Civic Intelligence

Myelodysplastic Syndromes Foundation

990 • Fiscal year 2014 • EIN 22-3283911

Jan 01, 2014 to Dec 31, 2014 • Filed on May 12, 2015

Organization ProfileWWW.MDS-FOUNDATION.ORG

View Organization Page

4573 S Broad Street Suite 150Yardville, NJ 08620

(800) 637-0839

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.13x

Higher debt load relative to assets than 58% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

51st percentile

0.07x

Higher debt load relative to revenue than 51% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Net Margin

14th percentile

-18%

Higher net margin than 14% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

62nd percentile

$84,210

Higher top officer pay than 62% of similar nonprofits.

Top officer pay equals 7.2% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

5th percentile

-31%

Faster asset growth than 5% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

17th percentile

-14%

Faster revenue growth than 17% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$638,992

Down $287,174 (-31%) from 2013

Net Assets

Down

$552,782

Down $206,402 (-27%) from 2013

Liabilities

Down

$86,210

Down $80,772 (-48%) from 2013

Revenue And Expenses
Liabilities / Revenue51st percentileNet Margin14th percentile

Revenue

Down

$1,161,788

Down $194,295 (-14%) from 2013

Expenses

Up

$1,372,337

Up $159,490 (+13%) from 2013

Net Income

Down

-$210,549

Down $353,785 (-247%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth5th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $377,790Liabilities 2011: $251,138Net Assets 2011: $126,6522011Assets 2012: $726,808Liabilities 2012: $111,727Net Assets 2012: $615,0812012Assets 2013: $926,166Liabilities 2013: $166,982Net Assets 2013: $759,1842013Assets 2014: $638,992Liabilities 2014: $86,210Net Assets 2014: $552,7822014Assets 2015: $659,358Liabilities 2015: $224,305Net Assets 2015: $435,0532015Assets 2016: $367,767Liabilities 2016: $136,040Net Assets 2016: $231,7272016Assets 2017: $2,140,370Liabilities 2017: $1,339,352Net Assets 2017: $801,0182017Assets 2018: $1,254,759Liabilities 2018: $120,783Net Assets 2018: $1,133,9762018Assets 2019: $1,973,323Liabilities 2019: $307,887Net Assets 2019: $1,665,4362019Assets 2020: $3,276,887Liabilities 2020: $337,566Net Assets 2020: $2,939,3212020Assets 2021: $5,238,327Liabilities 2021: $445,728Net Assets 2021: $4,792,5992021Assets 2022: $5,422,226Liabilities 2022: $281,335Net Assets 2022: $5,140,8912022Assets 2023: $5,216,502Liabilities 2023: $469,614Net Assets 2023: $4,746,8882023Assets 2024: $3,847,112Liabilities 2024: $257,739Net Assets 2024: $3,589,3732024

Highlighted filing

2014

Assets$638,992
Liabilities$86,210
Net Assets$552,782
Open 2014 Filing

Operations Trend

Revenue Growth17th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $3,089,562Expenses 2011: $2,219,891Net Income 2011: $869,6712011Expenses 2012: $1,137,1452012Revenue 2013: $1,356,083Expenses 2013: $1,212,847Net Income 2013: $143,2362013Revenue 2014: $1,161,788Expenses 2014: $1,372,337Net Income 2014: -$210,5492014Revenue 2015: $2,688,628Expenses 2015: $2,810,899Net Income 2015: -$122,2712015Revenue 2016: $936,890Expenses 2016: $1,140,216Net Income 2016: -$203,3262016Revenue 2017: $3,901,216Expenses 2017: $3,321,416Net Income 2017: $579,8002017Revenue 2018: $1,531,833Expenses 2018: $1,198,934Net Income 2018: $332,8992018Revenue 2019: $2,910,023Expenses 2019: $2,375,459Net Income 2019: $534,5642019Revenue 2020: $3,289,167Expenses 2020: $2,011,416Net Income 2020: $1,277,7512020Revenue 2021: $4,660,616Expenses 2021: $2,815,786Net Income 2021: $1,844,8302021Revenue 2022: $2,521,375Expenses 2022: $2,174,159Net Income 2022: $347,2162022Revenue 2023: $2,749,025Expenses 2023: $3,143,904Net Income 2023: -$394,8792023Revenue 2024: $2,002,126Expenses 2024: $2,953,868Net Income 2024: -$951,7422024

Highlighted filing

2014

Revenue$1,161,788
Expenses$1,372,337
Net Income-$210,549
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
May 12, 2015
Return Version
2014v5.0
Gross Receipts
$1,161,788
Mission and Program Overview

Mission

Mds foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes.

