Colon Cancer Challenge Foundation

“The form 990 is presented to the foundation's finance committee for review. Edits are incorporated and a final copy presented to the board of directors for review prior to submission.”

“On an annual basis, board members complete and submit a questionnaire to the board chair to disclose whether there are any conflicts. The board and the executive director will evaluate conflict disclosures and make other necessary inquiries to determine the extent and nature of any actual or potential conflict of interest and, if appropriate, investigate alternatives to the proposed transaction or arrangement. After disclosure of the potentially conflicting interest and all material facts, and after answering any questions, the interested person shall recuse himself or herself from deliberations and voting relating to the matter and shall refrain from attempting to influence other decision-makers relating to the matter. However, as a member of the board or committee, an interested director may be counted in determining the establishment of the quorum at a meeting relating to the matter.”

“On an annual basis, the foundation (either the full board or a compensation committee/executive committee) will evaluate the executive director on his/her performance, and ask for his/her input on matters of performance and compensation. The committee will obtain independent information to make a recommendation to the full board for compensation (salary and benefits) of the executive director (and other highly compensated employees or consultants) based on a review of the comparable data. The data may include the following: 1. Information obtained from the irs form 990 filings of similar organizations; 2. Salary and benefit compensation studies by independent sources; and/or 3. Written job offers for positions at organizations. To approve compensation of the executive director (and other highly compensated employees and consultants) the board must document how it reached its decisions, including the data on which it relied, in minutes of the meeting during which the compensation was approved.”

“New hampshire, north dakota, nevada, ohio, oklahoma, oregon, rhode island, south carolina, utah, virginia, washington, west virginia, wisconsin”

“The foundation's form 990 is also available on the guidestar.org website.”

“Financial statements are available on the organization's website. Form 990 is available on the guidestar.org website.”

“Mission: to fight against colorectal cancer (crc) by supporting research, leading advocacy efforts, and funding awareness-building activities that promote earlier messaging, on-time screening and quality of life-preserving care and treatments.”

“Description of first exempt purpose accomplishment supporting research 1.young investigator/early career awards the colon cancer foundation continues to fulfill one of its critical objectives - recognizing and supporting excellence in translational research focused on the molecular biology of colorectal cancer - by providing colorectal cancer research scholar awards for the top-ranking abstracts submitted by trainees or junior faculty members attending prestigious national and international conferences. These awards provide funding to cover meeting, registration, and travel expenses. In providing these awards, the foundation seeks to both support and promote colorectal cancer research. The foundation has a special interest in the biology of early age onset and hereditary colorectal cancer. However, research into other areas of colorectal cancer (e.g. Novel treatments and innovative minimally invasive screening technologies) is also considered. Participating conferences and organizations currently include the following: -the collaborative group of the americas on inherited colorectal cancer (cga-icc); -the international society for gastrointestinal hereditary tumors (insight); and -the society for surgical oncology (sso). 2.the early age onset (eao-crc) colorectal cancer summit the rates of those diagnosed with late stage crc under the age of 50 are still increasing dramatically. The foundation recognized this trend over a decade ago and has taken the lead on addressing the issue by organizing and hosting the nation's only summit focused on eao-crc. The annual eao-crc summit is a groundbreaking program that provides survivors, loved ones, health care professionals, and researchers from around the country and the globe the unique opportunity to advance their understanding of the rapidly increasing incidence of eao-crc worldwide in a patient/provider collaborative setting. Leading clinicians and scientists report on the epidemiology, pathogenesis, genomics, and lifestyle challenges of eao-crc. The foundation takes pride in the fact that the agenda of the full day program is inspired by the eao-crc patient community and their families, and gives them an opportunity to build connection and community. For the second year the foundation offered a critical component to the summit - cme accreditation. Health care practitioners were able to claim up to 11 ama pra category 1 credits. The foundation was fortunate to partner with the northwell health office of continuing medical education and the donald and barbara zucker school of medicine at hofstra/northwell for the second year. Adding cme accreditation allows us to attract a wider audience and broaden the impact the summit can have on health care practitioners (hcps). And once again the entire event was live streamed and videotaped for future use by health care providers, academicians, etc. Our estimated audience reach leading up to, during, and immediately following the eao-crc summit is estimated at approximately 4.7 million unique viewers. The direct results of this can be seen in the increase of articles, television and radio interviews, and research publications on eao-crc. The 2019 eao-crc summit theme,performing a knowledge gap analysis and building a strategic "action plan" to reduce eao-crc incidence and mortality, provided participants the opportunity to hear from and question leading clinicians and researchers on the lifesaving potential of timely clinical risk assessment/family cancer health history; earliest possible diagnosis and optimal fertility-preserving clinical care; as well as the latest information regarding national and international eao-crc incidence trends, pathogenesis, and genetics. In addition, this year's program will present a "research in progress" segment featuring current nci-funded and planned eao-crc research projects from across america and europe. Again this year, important breakout sessions based on needs assessments from our survivor community wil”

