Civic Intelligence

Myelodysplastic Syndromes Foundation

990 • Fiscal year 2017 • EIN 22-3283911

Jan 01, 2017 to Dec 31, 2017 • Filed on May 04, 2018

4573 S Broad Street Suite 150Yardville, NJ 08620

(800) 637-0839

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

91st percentile

0.63x

Higher debt load relative to assets than 91% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

84th percentile

0.34x

Higher debt load relative to revenue than 84% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Net Margin

66th percentile

15%

Higher net margin than 66% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

62nd percentile

$85,467

Higher top officer pay than 62% of similar nonprofits.

Top officer pay equals 2.2% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

98th percentile

482%

Faster asset growth than 98% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

98th percentile

316%

Faster revenue growth than 98% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2016 to 2017

Assets

Up

$2,140,370

Up $1,772,603 (+482%) from 2016

Net Assets

Up

$801,018

Up $569,291 (+246%) from 2016

Liabilities

Up

$1,339,352

Up $1,203,312 (+885%) from 2016

Revenue

Up

$3,901,216

Up $2,964,326 (+316%) from 2016

Expenses

Up

$3,321,416

Up $2,181,200 (+191%) from 2016

Net Income

Up

$579,800

Up $783,126 (+385%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $377,790Liabilities 2011: $251,138Net Assets 2011: $126,6522011Assets 2012: $726,808Liabilities 2012: $111,727Net Assets 2012: $615,0812012Assets 2013: $926,166Liabilities 2013: $166,982Net Assets 2013: $759,1842013Assets 2014: $638,992Liabilities 2014: $86,210Net Assets 2014: $552,7822014Assets 2015: $659,358Liabilities 2015: $224,305Net Assets 2015: $435,0532015Assets 2016: $367,767Liabilities 2016: $136,040Net Assets 2016: $231,7272016Assets 2017: $2,140,370Liabilities 2017: $1,339,352Net Assets 2017: $801,0182017Assets 2018: $1,254,759Liabilities 2018: $120,783Net Assets 2018: $1,133,9762018Assets 2019: $1,973,323Liabilities 2019: $307,887Net Assets 2019: $1,665,4362019Assets 2020: $3,276,887Liabilities 2020: $337,566Net Assets 2020: $2,939,3212020Assets 2021: $5,238,327Liabilities 2021: $445,728Net Assets 2021: $4,792,5992021Assets 2022: $5,422,226Liabilities 2022: $281,335Net Assets 2022: $5,140,8912022Assets 2023: $5,216,502Liabilities 2023: $469,614Net Assets 2023: $4,746,8882023Assets 2024: $3,847,112Liabilities 2024: $257,739Net Assets 2024: $3,589,3732024

Highlighted filing

2017

Assets$2,140,370
Liabilities$1,339,352
Net Assets$801,018

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $3,089,562Expenses 2011: $2,219,891Net Income 2011: $869,6712011Expenses 2012: $1,137,1452012Revenue 2013: $1,356,083Expenses 2013: $1,212,847Net Income 2013: $143,2362013Revenue 2014: $1,161,788Expenses 2014: $1,372,337Net Income 2014: -$210,5492014Revenue 2015: $2,688,628Expenses 2015: $2,810,899Net Income 2015: -$122,2712015Revenue 2016: $936,890Expenses 2016: $1,140,216Net Income 2016: -$203,3262016Revenue 2017: $3,901,216Expenses 2017: $3,321,416Net Income 2017: $579,8002017Revenue 2018: $1,531,833Expenses 2018: $1,198,934Net Income 2018: $332,8992018Revenue 2019: $2,910,023Expenses 2019: $2,375,459Net Income 2019: $534,5642019Revenue 2020: $3,289,167Expenses 2020: $2,011,416Net Income 2020: $1,277,7512020Revenue 2021: $4,660,616Expenses 2021: $2,815,786Net Income 2021: $1,844,8302021Revenue 2022: $2,521,375Expenses 2022: $2,174,159Net Income 2022: $347,2162022Revenue 2023: $2,749,025Expenses 2023: $3,143,904Net Income 2023: -$394,8792023Revenue 2024: $2,002,126Expenses 2024: $2,953,868Net Income 2024: -$951,7422024