Established to provide an exchange of information relating to myelodysplastic syndromes.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$658,683$297,162▼ $361,521
Cash and Non-Interest-Bearing Accounts$351$289,922▲ $289,571
Land, Buildings, and Equipment, Net$44,570$40,276▼ $4,294
Accounts Receivable$220,038$8,717▼ $211,321
Prepaid Expenses and Deferred Charges$2,524$2,915▲ $391
Total Assets$926,166$638,992▼ $287,174
Liabilities
Accounts Payable and Accrued Expenses$81,982$62,990▼ $18,992
Grants Payable$85,000$12,500▼ $72,500
Deferred Revenue-$10,720-
Total Liabilities$166,982$86,210▼ $80,772
Net Assets / Fund Balance
Temporarily Rstr Net Assets$671,017$565,826▼ $105,191
Unrestricted Net Assets$88,167$-13,044▼ $101,211
Total Net Assets Fund Balance$759,184$552,782▼ $206,402
Total Liabilities and Net Assets / Fund Balance$926,166$638,992▼ $287,174

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$40,276$44,565$84,841
Compensation and Service Providers
Top Officer Pay62nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Susan HoganOperating DirectorFT$84,210$84,210
Tracey IracaSecretaryFT$79,874$79,874
Roberta Smith CPATreasurer-$23,082$23,082

Board Members and Trustees

NameTitle
Stephen D Nimer MdChairman
Alan F List MdBoard Member
Benjamin Ebert Md PhdBoard Member
Charlotte M Niemeyer MdBoard Member
Erin Demakos Rn CcrnBoard Member
Eva Hellstrom-lindberg Md PhdBoard Member
Ghulam J Mufti MdBoard Member
John M Bennett MdBoard Member
Mario Cazzola MdBoard Member
Peter L Greenberg MdBoard Member
Pierre Fenaux MdBoard Member
Sandra E Kurtin Rn Ms Aocn Anp-cBoard Member
Silvia Mm Magalhaes Md PhdBoard Member
Theo Jm De Witte Md PhdBoard Member
Yasushi Miyazaki MdBoard Member
Franz Schmalzl MdEmeritus Member
Revenue and Support

Revenue Composition

Contributions and Grants
$1,153,628
Program Service Revenue
$0
Investment Income
$368
Other Revenue
$7,792
All Other Contributions
$1,153,628
Change in Net Assets
$-210,549

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,161,788
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$46,064
Total Revenue per Audited Statements
$1,207,852
Total Revenue per Form 990
$1,161,788
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$513,686
Salaries, Compensation, and Employee Benefits$431,311
Grants and Similar Amounts Paid$427,340
Total Fundraising Expense$48,522
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$399,340--$399,340
Conferences and Meetings$296,286$1,311-$297,597
Other Salaries and Wages$150,677$46,408$6,518$203,603
Current Officers, Directors, Trustees, and Key Employees$79,300$78,045$29,821$187,166
Travel$45,456$807$93$46,356
Office Expenses$25,025$12,553$3,312$40,890
Payroll Taxes$24,004$12,041$3,177$39,222
Information Technology$24,850$11,327$719$36,896
Occupancy$20,173$10,118$2,670$32,961
Foreign Grants$28,000--$28,000
Fees for Services Accounting$12,432$6,239$1,646$20,317
Fees for Services Other$14,998--$14,998
Depreciation Depletion$3,471$1,741$459$5,671
Other Employee Benefits$808$405$107$1,320
Other Expenses$309$586-$895
Total Functional Expenses$1,140,234$183,581$48,522$1,372,337

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,414,254
Expenses per Audited Statements$1,372,337
Total Expenses per Form 990$1,372,337
Expenses Not Reported on Form 990$41,917
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Brigham and Womens Hospital IncCharleston, MA501(c)(3)Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$354,340
Ucsd Moores Cancer CenterLa Jolla, CA501(c)(3)Investigator Initiated Study Grant- Iwg-pm Molecular Prognostic Analysis$45,000

International Summary

Offices
0
Employees
1
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServicesInternational Patient Forums to Unite Professionals Devoted to Improving the Quality of Life for Patients With Mds and Patients Seeking to Gain Knowledge of the Disease.01-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“There are two classes of members, professional members, including physicians and accredited researchers, who are professionally involved in treating patients with one or more of the myelodysplastic syndromes and individual patient members/volunteers interested in reporting and promoting the activities of the foundation.”

Form 990, Part VI, Section A, Line 7A

“There shall be two member elected directors, both to be elected by a plurality of the qualified professional members and the standing board members.”

