Civic Intelligence

Mds Foundation Inc

EIN 22-3283911 • 501(c)3 • New York, NY

Profile

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

228 Park Avenue S Pmb 118983New York, NY 10003

www.mds-foundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

55th percentile

0.07x

Higher debt load relative to assets than 55% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.13x

Higher debt load relative to revenue than 61% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Net Margin

6th percentile

-48%

Higher net margin than 6% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

75th percentile

$155,674

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 7.8% of source-year revenue.

NTEE G • $1M-$5M nonprofits • Source year 2024

Asset Growth

8th percentile

-26%

Faster asset growth than 8% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

9th percentile

-27%

Faster revenue growth than 9% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Down

$3,847,112

Down $1,369,390 (-26%) from 2023

Liabilities

Down

$257,739

Down $211,875 (-45%) from 2023

Net Assets

Down

$3,589,373

Down $1,157,515 (-24%) from 2023

Revenue

Down

$2,002,126

Down $746,899 (-27%) from 2023

Expenses

Down

$2,953,868

Down $190,036 (-6.0%) from 2023

Net Income

Down

-$951,742

Down $556,863 (-141%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2011: $377,790Liabilities 2011: $251,138Net Assets 2011: $126,6522011Assets 2012: $726,808Liabilities 2012: $111,727Net Assets 2012: $615,0812012Assets 2013: $926,166Liabilities 2013: $166,982Net Assets 2013: $759,1842013Assets 2014: $638,992Liabilities 2014: $86,210Net Assets 2014: $552,7822014Assets 2015: $659,358Liabilities 2015: $224,305Net Assets 2015: $435,0532015Assets 2016: $367,767Liabilities 2016: $136,040Net Assets 2016: $231,7272016Assets 2017: $2,140,370Liabilities 2017: $1,339,352Net Assets 2017: $801,0182017Assets 2018: $1,254,759Liabilities 2018: $120,783Net Assets 2018: $1,133,9762018Assets 2019: $1,973,323Liabilities 2019: $307,887Net Assets 2019: $1,665,4362019Assets 2020: $3,276,887Liabilities 2020: $337,566Net Assets 2020: $2,939,3212020Assets 2021: $5,238,327Liabilities 2021: $445,728Net Assets 2021: $4,792,5992021Assets 2022: $5,422,226Liabilities 2022: $281,335Net Assets 2022: $5,140,8912022Assets 2023: $5,216,502Liabilities 2023: $469,614Net Assets 2023: $4,746,8882023Assets 2024: $3,847,112Liabilities 2024: $257,739Net Assets 2024: $3,589,3732024

Highlighted filing

2024

Assets$3,847,112
Liabilities$257,739
Net Assets$3,589,373

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $3,089,562Expenses 2011: $2,219,891Net Income 2011: $869,6712011Expenses 2012: $1,137,1452012Revenue 2013: $1,356,083Expenses 2013: $1,212,847Net Income 2013: $143,2362013Revenue 2014: $1,161,788Expenses 2014: $1,372,337Net Income 2014: -$210,5492014Revenue 2015: $2,688,628Expenses 2015: $2,810,899Net Income 2015: -$122,2712015Revenue 2016: $936,890Expenses 2016: $1,140,216Net Income 2016: -$203,3262016Revenue 2017: $3,901,216Expenses 2017: $3,321,416Net Income 2017: $579,8002017Revenue 2018: $1,531,833Expenses 2018: $1,198,934Net Income 2018: $332,8992018Revenue 2019: $2,910,023Expenses 2019: $2,375,459Net Income 2019: $534,5642019Revenue 2020: $3,289,167Expenses 2020: $2,011,416Net Income 2020: $1,277,7512020Revenue 2021: $4,660,616Expenses 2021: $2,815,786Net Income 2021: $1,844,8302021Revenue 2022: $2,521,375Expenses 2022: $2,174,159Net Income 2022: $347,2162022Revenue 2023: $2,749,025Expenses 2023: $3,143,904Net Income 2023: -$394,8792023Revenue 2024: $2,002,126Expenses 2024: $2,953,868Net Income 2024: -$951,7422024

