Colon Cancer Challenge Foundation

“The form 990 is presented to the foundation's finance committee for review. Edits are incorporated and a final copy presented to the board of directors for review prior to submission.”

“On an annual basis, board members complete and submit a questionnaire to the board chair to disclose whether there are any conflicts. The board and the executive director will evaluate conflict disclosures and make other necessary inquiries to determine the extent and nature of any actual or potential conflict of interest and, if appropriate, investigate alternatives to the proposed transaction or arrangement. After disclosure of the potentially conflicting interest and all material facts, and after answering any questions, the interested person shall recuse himself or herself from deliberations and voting relating to the matter and shall refrain from attempting to influence other decision-makers relating to the matter. However, as a member of the board or committee, an interested director may be counted in determining the establishment of the quorum at a meeting relating to the matter.”

“On an annual basis, the foundation (either the full board or a compensation committee/executive committee) will evaluate the executive director on his/her performance, and ask for his/her input on matters of performance and compensation. The committee will obtain independent information to make a recommendation to the full board for compensation (salary and benefits) of the executive director (and other highly compensated employees or consultants) based on a review of the comparable data. The data may include the following: 1. Information obtained from the irs form 990 filings of similar organizations; 2. Salary and benefit compensation studies by independent sources; and/or 3. Written job offers for positions at organizations. To approve compensation of the executive director (and other highly compensated employees and consultants) the board must document how it reached its decisions, including the data on which it relied, in minutes of the meeting during which the compensation was approved.”

“New hampshire, north dakota, nevada, ohio, oklahoma, oregon, rhode island, south carolina, utah, virginia, washington, west virginia, wisconsin”

“The foundation's form 990 is also available on the guidestar.org website.”

“Financial statements are available on the organization's website. Form 990 is available on the guidestar.com website.”

“The colon cancer challenge foundation (the foundation), is dedicated to a world without colorectal cancer(tm) and works toward this mission by increasing awareness about the importance of early screening, developing public/private partnerships to increase knowledge and crc screening rates, increasing awareness of crc risk factors and factors that may help prevent crc, including family/genetic history, providing funds for screening services to the underserved, and awarding research grants to sturdy genetic and epigenetic changes that will lead to new breakthroughs in the prevention and therapy of crc.”

“Research the colon cancer foundation continues to fulfill one of its critical mission objectives - recognizing and supporting excellence in translational research focused on the molecular biology of colorectal cancer by providing colorectal cancer research scholar awards for the top-ranking abstracts submitted by trainees or junior faculty members attending national and international conferences. Awards provide funding to cover meeting, registration and travel expenses to the conferences. In providing these wards, the foundation seeks to both support and promote colorectal cancer research. The foundation has a special interest in the biology of early age onset and hereditary colorectal cancer. However, research into other areas of colorectal cancer (e.g., novel treatments, innovative minimally invasive screening technologies) is also considered. Participating conferences and organizations currently include:the 2018 eao crc summit largely focused "why": what factors are driving the increasing incidence of young adult colorectal cancer - a "state-of-the-science" review. The agenda included such topics as "the usual suspects", "life course epidemiology - additional possible causes of early onset colorectal cancer", and "current efforts to address early age onset colorectal cancer morbidity and mortality". The foundation was also pleased to offer several lunch and learn breakout sessions including "demystifying genetic counseling and testing", "50 is the finish line", and "new and emerging minimally invasive technologies". In addition to the eaocrc summit, the colon cancer foundation (ccf) partnered with the national colorectal cancer roundtable (nccrt) family history and early onset crc task group to convene a special symposium: transforming family health history ascertainment and colorectal cancer preventive services in primary care. The one-day symposium assembled the leadership of leading research institutions, federal, state and local agencies, gastroenterology, family medicine, internal medicine and ob/gyn associations, public health organizations, and advocacy groups. The goal of the symposium was to have an interactive symposium which included the opportunity to discuss both the value of and barriers to collecting and acting upon the cancer family history. The ultimate goal of the symposium was to assess how the nccrt family history and early onset task group, its members and its partners could most effectively align to transform family healthy history ascertainment and colorectal cancer preventive services in primary care. The colon cancer foundation also provided symposium attendees with a "first look" at the nccrt risk assessment & screening toolkit for facilitating the identification and management of patients at risk of familial, hereditary and early onset colorectal cancer. The colon cancer foundation continues to work on a local, state and national level to engage the primary care community in a discussion of the barriers and potential solutions to collection and use of cancer family history in primary care practices, including the use of the toolkit. For the fourth year the foundation was able to engage a globally recognized faculty including eao crc survivors as well as clinicians, epidemiologists and researchers from leading cancer centers, advocacy organizations and research institutions from around the us. Our faculty represented institutions and organizations such as: aliveandkickn, american cancer society, bracco diagnostics, boston university school of medicine, colon cancer coalition, family innovations, feinstein institute for medical research/northwell health, fight colorectal cancer, fundacion jimenez diaz university hospital, georgia state university, gi cancer alliance, harvard medical school - brigham and women's hospital, in vitro diagnostics, md anderson cancer center, medial early sign, memorial sloan kettering cancer center, midwest gastroenterology associates, montefiore medical center, national”

“Public awareness - education the foundation continued its multi-level public awareness and educational program to spread the word that colorectal cancer is a largely preventable disease - if caught early. Our surround sound campaign includes grassroots, on the ground educational outreach events, television, radio, print and digital advertising (psa's.) this includes outreach events in underserved and uninsured communities in partnership with community health centers, senior centers. Through its outreach events and advertising the foundation reaches an estimated half a million americans each year. What's 20 feet long 12 feet high, 10 feet wide, inflatable, educational and shaped like a colon? The rollin' colon of course thanks to our supporters, the rollin' colon continued its national tour in 2018 crisscrossing the country to educate thousands on colorectal cancer and the importance of early screening. Educational materials are translated into spanish and chinese - allowing the foundation to provide culturally relevant educational materials to the many underserved and underinsured communities we visit.the foundation's largest outreach event continues to be the new york colon cancer challenge. The foundation celebrated the 16th anniversary of the new york colon cancer challenge randall's island in new york city. The challenge is a unique opportunity for survivors and affected family members to honor loved ones they may have lost or to celebrate their own victory over colorectal cancer. Hundreds participated in the remembrance and prevention walk and run.in addition, members of the foundation's community make their miles count in the fight against colorectal cancer by running either the new york city half or full marathon. Each member of our team pledges to make their miles count by raising awareness of the nation's second leading cancer killer and funds to support our research efforts in the months leading up to their run.”

“Prevension & screening the foundation is proud of our direct grassroots outreach to communities and individuals in underserved communities and our work with local, regional, national and international organizations on the development and implementation of up to date policies and programs that continue to address colorectal cancer incidence and death and quality of life issues affecting patients and caregivers. Members of the foundation's leadership team support, participate in and serve in a leadership capacity on many organizations including but not limited to: -the c5 summit (citywide colon cancer control coalition), an initiative of the new york city department of health and mental hygiene (nycdohmh); -the collaborative group of the americas on inherited colorectal cancer -the gi cancers alliance (gica); -the human variome project (hvp); -the international society for gastrointestinal hereditary tumors (insight); -the society for surgical oncology (sso); -the westchester cancer coalition; and -the national colorectal cancer roundtable (nccrt) a national coalition of public organizations, private organizations, voluntary organizations, and invited individuals dedicated to reducing the incidence of and mortality from colorectal cancer in the u.s., through coordinated leadership, strategic planning, and advocacy.”