Form 990, Part VI, Section B, Line 11

“The draft of the form 990 is prepared by an independent accounting firm and provided to the board and the operating director of the foundation for review. The 990 is approved by the chairman of the executive committee and the operating director prior to submission to the irs. The finalized form 990 is made available to the board for further review and comment prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The board reviews and submits a disclosure of relationships statement to management of mds foundation, inc annually.”

Form 990, Part VI, Section B, Line 15A

“The board performs a salary comparability analysis using the 990 information for similar nonprofit organizations.”

Form 990, Part VI, Section C, Line 18

“The organization makes its form 990 available to the public upon request.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Mds Foundation Inc
EIN
22-3283911
Phone
8006370839
Address
4573 S BROAD STREET SUITE 150, YARDVILLE, NJ 08620

Signing Officer

Name
Susan Hogan
Title
Operating Director
Phone
8006370839
Signed
2015-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hogan
Formed
1999
Legal Domicile
Nj
Voting Board Members
15
Independent Board Members
15
Employees
6
Volunteers
45

Preparer

Firm
Mercadien Pc
Address
PO BOX 7648, PRINCETON, NJ 08543-7648
Preparer
Sherise D Ritter CPA
Phone
6096899700
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Unrealized gain on foreign currency 4,147.”

Form 990, Part XII, Line 2C

“The executive committee of the board of directors oversees the audit of the foundation's financial statements and makes the selection of an independent auditor. The draft of the financial statements are reviewed and approved by the executive committee. It is then presented to the board of directors and approved. No changes were made to this process or the selection of an independent auditor during the fiscal year 2014.”

Financial Statement Notes

PART X, LINE 2:

“The foundation accounts for uncertainty in income taxes recognized in the financial statements using a recognition threshold of more likely than not as to whether the uncertainty will be sustained upon examination by the appropriate taxing authority. Measurement of the tax uncertainty occurs if the recognition threshold has been met. Management has determined that there were no tax uncertainties that met the recognition threshold. With few exceptions, the foundation's federal exempt organization returns are no longer subject to examination by the internal revenue service for years prior to 2011.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Loss/gain on foreign currency exchange 4,147.”

Raw XML AppendixShowing 400 of 573 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2014. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATION'S NEW "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIAISON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST. IN ADDITION, THE FOUNDATION HOLDS PATIENT AND FAMILY QUALITY-OF-LIFE FORUMS WHICH OFFER AN OPPORTUNITY FOR MDS PATIENTS AND CAREGIVERS TO MEET AND RECEIVE THE MOST UPDATED TREATMENT OPTIONS, CLINICAL STUDY INFORMATION, AND PARTICIPATE IN A QUESTION AND ANSWER SESSION ABOUT THE DISEASE. FROM THESE FORUMS THE FOUNDATION ENCOURAGES PATIENTS AND CAREGIVERS TO FORM AND PARTICIPATE IN PATIENT SUPPORT GROUPS WORLDWIDE. THE FOUNDATION ASSISTS THESE GROUPS AS THEY BECOME ESTABLISHED WITH A GOAL OF HAVING THE GROUPS ULTIMATELY BECOME INDEPENDENT AND SELF-SUSTAINING.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
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IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
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IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15EMERITUS MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt17TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt18OPERATING DIRECTOR
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
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IRS990/ProgSrvcAccomActy3Grp/Desc0THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO HEMATOLOGISTS WORLDWIDE WHO CAN REFER PATIENTS INTO THESE PROTOCOLS.
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$638,992
Liabilities
$86,210
Net assets
$552,782
Revenue
$1,161,788
Expenses
$1,372,337
Net income
-$210,549
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.26$3.59$2.00$2.95$0.95
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.22$0.47$4.75$2.75$3.14$0.39
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.28$5.14$2.52$2.17$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.24$0.45$4.79$4.66$2.82$1.84
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.28$0.34$2.94$3.29$2.01$1.28
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.97$0.31$1.67$2.91$2.38$0.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.12$1.13$1.53$1.20$0.33
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.14$1.34$0.80$3.90$3.32$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.14$0.23$0.94$1.14$0.20
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.66$0.22$0.44$2.69$2.81$0.12
2014Detailed filing. Detailed filing data is available for this year.$0.64$0.09$0.55$1.16$1.37$0.21
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.93$0.17$0.76$1.36$1.21$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.73$0.11$0.62$1.14
2011Summary only. Only limited summary data is available for this year.$0.38$0.25$0.13$3.09$2.22$0.87