Civic Intelligence

International Scleroderma Network

EIN 26-0039428 • 501(c)3 • Edina, MN

Profile

Worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.

7455 France Ave S Ste 266Edina, MN 55435

www.sclero.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

92nd percentile

0.95x

Higher debt load relative to assets than 92% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

95th percentile

1.00x

Higher debt load relative to revenue than 95% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

7th percentile

-182%

Higher net margin than 7% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

14th percentile

-79%

Faster asset growth than 14% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

9th percentile

-82%

Faster revenue growth than 9% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Assets

Down

$1,583

Down $5,854 (-79%) from 2019

Liabilities

Flat

$1,510

Flat from 2019

Net Assets

Down

$73

Down $5,854 (-99%) from 2019

Revenue

Down

$1,506

Down $6,893 (-82%) from 2019

Expenses

Down

$4,250

Down $6,132 (-59%) from 2019

Net Income

Down

-$2,744

Down $761 (-38%) from 2019

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60K$40K$20K$0Assets 2011: $11,373Liabilities 2011: $0Net Assets 2011: $11,3732011Assets 2012: $42,649Liabilities 2012: $0Net Assets 2012: $42,6492012Assets 2013: $7,953Liabilities 2013: $0Net Assets 2013: $7,9532013Assets 2014: $6,970Liabilities 2014: $0Net Assets 2014: $6,9702014Assets 2015: $4,508Liabilities 2015: $0Net Assets 2015: $4,5082015Assets 2016: $6,756Liabilities 2016: $0Net Assets 2016: $6,7562016Assets 2017: $31,778Liabilities 2017: $0Net Assets 2017: $31,7782017Assets 2018: $7,910Liabilities 2018: $0Net Assets 2018: $7,9102018Assets 2019: $7,437Liabilities 2019: $1,510Net Assets 2019: $5,9272019Assets 2020: $1,583Liabilities 2020: $1,510Net Assets 2020: $732020

Highlighted filing

2020

Assets$1,583
Liabilities$1,510
Net Assets$73

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$150K$100K$50K$0-$50KRevenue 2011: $61,533Expenses 2011: $57,296Net Income 2011: $4,2372011Revenue 2012: $123,369Expenses 2012: $92,093Net Income 2012: $31,2762012Revenue 2013: $39,720Expenses 2013: $71,889Net Income 2013: -$32,1692013Revenue 2014: $43,278Expenses 2014: $44,261Net Income 2014: -$9832014Revenue 2015: $41,099Expenses 2015: $41,917Net Income 2015: -$8182015Revenue 2016: $30,932Expenses 2016: $28,684Net Income 2016: $2,2482016Revenue 2017: $72,330Expenses 2017: $47,378Net Income 2017: $24,9522017Revenue 2018: $19,299Expenses 2018: $43,097Net Income 2018: -$23,7982018Revenue 2019: $8,399Expenses 2019: $10,382Net Income 2019: -$1,9832019Revenue 2020: $1,506Expenses 2020: $4,250Net Income 2020: -$2,7442020

Highlighted filing

2020

Revenue$1,506
Expenses$4,250
Net Income-$2,744

Filings

Latest Detailed Filing

The latest 2020 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2018 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 26, 2019
Return Version
2018v3.0
Gross Receipts
$19,299
Mission and Program Overview

Mission

We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.

Program Services

DescriptionGrantsExpenses
Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization.$0$43,097
Scleroderma Research Fund Distribution: Reserved funds to be distributed later to the nonprofit Scleroderma Clinical Trials Consortium (SCTC) for peer-reviewed worldwide research for scleroderma and related illnesses, such as pulmonary hypertension. Allocations: 2,500.00$0$0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Shelley EnszFounder And President-$0--
Marcus Sidney StrongBoard Member-$0--
Sandra StrongBoard Member-$0--
Jo FrowdeBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
International Scleroderma Network
EIN
26-0039428
Phone
8005647099
Address
7455 France Ave S Ste 266, Edina, MN 55435

Signing Officer

Name
Shelley Ensz
Title
President
Phone
8005647099
Signed
2019-11-26
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

Advertising, Bank fees, Computer, Supplies, Travel

Form 990-EZ, Part I, Line 20

Correction of last year ending balance

Form 990-EZ, Part II, Line 24

Furniture, Fixtures and Equipment

Raw XML Appendix194 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Support, Education and Awareness. Accomplishments included attaining a world ranking of 36,788 and a current U.S. ranking in the top 6,000 of literally billions of websites, for our SCLERO.ORG web site, as measured by ranking.com. We remained the world leader in this field of expertise by both site traffic and delivery of well-respected content and services. We added well over 300 pages, while continually removing out-dated content and links. We invested in improved web site quality and link checking software. We decreased page download speed by 8% overall. We updated the entire web site to be Mobile-Friendly. We hired SEO assistance, and a Scleroderma Expert List Coordinator. We further developed of our state-of-the-art Sclero Forums, Blogs and Videos platform, doing a major upgrade which included two software upgrades and five specialty mods. Additional project achievements include daily updating of our sophisticated internal site search engine, and daily newsfeeds direct from our forums. We recreated our sitemaps weekly and resubmitted them to search engines to make fresh content instantly accessible by users. These features increased the visibility and availability of stellar, up-to-the-minute research news about scleroderma and PAH to both interested subscribers and to the public at large. We continued to distribute our Voices of Scleroderma trilogy book series throughout the world. We maintained our 24 hour a day scleroderma and PAH telephone hotline, and provided both email and postal mail support services to over 1,000 legitimate hotline inquirers. Over $250,000 of volunteer effort was also contributed in support of our programs by a team of over 70 worldwide virtual volunteers who sustain the backbone of our organization.
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ReasonableCauseExplanation/ExplanationTxt0Illness and extended sabbatical of founder and president delayed filing.
ReturnHeader/BuildTS02020-04-17 16:48:07Z
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ReturnHeader/Filer/EIN0260039428
ReturnHeader/Filer/PhoneNum08005647099
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ReturnHeader/ReturnTs02019-11-27T18:48:35-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02018-01-01
ReturnHeader/TaxPeriodEndDt02018-12-31
ReturnHeader/TaxYr02018

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No mirrored PDF or thumbnail assets are attached yet.