Civic Intelligence

Myelodysplastic Syndromes Foundation

990 • Fiscal year 2016 • EIN 22-3283911

Jan 01, 2016 to Dec 31, 2016 • Filed on May 15, 2017

Organization ProfileWWW.MDS-FOUNDATION.ORG

View Organization Page

4573 S Broad Street Suite 150Yardville, NJ 08620

(800) 637-0839

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

79th percentile

0.37x

Higher debt load relative to assets than 79% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

69th percentile

0.15x

Higher debt load relative to revenue than 69% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

14th percentile

-22%

Higher net margin than 14% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

82nd percentile

$82,242

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 8.8% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

3rd percentile

-44%

Faster asset growth than 3% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

3rd percentile

-65%

Faster revenue growth than 3% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets79th percentile

Assets

Down

$367,767

Down $291,591 (-44%) from 2015

Net Assets

Down

$231,727

Down $203,326 (-47%) from 2015

Liabilities

Down

$136,040

Down $88,265 (-39%) from 2015

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin14th percentile

Revenue

Down

$936,890

Down $1,751,738 (-65%) from 2015

Expenses

Down

$1,140,216

Down $1,670,683 (-59%) from 2015

Net Income

Down

-$203,326

Down $81,055 (-66%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth3rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $377,790Liabilities 2011: $251,138Net Assets 2011: $126,6522011Assets 2012: $726,808Liabilities 2012: $111,727Net Assets 2012: $615,0812012Assets 2013: $926,166Liabilities 2013: $166,982Net Assets 2013: $759,1842013Assets 2014: $638,992Liabilities 2014: $86,210Net Assets 2014: $552,7822014Assets 2015: $659,358Liabilities 2015: $224,305Net Assets 2015: $435,0532015Assets 2016: $367,767Liabilities 2016: $136,040Net Assets 2016: $231,7272016Assets 2017: $2,140,370Liabilities 2017: $1,339,352Net Assets 2017: $801,0182017Assets 2018: $1,254,759Liabilities 2018: $120,783Net Assets 2018: $1,133,9762018Assets 2019: $1,973,323Liabilities 2019: $307,887Net Assets 2019: $1,665,4362019Assets 2020: $3,276,887Liabilities 2020: $337,566Net Assets 2020: $2,939,3212020Assets 2021: $5,238,327Liabilities 2021: $445,728Net Assets 2021: $4,792,5992021Assets 2022: $5,422,226Liabilities 2022: $281,335Net Assets 2022: $5,140,8912022Assets 2023: $5,216,502Liabilities 2023: $469,614Net Assets 2023: $4,746,8882023Assets 2024: $3,847,112Liabilities 2024: $257,739Net Assets 2024: $3,589,3732024

Highlighted filing

2016

Assets$367,767
Liabilities$136,040
Net Assets$231,727
Open 2016 Filing

Operations Trend

Revenue Growth3rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $3,089,562Expenses 2011: $2,219,891Net Income 2011: $869,6712011Expenses 2012: $1,137,1452012Revenue 2013: $1,356,083Expenses 2013: $1,212,847Net Income 2013: $143,2362013Revenue 2014: $1,161,788Expenses 2014: $1,372,337Net Income 2014: -$210,5492014Revenue 2015: $2,688,628Expenses 2015: $2,810,899Net Income 2015: -$122,2712015Revenue 2016: $936,890Expenses 2016: $1,140,216Net Income 2016: -$203,3262016Revenue 2017: $3,901,216Expenses 2017: $3,321,416Net Income 2017: $579,8002017Revenue 2018: $1,531,833Expenses 2018: $1,198,934Net Income 2018: $332,8992018Revenue 2019: $2,910,023Expenses 2019: $2,375,459Net Income 2019: $534,5642019Revenue 2020: $3,289,167Expenses 2020: $2,011,416Net Income 2020: $1,277,7512020Revenue 2021: $4,660,616Expenses 2021: $2,815,786Net Income 2021: $1,844,8302021Revenue 2022: $2,521,375Expenses 2022: $2,174,159Net Income 2022: $347,2162022Revenue 2023: $2,749,025Expenses 2023: $3,143,904Net Income 2023: -$394,8792023Revenue 2024: $2,002,126Expenses 2024: $2,953,868Net Income 2024: -$951,7422024

Highlighted filing

2016

Revenue$936,890
Expenses$1,140,216
Net Income-$203,326
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
May 15, 2017
Return Version
2016v3.0
Gross Receipts
$936,890
Mission and Program Overview