Highlighted filing

2017

Revenue$3,901,216
Expenses$3,321,416
Net Income$579,800
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
May 4, 2018
Return Version
2017v2.2
Gross Receipts
$3,901,216
Mission and Program Overview

Mission

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

Established by an international group of physicians and researchers to provide an ongoing exchange of information relating to mds.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$128,591$1,499,483▲ $1,370,892
Cash and Non-Interest-Bearing Accounts$180,219$358,372▲ $178,153
Pledges and Grants Receivable$2,700$169,942▲ $167,242
Accounts Receivable-$50,000-
Land, Buildings, and Equipment, Net$14,022$40,059▲ $26,037
Intangible Assets$7,500--
Prepaid Expenses and Deferred Charges$12,491$5,453▼ $7,038
Total Assets$367,767$2,140,370▲ $1,772,603
Other Assets Total$22,244$17,061▼ $5,183
Liabilities
Grants Payable-$1,237,239-
Accounts Payable and Accrued Expenses$98,855$84,596▼ $14,259
Other Liabilities$22,185$17,517▼ $4,668
Deferred Revenue$15,000--
Total Liabilities$136,040$1,339,352▲ $1,203,312
Net Assets / Fund Balance
Unrestricted Net Assets$90,611$574,418▲ $483,807
Temporarily Rstr Net Assets$141,116$226,600▲ $85,484
Total Net Assets Fund Balance$231,727$801,018▲ $569,291
Total Liabilities and Net Assets / Fund Balance$367,767$2,140,370▲ $1,772,603

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,793$80,967$88,760
Other Land Buildings$32,266$723$32,989
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Tracey Iraca Aug - PresentExecutive DirectorFT$85,467$85,467
Janice ButchkoSecretaryFT$57,907$57,907
Susan Hogan Jan - AugOperating DirectorFT$38,820$38,820

Board Members and Trustees

NameTitle
Stephen D Nimer MdChairman
Alan F List MdBoard Member
Luca Malcovati MdBoard Member
Peter L Greenberg MdBoard Member
Pierre Fenaux MdBoard Member
Sandra E Kurtin Rn Ms Aocn Anp-cTreasurer (may - Present)
Revenue and Support

Revenue Composition

Contributions and Grants
$2,444,569
Program Service Revenue
$1,454,707
Investment Income
$1,940
Other Revenue
$0
All Other Contributions
$2,372,095
Change in Net Assets
$579,800

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,901,216
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$24,679
Total Revenue per Audited Statements
$3,925,895
Total Revenue per Form 990
$3,901,216
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,550,406
Grants and Similar Amounts Paid$1,292,117
Salaries, Compensation, and Employee Benefits$478,893
Total Fundraising Expense$131,532
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,252,238--$1,252,238
Conferences and Meetings$1,227,854-$238$1,228,092
Other Salaries and Wages$138,961$53,930$54,450$247,341
Current Officers, Directors, Trustees, and Key Employees$73,636$93,497$23,289$190,422
Other Expenses$90,406$0$1,338$91,744
Office Expenses$28,649$9,469$13,925$52,043
Payroll Taxes$19,170$13,294$7,010$39,474
Fees for Services Other$25,532$7,304$5,205$38,041
Occupancy$16,452$11,409$6,016$33,877
Travel$23,142$967$6,426$30,535
Advertising$13,205$9,156$4,923$27,284
Foreign Grants$23,238--$23,238
Fees for Services Accounting$8,572$5,944$3,134$17,650
Grants to Domestic Individuals$16,641--$16,641
Information Technology$7,443$5,161$2,721$15,325
Depreciation Depletion$7,010$4,861$2,563$14,434
Other Employee Benefits$804$558$294$1,656
Interest-$1,381-$1,381
Total Functional Expenses$2,972,953$216,931$131,532$3,321,416

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,346,095
Expenses per Audited Statements$3,321,416
Total Expenses per Form 990$3,321,416
Expenses Not Reported on Form 990$24,679
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Memorial Sloan Kettering Cancer CenterMiddletown, NJ501c3Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$1,142,716
Dana Farber Cancer InstituteBoston, MA501c3Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$39,568
CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501c3Young Investigator Grant$25,000
H Lee Moffitt Cancer Center & ResearchTampa, FL501c3Young Investigator Grant$25,000
Ucsd Moores Cancer CenterLa Jolla, CA501c3Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$19,954

