Civic Intelligence

Myelodysplastic Syndromes Foundation

990 • Fiscal year 2012 • EIN 22-3283911

Jan 01, 2012 to Dec 31, 2012 • Filed on May 10, 2013

Organization ProfileWWW.MDS-FOUNDATION.ORG

View Organization Page

4573 S Broad Street Suite 15008620
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

54th percentile

0.15x

Higher debt load relative to assets than 54% of similar nonprofits.

2012 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2012

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2012

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2012

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2012

Asset Growth

96th percentile

92%

Faster asset growth than 96% of similar nonprofits.

2012 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2011 to 2012

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets54th percentile

Assets

Up

$726,808

Up $349,018 (+92%) from 2011

Net Assets

Up

$615,081

Up $488,429 (+386%) from 2011

Liabilities

Down

$111,727

Down $139,411 (-56%) from 2011

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$1,137,145

Down $1,082,746 (-49%) from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth96th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $377,790Liabilities 2011: $251,138Net Assets 2011: $126,6522011Assets 2012: $726,808Liabilities 2012: $111,727Net Assets 2012: $615,0812012Assets 2013: $926,166Liabilities 2013: $166,982Net Assets 2013: $759,1842013Assets 2014: $638,992Liabilities 2014: $86,210Net Assets 2014: $552,7822014Assets 2015: $659,358Liabilities 2015: $224,305Net Assets 2015: $435,0532015Assets 2016: $367,767Liabilities 2016: $136,040Net Assets 2016: $231,7272016Assets 2017: $2,140,370Liabilities 2017: $1,339,352Net Assets 2017: $801,0182017Assets 2018: $1,254,759Liabilities 2018: $120,783Net Assets 2018: $1,133,9762018Assets 2019: $1,973,323Liabilities 2019: $307,887Net Assets 2019: $1,665,4362019Assets 2020: $3,276,887Liabilities 2020: $337,566Net Assets 2020: $2,939,3212020Assets 2021: $5,238,327Liabilities 2021: $445,728Net Assets 2021: $4,792,5992021Assets 2022: $5,422,226Liabilities 2022: $281,335Net Assets 2022: $5,140,8912022Assets 2023: $5,216,502Liabilities 2023: $469,614Net Assets 2023: $4,746,8882023Assets 2024: $3,847,112Liabilities 2024: $257,739Net Assets 2024: $3,589,3732024

Highlighted filing

2012

Assets$726,808
Liabilities$111,727
Net Assets$615,081
Open 2012 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $3,089,562Expenses 2011: $2,219,891Net Income 2011: $869,6712011Expenses 2012: $1,137,1452012Revenue 2013: $1,356,083Expenses 2013: $1,212,847Net Income 2013: $143,2362013Revenue 2014: $1,161,788Expenses 2014: $1,372,337Net Income 2014: -$210,5492014Revenue 2015: $2,688,628Expenses 2015: $2,810,899Net Income 2015: -$122,2712015Revenue 2016: $936,890Expenses 2016: $1,140,216Net Income 2016: -$203,3262016Revenue 2017: $3,901,216Expenses 2017: $3,321,416Net Income 2017: $579,8002017Revenue 2018: $1,531,833Expenses 2018: $1,198,934Net Income 2018: $332,8992018Revenue 2019: $2,910,023Expenses 2019: $2,375,459Net Income 2019: $534,5642019Revenue 2020: $3,289,167Expenses 2020: $2,011,416Net Income 2020: $1,277,7512020Revenue 2021: $4,660,616Expenses 2021: $2,815,786Net Income 2021: $1,844,8302021Revenue 2022: $2,521,375Expenses 2022: $2,174,159Net Income 2022: $347,2162022Revenue 2023: $2,749,025Expenses 2023: $3,143,904Net Income 2023: -$394,8792023Revenue 2024: $2,002,126Expenses 2024: $2,953,868Net Income 2024: -$951,7422024

