International Scleroderma Network

990EZ • Fiscal year 2013 • EIN 26-0039428

Jan 01, 2013 to Dec 31, 2013 • Filed on Aug 11, 2014

Organization Profile www.sclero.org

7455 France Ave S Ste 26655435

(800) 564-7099

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-81%

Higher net margin than 5% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-81%

Faster asset growth than 3% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

-68%

Faster revenue growth than 5% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Balance Sheet

Liabilities / Assets55th percentile

Assets

Down

$7,953

Down $34,696 (-81%) from 2012

Net Assets

Down

$7,953

Down $34,696 (-81%) from 2012

Liabilities

Flat

Flat from 2012

Revenue And Expenses

Liabilities / Revenue56th percentile Net Margin5th percentile

Revenue

Down

$39,720

Down $83,649 (-68%) from 2012

Expenses

Down

$71,889

Down $20,204 (-22%) from 2012

Net Income

Down

-$32,169

Down $63,445 (-203%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth3rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2013

Assets$7,953

Liabilities$0

Net Assets$7,953

Open 2013 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2013

Revenue$39,720

Expenses$71,889

Net Income-$32,169

Open 2013 Filing

Jump To

Filing Snapshot

Filing Period: Jan 1, 2013 to Dec 31, 2013
Signed: Aug 11, 2014
Return Version: 2013v3.0
Gross Receipts: $39,720

Mission and Program Overview

Mission

Worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.

Program Services

Description	Grants	Expenses
Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 3% overall. We further developed of our state-of-the-art web 2.0 Sclero Forums, Chats, Blogs and Videos platform, including two software upgrades and four specialty mods. We provided three hosted chats each week, offering information and support to patients and caregivers alike. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world, maintained our telephone hotline, and email support services to legitimate site inquirers.	$0	$58,490
2013 Scleroderma Research Fund Distribution: Reserved $5,000 for research fund to be awarded in 2014 for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension.	$5,000	$0

Compensation and Service Providers

Top Officer Pay73rd percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
Shelley Ensz	Founder And President	-	$0	-	-
Eugene L Ensz	Vice President	-	$0	-	-
Marcus Sidney Strong	Board Member	-	$0	-	-
Sandra Strong	Board Member	-	$0	-	-
Tony Varghese	Board Member	-	$0	-	-

Filing and Contact Details

Filer

EIN: 26-0039428
Phone: 8005647099

Signing Officer

Name: Shelley Ensz
Title: President
Phone: 8005647099
Signed: 2014-08-11

Supplemental Narrative

Additional Explanations

Form 990-EZ, Part II, Line 24

“Furnishings”