International Summary

Offices
0
Employees
1
Spending
$23,238

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServicesPatient Forums to Unite Professionals Devoted to Improving the Quality of Life for Patients With Mds and Patients Seeking to Gain Knowledge of the Disease.01$23,238
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Finance Lease Liability$17,517
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

There are two classes of members, professional members, including physicians and accredited researchers, who are professionally involved in treating patients with one or more of the myelodysplastic syndromes and individual patient members/volunteers interested in reporting and promoting the activities of the foundation.

Form 990, Part VI, Section A, Line 7A

There shall be two member elected directors, both to be elected by a plurality of the qualified professional members and the standing board members.

Form 990, Part VI, Section B, Line 11B

The draft of the form 990 is prepared by an independent accounting firm and provided to the board and the operating director of the foundation for review. The 990 is approved by the chairman of the executive committee and the operating director prior to submission to the irs. The finalized form 990 is made available to the board for further review and comment prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

The board reviews and submits a disclosure of relationships statement to management of mds foundation, inc annually.

Form 990, Part VI, Section B, Line 15A

The board performs a salary comparability analysis using the 990 information for similar nonprofit organizations.

Form 990, Part VI, Section C, Line 18

The organization makes its form 990 available to the public upon request.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Mds Foundation Inc
EIN
22-3283911
Phone
8006370839
Address
4573 S BROAD STREET SUITE 150, YARDVILLE, NJ 08620

Signing Officer

Name
Tracey Iraca
Title
Executive Director
Phone
8006370839
Signed
2018-05-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tracey Iraca
Formed
1999
Legal Domicile
Nj
Voting Board Members
6
Independent Board Members
6
Employees
8
Volunteers
24

Preparer

Firm
Mercadien Pc
Address
PO BOX 7648, PRINCETON, NJ 08543-7648
Preparer
Sherise D Ritter CPA
Phone
6096899700
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Foreign currency loss -10,509.

FORM 990 PART XII, LINE 2C:

The board has a finance committee that oversees the selection of the audit firm as well as the audit and tax preparation processes. The process remains unchanged from the prior year.

Financial Statement Notes

PART X, LINE 2:

The foundation is exempt from income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Income generated by activities that would be considered unrelated to the foundation's mission would be subject to tax, which, if incurred, would be recognized as a current expense. Management evaluated the foundation's tax positions and concluded that the foundation had taken no uncertain tax positions that require adjustment to the financial statements.