Highlighted filing

2012

Revenue-
Expenses$1,137,145
Net Income-
Open 2012 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2012 to Dec 31, 2012
Signed
May 10, 2013
Return Version
2012v2.1
Gross Receipts
$1,625,161
Mission and Program Overview

Mission

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

Major Activities

Activity 2
Educational symposia are conducted for several societies and associations such as the american society of hematology and the oncology nursing society. These informative and interactive symposia are aimed at hematologists and nurses working in hematology as well as fellows in hematology, pharmacists working with mds patients and allied health professionals working in the field of mds patient care and treatment.
Activity 3
The mds foundation provides research grants for scientific investigators. The foundation is dedicated to furthering the research into mds and will invite young investigators to submit proposals for either basic research or clinical management into the causation, epidemiology, molecular biology, cytogenetics, morphology, prognosis and management of the myelodysplastic syndromes. In addition, the foundation sponsors international working groups of scientists and physicians to further diagnostic, prognostic and treatment techniques. The foundation has also established a procedure for creating awareness of clinical trials in the field of mds as well as assisting in the clinical trial recruitment process by utilizing its outreach to hematologists worldwide who can refer patients into these protocols.
Filing and Contact Details

Filer

EIN
22-3283911
Raw XML AppendixShowing 400 of 534 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Description0THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2012. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATION'S NEW "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIAISON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST. IN ADDITION, THE FOUNDATION HOLDS PATIENT AND FAMILY QUALITY-OF-LIFE FORUMS WHICH OFFER AN OPPORTUNITY FOR MDS PATIENTS AND CAREGIVERS TO MEET AND RECEIVE THE MOST UPDATED TREATMENT OPTIONS, CLINICAL STUDY INFORMATION, AND PARTICIPATE IN A QUESTION AND ANSWER SESSION ABOUT THE DISEASE. FROM THESE FORUMS THE FOUNDATION ENCOURAGES PATIENTS AND CAREGIVERS TO FORM AND PARTICIPATE IN PATIENT SUPPORT GROUPS WORLDWIDE. THE FOUNDATION ASSISTS THESE GROUPS AS THEY BECOME ESTABLISHED WITH A GOAL OF HAVING THE GROUPS ULTIMATELY BECOME INDEPENDENT AND SELF-SUSTAINING.
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IRS990/PriorExcessBenefitTransaction00
IRS990/ProfessionalFundraising00
IRS990/ProgramServiceRevenueCY00
IRS990/ProgramServiceRevenuePriorYear01603354
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions00
IRS990/ReconcilationOtherChanges0413
IRS990/ReconcilationRevenueExpenses0488016
IRS990/RegularMonitoringEnforcement01
IRS990/RelatedEntity00
IRS990/RelatedOrgControlledEntity00
IRS990/ReportFin48Footnote01
IRS990/ReportInvestOthSecurities00
IRS990/ReportLandBldgEquip01
IRS990/ReportOtherAssets00
IRS990/ReportOtherLiabilities00
IRS990/ReportProgRelInvest00
IRS990/RevenuesLessExpensesCY0488016
IRS990/RevenuesLessExpensesPriorYear0869671
IRS990/SalariesEtcCurrentYear0358863
IRS990/SalariesEtcPriorYear0251380
IRS990/SavingsAndTempCashInvestments/BOY0311008
IRS990/SavingsAndTempCashInvestments/EOY0595186
IRS990ScheduleA/AmountsSubstContributorsTotal07194047
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear01618437
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year02765893
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus2Years01634339
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus3Years03546396
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus4Years02748257
IRS990ScheduleA/GiftsGrantsContribReceived170/Total012313322
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear0769
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year010
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus2Years0-39
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus3Years0552
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus4Years0-1014
