplanation/Explanation | 3 | McClain are officers of Rules-Based Medicine. Dr. Kyle |
| IRS990ScheduleO/GeneralExplanation/Explanation | 4 | Janek and Dr. Mark Chandler are both officers in an unrelated |
| IRS990ScheduleO/GeneralExplanation/Explanation | 5 | for profit company, Biophysical Corporation. There are |
| IRS990ScheduleO/GeneralExplanation/Explanation | 6 | no business relationships between the Foundation and the |
| IRS990ScheduleO/GeneralExplanation/Explanation | 7 | for profit companies listed above. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 8 | All meetings were documented by Board minutes. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 9 | The Form 990 is provided to all Board Members and officers for review before filing. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 10 | Each director is required to annually sign a statement |
| IRS990ScheduleO/GeneralExplanation/Explanation | 11 | affirming that they have received a copy of the Bylaws |
| IRS990ScheduleO/GeneralExplanation/Explanation | 12 | containing the Conflict of Interest Policy, have read and |
| IRS990ScheduleO/GeneralExplanation/Explanation | 13 | understand the Policy, and have agreed to comply with the policy. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 14 | Executive Director/President's compensation is reviewed by |
| IRS990ScheduleO/GeneralExplanation/Explanation | 15 | the Board of Directors. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 16 | The governing documents and conflict of interest policy are |
| IRS990ScheduleO/GeneralExplanation/Explanation | 17 | not available to the public and the financial statements |
| IRS990ScheduleO/GeneralExplanation/Explanation | 18 | are available to the public upon request. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 19 | Develop a low-cost screening test for genetic diseases. |
| IRS990ScheduleO/GeneralExplanation/Explanation | 20 | Research funding for Juvenile Batten disease research. |
| IRS990ScheduleO/GeneralExplanation/Identifier | 0 | Pt VI-A, Line 2 |
| IRS990ScheduleO/GeneralExplanation/Identifier | 1 | Pt VI-A, Line 8a |
| IRS990ScheduleO/GeneralExplanation/Identifier | 2 | Pt VI-B, Line 11A |
| IRS990ScheduleO/GeneralExplanation/Identifier | 3 | Pt VI-B, Line 12c |
| IRS990ScheduleO/GeneralExplanation/Identifier | 4 | Pt VI-B, Line 15 |
| IRS990ScheduleO/GeneralExplanation/Identifier | 5 | Pt VI-C, Line 19 |
| IRS990ScheduleO/GeneralExplanation/Identifier | 6 | Sched I, Purpose |
| IRS990ScheduleO/GeneralExplanation/Identifier | 7 | Sched I, Purpose |
| IRS990/ScheduleORequired | 0 | true |
| IRS990/School | 0 | false |
| IRS990/SignificantChange | 0 | false |
| IRS990/SignificantNewProgramServices | 0 | false |
| IRS990/StateLegalDomicile | 0 | TX |
| IRS990/TaxablePartyNotification | 0 | false |
| IRS990/TaxExemptBonds | 0 | false |
| IRS990/TemporarilyRestrictedNetAssets/EOY | 0 | 25000 |
| IRS990/Terminated | 0 | false |
| IRS990/TermOrPermanentEndowments | 0 | false |
| IRS990/TheBooksAreInCareOf/AddressUS/AddressLine1 | 0 | 3300 DUVAL RDSTE 110 |
| IRS990/TheBooksAreInCareOf/AddressUS/City | 0 | AUSTIN |
| IRS990/TheBooksAreInCareOf/AddressUS/State | 0 | TX |
| IRS990/TheBooksAreInCareOf/AddressUS/ZIPCode | 0 | 78759 |
| IRS990/TheBooksAreInCareOf/NamePerson | 0 | SUZANNE KHO |
| IRS990/TheBooksAreInCareOf/TelephoneNumber | 0 | 5122752600 |
| IRS990/TotalAssets/BOY | 0 | 853093 |
| IRS990/TotalAssetsBOY | 0 | 853093 |
| IRS990/TotalAssets/EOY | 0 | 424513 |
| IRS990/TotalAssetsEOY | 0 | 424513 |
| IRS990/TotalCompGT150K | 0 | false |
| IRS990/TotalContributions | 0 | 514210 |
| IRS990/TotalExpensesCurrentYear | 0 | 1794131 |
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Displayed year
2010 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.