Raw XML AppendixShowing 400 of 558 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2017. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATION'S NEW "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIAISON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST. IN ADDITION, EDUCATIONAL SYMPOSIA ARE CONDUCTED FOR ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. AN MDS FOUNDATION BI-ANNUAL CONFERENCE IS CONDUCTED AS WELL. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE DIRECTED TOWARD HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY, AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND HEALTH PROFESSONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
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IRS990/GrantsToDomesticOrgsGrp/TotalAmt01252238
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03901216
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt06
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02721
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt05161
IRS990/InformationTechnologyGrp/ProgramServicesAmt07443
IRS990/InformationTechnologyGrp/TotalAmt015325
IRS990/IntangibleAssetsGrp/BOYAmt07500
IRS990/InterestGrp/ManagementAndGeneralAmt01381
IRS990/InterestGrp/TotalAmt01381
IRS990/InvestmentIncomeGrp/ExclusionAmt01940
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01940
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt023
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt081690
IRS990/LandBldgEquipBasisNetGrp/BOYAmt014022
IRS990/LandBldgEquipBasisNetGrp/EOYAmt040059
IRS990/LandBldgEquipCostOrOtherBssAmt0121749
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt072474
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE MDS FOUNDATION, INC. (MDSF) IS AN INTERNATIONAL ORGANIZATION DEVOTED TO THE SUPPORT AND EDUCATION OF PATIENTS AND HEALTHCARE PROVIDERS WITH INNOVATIVE RESEARCH IN THE FIELDS OF MDS AND RELATED MYELOID NEOPLASMS IN ORDER TO ACCELERATE PROGRESS LEADING TO THE CONTROL AND CURE OF THESE DISEASES.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0231727
IRS990/NetAssetsOrFundBalancesEOYAmt0801018
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06016
IRS990/OccupancyGrp/ManagementAndGeneralAmt011409
IRS990/OccupancyGrp/ProgramServicesAmt016452
IRS990/OccupancyGrp/TotalAmt033877
IRS990/OfficeExpensesGrp/FundraisingAmt013925
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09469
IRS990/OfficeExpensesGrp/ProgramServicesAmt028649
IRS990/OfficeExpensesGrp/TotalAmt052043
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt022244
IRS990/OtherAssetsTotalGrp/EOYAmt017061
IRS990/OtherChangesInNetAssetsAmt0-10509
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0294
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0558
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0804
IRS990/OtherEmployeeBenefitsGrp/TotalAmt01656
IRS990/OtherExpensesGrp/Desc0MATERIAL DEVELOPMENT &
IRS990/OtherExpensesGrp/FundraisingAmt01338
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt090406
IRS990/OtherExpensesGrp/TotalAmt091744
IRS990/OtherLiabilitiesGrp/BOYAmt022185
IRS990/OtherLiabilitiesGrp/EOYAmt017517
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt054450
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt053930
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0138961
IRS990/OtherSalariesAndWagesGrp/TotalAmt0247341
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt07010
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt013294
IRS990/PayrollTaxesGrp/ProgramServicesAmt019170
IRS990/PayrollTaxesGrp/TotalAmt039474
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt02700
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0169942
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt012491
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt05453
IRS990/PrincipalOfficerNm0TRACEY IRACA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/BusinessCd1541900
IRS990/ProgramServiceRevenueGrp/Desc0SYMPOSIUM
IRS990/ProgramServiceRevenueGrp/Desc1CLINICAL TRIAL ASSISTA
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01400832
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt153875
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01400832
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt153875
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01222964
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt01454707
IRS990/ProgSrvcAccomActy3Grp/Desc0THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO HEMATOLOGISTS WORLDWIDE WHO CAN REFER PATIENTS INTO THESE PROTOCOLS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01343395
IRS990/ProgSrvcAccomActy3Grp/GrantAmt01292117
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0893233
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0113578
IRS990/PYInvestmentIncomeAmt0206
IRS990/PYOtherExpensesAmt0528647
IRS990/PYOtherRevenueAmt01451
IRS990/PYProgramServiceRevenueAmt042000
IRS990/PYRevenuesLessExpensesAmt0-203326
IRS990/PYSalariesCompEmpBnftPaidAmt0497991
IRS990/PYTotalExpensesAmt01140216
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0936890
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0579800
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0128591
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01499483
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02372095
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0831524
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01299645
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01153628
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01145352
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt06802244
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01940
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0206
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0374
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0368
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01200
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt04088
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0150875
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt01721
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0553
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt07792
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0735
IRS990ScheduleA/OtherIncome170Grp/TotalAmt010801
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.33940