IRS990ScheduleA/GrossInvestmentIncome170/Total0278
IRS990ScheduleA/OtherIncome170/CurrentTaxYear08770
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus1Year0319306
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus2Years0264866
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus3Years026782
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus4Years011952
IRS990ScheduleA/OtherIncome170/Total0631676
IRS990ScheduleA/PubliclySupportedOrg170b1Avi0X
IRS990ScheduleA/PublicSupportPertcentage17000.39550
IRS990ScheduleA/PublicSupportPertcentPriorYear00.57500
IRS990ScheduleA/PublicSupportTotal17005119275
IRS990ScheduleA/ThirtyThreePercntTestsCY1700X
IRS990ScheduleA/Total170/CurrentTaxYear01618437
IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year02765893
IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years01634339
IRS990ScheduleA/Total170/CurrentTaxYearMinus3Years03546396
IRS990ScheduleA/Total170/CurrentTaxYearMinus4Years02748257
IRS990ScheduleA/Total170/Total012313322
IRS990ScheduleA/TotalSupport012945276
IRS990ScheduleB/ContributorInfo/AggregateContributions0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNumber0RESTRICTED
IRS990/ScheduleBRequired01
IRS990ScheduleD/DonatedServicesUseOfFacilities02815
IRS990ScheduleD/DonatedSrvcAndUseOfFacilities02815
IRS990ScheduleD/Equipment/BookValue021895
IRS990ScheduleD/Equipment/Depreciation040895
IRS990ScheduleD/Equipment/OtherCostOrOtherBasis062790
IRS990ScheduleD/ExpensesNotRptdF99002402
IRS990ScheduleD/ExpensesNotRptdOnFinStmt00
IRS990ScheduleD/ExpensesSubtotal01137145
IRS990ScheduleD/FootnoteInPartXIII0X
IRS990ScheduleD/Form990ScheduleDPartXIII/Explanation0THE FOUNDATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN THE FINANCIAL STATEMENTS USING A RECOGNITION THRESHOLD OF MORE LIKELY THAN NOT AS TO WHETHER THE UNCERTAINTY WILL BE SUSTAINED UPON EXAMINATION BY THE APPROPRIATE TAXING AUTHORITY. MEASUREMENT OF THE TAX UNCERTAINTY OCCURS IF THE RECOGNITION THRESHOLD HAS BEEN MET. MANAGEMENT HAS DETERMINED THAT THERE WERE NO TAX UNCERTAINTIES THAT MET THE RECOGNITION THRESHOLD. WITH FEW EXCEPTIONS, THE FOUNDATION'S FEDERAL EXEMPT ORGANIZATION RETURNS ARE NO LONGER SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE FOR YEARS PRIOR TO 2002.
IRS990ScheduleD/Form990ScheduleDPartXIII/Explanation1LOSS/GAIN ON FOREIGN CURRENCY EXCHANGE -413.
IRS990ScheduleD/Form990ScheduleDPartXIII/Identifier0DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48:
IRS990ScheduleD/Form990ScheduleDPartXIII/Identifier1PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/Form990ScheduleDPartXIII/ReturnReference0PART X, LINE 2:
IRS990ScheduleD/OtherExpensesIncluded0-413
IRS990ScheduleD/RevenueNotRptdF99002815
IRS990ScheduleD/RevenueNotRptdOnFinStmt00
IRS990ScheduleD/RevenueSubtotal01625161

Document Assets

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Filings

Displayed year

2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$726,808
Liabilities
$111,727
Net assets
$615,081
Revenue
-
Expenses
$1,137,145
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.26$3.59$2.00$2.95$0.95
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.47$4.75$2.75$3.14$0.39
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.28$5.14$2.52$2.17$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.45$4.79$4.66$2.82$1.84
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.34$2.94$3.29$2.01$1.28
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.97$0.31$1.67$2.91$2.38$0.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.12$1.13$1.53$1.20$0.33
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.14$1.34$0.80$3.90$3.32$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.14$0.23$0.94$1.14$0.20
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.66$0.22$0.44$2.69$2.81$0.12
2014Detailed filing. Detailed filing data is available for this year.$0.64$0.09$0.55$1.16$1.37$0.21
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.17$0.76$1.36$1.21$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.73$0.11$0.62$1.14
2011Summary only. Only limited summary data is available for this year.$0.38$0.25$0.13$3.09$2.22$0.87