Civic Intelligence

International Scleroderma Network

990EZ • Fiscal year 2019 • EIN 26-0039428

Jan 01, 2019 to Dec 31, 2019 • Filed on Aug 14, 2020

Organization Profilewww.sclero.org
7455 France Ave S Ste 266Edina, MN 55435

(800) 564-7099

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

84th percentile

0.20x

Higher debt load relative to assets than 84% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

87th percentile

0.18x

Higher debt load relative to revenue than 87% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

14th percentile

-24%

Higher net margin than 14% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

34th percentile

-6.0%

Faster asset growth than 34% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

8th percentile

-56%

Faster revenue growth than 8% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets84th percentile

Assets

Down

$7,437

Down $473 (-6.0%) from 2018

Net Assets

Down

$5,927

Down $1,983 (-25%) from 2018

Liabilities

Up

$1,510

Up $1,510 from 2018

Revenue And Expenses
Liabilities / Revenue87th percentileNet Margin14th percentile

Revenue

Down

$8,399

Down $10,900 (-56%) from 2018

Expenses

Down

$10,382

Down $32,715 (-76%) from 2018

Net Income

Up

-$1,983

Up $21,815 (+92%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth34th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60K$40K$20K$0Assets 2011: $11,373Liabilities 2011: $0Net Assets 2011: $11,3732011Assets 2012: $42,649Liabilities 2012: $0Net Assets 2012: $42,6492012Assets 2013: $7,953Liabilities 2013: $0Net Assets 2013: $7,9532013Assets 2014: $6,970Liabilities 2014: $0Net Assets 2014: $6,9702014Assets 2015: $4,508Liabilities 2015: $0Net Assets 2015: $4,5082015Assets 2016: $6,756Liabilities 2016: $0Net Assets 2016: $6,7562016Assets 2017: $31,778Liabilities 2017: $0Net Assets 2017: $31,7782017Assets 2018: $7,910Liabilities 2018: $0Net Assets 2018: $7,9102018Assets 2019: $7,437Liabilities 2019: $1,510Net Assets 2019: $5,9272019Assets 2020: $1,583Liabilities 2020: $1,510Net Assets 2020: $732020

Highlighted filing

2019

Assets$7,437
Liabilities$1,510
Net Assets$5,927
Open 2019 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2011: $61,533Expenses 2011: $57,296Net Income 2011: $4,2372011Revenue 2012: $123,369Expenses 2012: $92,093Net Income 2012: $31,2762012Revenue 2013: $39,720Expenses 2013: $71,889Net Income 2013: -$32,1692013Revenue 2014: $43,278Expenses 2014: $44,261Net Income 2014: -$9832014Revenue 2015: $41,099Expenses 2015: $41,917Net Income 2015: -$8182015Revenue 2016: $30,932Expenses 2016: $28,684Net Income 2016: $2,2482016Revenue 2017: $72,330Expenses 2017: $47,378Net Income 2017: $24,9522017Revenue 2018: $19,299Expenses 2018: $43,097Net Income 2018: -$23,7982018Revenue 2019: $8,399Expenses 2019: $10,382Net Income 2019: -$1,9832019Revenue 2020: $1,506Expenses 2020: $4,250Net Income 2020: -$2,7442020

Highlighted filing

2019

Revenue$8,399
Expenses$10,382
Net Income-$1,983
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Aug 14, 2020
Return Version
2019v5.0
Gross Receipts
$8,399
Mission and Program Overview

Mission

We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.

Program Services

DescriptionGrantsExpenses
Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization.$0$9,883
Scleroderma Research Fund Distribution: Reserved funds to be distributed later to the nonprofit Scleroderma Clinical Trials Consortium (SCTC) for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension. Allocations: 500.00$0$0
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Shelley EnszFounder And President-$0--
Marcus Sidney StrongBoard Member-$0--
Sandra StrongBoard Member-$0--
Jo FrowdeBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
International Scleroderma Network
EIN
26-0039428
Phone
8005647099
Address
7455 France Ave S Ste 266, Edina, MN 55435

Signing Officer

Name
Shelley Ensz
Title
President
Phone
8005647099
Signed
2020-08-14
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part II, Line 24

“Fixtures and Equipment”

Form 990-EZ, Part II, Line 26

“Expenses yet to be reimbursed”

Raw XML Appendix185 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1Marcus Sidney Strong
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2Sandra Strong
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0Founder and President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Board Member
IRS990EZ/OperateHospitalInd00
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IRS990EZ/PrintingPublicationsPostageAmt0133
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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
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IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt19883
IRS990EZ/ProhibitedTaxShelterTransInd00
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IRS990EZ/SchoolOperatingInd00
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IRS990EZ/TaxImposedUnderIRC4911Amt00
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IRS990EZ/WebsiteAddressTxt0http://www.sclero.org/
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0Sales of Voices of Scleroderma books
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Expenses yet to be reimbursed
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part II, Line 24
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part II, Line 26
ReasonableCauseExplanation/ExplanationTxt0Illness.
ReturnHeader/BuildTS02020-09-22 18:59:49Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Shelley Ensz
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum08005647099
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-08-14
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ReturnHeader/Filer/BusinessNameControlTxt0INTE
ReturnHeader/Filer/EIN0260039428
ReturnHeader/Filer/PhoneNum08005647099
ReturnHeader/Filer/USAddress/AddressLine1Txt07455 France Ave S Ste 266
ReturnHeader/Filer/USAddress/CityNm0Edina
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MN
ReturnHeader/Filer/USAddress/ZIPCd055435
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt068.7.89.229
ReturnHeader/ReturnTs02020-08-14T17:01:51-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,437
Liabilities
$1,510
Net assets
$5,927
Revenue
$8,399
Expenses
$10,382
Net income
-$1,983
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.02$0.02$0.00$0.02$0.04$0.03
2019Detailed filing. Detailed filing data is available for this year.$0.07$0.02$0.06$0.08$0.10$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.19$0.43$0.24
2017Detailed filing. Detailed filing data is available for this year.$0.32$0.00$0.32$0.72$0.47$0.25
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.07$0.00$0.07$0.31$0.29$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.05$0.00$0.05$0.41$0.42$0.01
2014Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.43$0.44$0.01
2013Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.40$0.72$0.32
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.43$0.00$0.43$1.23$0.92$0.31
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.11$0.00$0.11$0.62$0.57$0.04