Mission

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

Established by an international group of physicians and researchers to provide an ongoing exchange of information relating to mds.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$370,243$180,219▼ $190,024
Savings and Temporary Cash Investments$177,066$128,591▼ $48,475
Land, Buildings, and Equipment, Net$23,486$14,022▼ $9,464
Prepaid Expenses and Deferred Charges$6,063$12,491▲ $6,428
Intangible Assets-$7,500-
Pledges and Grants Receivable$82,500$2,700▼ $79,800
Total Assets$659,358$367,767▼ $291,591
Other Assets Total$0$22,244▲ $22,244
Liabilities
Accounts Payable and Accrued Expenses$174,305$98,855▼ $75,450
Grants Payable$50,000$0▼ $50,000
Other Liabilities$0$22,185▲ $22,185
Deferred Revenue-$15,000-
Total Liabilities$224,305$136,040▼ $88,265
Net Assets / Fund Balance
Temporarily Rstr Net Assets$369,233$141,116▼ $228,117
Unrestricted Net Assets$65,820$90,611▲ $24,791
Total Net Assets Fund Balance$435,053$231,727▼ $203,326
Total Liabilities and Net Assets / Fund Balance$659,358$367,767▼ $291,591

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$14,022$72,439$86,461
Other Assets Org$22,244--
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Tracey IracaSecretaryFT$82,242$82,242
Susan HoganOperating DirectorFT$71,507$71,507
Roberta Smith CPATreasurer-$20,937$20,937

Board Members and Trustees

NameTitle
Stephen D Nimer MdChairman
Alan F List MdBoard Member
Benjamin Ebert Md Phd Through 122Board Member
Charlotte M Niemeyer Md Through 12Board Member
Erin Demakos Rn Ccrn Through 122Board Member
Eva Hellstrom Lindberg Phd MdBoard Member
Ghulam J Muftidm Frcp Frc Path ThrBoard Member
John M Bennett Md Through 12216Board Member
Luca Malcovati MdBoard Member
Mario Cazzola Md Through 12216Board Member
Peter L Greenberg MdBoard Member
Pierre Fenaux MdBoard Member
Sandra E Kurtin Rn Ms Aocn Anp-cBoard Member
Silvia Mm Magalhaes Md Phd ThrouBoard Member
Theo Jm De Witte Md Phd ThroughBoard Member
Yasushi Miyazaki Md Through 12216Board Member
Revenue and Support

Revenue Composition

Contributions and Grants
$893,233
Program Service Revenue
$42,000
Investment Income
$206
Other Revenue
$1,451
All Other Contributions
$831,524
Change in Net Assets
$-203,326

Audited Revenue Reconciliation

Revenue per Audited Statements
$936,890
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$15,577
Total Revenue per Audited Statements
$952,467
Total Revenue per Form 990
$936,890
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$528,647
Salaries, Compensation, and Employee Benefits$497,991
Grants and Similar Amounts Paid$113,578
Total Fundraising Expense$77,735
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$297,855$635$5,792$304,282
Other Salaries and Wages$205,751$56,413$16,617$278,781
Current Officers, Directors, Trustees, and Key Employees$81,768$67,649$24,257$173,674
Grants to Domestic Orgs$90,298--$90,298
Office Expenses$32,779$14,344$9,814$56,937
Payroll Taxes$28,245$11,506$4,104$43,855
Occupancy$21,645$8,817$3,145$33,607
Information Technology$24,100$5,148$3,501$32,749
Travel$25,436$61$486$25,983
Foreign Grants$23,280--$23,280
Fees for Services Other$15,000-$5,416$20,416
Fees for Services Accounting$10,724$4,368$1,558$16,650
Depreciation Depletion$8,657$3,526$1,258$13,441
Advertising$6,699$2,728$973$10,400
Other Expenses$822$2,500$633$3,955
Other Employee Benefits$1,083$441$157$1,681
Interest-$805-$805
Total Functional Expenses$883,464$179,017$77,735$1,140,216

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,155,793
Expenses per Audited Statements$1,140,216
Total Expenses per Form 990$1,140,216
Expenses Not Reported on Form 990$15,577
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Brigham and Womens Hospital IncCharleston, MA501(c)(3)Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$90,298

International Summary

Offices
0
Employees
1
Spending
$23,280

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServicesPatient Forums to Unite Professionals Devoted to Improving the Quality of Life for Patients With Mds and Patients Seeking to Gain Knowledge of the Disease.01$23,280
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Roberta Smith CPAProvided Bookkeeping Services and Is a Member of the Board of DirectorsInvoice on a Per Activity Basis for Accounting and Bookkeeping Services Provided to the FoundationNo$20,937
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Finance Lease Liability$22,185
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“There are two classes of members, professional members, including physicians and accredited researchers, who are professionally involved in treating patients with one or more of the myelodysplastic syndromes and individual patient members/volunteers interested in reporting and promoting the activities of the foundation.”

Form 990, Part VI, Section A, Line 7A

“There shall be two member elected directors, both to be elected by a plurality of the qualified professional members and the standing board members.”