Raw XML Appendix198 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path	#	Value
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IRS990EZ/BenefitsPaidToOrForMembersAmt	0	0
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IRS990EZ/BooksInCareOfDetail/USAddress/City	0	Edina
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IRS990EZ/FundraisingGrossIncomeAmt	0	0
IRS990EZ/GainOrLossFromSaleOfAssetsAmt	0	0
IRS990EZ/GamingGrossIncomeAmt	0	0
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IRS990EZ/GrossSalesOfInventoryAmt	0	0
IRS990EZ/InfoInScheduleOPartIIInd	0	X
IRS990EZ/InvestmentIncomeAmt	0	0
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	3	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	4	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	3	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt	4	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	0	Shelley Ensz
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	1	Eugene L Ensz
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	2	Marcus Sidney Strong
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	3	Sandra Strong
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	4	Tony Varghese
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	0	Founder and President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	1	Vice President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	2	Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	3	Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	4	Board Member
IRS990EZ/OperateHospitalInd	0	0
IRS990EZ/Organization501c3Ind	0	X
IRS990EZ/OrganizationDissolvedEtcInd	0	0
IRS990EZ/OrganizationHadUBIInd	0	0
IRS990EZ/OtherAssetsTotalDetail/BOYAmt	0	595
IRS990EZ/OtherAssetsTotalDetail/EOYAmt	0	595
IRS990EZ/OtherChangesInNetAssetsAmt	0	0
IRS990EZ/OtherExpensesTotalAmt	0	0
IRS990EZ/OtherRevenueTotalAmt	0	0
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt	0	NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt	0	NONE
IRS990EZ/PoliticalCampaignActyInd	0	0
IRS990EZ/PrimaryExemptPurposeTxt	0	Worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
IRS990EZ/PrintingPublicationsPostageAmt	0	1461
IRS990EZ/ProgramServiceRevenueAmt	0	585
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	0	2013 Scleroderma Research Fund Distribution: Reserved $5,000 for research fund to be awarded in 2014 for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	1	Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 3% overall. We further developed of our state-of-the-art web 2.0 Sclero Forums, Chats, Blogs and Videos platform, including two software upgrades and four specialty mods. We provided three hosted chats each week, offering information and support to patients and caregivers alike. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world, maintained our telephone hotline, and email support services to legitimate site inquirers.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	0	5000
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	1	0
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt	0	0
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt	1	58490
IRS990EZ/ProhibitedTaxShelterTransInd	0	0
IRS990EZ/RelatedOrganizationCtrlEntInd	0	0
IRS990EZ/SalariesOtherCompEmplBnftAmt	0	0
IRS990EZ/SaleOfAssetsGrossAmt	0	0
IRS990EZ/SchoolOperatingInd	0	0
IRS990EZ/SpecialEventsDirectExpensesAmt	0	0
IRS990EZ/SpecialEventsNetIncomeLossAmt	0	0
IRS990EZ/StatesWhereCopyOfReturnIsFldCd	0	CA
IRS990EZ/StatesWhereCopyOfReturnIsFldCd	1	MN
IRS990EZ/SubjectToProxyTaxInd	0	0
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt	0	0
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt	0	0
IRS990EZ/TanningServicesProvidedInd	0	0
IRS990EZ/TaxImposedOnOrganizationMgrAmt	0	0
IRS990EZ/TaxImposedUnderIRC4911Amt	0	0
IRS990EZ/TaxImposedUnderIRC4912Amt	0	0
IRS990EZ/TaxImposedUnderIRC4955Amt	0	0
IRS990EZ/TaxReimbursedByOrganizationAmt	0	0
IRS990EZ/TotalExpensesAmt	0	71889
IRS990EZ/TotalProgramServiceExpensesAmt	0	58490
IRS990EZ/TotalRevenueAmt	0	39720
IRS990EZ/TransactionWithControlEntInd	0	0
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd	0	0
IRS990EZ/TypeOfOrganizationCorpInd	0	X
IRS990EZ/WebsiteAddressTxt	0	http://www.sclero.org/
IRS990ScheduleA/Form990ScheduleAPartIVGrp/ExplanationTxt	0	Program-related sales
IRS990ScheduleA/Form990ScheduleAPartIVGrp/FormAndLineReferenceDesc	0	Schedule A, Part II, Line 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt	0	39135
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt	0	34471
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt	0	285339
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearAmt	0	0
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus1YearAmt	0	0
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus2YearsAmt	0	0
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus3YearsAmt	0	0
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus4YearsAmt	0	0
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt	0	0
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt	0	0
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt	0	0
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt	0	30
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt	0	12
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt	0	7
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt	0	49
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt	0	585
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt	0	661
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt	0	2178
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt	0	9247
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt	0	1645
IRS990ScheduleA/OtherIncome170Grp/TotalAmt	0	14316
IRS990ScheduleA/PublicOrganization170Ind	0	X
IRS990ScheduleA/PublicSupportCY170Pct	0	0.95207
IRS990ScheduleA/PublicSupportPY170Pct	0	0.94507
IRS990ScheduleA/PublicSupportTotal170Amt	0	285339
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearAmt	0	0
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus1YearAmt	0	0
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IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus3YearsAmt	0	0
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus4YearsAmt	0	0
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IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind	0	X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt	0	39135
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt	0	122708
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt	0	61533
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt	0	27492
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt	0	34471
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt	0	285339
IRS990ScheduleA/TotalSupportAmt	0	299704
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt	0	0
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt	0	0
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt	0	0
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt	0	0
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt	0	0
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt	0	0
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt	0	RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	0	Furnishings
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	0	Form 990-EZ, Part II, Line 24
ReasonableCauseExplanation/ExplanationTxt	0	Illness.
ReturnHeader/BuildTS	0	2015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/PersonNm	0	Shelley Ensz
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt	0	President
ReturnHeader/BusinessOfficerGrp/PhoneNum	0	8005647099
ReturnHeader/BusinessOfficerGrp/SignatureDt	0	2014-08-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1	0	INTERNATIONAL SCLERODERMA NETWORK
ReturnHeader/Filer/BusinessNameControlTxt	0	INTE
ReturnHeader/Filer/EIN	0	260039428
ReturnHeader/Filer/PhoneNum	0	8005647099
ReturnHeader/Filer/USAddress/AddressLine1	0	7455 France Ave S Ste 266
ReturnHeader/Filer/USAddress/City	0	Edina
ReturnHeader/Filer/USAddress/State	0	MN
ReturnHeader/Filer/USAddress/ZIPCode	0	55435
ReturnHeader/ReturnTs	0	2014-08-15T13:27:29-07:00
ReturnHeader/ReturnTypeCd	0	990EZ
ReturnHeader/TaxPeriodBeginDt	0	2013-01-01
ReturnHeader/TaxPeriodEndDt	0	2013-12-31
ReturnHeader/TaxYr	0	2013

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $7,953
Liabilities: $0
Net assets: $7,953
Revenue: $39,720
Expenses: $71,889
Net income: -$32,169

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$0.02	$0.02	$0.00	$0.02	$0.04	$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$0.07	$0.02	$0.06	$0.08	$0.10	$0.02
2018Detailed filing. Detailed filing data is available for this year.	$0.08	$0.00	$0.08	$0.19	$0.43	$0.24
2017Detailed filing. Detailed filing data is available for this year.	$0.32	$0.00	$0.32	$0.72	$0.47	$0.25
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.	$0.07	$0.00	$0.07	$0.31	$0.29	$0.02
2015Detailed filing. Detailed filing data is available for this year.	$0.05	$0.00	$0.05	$0.41	$0.42	$0.01
2014Detailed filing. Detailed filing data is available for this year.	$0.07	$0.00	$0.07	$0.43	$0.44	$0.01
2013Detailed filing. Detailed filing data is available for this year.	$0.08	$0.00	$0.08	$0.40	$0.72	$0.32
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.	$0.43	$0.00	$0.43	$1.23	$0.92	$0.31
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.	$0.11	$0.00	$0.11	$0.62	$0.57	$0.04