IRS990ScheduleA/PublicSupportPY170Pct00.33940
IRS990ScheduleA/PublicSupportTotal170Amt02313587
IRS990ScheduleA/SubstantialContributorsTotAmt04488657
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02372095
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0831524
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01299645
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01153628
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01145352
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt06802244
IRS990ScheduleA/TotalSupportAmt06817133
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt024679
IRS990ScheduleD/DonatedServicesUseFcltsAmt024679
IRS990ScheduleD/EquipmentGrp/BookValueAmt07793
IRS990ScheduleD/EquipmentGrp/DepreciationAmt080967
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt088760
IRS990ScheduleD/ExpensesNotReportedAmt024679
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt03321416
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt032266
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt0723
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt032989
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt017517
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0FINANCE LEASE LIABILITY
IRS990ScheduleD/RevenueNotReportedAmt024679
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt03901216
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND APPLICABLE STATE LAW. INCOME GENERATED BY ACTIVITIES THAT WOULD BE CONSIDERED UNRELATED TO THE FOUNDATION'S MISSION WOULD BE SUBJECT TO TAX, WHICH, IF INCURRED, WOULD BE RECOGNIZED AS A CURRENT EXPENSE. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THAT THE FOUNDATION HAD TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt040059
IRS990ScheduleD/TotalExpensesPerForm990Amt03321416
IRS990ScheduleD/TotalLiabilityAmt017517
IRS990ScheduleD/TotalRevenuePerForm990Amt03901216
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt03925895
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt03346095
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt01
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt023238
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0PATIENT FORUMS TO UNITE PROFESSIONALS DEVOTED TO IMPROVING THE QUALITY OF LIFE FOR PATIENTS WITH MDS AND PATIENTS SEEKING TO GAIN KNOWLEDGE OF THE DISEASE.
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICES
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt05827
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt17411
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt210000
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt1WIRE TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt2WIRE TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt01
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt12
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt21
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt0EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt1EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt2EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt0YOUNG INVESTIGATOR GRANTS
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt1PATIENT FORUM SUPPORT AND REIMBURSABLE EXPENSES
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt2IWG PM MOLECULAR RESEARCH
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt01
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt023238
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE RECOMMENDATIONS FOR THESE REGIONS COME FROM PATIENT LIAISON, AUDREY HASSAN, WHO TRAVELS INTERNATIONALLY ON BEHALF OF MDSF ON A REGULAR BASIS AND IS ALSO THE PROJECT MANAGER OF THE CENTERS OF EXCELLENCE PROGRAM. AUDREY RECOMMENDS REGIONS OUTSIDE OF THE US THAT ARE IN NEED OF ADDITIONAL MDS-SPECIFIC SUPPORT. TRACEY IRACA THEN APPEALS TO THEIR INDUSTRY PARTNERS TO REQUEST SUPPORT TO EDUCATE PATIENTS IN THESE RESPECTIVE REGIONS. IF THE GRANT REQUEST IS APPROVED, THE FUNDS ARE COLLECTED BY MDSF AND THEN DISPERSED TO THE RESPECTIVE REGIONS. IF THE SUPPORT IS FOR A SPECIFIC PATIENT FORUM, MDSF WILL COORDINATE THIS EVENT AND PAY THE EVENT EXPENSES DIRECTLY. IF THE SUPPORT IS FOR A NEWLY DEVELOPED PATIENT SUPPORT GROUP, THE FUNDS WILL BE SENT TO THE LEADER OF THE SUPPORT GROUP TO PAY THE EXPENSES FOR AN INITIAL SUPPORT GROUP MEETING. THIS LEADER MAY BE A PHYSICIAN, A NURSE, OR A PATIENT LEADER - THIS DIFFERS PER REGION.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1FOR PART 1 LINE 3, PART II LINE 1 AND PART III -THE ORGANIZATION UTILIZES THE ACCRUAL BASIS OF ACCOUNTING TO TRACK GRANT EXPENDITURES AND REGIONAL EXPENDITURES. GRANTS AND SYMPOSIUMS ARE CONSIDERED PROGRAM EXPENSES IN THE INCOME STATEMENT AND SCHEDULE OF FUNCTIONAL EXPENSES ON THE FINANCIAL STATEMENT.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1PART I, LINE 3:
IRS990ScheduleF/TotalEmployeeCnt01
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt023238
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt016641
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0INVESTIGATOR INITIATED STUDY GRANT- IWG-PM MOLECULAR PROGNOSTIC ANALYSIS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt03
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/CashGrantAmt125000

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.26$3.59$2.00$2.95$0.95
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.47$4.75$2.75$3.14$0.39
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.28$5.14$2.52$2.17$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.45$4.79$4.66$2.82$1.84
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.34$2.94$3.29$2.01$1.28
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.97$0.31$1.67$2.91$2.38$0.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.12$1.13$1.53$1.20$0.33
2017Detailed filing. Detailed filing data is available for this year.$2.14$1.34$0.80$3.90$3.32$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.14$0.23$0.94$1.14$0.20
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.66$0.22$0.44$2.69$2.81$0.12
2014Detailed filing. Detailed filing data is available for this year.$0.64$0.09$0.55$1.16$1.37$0.21
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.17$0.76$1.36$1.21$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.73$0.11$0.62$1.14
2011Summary only. Only limited summary data is available for this year.$0.38$0.25$0.13$3.09$2.22$0.87