“Description of second exempt purpose accomplishment 1.leading advocacy efforts the colon cancer foundation is an advocacy leader in the crc landscape through our collaborative outreach, programming, and international network of action-takers. We have a vision of a world without colorectal cancer, and that is why we continuously collaborate with scientists at public, private, and government institutions to outline the research priorities that will lead to new drugs and treatment protocols. That is why we organize, host, and fund the eao-crc summit and empower attendees to take their learning back to their institutions, cities, and communities in order to make change happen our network of action-takers extends across the country and the globe and includes patients, caregivers, researchers, and health care practitioners that represent every aspect of a patient's journey through the continuum of care - from bench to bedside and beyond.”

“Description of 3rd exempt purpose accomplishment 1.awareness building activities the foundation continued its multi-level public awareness and educational program to spread the critical message that crc is a largely preventable disease - if caught early. Our surround sound campaign includes grassroots, on the ground educational outreach events, television, radio, print, and digital advertising (psa's.) we also attend outreach events in underserved and uninsured communities in partnership with community health centers and senior centers. Through its outreach events and advertising the foundation reaches an estimated half a million americans each year. What's 20 feet long 12 feet high, 10 feet wide, inflatable, educational and shaped like a colon? The rollin' colon of course thanks to our supporters, the rollin' colon continued its national tour in 2019 crisscrossing the country to educate thousands on colorectal cancer and the importance of early screening. Educational materials are translated into spanish and chinese - allowing the foundation to provide culturally relevant educational materials to the many underserved and underinsured communities we visit. The foundation's largest outreach event continues to be the new york colon cancer challenge. The foundation celebrated the 16th annual new york colon cancer challenge on randall's island in new york city. The challenge is a unique opportunity for survivors and affected family members to honor loved ones they may have lost or to celebrate their own victory over colorectal cancer. Hundreds participated in the remembrance and prevention walk and run. In addition, members of the foundation's community make their miles count in the fight against crc by running either the united airlines nyc half marathon or the tcs nyc marathon. Each member of team colon cancer challenge pledges to make their miles count by raising awareness of the nation's second leading cancer killer and funds to support our mission. 2.partnerships the foundation is proud of our direct grassroots outreach to communities and individuals in underserved communities and our work with local, regional, national, and international organizations on the development and implementation of up to date policies and programs that continue to address crc incidence and death and quality of life issues affecting patients and caregivers. Members of the foundation's leadership team support, participate in and serve in a leadership capacity on many organizations including but not limited to the following: -the c5 summit (citywide colon cancer control coalition), an initiative of the new york city department of health and mental hygiene (nycdohmh); -the collaborative group of the americas on inherited colorectal cancer (cga); -the gi cancers alliance (gica); -the international society for gastrointestinal hereditary tumors (insight); - national colorectal cancer roundtable (nccrt); -the nys cancer consortium colorectal cancer action team; -the society for surgical oncology (sso); and -the westchester cancer coalition.”