Form 990, Part VI, Section B, Line 11B

“The draft of the form 990 is prepared by an independent accounting firm and provided to the board and the operating director of the foundation for review. The 990 is approved by the chairman of the executive committee and the operating director prior to submission to the irs. The finalized form 990 is made available to the board for further review and comment prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The board reviews and submits a disclosure of relationships statement to management of mds foundation, inc annually.”

Form 990, Part VI, Section B, Line 15A

“The board performs a salary comparability analysis using the 990 information for similar nonprofit organizations.”

Form 990, Part VI, Section C, Line 18

“The organization makes its form 990 available to the public upon request.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.”

Form 990 Page 6, Part VI, Line 4

“The board of trustees underwent a strategic planning initiative in 2016 where one of its goals was to reorganize the governing body to include members of the business community to add diversification of thought, fund developmental opportunities and overall operational direction. As a result some of the board members with medical backgrounds, (md's and phd's) were rotated off the board and onto a medical advisory board. The medical advisory board does not vote in board governance matters.”

Filing and Contact Details

Filer

Filer Name
Mds Foundation Inc
EIN
22-3283911
Phone
8006370839
Address
4573 S BROAD STREET SUITE 150, YARDVILLE, NJ 08620

Signing Officer

Name
Susan Hogan
Title
Operating Director
Phone
8006370839
Signed
2017-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hogan
Formed
1999
Legal Domicile
Nj
Voting Board Members
15
Independent Board Members
15
Employees
8
Volunteers
15

Preparer

Firm
Mercadien Pc
Address
PO BOX 7648, PRINCETON, NJ 08543-7648
Preparer
Sherise D Ritter CPA
Phone
6096899700
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The board has a finance committee that oversees the selection of the audit firm as well as the audit and tax preparation processes. The process remains unchanged from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Income generated by activities that would be considered unrelated to the foundation's mission would be subject to tax, which, if incurred, would be recognized as a current expense. Management evaluated the foundation's tax positions and concluded that the foundation had taken no uncertain tax positions that require adjustment to the financial statement”