Highlighted filing

2024

Revenue$2,002,126
Expenses$2,953,868
Net Income-$951,742

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.26$3.59$2.00$2.95$0.95
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.47$4.75$2.75$3.14$0.39
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.28$5.14$2.52$2.17$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.45$4.79$4.66$2.82$1.84
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.34$2.94$3.29$2.01$1.28
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.97$0.31$1.67$2.91$2.38$0.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.12$1.13$1.53$1.20$0.33
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.14$1.34$0.80$3.90$3.32$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.14$0.23$0.94$1.14$0.20
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.66$0.22$0.44$2.69$2.81$0.12
2014Detailed filing. Detailed filing data is available for this year.$0.64$0.09$0.55$1.16$1.37$0.21
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.17$0.76$1.36$1.21$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.73$0.11$0.62$1.14
2011Summary only. Only limited summary data is available for this year.$0.38$0.25$0.13$3.09$2.22$0.87
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.2
Gross Receipts
$2,058,147
Mission and Program Overview

Mission

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

Established by an international group of physicians and researchers to provide an ongoing exchange of information relating to mds.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,783,341$1,519,828▼ $263,513
Cash and Non-Interest-Bearing Accounts$1,946,015$1,342,465▼ $603,550
Land, Buildings, and Equipment, Net$969,077$815,338▼ $153,739
Pledges and Grants Receivable$240,534--
Prepaid Expenses and Deferred Charges$12,659$117,665▲ $105,006
Accounts Receivable$181,299$44,841▼ $136,458
Total Assets$5,146,339$3,847,112▼ $1,299,227
Other Assets Total$13,414$6,975▼ $6,439
Liabilities
Accounts Payable and Accrued Expenses$740,430$250,391▼ $490,039
Other Liabilities$14,184$7,348▼ $6,836
Total Liabilities$754,614$257,739▼ $496,875
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,735,370$3,589,373▼ $145,997
Net Assets With Donor Restrictions$656,355$0▼ $656,355
Total Net Assets Fund Balance$4,391,725$3,589,373▼ $802,352
Total Liabilities and Net Assets / Fund Balance$5,146,339$3,847,112▼ $1,299,227

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$815,338$1,046,200$1,861,538
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tracey IracaExecutive Director (through 1/25)FT$151,094$4,580$155,674
Ashley R MoncriefPatient Care DirectorFT$136,505$1,198$137,703
Tanya RhodesDevelopment DirectorFT$124,310$3,717$128,027
Lea HarrisonSecretaryFT$93,316$2,676$95,992

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$1,948,899
Program Service Revenue
$0
Investment Income
$3,563
Other Revenue
$49,664
All Other Contributions
$1,592,606
Change in Net Assets
$-951,742

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,002,126
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-615
Total Revenue per Audited Statements
$2,001,511
Total Revenue per Form 990
$2,002,126
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,749,678
Salaries, Compensation, and Employee Benefits$849,590
Total Fundraising Expense$602,696
Grants and Similar Amounts Paid$354,600
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$193,716$105,669$185,428$484,813
Grants to Domestic Individuals$354,600--$354,600
Fees for Services Legal$143,618$126,848-$270,466
Depreciation Depletion$257,134$453$857$258,444
Conferences and Meetings$235,399$11,732$7,250$254,381
Current Officers, Directors, Trustees, and Key Employees$148,662$40,734$62,270$251,666
Office Expenses$97,508$41,876$31,198$170,582
Travel$96,839$6,096$13,612$116,547
Payroll Taxes$27,061$11,622$19,676$58,359
Other Employee Benefits$21,387$9,185$15,551$46,123
Information Technology$21,102$9,062$15,343$45,507
Fees for Services Accounting-$38,797-$38,797
Occupancy$21,673$9,308$6,935$37,916
Advertising-$18,135-$18,135
Pension Plan Contributions$3,126$1,979$3,524$8,629
Other Expenses$3,525$4,993$1,128$4,993
Interest-$272-$272
Total Functional Expenses$1,912,897$438,275$602,696$2,953,868

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,953,868
Total Expenses per Audited Statements$2,953,868
Total Expenses per Form 990$2,953,868
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk-a-thon$322,273---
Total Events$322,273---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$7,348
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The draft form 990 is prepared by an independent accounting firm and reviewed by the foundation's ceo and board of directors. Prior to submission to the irs, the form 990 is formally reviewed and approved by the chairman of the board, the finance committee, and the ceo. The final version is distributed to the full board for review and comment to ensure accuracy and transparency before it is filed with the irs.

