Liabilities / Assets
57th percentile
Tied with the lowest-debt nonprofits in its peer group.
International Scleroderma Network
990EZ • Fiscal year 2018 • EIN 26-0039428
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
4th percentile
Higher net margin than 4% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
5th percentile
Faster asset growth than 5% of similar nonprofits.
Revenue Growth
5th percentile
Faster revenue growth than 5% of similar nonprofits.
Balance Sheet
Assets
Down$7,910
Down $23,868 (-75%) from 2017
Net Assets
Down$7,910
Down $23,868 (-75%) from 2017
Liabilities
Flat$0
Flat from 2017
Revenue And Expenses
Revenue
Down$19,299
Down $53,031 (-73%) from 2017
Expenses
Down$43,097
Down $4,281 (-9.0%) from 2017
Net Income
Down-$23,798
Down $48,750 (-195%) from 2017
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2018 to Dec 31, 2018
- Signed
- Nov 26, 2019
- Return Version
- 2018v3.0
- Gross Receipts
- $19,299
Mission and Program Overview
Mission
We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization. | $0 | $43,097 |
| Scleroderma Research Fund Distribution: Reserved funds to be distributed later to the nonprofit Scleroderma Clinical Trials Consortium (SCTC) for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension. Allocations: 2,500.00 | $0 | $0 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Shelley Ensz | Founder And President | - | $0 | - | - |
| Marcus Sidney Strong | Board Member | - | $0 | - | - |
| Sandra Strong | Board Member | - | $0 | - | - |
| Jo Frowde | Board Member | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- International Scleroderma Network
- EIN
- 26-0039428
- Phone
- 8005647099
- Address
- 7455 France Ave S Ste 266, Edina, MN 55435
Signing Officer
- Name
- Shelley Ensz
- Title
- President
- Phone
- 8005647099
- Signed
- 2019-11-26
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 16
“Advertising, Bank fees, Computer, Supplies, Travel”
Form 990-EZ, Part I, Line 20
“Correction of last year ending balance”
Form 990-EZ, Part II, Line 24
“Furniture, Fixtures and Equipment”
Raw XML Appendix194 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | Edina |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 55435 |
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| IRS990EZ/CostOrOtherBasisExpenseSaleAmt | 0 | 0 |
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| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 1705 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 3110 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | -70 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 6975 |
| IRS990EZ/OtherRevenueTotalAmt | 0 | 0 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 620 |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 221 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Scleroderma Research Fund Distribution: Reserved funds to be distributed later to the nonprofit Scleroderma Clinical Trials Consortium (SCTC) for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension. Allocations: 2,500.00 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 1 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 43097 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SalariesOtherCompEmplBnftAmt | 0 | 3289 |
| IRS990EZ/SaleOfAssetsGrossAmt | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SpecialEventsNetIncomeLossAmt | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 1 | MN |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 43097 |
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| IRS990EZ/TotalRevenueAmt | 0 | 19299 |
| IRS990EZ/TransactionWithControlEntInd | 0 | 0 |
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| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | http://www.sclero.org/ |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | Voices of Scleroderma book royalties |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | Schedule A, Part II, Line 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 19075 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 72239 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 30932 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 40813 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 42712 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 205771 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 223 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 223 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 92 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 295 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 286 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 566 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 1462 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99295 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99199 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 205771 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus1YearAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
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| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 19075 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 72239 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 205771 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 207233 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Advertising, Bank fees, Computer, Supplies, Travel |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Correction of last year ending balance |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Furniture, Fixtures and Equipment |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 20 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part II, Line 24 |
| ReasonableCauseExplanation/ExplanationTxt | 0 | Illness and extended sabbatical of founder and president delayed filing. |
| ReturnHeader/BuildTS | 0 | 2020-04-17 16:48:07Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Shelley Ensz |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8005647099 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2019-11-26 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | INTERNATIONAL SCLERODERMA NETWORK |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | INTE |
| ReturnHeader/Filer/EIN | 0 | 260039428 |
| ReturnHeader/Filer/PhoneNum | 0 | 8005647099 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 7455 France Ave S Ste 266 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Edina |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MN |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 55435 |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 76.167.208.177 |
| ReturnHeader/ReturnTs | 0 | 2019-11-27T18:48:35-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2018-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2018-12-31 |
| ReturnHeader/TaxYr | 0 | 2018 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2018 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $7,910
- Liabilities
- $0
- Net assets
- $7,910
- Revenue
- $19,299
- Expenses
- $43,097
- Net income
- -$23,798