Raw XML AppendixShowing 400 of 604 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2016. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATION'S NEW "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIAISON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST. IN ADDITION, EDUCATIONAL SYMPOSIA ARE CONDUCTED FOR ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. AN MDS FOUNDATION BI-ANNUAL CONFERENCE IS CONDUCTED AS WELL. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE DIRECTED TOWARD HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY, AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND HEALTH PROFESSONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
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IRS990/Form990PartVIISectionAGrp/PersonNm9ALAN F LIST MD
IRS990/Form990PartVIISectionAGrp/PersonNm10SILVIA MM MAGALHAES MD PHD THROU
IRS990/Form990PartVIISectionAGrp/PersonNm11YASUSHI MIYAZAKI MD THROUGH 12216
IRS990/Form990PartVIISectionAGrp/PersonNm12GHULAM J MUFTIDM FRCP FRC PATH THR
IRS990/Form990PartVIISectionAGrp/PersonNm13CHARLOTTE M NIEMEYER MD THROUGH 12
IRS990/Form990PartVIISectionAGrp/PersonNm14LUCA MALCOVATI MD
IRS990/Form990PartVIISectionAGrp/PersonNm15EVA HELLSTROM LINDBERG PHD MD
IRS990/Form990PartVIISectionAGrp/PersonNm16TRACEY IRACA
IRS990/Form990PartVIISectionAGrp/PersonNm17ROBERTA SMITH CPA
IRS990/Form990PartVIISectionAGrp/PersonNm18SUSAN HOGAN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1682242
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1720937
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1871507
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt17TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt18OPERATING DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt023280
IRS990/GrantsPayableGrp/BOYAmt050000
IRS990/GrantsPayableGrp/EOYAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt090298
IRS990/GrantsToDomesticOrgsGrp/TotalAmt090298
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0936890
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt03501
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt05148
IRS990/InformationTechnologyGrp/ProgramServicesAmt024100
IRS990/InformationTechnologyGrp/TotalAmt032749
IRS990/IntangibleAssetsGrp/EOYAmt07500
IRS990/InterestGrp/ManagementAndGeneralAmt0805
IRS990/InterestGrp/TotalAmt0805
IRS990/InvestmentIncomeGrp/ExclusionAmt0206
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0206
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt015
IRS990/IRPDocumentW2GCnt015
IRS990/LandBldgEquipAccumDeprecAmt072439
IRS990/LandBldgEquipBasisNetGrp/BOYAmt023486
IRS990/LandBldgEquipBasisNetGrp/EOYAmt014022
IRS990/LandBldgEquipCostOrOtherBssAmt086461
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt061709
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE MDS FOUNDATION, INC. (MDSF) IS AN INTERNATIONAL ORGANIZATION DEVOTED TO THE SUPPORT AND EDUCATION OF PATIENTS AND HEALTHCARE PROVIDERS WITH INNOVATIVE RESEARCH IN THE FIELDS OF MDS AND RELATED MYELOID NEOPLASMS IN ORDER TO ACCELERATE PROGRESS LEADING TO THE CONTROL AND CURE OF THESE DISEASES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0435053
IRS990/NetAssetsOrFundBalancesEOYAmt0231727
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03145
IRS990/OccupancyGrp/ManagementAndGeneralAmt08817
IRS990/OccupancyGrp/ProgramServicesAmt021645
IRS990/OccupancyGrp/TotalAmt033607
IRS990/OfficeExpensesGrp/FundraisingAmt09814
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt014344
IRS990/OfficeExpensesGrp/ProgramServicesAmt032779
IRS990/OfficeExpensesGrp/TotalAmt056937
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt022244
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0157
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0441
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt01083
IRS990/OtherEmployeeBenefitsGrp/TotalAmt01681
IRS990/OtherExpensesGrp/Desc0MATERIAL DEVELOPMENT &
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt024
IRS990/OtherExpensesGrp/FundraisingAmt1633
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt076
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12500
IRS990/OtherExpensesGrp/ProgramServicesAmt09322
IRS990/OtherExpensesGrp/ProgramServicesAmt1822
IRS990/OtherExpensesGrp/TotalAmt09422
IRS990/OtherExpensesGrp/TotalAmt13955
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt022185
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/BusinessCd1541900
IRS990/OtherRevenueMiscGrp/Desc0FOREIGN CURRENCY GAIN
IRS990/OtherRevenueMiscGrp/Desc1MISCELLANEOUS
IRS990/OtherRevenueMiscGrp/ExclusionAmt01141
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0310
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01141
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt1310
IRS990/OtherRevenueTotalAmt01451
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt016617
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt056413
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0205751
IRS990/OtherSalariesAndWagesGrp/TotalAmt0278781
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04104
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt011506
IRS990/PayrollTaxesGrp/ProgramServicesAmt028245
IRS990/PayrollTaxesGrp/TotalAmt043855
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt082500
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02700
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt06063
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt012491
IRS990/PrincipalOfficerNm0SUSAN HOGAN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/Desc0CLINICAL TRIAL ASSISTA
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt042000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt042000
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0265208
IRS990/ProgSrvcAccomActy3Grp/Desc0THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO HEMATOLOGISTS WORLDWIDE WHO CAN REFER PATIENTS INTO THESE PROTOCOLS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0147726
IRS990/ProgSrvcAccomActy3Grp/GrantAmt090298
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt042310
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01411424
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0525610
IRS990/PYInvestmentIncomeAmt0374
IRS990/PYOtherExpensesAmt01847612
IRS990/PYOtherRevenueAmt0553
IRS990/PYProgramServiceRevenueAmt01276277
IRS990/PYRevenuesLessExpensesAmt0-122271
IRS990/PYSalariesCompEmpBnftPaidAmt0437677
IRS990/PYTotalExpensesAmt02810899
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02688628
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-203326
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0177066
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0128591
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0831524
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01299645
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01153628
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01145352
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01618437
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt06048586
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0206
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0374
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0368
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01200
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0769
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt02917
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt097000
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt01721
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0553
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt07792
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0735
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt08770
IRS990ScheduleA/OtherIncome170Grp/TotalAmt019571
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.33940
IRS990ScheduleA/PublicSupportPY170Pct00.48960
IRS990ScheduleA/PublicSupportTotal170Amt02060776
IRS990ScheduleA/SubstantialContributorsTotAmt03987810
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$367,767
Liabilities
$136,040
Net assets
$231,727
Revenue
$936,890
Expenses
$1,140,216
Net income
-$203,326
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.26$3.59$2.00$2.95$0.95
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.47$4.75$2.75$3.14$0.39
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.28$5.14$2.52$2.17$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.45$4.79$4.66$2.82$1.84
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.34$2.94$3.29$2.01$1.28
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.97$0.31$1.67$2.91$2.38$0.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.12$1.13$1.53$1.20$0.33
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.14$1.34$0.80$3.90$3.32$0.58
2016Detailed filing. Detailed filing data is available for this year.$0.37$0.14$0.23$0.94$1.14$0.20
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.66$0.22$0.44$2.69$2.81$0.12
2014Detailed filing. Detailed filing data is available for this year.$0.64$0.09$0.55$1.16$1.37$0.21
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.17$0.76$1.36$1.21$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.73$0.11$0.62$1.14
2011Summary only. Only limited summary data is available for this year.$0.38$0.25$0.13$3.09$2.22$0.87