Form 990, Part VI, Section B, Line 12C

The board reviews and submits a disclosure of relationships statement to the management of mds foundation, inc. Annually.

Form 990, Part VI, Section B, Line 15A

The board performs a salary comparability analysis using the 990 information for similar nonprofit organizations.

Form 990, Part VI, Section C, Line 18

The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.

Form 990, Part VI, Section C, Line 19

No documents available to the public.

Filing and Contact Details

Filer

Filer Name
The Myelodysplastic Syndromes Foundation
EIN
22-3283911
Phone
8006370839
Address
228 PARK AVENUE S PMB 118983, NEW YORK, NY 10003
Doing Business As
Mds Foundation Inc

Signing Officer

Name
Peggy Ann Torney
Title
CEO
Phone
8006370839
Signed
2025-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Peggy Ann Torney
Formed
1999
Legal Domicile
Nj
Voting Board Members
7
Independent Board Members
6
Employees
11
Volunteers
6

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS 16TH, FLOOR, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2122682804
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The organization does not believe its financial statements include any material, uncertain tax positions. Tax filings for periods ending december 31, 2021 and later are subject to examination by applicable taxing authorities.

Raw XML AppendixShowing 400 of 526 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS.
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IRS990/Desc0THE MDS FOUNDATION ADVOCATES ON BEHALF OF INDIVIDUALS AFFECTED BY MYELODYSPLASTIC SYNDROMES (MDS), A RARE AND COMPLEX BLOOD CANCER. THROUGH EDUCATION, AWARENESS, AND PATIENT ENGAGEMENT, WE EMPOWER PATIENTS AND CAREGIVERS TO MAKE INFORMED HEALTHCARE DECISIONS AND ACCESS APPROPRIATE CARE.WE WORK WITH HEALTHCARE PROFESSIONALS, RESEARCHERS, AND INDUSTRY STAKEHOLDERS TO ENSURE THE PATIENT VOICE IS REPRESENTED IN TREATMENT DEVELOPMENT, POLICY DISCUSSIONS, AND CLINICAL GUIDELINES. WE PROVIDE MULTILINGUAL EDUCATIONAL MATERIALS, PATIENT NAVIGATION SERVICES, PUBLIC AWARENESS CAMPAIGNS, AND REFERRALS TO MDS CENTERS OF EXCELLENCE AROUND THE WORLD.THE MDS FOUNDATION ORGANIZES EDUCATIONAL SYMPOSIA IN COLLABORATION WITH PROFESSIONAL ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. ADDITIONALLY, THE FOUNDATION HOSTS A BIENNIAL INTERNATIONAL MDS CONFERENCE. THESE DYNAMIC AND INFORMATIVE EVENTS ARE DESIGNED FOR HEMATOLOGISTS, HEMATOLOGY NURSES, FELLOWS, PHARMACISTS, AND OTHER HEALTHCARE PROFESSIONALS INVOLVED IN THE CARE AND TREATMENT OF MDS PATIENTS. THE SYMPOSIA AIM TO ADVANCE CLINICAL KNOWLEDGE, PROMOTE BEST PRACTICES, AND FOSTER COLLABORATION ACROSS DISCIPLINES IN ORDER TO IMPROVE TREATMENT OPTIONS AND OUTCOMES FOR PATIENTS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7EXECUTIVE DIRECTOR (THROUGH 1/25)
IRS990/Form990PartVIISectionAGrp/TitleTxt8PATIENT CARE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DEVELOPMENT DIRECTOR
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IRS990/MissionDesc0THE MYELODYSPLASTIC SYNDROMES FOUNDATION (MDSF) IS A GLOBAL NONPROFIT ORGANIZATION DEDICATED TO SUPPORTING PATIENTS AND CAREGIVERS AFFECTED BY MYELODYSPLASTIC SYNDROMES (MDS), A GROUP OF RARE AND LIFE-THREATENING BONE MARROW DISORDERS, AND THE HEALTHCARE PROFESSIONALS WHO CARE FOR THEM.SINCE OUR FOUNDING MORE THAN 30 YEARS AGO, WE HAVE REMAINED STEADFAST IN OUR MISSION TO ADVANCE RESEARCH, PROVIDE CRITICAL EDUCATION AND SUPPORT SERVICES, AND IMPROVE TREATMENT OPTIONS FOR THOSE IMPACTED BY MDS.
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IRS990/PensionPlanContributionsGrp/FundraisingAmt03524
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IRS990/PensionPlanContributionsGrp/ProgramServicesAmt03126
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IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0240534
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt012659
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY, AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS, AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0265207
IRS990/ProgSrvcAccomActy3Grp/Desc0THE MDS FOUNDATION SUPPORTS AND ADVANCES SCIENTIFIC RESEARCH IN MYELODYSPLASTIC SYNDROMES (MDS) THROUGH ITS YOUNG INVESTIGATOR RESEARCH PROGRAM. THE FOUNDATION INVITES EARLY-CAREER INVESTIGATORS TO SUBMIT PROPOSALS FOCUSED ON BASIC SCIENCE OR CLINICAL RESEARCH RELATED TO THE CAUSES, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS, AND MANAGEMENT OF MDS.IN ADDITION TO FUNDING INDIVIDUAL RESEARCH, THE FOUNDATION CONVENES INTERNATIONAL WORKING GROUPS COMPOSED OF LEADING SCIENTISTS AND PHYSICIANS TO COLLABORATIVELY IMPROVE DIAGNOSTIC STANDARDS, PROGNOSTIC TOOLS, AND TREATMENT STRATEGIES.THE MDS FOUNDATION ALSO PLAYS A KEY ROLE IN PROMOTING AWARENESS OF ONGOING CLINICAL TRIALS AND SUPPORTING PATIENT RECRUITMENT EFFORTS. THROUGH ITS GLOBAL NETWORK OF HEMATOLOGISTS AND CENTERS OF EXCELLENCE, THE FOUNDATION HELPS CONNECT ELIGIBLE PATIENTS TO CLINICAL RESEARCH OPPORTUNITIES AIMED AT IMPROVING CARE AND ADVANCING POTENTIAL CURES.THE FOUNDATION MAINTAINS A GLOBAL NETWORK OF HEMATOLOGISTS WHO ARE INFORMED ABOUT ONGOING CLINICAL TRIALS AND CAN REFER ELIGIBLE PATIENTS INTO THESE RESEARCH PROTOCOLS, SUPPORTING THE ADVANCEMENT OF MDS TREATMENT AND CARE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0354600
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04284275
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03325798
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY MATERIAL, UNCERTAIN TAX POSITIONS. TAX FILINGS FOR PERIODS ENDING DECEMBER 31, 2021 AND LATER ARE SUBJECT TO EXAMINATION BY APPLICABLE TAXING AUTHORITIES.
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0YOUNG INVESTIGATOR GRANTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt02
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE MDS FOUNDATION, INC.'S YOUNG INVESTIGATOR GRANT PROVIDES AN INVESTIGATOR, EARLY IN THEIR CAREER, THE OPPORTUNITY TO INITIATE, CONTINUE OR COMPLETE A PROJECT THAT FOCUSES ON EITHER BASIC OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND TREATMENT OF THE MYELODYSPLASTIC SYNDROMES. THE YOUNG INVESTIGATOR GRANT IS A TWO-YEAR RESEARCH GRANT IN THE AMOUNT OF $150,000, PAID IN TWO EQUAL INSTALLMENTS TO THE AWARDEE'S INSTITUTION.
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